Re: Neurosurgeons Assoc. position statement on Chiari/CFS

[Guest guest]

I think that the logic is that once you are dxed with chiari malformation or

cervical compression then as far a the neuro surgeon is concern you don't have

CFS, you have chiari or cervical

compression or whatever diagnosist nomenclature they use. Neuro surgeons all

over the country are doing this procedure. There is a big center in chicago but

even hear in little columbia mo they are

happy to cut holes in your head for a slight fee. But the basis of the procedure

is on the MRI not on the subjective CFS/FM complaints

Steve

kb46@... wrote:

> From: kb46@...

>

> " AANS Does Not Recognize Cervical Decompression As A Treatment For Chronic

> Fatigue Syndrome.

>

> Recent reports on research exploring the use of cervical decompression as a

> treatment for chronic fatigue syndrome have become a subject of concern in

> the neurosurgical community. There is no scientific evidence that chronic

> fatigue syndrome is a neurological disorder or that it requires surgical

> intervention. Therefore, the American Association of Neurological Surgeons

> (AANS) does not recognize the use of cervical decompression as a treatment

> alternative for chronic fatigue syndrome. "

>

> end of quote. The position statement talks about " recent " but there is no

> date on the statement so I don't know when it was written, last year or last

> week.

>

> That is the preamble to the actual position statement that can be viewed at:

>

> http://www.aans.org/aans/ps_chronicfatigue.html

>

> I guess this is the answer to why neurosurgeons are not willing to go out on

> a limb and diagnose and treat CFS sufferers. Drs. Heffez, Rosner and

> Weingart are very brave to bring on the wrath and scorn of their peers. I

> hope that they are right and that they can really help a million or two of us.

>

> Barb

>

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[Guest guest]

Thank you Steve! I had put this in my to answer box. Like the doc said on

20/20, it is a mechanical problem with mechanical solution. If it helps

those dx'ed with CFS then great! Just shows that various disorders can

cause similiar symptoms. Christie

>From: " Dr. Steve " <moores@...>

>>I think that the logic is that once you are dxed with chiari malformation

or cervical compression then as far a the neuro surgeon is concern you don't

have CFS, you have chiari or cervical

>compression or whatever diagnosist nomenclature they use. Neuro surgeons

all over the country are doing this procedure. There is a big center in

chicago but even hear in little columbia mo they are

>happy to cut holes in your head for a slight fee. But the basis of the

procedure is on the MRI not on the subjective CFS/FM complaints

>

>kb46@... wrote:

>

>> From: kb46@...

>>

>> " AANS Does Not Recognize Cervical Decompression As A Treatment For Chronic

>> Fatigue Syndrome.

>

[Guest guest]

and don't try this at home

Steve

" C.Tab. " wrote:

> From: " C.Tab. " <tab@...>

>

> Thank you Steve! I had put this in my to answer box. Like the doc said on

> 20/20, it is a mechanical problem with mechanical solution. If it helps

> those dx'ed with CFS then great! Just shows that various disorders can

> cause similiar symptoms. Christie

>

> >From: " Dr. Steve " <moores@...>

> >>I think that the logic is that once you are dxed with chiari malformation

> or cervical compression then as far a the neuro surgeon is concern you don't

> have CFS, you have chiari or cervical

> >compression or whatever diagnosist nomenclature they use. Neuro surgeons

> all over the country are doing this procedure. There is a big center in

> chicago but even hear in little columbia mo they are

> >happy to cut holes in your head for a slight fee. But the basis of the

> procedure is on the MRI not on the subjective CFS/FM complaints

>

> >

> >kb46@... wrote:

> >

> >> From: kb46@...

> >>

> >> " AANS Does Not Recognize Cervical Decompression As A Treatment For Chronic

> >> Fatigue Syndrome.

> >

>

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>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Dr. Heffez, one of the two doctors featured in the 20/20 segment is at the

Chicago Institute of Neurosurgery and Neuroresearch. Yes, Drs all over the

country are trained to do this surgery, and should be willing treat CFS/FM

patients. The Neurosurgeons Assoc. position statement does not bode well for

what seems logical.

Has anyone on this list contacted any doctor about Chiari other than Dr.

Heffez, Weingart or Rosner? If so, please share the outcome with the list.

Dr. Heffez said in the " live chat " on Monday that how the MRI is read is

crucial. From the many posts to the Chiari (WACMA) list that I've read over

the past few days, not all neurosurgeons are into diagnosing or treating this

condition even in non CFS/FM patients. Drs. Heffez, Weingart and Rosner are

frequently mentioned as doctors that are treating members of the list. It

seems that this mechanical problem with a mechanical answer would be a clear

cut solution for people who have the problem, but upon further analysis it

doesn't seem to be so clear.

On a tangent to this topic, I wonder if the HEMEX docs statement about

thickened blood being a cause of added pressure to the spinal column/cord

means that the HEMEX doc thinks that if you treat the thick blood problem

that surgery could be avoided. It will be interesting to see how this

develops, as the current only treatment for Chiari is surgery.

Barb

<< Neuro surgeons

> all over the country are doing this procedure. There is a big center in

> chicago but even hear in little columbia mo they are

> >happy to cut holes in your head for a slight fee. But the basis of the

> procedure is on the MRI not on the subjective CFS/FM complaints >>