Re: Post HM: pressure of esophagus muscle contractions

[Guest guest]

wrote:

>

> ... Since Achalasia is a progressive disease, I think that nerves of

> my esophagus will eventually die and thus there would not be any

> pressure left in esophagus muscle contractions then. ...

>

We are all different. We progress at very different rates. Some progress

further than others. I probably had achalasia for decades before I was

diagnosed. I then waited six years to get the myotomy. Now another six

years later I am doing fine. Others progress very quickly, some all the

way to end stage (end stage because no matter how much or how long you

progress there is no other stage after it to progress to).

> My question is that is there any precaution or anything else could be

> done in the meantime to stop or delay this progressive disease?

>

There are no guarantees, but thing that get suggested in this support

group are: don't go to sleep soon after eating, don't over distend the

esophagus (if you can even tell when that is happening), avoid things

that irritate the esophagus, watch out for overly hot food that may burn

the esophagus, be careful with pills that may get stuck and irritate or

burn the esophagus, if you have acid reflux take care of it, if your

symptoms change (more than the occasional glitch) consider getting them

checked out. I probably forgot something. Lots of idea in this group.

> I heard people talking about Vitamin B which may be helpful to improve

> the health of overall nervous system. Should I start taking Vitamin B

> then? I was tested on Vitamin B few months ago and I was on low side

> of it. I started taking Vitamin B then but it didn't help with Achalasia.

>

It isn't B vitamin it is B vitamins, plural. You do not want to over do

B6 but a lot of B supplements contain it also. B12 is the one people

here are most concerned about. It is likely the one you were tested for.

B12 is very safe as a supplement. B3, also known as niacin is also one

you don't want too much of. B9 also known as folic acid is one you don't

want to be low in but there is some evidence that you can get too much

of it too. There are other Bs. I think the best thing to do if concerned

is get tested and just supplement those that are low.

notan

[Guest guest]

,

 

I am just curious but was it that Achalasia and it's symptoms in the beginning

did not bother you much or was it that there were not enough available resources

back then for treatment that made it take so long to get an accurate diagnosis?

The nurse who did my manometries said that I was very lucky to have been

diagnosed in 4-5 months and that it takes many people an average of 5 years

before they are diagnosed. I just can't imagine becasue as soon as I had that

horrible test they knew right away what it was. Originally they were going to do

a 24 hour ph study as well but I barely made it through manometry so they

didn't. But then again Froedert has a dysphagia clinic and many GI's in it.

 

Best advise I can give anyone is get the best, most experienced with Achalasia

GI doctor you can find.

 

All I know is if I hadn't gotten treatment when I did I would be a bag of bones

on feeding tubes right now!

________________________________

From: notan ostrich <notan_ostrich@...>

achalasia

Sent: Saturday, January 7, 2012 11:44 PM

Subject: Re: Post HM: pressure of esophagus muscle contractions

 

wrote:

>

> ... Since Achalasia is a progressive disease, I think that nerves of

> my esophagus will eventually die and thus there would not be any

> pressure left in esophagus muscle contractions then. ...

>

We are all different. We progress at very different rates. Some progress

further than others. I probably had achalasia for decades before I was

diagnosed. I then waited six years to get the myotomy. Now another six

years later I am doing fine. Others progress very quickly, some all the

way to end stage (end stage because no matter how much or how long you

progress there is no other stage after it to progress to).

> My question is that is there any precaution or anything else could be

> done in the meantime to stop or delay this progressive disease?

>

There are no guarantees, but thing that get suggested in this support

group are: don't go to sleep soon after eating, don't over distend the

esophagus (if you can even tell when that is happening), avoid things

that irritate the esophagus, watch out for overly hot food that may burn

the esophagus, be careful with pills that may get stuck and irritate or

burn the esophagus, if you have acid reflux take care of it, if your

symptoms change (more than the occasional glitch) consider getting them

checked out. I probably forgot something. Lots of idea in this group.

> I heard people talking about Vitamin B which may be helpful to improve

> the health of overall nervous system. Should I start taking Vitamin B

> then? I was tested on Vitamin B few months ago and I was on low side

> of it. I started taking Vitamin B then but it didn't help with Achalasia.

>

It isn't B vitamin it is B vitamins, plural. You do not want to over do

B6 but a lot of B supplements contain it also. B12 is the one people

here are most concerned about. It is likely the one you were tested for.

B12 is very safe as a supplement. B3, also known as niacin is also one

you don't want too much of. B9 also known as folic acid is one you don't

want to be low in but there is some evidence that you can get too much

of it too. There are other Bs. I think the best thing to do if concerned

is get tested and just supplement those that are low.

notan