Re: 4 years!!

[Guest guest]

That is great. I am glad your doing so well.

Sent from my iPhone

On Jan 11, 2012, at 9:15, " zlmmom1 " <mcnairmichelle@...> wrote:

> Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> For those of you who don't know me. I have had A since I was about 12 years

old - diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

> It's been a great 4 years and I would go for the ectomy again in a heartbeat.

> Even though I don't post all that often anymore, I am still grateful every day

for this group.

> Wish you all the best and Happy Swallowing!!

>

> ~ in NC

> achalasia free for 4 years and counting...

>

>

[Guest guest]

Congratulations !!!! How wonderful to read that you are hearing those

same (angels singing!!!!) as myself!!!! Yes, I also celebrated my 4 years last

October 1st and totally agree with you. Life is great after the

esophagectomy:-) in Thunder Bay, Ontario

achalasia

From: mcnairmichelle@...

Date: Wed, 11 Jan 2012 14:15:52 +0000

Subject: 4 years!!

Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

Thank you for sharing this - so glad you're doing so well!

I've read different things about the ectomy - would like to ask a few questions:

What did they replace the E with - colon?

Is your stomach positioned higher and does this cause pressure, difficulty?

Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

Thanks!

Kim

________________________________

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Wednesday, January 11, 2012 9:15 AM

Subject: 4 years!!

 

Hey everyone - can you believe it? Today is the 4 year anniversary of my ectomy

and life is good!! I've even put on a few pounds again - I am still a healthy

weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

CONGRATULATION..That sounds a good news. I am praying that my daughter will not

have more issues. She had her HM last February and she is still sometimes had

chest pains.. We pray for cure!

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Wednesday, January 11, 2012 9:15 AM

Subject: 4 years!!

 

Hey everyone - can you believe it? Today is the 4 year anniversary of my ectomy

and life is good!! I've even put on a few pounds again - I am still a healthy

weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

I'm with you all the way, ! Cause for celebration for sure!!!! 

Its great to hear that you, Tracey (NY), , Isabella and (and

others) are doing so well.

Wish the same for , across the pond.

 

From: zlmmom1 <mcnairmichelle@...>

Subject: 4 years!!

achalasia

Date: Wednesday, January 11, 2012, 9:15 AM

 

Hey everyone - can you believe it? Today is the 4 year anniversary of my ectomy

and life is good!! I've even put on a few pounds again - I am still a healthy

weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

Wonder-full!! I don't know you, but have read a number of your old posts, so

you feel like a friend, lol! (The 'nets are a wonderful thang. . . . )

Back in June researching on whatever it was that was happening to me, had gotten

as far as dysmotile esophagus, and some of the " cures " ~~ using a part of the

small intestine as a replacement, or a feeding tube, was creeped out. By the end

of September, when I was actually starving (not quite to death, but close

enough), I was thinking what a blessed relief *either* of those solutions would

be. And had they been suggested then, I would have leaped at the possibility.

And been very grateful.

I think the radiologist was tickled when I recognized that bird's beak. Not me,

so much. . . . However, I think we're all very lucky to be alive *today* and

with the state of medicine where it is: likely many of us would not have made it

a hundred years ago.

So keep enjoying! And check back often: we newbies need to hear the success

stories at ALL levels of this dang " condition " . . . .

xox

-- West-By-God-Virginia

>

> Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> For those of you who don't know me. I have had A since I was about 12 years

old - diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

> It's been a great 4 years and I would go for the ectomy again in a heartbeat.

> Even though I don't post all that often anymore, I am still grateful every day

for this group.

> Wish you all the best and Happy Swallowing!!

>

> ~ in NC

> achalasia free for 4 years and counting...

>

[Guest guest]

Am only able to swallow a bit a lunchtime and the odd biscuit in the afternoon.

Not very good. Am relying more and more on the jejunal feeding tube now. Thank

God that i have that otherwise i would be loosing weight again. Seeing doc about

it again though.

from the UK

________________________________

From: RICHARD FRIEDMAN <cynmark24@...>

achalasia

Sent: Wednesday, January 11, 2012 9:52 PM

Subject: Re: 4 years!!

 

I'm with you all the way, ! Cause for celebration for sure!!!! 

Its great to hear that you, Tracey (NY), , Isabella and (and

others) are doing so well.

Wish the same for , across the pond.

