Re: Re: When to worry?

[Guest guest]

Some fizzy pop seems to help because it makes be burp (liquid) to slosh it back

down.

J

Sent from my CrackBerry® powered by Virgin Mobile.

Re: When to worry?

I think I would start to worry if it's there for days and you can't eat or

drink. Otherwise, I think occasional issues are bound to happen, and just need

to try to stay calm, move around, and try to drink fluids to get it moving.

>

> So I could feel something stuck yesterday that just didn't seem to be going

anywhere. It wasn't affecting anything other than being annoying to feel it

there. I regurged a lot in my sleep last night and it seems to have dislodged. I

don't want to go to the hosp every time something like this happens. At what

point do we need to go in?

>

> This is all still so new to me. I have a lot to learn. :/

>

> Jenn

> Sent from my CrackBerry� powered by Virgin Mobile.

>

[Guest guest]

Viagra?  I saw something on that for A - how did you take it (daily dose or

just with spasm)?  Did it give you any adverse side effects? I'm willing to try

anything for the spasms....

Kim

________________________________

From: puddleriver13 <puddleriver13@...>

achalasia

Sent: Saturday, January 21, 2012 9:41 AM

Subject: Re: When to worry?

 

" compponenets " ? Yikes! What was my spellchecker thinking, lol1? Lets try

" components " ~~

Been thinking back over the progress of this disease, for me, and others here.

We *know* the reason it happens is that the nerve receptors for relaxation in

the LES and esophagus stop working/die. But. It's SO uneven. There are

episodes, of days, or weeks or even months, where it's awful. And then it gets

" better " ~~BUT: it's NOT really getting better, is it? Just waiting for the

next time around. And when it is being better, we all just relax, say " Whew! "

and believe/hope/pray that whatever it is, it stays gone. But of course it

*doesn't* stay gone, it comes back in a slightly different form. And then

finally, in a much worse/final form. Some are " lucky " and don't have the years

long buildup, are just hit with the final stage, full blown, or nearly so. What

I want to know is WHY? I know in my own case, initially, it just left on its

own; later, I was adding things, pills, to my diet, that aided with nerve

transmission, and " tube " relaxation

(me n my doc were working with a Diffuse Esaphogeal Spasm model, and those meds

DID help. In my case, Hyoscyamine (Levsin) -- which I've noted a number of

members in the early days of this board were taking -- with my doc's blessing

and aid, and Viagra (on my own) -- both *helped* but clearly didn't cure

whatever was going on. The vitamin B100 combo did, also. Some. The irony is, I

think, that the last year was the MOST pain free I've had since it started.

That invisible hand clutching at the throat, esophagus, was gone. That solid

engorged blockage didn't happen any more. Everything was just pretty

effortlessly returned. Or almost everything. Meanwhile, I simply began to

starve to death.

I think the increased saliva and mucous is simply our body's attempt to make

movement in the " pipe " easier -- as if it (the body) says to itself: well this

isn't working, what can I do to help? -- I also think for me, BECAUSE of my

nine months of morning sickness with my first kid, it meant regurging, as

opposed to trying to force it on into the stomach, with the resultant

enlargement of the esophagus.

But what causes the " flare up " ? The really bad periods? Some of my worst were

at times I was exquisitely happy; and some of the best were at a time I was

devastated over the death of my mate. Looking for causes of exacerbation and

amelioration in the progress of this " condition " in the medical literature, and

it just isn't there. Not only NOT a cause of concern for the medical community,

not even an item to notice. It's easy to say it's just stress, but I don't

think it is. Guess I'll prolly be dead before they find out, if they ever do. .

.. .

And, Ah, well. . . . Not going to solve this on a cold icy winter morning.

xox

> >

> > So I could feel something stuck yesterday that just didn't seem to be going

anywhere. It wasn't affecting anything other than being annoying to feel it

there. I regurged a lot in my sleep last night and it seems to have dislodged. I

don't want to go to the hosp every time something like this happens. At what

point do we need to go in?

> >

> > This is all still so new to me. I have a lot to learn. :/

> >

> > Jenn

> > Sent from my CrackBerry® powered by Virgin Mobile.

> >

>