 

From: zlmmom1 <mcnairmichelle@...>

Subject: 4 years!!

achalasia

Date: Wednesday, January 11, 2012, 9:15 AM

 

Hey everyone - can you believe it? Today is the 4 year anniversary of my ectomy

and life is good!! I've even put on a few pounds again - I am still a healthy

weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

That's horrible - so sorry for you. Do they think it could be related to the HM

in blocking nerve transmission to the stomach?

On another note - hope you're taking B12 injections. Also a good antioxidant

source will be key for your nutrition. If you're interested, can give more info

on this.

Kim and Cami

________________________________

From: Phipps <sandraphipps@...>

" achalasia " <achalasia >

Sent: Thursday, January 12, 2012 1:23 PM

Subject: Re: 4 years!!

 

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

Why B12 injections?

Sent from my CrackBerry® powered by Virgin Mobile.

Re: 4 years!!

 

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

Because we're likely not getting enough food/nutrients in our system to have a

decent b12 level - and it's very important to a well functioning brain and

nervous system - and effects our mood and energy levels. Having digestive

difficulties (ie achalasia) and on top of that a malfunctioning stomach -

contributes to the deficiency. The conversion process is complicated and we need

just the right amount of acid in our stomachs to convert it for use in our

bodies.

You can google it - there's a ton on info on b12. You can get a script from the

doctor and for around $10 can buy a vial. It's easy to inject yourself - lots of

that on youtube. You can't get too much so you won't overdose. And it does make

you feel better - especially if you're deficient! 

I don't see enough on this site about getting the proper nutrition. We all

understandably eat whatever we can get down and that in most cases is not a

nutritious diet. I have that same issue. So...whenever I can I take my

antioxidant juice (can't swallow pills of course) and take the b12 injection. It

makes a huge difference in how I feel and cope with all this.  I'm not claiming

any cures, but have had a much easier time since focusing on these supplements.

Here's a link to watch:

http://www.youtube.com/watch?v=Dg-QvfJTdbg 

Best,

Kim

________________________________

From: Jenn Gerrits <adoptivemommy@...>

achalasia

Sent: Thursday, January 12, 2012 3:28 PM

Subject: Re: Re: 4 years!!

 

Why B12 injections?

Sent from my CrackBerry® powered by Virgin Mobile.

Re: 4 years!!

 

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

Agree: my guess is that this disease produces malnutrition just about across the

board. At least up until we're " working " a bit better, lol! Add gastroparesis,

and it's all back on the board. But shots? Shudder (lol!) I take a Jarrow

labs sublingual B12, cheaper, and works very well. I started several years ago

when I simply needed more energy -- hadn't coupled it to the fact that I was

regurging a great deal of what I was eating.

Ginger, BTW, is very good for the tummy. Several of the tube feeding sites

swear by it. And this:

http://www.drweil.com/drw/u/QAA400595/Natural-Treatment-for-Gastroparesis.html

Probiotics are also helpful for some. Can't hurt at any rate.

xox

, WV

>

> Because we're likely not getting enough food/nutrients in our system to have a

decent b12 level - and it's very important to a well functioning brain and

nervous system - and effects our mood and energy levels. Having digestive

difficulties (ie achalasia) and on top of that a malfunctioning stomach -

contributes to the deficiency. The conversion process is complicated and we need

just the right amount of acid in our stomachs to convert it for use in our

bodies.

>

> You can google it - there's a ton on info on b12. You can get a script from

the doctor and for around $10 can buy a vial. It's easy to inject yourself -

lots of that on youtube. You can't get too much so you won't overdose. And it

does make you feel better - especially if you're deficient! 

>

> I don't see enough on this site about getting the proper nutrition. We all

understandably eat whatever we can get down and that in most cases is not a

nutritious diet. I have that same issue. So...whenever I can I take my

antioxidant juice (can't swallow pills of course) and take the b12 injection. It

makes a huge difference in how I feel and cope with all this.  I'm not claiming

any cures, but have had a much easier time since focusing on these supplements.

>

> Here's a link to watch:

> http://www.youtube.com/watch?v=Dg-QvfJTdbg 

>

>

> Best,

> Kim

[Guest guest]

You need B12 injections because once you've had the HM & the ectomy the stomach

can no longer produce this vitamin/folic acid? and you need it to help digest

any food that you eat.

from the UK

________________________________

From: Jenn Gerrits <adoptivemommy@...>

achalasia

Sent: Thursday, January 12, 2012 8:28 PM

Subject: Re: Re: 4 years!!

 

Why B12 injections?

Sent from my CrackBerry® powered by Virgin Mobile.

Re: 4 years!!

 

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

Hey Leda Mae - see my answers below...

>

> Thank you for sharing this - so glad you're doing so well!

>

> I've read different things about the ectomy - would like to ask a few

questions:

>

> What did they replace the E with - colon? ** No - gastric pull up is now the

norm - I explain to non -A people that my end result is probably very similar to

gastric bypass

> Is your stomach positioned higher and does this cause pressure, difficulty?

** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

> Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

** Actually - they can do a lap ectomy - that's what Dr. Rice typically does but

I went to Dr. Luketich in Pittsburgh and he does a combo lap/thorascopic

approach. My biggest incision was on my back - right side - he goes in between

the ribs. Otherwise, several small lap incisions and a chest tube scar. The down

fall of lap only is that you need an incision in your neck but from what I've

heard - the scar fades quickly.

> Thanks!

> Kim

>

>

> ________________________________

> From: zlmmom1 <mcnairmichelle@...>

> achalasia

> Sent: Wednesday, January 11, 2012 9:15 AM

> Subject: 4 years!!

>

>

>  

> Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> For those of you who don't know me. I have had A since I was about 12 years

old - diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

> It's been a great 4 years and I would go for the ectomy again in a heartbeat.

> Even though I don't post all that often anymore, I am still grateful every day

for this group.

> Wish you all the best and Happy Swallowing!!

>

> ~ in NC

> achalasia free for 4 years and counting...

>

>

>

>

>

[Guest guest]

Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did my

surgery. I am doing very well to. I had my surgery with two open incisions,

one on my belly and one on my right side between the ribs. I had a gastric pull

up and they removed 2/3 of my E and 1/4 of my stomach.

mueller IV

Sent from my iPhone

On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

> Hey Leda Mae - see my answers below...

>

>

> >

> > Thank you for sharing this - so glad you're doing so well!

> >

> > I've read different things about the ectomy - would like to ask a few

questions:

> >

> > What did they replace the E with - colon? ** No - gastric pull up is now the

norm - I explain to non -A people that my end result is probably very similar to

gastric bypass

>

> > Is your stomach positioned higher and does this cause pressure, difficulty?

> ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

>

> > Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

> ** Actually - they can do a lap ectomy - that's what Dr. Rice typically does

but I went to Dr. Luketich in Pittsburgh and he does a combo lap/thorascopic

approach. My biggest incision was on my back - right side - he goes in between

the ribs. Otherwise, several small lap incisions and a chest tube scar. The down

fall of lap only is that you need an incision in your neck but from what I've

heard - the scar fades quickly.

>

> > Thanks!

> > Kim

> >

> >

> > ________________________________

> > From: zlmmom1 <mcnairmichelle@...>

> > achalasia

> > Sent: Wednesday, January 11, 2012 9:15 AM

> > Subject: 4 years!!

> >

> >

> > Â

> > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > For those of you who don't know me. I have had A since I was about 12 years

old - diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

> > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > Even though I don't post all that often anymore, I am still grateful every

day for this group.

> > Wish you all the best and Happy Swallowing!!

> >

> > ~ in NC

> > achalasia free for 4 years and counting...

> >

> >

> >

> >

> >

[Guest guest]

I'm planning to see at Emory also for my HM. Sounds like you like him?

Kim

________________________________

From: Mueller IV <mt4mar@...>

" achalasia " <achalasia >

Sent: Friday, January 13, 2012 8:31 AM

Subject: Re: Re: 4 years!!

 

Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did my

surgery. I am doing very well to. I had my surgery with two open incisions,

one on my belly and one on my right side between the ribs. I had a gastric pull

up and they removed 2/3 of my E and 1/4 of my stomach.

mueller IV

Sent from my iPhone

On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

> Hey Leda Mae - see my answers below...

>

>

> >

> > Thank you for sharing this - so glad you're doing so well!

> >

> > I've read different things about the ectomy - would like to ask a few

questions:

> >

> > What did they replace the E with - colon? ** No - gastric pull up is now the

norm - I explain to non -A people that my end result is probably very similar to

gastric bypass

>

> > Is your stomach positioned higher and does this cause pressure, difficulty?

> ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

>

> > Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

> ** Actually - they can do a lap ectomy - that's what Dr. Rice typically does

but I went to Dr. Luketich in Pittsburgh and he does a combo lap/thorascopic

approach. My biggest incision was on my back - right side - he goes in between

the ribs. Otherwise, several small lap incisions and a chest tube scar. The down

fall of lap only is that you need an incision in your neck but from what I've

heard - the scar fades quickly.

>

> > Thanks!

> > Kim

> >

> >

> > ________________________________

> > From: zlmmom1 <mcnairmichelle@...>

> > achalasia

> > Sent: Wednesday, January 11, 2012 9:15 AM

> > Subject: 4 years!!

> >

> >

> > Â

> > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > For those of you who don't know me. I have had A since I was about 12 years

old - diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

> > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > Even though I don't post all that often anymore, I am still grateful every

day for this group.

> > Wish you all the best and Happy Swallowing!!

> >

> > ~ in NC

> > achalasia free for 4 years and counting...

> >

> >

> >

> >

> >

[Guest guest]

Dr. and his team are great. Every time I am up there they are top notch.

I have my yearly check up on Jan 26th. To me Dr. is very down to earth

and really knows his stuff about Achalasia.

When are you going to see him?

Sent from my iPhone

On Jan 13, 2012, at 9:41, Leda Mae <leda444@...> wrote:

> I'm planning to see at Emory also for my HM. Sounds like you like him?

>

> Kim

>

> ________________________________

> From: Mueller IV <mt4mar@...>

> " achalasia " <achalasia >

> Sent: Friday, January 13, 2012 8:31 AM

> Subject: Re: Re: 4 years!!

>

>

>

> Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did my

surgery. I am doing very well to. I had my surgery with two open incisions, one

on my belly and one on my right side between the ribs. I had a gastric pull up

and they removed 2/3 of my E and 1/4 of my stomach.

>

> mueller IV

>

> Sent from my iPhone

>

> On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

>

> > Hey Leda Mae - see my answers below...

> >

> >

> > >

> > > Thank you for sharing this - so glad you're doing so well!

> > >

> > > I've read different things about the ectomy - would like to ask a few

questions:

> > >

> > > What did they replace the E with - colon? ** No - gastric pull up is now

the norm - I explain to non -A people that my end result is probably very

similar to gastric bypass

> >

> > > Is your stomach positioned higher and does this cause pressure,

difficulty?

> > ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

> >

> > > Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

> > ** Actually - they can do a lap ectomy - that's what Dr. Rice typically does

but I went to Dr. Luketich in Pittsburgh and he does a combo lap/thorascopic

approach. My biggest incision was on my back - right side - he goes in between

the ribs. Otherwise, several small lap incisions and a chest tube scar. The down

fall of lap only is that you need an incision in your neck but from what I've

heard - the scar fades quickly.

> >

> > > Thanks!

> > > Kim

> > >

> > >

> > > ________________________________

> > > From: zlmmom1 <mcnairmichelle@...>

> > > achalasia

> > > Sent: Wednesday, January 11, 2012 9:15 AM

> > > Subject: 4 years!!

> > >

> > >

> > > Â

> > > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > > For those of you who don't know me. I have had A since I was about 12

years old - diagnosed in 1983-ish. Had several dilations - then a heller and

Nissen in 1989. did pretty well for awhile but my E had gotten stretched out and

baggy so I went for the ectomy in 2008. Tough time but by 6 months out - very

happy with my results and I couldn't be happier now. I haven't had a spasm in

over 4 years now (cue angels singing!!)

> > > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > > Even though I don't post all that often anymore, I am still grateful every

day for this group.

> > > Wish you all the best and Happy Swallowing!!

> > >

> > > ~ in NC

> > > achalasia free for 4 years and counting...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks for the info - a top thoracic surgeon in the country highly recommended

him. I haven't made a consult appointment yet. Guess I'm riding this wave hoping

it won't crash again!  I've been doing relatively well over the last 3-4 months

and even put on about 5 pounds - when you're only 98 to start with, that's a lot

on my frame.

I'll probably get in to see him within the next couple of months. That way when

and if I do crash, the preliminaries will be out of the way. But my question is

this - if I have a manometry when I'm not struggling like I used to, will it be

accurate? Won't the LES pressure be less anyway than if I wait for the deluge?

Kim

________________________________

From: Mueller IV <mt4mar@...>

" achalasia " <achalasia >

Sent: Friday, January 13, 2012 10:41 AM

Subject: Re: Re: 4 years!!

 

Dr. and his team are great. Every time I am up there they are top notch.

I have my yearly check up on Jan 26th. To me Dr. is very down to earth

and really knows his stuff about Achalasia.

When are you going to see him?

Sent from my iPhone

On Jan 13, 2012, at 9:41, Leda Mae <leda444@...> wrote:

> I'm planning to see at Emory also for my HM. Sounds like you like him?

>

> Kim

>

> ________________________________

> From: Mueller IV <mt4mar@...>

> " achalasia " <achalasia >

> Sent: Friday, January 13, 2012 8:31 AM

> Subject: Re: Re: 4 years!!

>

>

>

> Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did my

surgery. I am doing very well to. I had my surgery with two open incisions, one

on my belly and one on my right side between the ribs. I had a gastric pull up

and they removed 2/3 of my E and 1/4 of my stomach.

>

> mueller IV

>

> Sent from my iPhone

>

> On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

>

> > Hey Leda Mae - see my answers below...

> >

> >

> > >

> > > Thank you for sharing this - so glad you're doing so well!

> > >

> > > I've read different things about the ectomy - would like to ask a few

questions:

> > >

> > > What did they replace the E with - colon? ** No - gastric pull up is now

the norm - I explain to non -A people that my end result is probably very

similar to gastric bypass

> >

> > > Is your stomach positioned higher and does this cause pressure,

difficulty?

> > ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

> >

> > > Was there any disfigurement with the procedure - how do they access the e?

Assume it can't be done laporascopically?

> > ** Actually - they can do a lap ectomy - that's what Dr. Rice typically does

but I went to Dr. Luketich in Pittsburgh and he does a combo lap/thorascopic

approach. My biggest incision was on my back - right side - he goes in between

the ribs. Otherwise, several small lap incisions and a chest tube scar. The down

fall of lap only is that you need an incision in your neck but from what I've

heard - the scar fades quickly.

> >

> > > Thanks!

> > > Kim

> > >

> > >

> > > ________________________________

> > > From: zlmmom1 <mcnairmichelle@...>

> > > achalasia

> > > Sent: Wednesday, January 11, 2012 9:15 AM

> > > Subject: 4 years!!

> > >

> > >

> > > Â

> > > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > > For those of you who don't know me. I have had A since I was about 12

years old - diagnosed in 1983-ish. Had several dilations - then a heller and

Nissen in 1989. did pretty well for awhile but my E had gotten stretched out and

baggy so I went for the ectomy in 2008. Tough time but by 6 months out - very

happy with my results and I couldn't be happier now. I haven't had a spasm in

over 4 years now (cue angels singing!!)

> > > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > > Even though I don't post all that often anymore, I am still grateful every

day for this group.

> > > Wish you all the best and Happy Swallowing!!

> > >

> > > ~ in NC

> > > achalasia free for 4 years and counting...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

That is a good question. With the way this disease is it might be possible not

to get a complete reading. I think there still would give a reading that would

show there is an issue. I can ask that to him when I see him and I will get

back to you. Where do you live?

Sent from my iPhone

On Jan 13, 2012, at 11:17, Leda Mae <leda444@...> wrote:

> Thanks for the info - a top thoracic surgeon in the country highly recommended

him. I haven't made a consult appointment yet. Guess I'm riding this wave hoping

it won't crash again! I've been doing relatively well over the last 3-4 months

and even put on about 5 pounds - when you're only 98 to start with, that's a lot

on my frame.

>

> I'll probably get in to see him within the next couple of months. That way

when and if I do crash, the preliminaries will be out of the way. But my

question is this - if I have a manometry when I'm not struggling like I used to,

will it be accurate? Won't the LES pressure be less anyway than if I wait for

the deluge?

>

> Kim

>

> ________________________________

> From: Mueller IV <mt4mar@...>

> " achalasia " <achalasia >

> Sent: Friday, January 13, 2012 10:41 AM

> Subject: Re: Re: 4 years!!

>

>

>

> Dr. and his team are great. Every time I am up there they are top

notch. I have my yearly check up on Jan 26th. To me Dr. is very down to

earth and really knows his stuff about Achalasia.

>

> When are you going to see him?

>

> Sent from my iPhone

>

> On Jan 13, 2012, at 9:41, Leda Mae <leda444@...> wrote:

>

> > I'm planning to see at Emory also for my HM. Sounds like you like

him?

> >

> > Kim

> >

> > ________________________________

> > From: Mueller IV <mt4mar@...>

> > " achalasia " <achalasia >

> > Sent: Friday, January 13, 2012 8:31 AM

> > Subject: Re: Re: 4 years!!

> >

> >

> >

> > Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did

my surgery. I am doing very well to. I had my surgery with two open incisions,

one on my belly and one on my right side between the ribs. I had a gastric pull

up and they removed 2/3 of my E and 1/4 of my stomach.

> >

> > mueller IV

> >

> > Sent from my iPhone

> >

> > On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

> >

> > > Hey Leda Mae - see my answers below...

> > >

> > >

> > > >

> > > > Thank you for sharing this - so glad you're doing so well!

> > > >

> > > > I've read different things about the ectomy - would like to ask a few

questions:

> > > >

> > > > What did they replace the E with - colon? ** No - gastric pull up is now

the norm - I explain to non -A people that my end result is probably very

similar to gastric bypass

> > >

> > > > Is your stomach positioned higher and does this cause pressure,

difficulty?

> > > ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

> > >

> > > > Was there any disfigurement with the procedure - how do they access the

e? Assume it can't be done laporascopically?

> > > ** Actually - they can do a lap ectomy - that's what Dr. Rice typically

does but I went to Dr. Luketich in Pittsburgh and he does a combo

lap/thorascopic approach. My biggest incision was on my back - right side - he

goes in between the ribs. Otherwise, several small lap incisions and a chest

tube scar. The down fall of lap only is that you need an incision in your neck

but from what I've heard - the scar fades quickly.

> > >

> > > > Thanks!

> > > > Kim

> > > >

> > > >

> > > > ________________________________

> > > > From: zlmmom1 <mcnairmichelle@...>

> > > > achalasia

> > > > Sent: Wednesday, January 11, 2012 9:15 AM

> > > > Subject: 4 years!!

> > > >

> > > >

> > > > Â

> > > > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > > > For those of you who don't know me. I have had A since I was about 12

years old - diagnosed in 1983-ish. Had several dilations - then a heller and

Nissen in 1989. did pretty well for awhile but my E had gotten stretched out and

baggy so I went for the ectomy in 2008. Tough time but by 6 months out - very

happy with my results and I couldn't be happier now. I haven't had a spasm in

over 4 years now (cue angels singing!!)

> > > > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > > > Even though I don't post all that often anymore, I am still grateful

every day for this group.

> > > > Wish you all the best and Happy Swallowing!!

> > > >

> > > > ~ in NC

> > > > achalasia free for 4 years and counting...

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

That would be great. I'm in the East Cobb/Sandy Springs area - just north of the

river on Ferry. You can email directly at leda444@....

Where are you?

Kim

________________________________

From: Mueller IV <mt4mar@...>

" achalasia " <achalasia >

Sent: Friday, January 13, 2012 11:28 AM

Subject: Re: Re: 4 years!!

 

That is a good question. With the way this disease is it might be possible not

to get a complete reading. I think there still would give a reading that would

show there is an issue. I can ask that to him when I see him and I will get

back to you. Where do you live?

Sent from my iPhone

On Jan 13, 2012, at 11:17, Leda Mae <leda444@...> wrote:

> Thanks for the info - a top thoracic surgeon in the country highly recommended

him. I haven't made a consult appointment yet. Guess I'm riding this wave hoping

it won't crash again! I've been doing relatively well over the last 3-4 months

and even put on about 5 pounds - when you're only 98 to start with, that's a lot

on my frame.

>

> I'll probably get in to see him within the next couple of months. That way

when and if I do crash, the preliminaries will be out of the way. But my

question is this - if I have a manometry when I'm not struggling like I used to,

will it be accurate? Won't the LES pressure be less anyway than if I wait for

the deluge?

>

> Kim

>

> ________________________________

> From: Mueller IV <mt4mar@...>

> " achalasia " <achalasia >

> Sent: Friday, January 13, 2012 10:41 AM

> Subject: Re: Re: 4 years!!

>

>

>

> Dr. and his team are great. Every time I am up there they are top

notch. I have my yearly check up on Jan 26th. To me Dr. is very down to

earth and really knows his stuff about Achalasia.

>

> When are you going to see him?

>

> Sent from my iPhone

>

> On Jan 13, 2012, at 9:41, Leda Mae <leda444@...> wrote:

>

> > I'm planning to see at Emory also for my HM. Sounds like you like

him?

> >

> > Kim

> >

> > ________________________________

> > From: Mueller IV <mt4mar@...>

> > " achalasia " <achalasia >

> > Sent: Friday, January 13, 2012 8:31 AM

> > Subject: Re: Re: 4 years!!

> >

> >

> >

> > Oct. 30 2011 was my 4 year post op date. Dr. at Emory in Atlanta did

my surgery. I am doing very well to. I had my surgery with two open incisions,

one on my belly and one on my right side between the ribs. I had a gastric pull

up and they removed 2/3 of my E and 1/4 of my stomach.

> >

> > mueller IV

> >

> > Sent from my iPhone

> >

> > On Jan 13, 2012, at 8:24, " zlmmom1 " <mcnairmichelle@...> wrote:

> >

> > > Hey Leda Mae - see my answers below...

> > >

> > >

> > > >

> > > > Thank you for sharing this - so glad you're doing so well!

> > > >

> > > > I've read different things about the ectomy - would like to ask a few

questions:

> > > >

> > > > What did they replace the E with - colon? ** No - gastric pull up is now

the norm - I explain to non -A people that my end result is probably very

similar to gastric bypass

> > >

> > > > Is your stomach positioned higher and does this cause pressure,

difficulty?

> > > ** Nah - it was tough in the beginning - LOTS of bloating but my body has

adjusted and I eat very well now and have even recently put on a few extra

pounds I didn't need.

> > >

> > > > Was there any disfigurement with the procedure - how do they access the

e? Assume it can't be done laporascopically?

> > > ** Actually - they can do a lap ectomy - that's what Dr. Rice typically

does but I went to Dr. Luketich in Pittsburgh and he does a combo

lap/thorascopic approach. My biggest incision was on my back - right side - he

goes in between the ribs. Otherwise, several small lap incisions and a chest

tube scar. The down fall of lap only is that you need an incision in your neck

but from what I've heard - the scar fades quickly.

> > >

> > > > Thanks!

> > > > Kim

> > > >

> > > >

> > > > ________________________________

> > > > From: zlmmom1 <mcnairmichelle@...>

> > > > achalasia

> > > > Sent: Wednesday, January 11, 2012 9:15 AM

> > > > Subject: 4 years!!

> > > >

> > > >

> > > > Â

> > > > Hey everyone - can you believe it? Today is the 4 year anniversary of my

ectomy and life is good!! I've even put on a few pounds again - I am still a

healthy weight but now have to start watching what I eat.

> > > > For those of you who don't know me. I have had A since I was about 12

years old - diagnosed in 1983-ish. Had several dilations - then a heller and

Nissen in 1989. did pretty well for awhile but my E had gotten stretched out and

baggy so I went for the ectomy in 2008. Tough time but by 6 months out - very

happy with my results and I couldn't be happier now. I haven't had a spasm in

over 4 years now (cue angels singing!!)

> > > > It's been a great 4 years and I would go for the ectomy again in a

heartbeat.

> > > > Even though I don't post all that often anymore, I am still grateful

every day for this group.

> > > > Wish you all the best and Happy Swallowing!!

> > > >

> > > > ~ in NC

> > > > achalasia free for 4 years and counting...

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Glad to hear you are doing so well!

 

Kim A

________________________________

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Wednesday, January 11, 2012 8:15 AM

Subject: 4 years!!

 

Hey everyone - can you believe it? Today is the 4 year anniversary of my ectomy

and life is good!! I've even put on a few pounds again - I am still a healthy

weight but now have to start watching what I eat.

For those of you who don't know me. I have had A since I was about 12 years old

- diagnosed in 1983-ish. Had several dilations - then a heller and Nissen in

1989. did pretty well for awhile but my E had gotten stretched out and baggy so

I went for the ectomy in 2008. Tough time but by 6 months out - very happy with

my results and I couldn't be happier now. I haven't had a spasm in over 4 years

now (cue angels singing!!)

It's been a great 4 years and I would go for the ectomy again in a heartbeat.

Even though I don't post all that often anymore, I am still grateful every day

for this group.

Wish you all the best and Happy Swallowing!!

~ in NC

achalasia free for 4 years and counting...

[Guest guest]

Hi Kim,

 

Thanks for the good info. I have heard from many people how important it is to

take B12 but just kind of let it go to the wayside in the past 8 months when I

stopped being able to swallow pills. Instead I opt for chewable vitamins and

couldn't find this one in chewable. I absolutely hate needles so that is not an

option.

Maybe GNC has chewable form?

 

Kim A

________________________________

From: Leda Mae <leda444@...>

" achalasia " <achalasia >

Sent: Thursday, January 12, 2012 3:09 PM

Subject: Re: Re: 4 years!!

 

Because we're likely not getting enough food/nutrients in our system to have a

decent b12 level - and it's very important to a well functioning brain and

nervous system - and effects our mood and energy levels. Having digestive

difficulties (ie achalasia) and on top of that a malfunctioning stomach -

contributes to the deficiency. The conversion process is complicated and we need

just the right amount of acid in our stomachs to convert it for use in our

bodies.

You can google it - there's a ton on info on b12. You can get a script from the

doctor and for around $10 can buy a vial. It's easy to inject yourself - lots of

that on youtube. You can't get too much so you won't overdose. And it does make

you feel better - especially if you're deficient! 

I don't see enough on this site about getting the proper nutrition. We all

understandably eat whatever we can get down and that in most cases is not a

nutritious diet. I have that same issue. So...whenever I can I take my

antioxidant juice (can't swallow pills of course) and take the b12 injection. It

makes a huge difference in how I feel and cope with all this.  I'm not claiming

any cures, but have had a much easier time since focusing on these supplements.

Here's a link to watch:

http://www.youtube.com/watch?v=Dg-QvfJTdbg 

Best,

Kim

________________________________

From: Jenn Gerrits <adoptivemommy@...>

achalasia

Sent: Thursday, January 12, 2012 3:28 PM

Subject: Re: Re: 4 years!!

 

Why B12 injections?

Sent from my CrackBerry® powered by Virgin Mobile.

Re: 4 years!!

 

My 'ectomy anniversary will be 4 years on February 25th. I was just diagnosed

with gastroparesis at The Cleveland Clinic just before Christmas....rough times

are ahead.

Sent from my iPhone

[Guest guest]

Many companies put out a sublingual B12. It melts under your tongue.

in Santa Barbara

In a message dated 1/18/2012 10:21:14 A.M. Pacific Standard Time,

xploring37@... writes:

Hi Kim,

Thanks for the good info. I have heard from many people how important it

is to take B12 but just kind of let it go to the wayside in the past 8

months when I stopped being able to swallow pills. Instead I opt for chewable

vitamins and couldn't find this one in chewable. I absolutely hate needles so

that is not an option.

Maybe GNC has chewable form?

Kim A

________________________________

From: Leda Mae <_leda444@..._ (mailto:leda444@...) >

" _achalasia _ (mailto:achalasia ) "

<_achalasia _ (mailto:achalasia ) >

Sent: Thursday, January 12, 2012 3:09 PM

Subject: Re: Re: 4 years!!

Because we're likely not getting enough food/nutrients in our system to

have a decent b12 level - and it's very important to a well functioning brain

and nervous system - and effects our mood and energy levels. Having

digestive difficulties (ie achalasia) and on top of that a malfunctioning

stomach

- contributes to the deficiency. The conversion process is complicated and

we need just the right amount of acid in our stomachs to convert it for

use in our bodies.

You can google it - there's a ton on info on b12. You can get a script

from the doctor and for around $10 can buy a vial. It's easy to inject

yourself - lots of that on youtube. You can't get too much so you won't

overdose.

And it does make you feel better - especially if you're deficient!

I don't see enough on this site about getting the proper nutrition. We all

understandably eat whatever we can get down and that in most cases is not

a nutritious diet. I have that same issue. So...whenever I can I take my

antioxidant juice (can't swallow pills of course) and take the b12 injection.

It makes a huge difference in how I feel and cope with all this. I'm not

claiming any cures, but have had a much easier time since focusing on these

supplements.

Here's a link to watch:

_http://www.youtube.com/watch?v=Dg-QvfJTdbg_ (http://www.you

tube.com/watch?v=Dg-QvfJTdbg)

Best,

Kim

________________________________

From: Jenn Gerrits <_adoptivemommy@..._

(mailto:adoptivemommy@...) >

_achalasia _ (mailto:achalasia )

Sent: Thursday, January 12, 2012 3:28 PM

Subject: Re: Re: 4 years!!

Why B12 injections?

Sent from my CrackBerry® powered by Virgin Mobile.

Re: 4 years!!

My 'ectomy anniversary will be 4 years on February 25th. I was just

diagnosed with gastroparesis at The Cleveland Clinic just before

Christmas....rough times are ahead.

Sent from my iPhone