Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Hi Lindell,  Sorry to read how frustrating this has been for you. In my case, nifedipine did the trick, but soda (caffeine or decaff, doesn't matter), is my preferred choice, since it does not involve taking drugs and works faster. Easy for me to say, but you have to keep trying things. Over the years so many suggestions have been made by people who try things out of left field that they find works (though not all things work all the time, and some things only work when taken immediately).  Probaby speaking to your GI is a total waste of time, as you recognize. What about other things (off the top of my head) that people have tried, such as sipping ice cubes, or ice, or icicles, eating crackers, drinking soup, hot water, cold water. There have been so many suggestions, perhaps one might turn out to be your " cup of tea. "  (Oh, I forgot, you said tea makes it worse)  Then there is the question to ask, but maybe only after you have tried everything imaginable - " what makes your esophagus different that it does not respond to " treatments? "  I don't recall if you have posted as to how long ago you had your HM, but as you probably know, people who have had HM's tend to have spasms worse initially.  Please try following other suggestions until you find something that works, or find a better GI doctor.  ________________________________ From: Lindell <lindelljackson@...> " achalasia " <achalasia > Sent: Thursday, February 9, 2012 4:44 PM Subject: Esophageal Spasms!  Hello Group! What does everyone do when they have Esophageal Spasms after they've had a HM? It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. Frustrated and in pain, Lindell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 This isn't from personal experience, as my spasms went before the active Achalasia started, but there seems to be fairly good response here to a low dose of Paxil (before anything happens, not after). . . . achalasia/msearch?query=paxil+spasms & submit\ =Search & charset=UTF-8 This one especially: achalasia/message/62720 Good luck and bon courage! > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 I have just come from the emergency room,, but this time is was for myself not my son who had a heller with a dor 3 years ago on the 11th of this month. I suffer from gerd and last nights one was a dozy. I am saying this because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I too have given my son every know drug and liquid ( hot, cold, tepid, water, gatorade ext). Could this combination work for spasms too, I wonder. As luck would have it I just happen to have 2% lidocaine viscous st home. The next time my son has a spasm I will try this cocktail and see what if it is effective. Maybe, just maybe. Has anyone tried this combo, if so what was your experience? ...angela Connected by DROID on Verizon Wireless Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 So sorry you're having this problem post HM!  I haven't had mine yet, but have found that Donnatal helps if I get to it quickly. Since I can't swallow at all with spasms, I just let it melt sublingualy and in most cases it brings relief. I hope you find your remedy quickly - and a doc that will help! Kim ________________________________ From: Lindell <lindelljackson@...> " achalasia " <achalasia > Sent: Thursday, February 9, 2012 4:44 PM Subject: Esophageal Spasms!  Hello Group! What does everyone do when they have Esophageal Spasms after they've had a HM? It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. Frustrated and in pain, Lindell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 Hey Lindell! I do have a recommendation. I was having spasms that were INCREDIBLY painful. They would take me down for up to 36 hours. I would cry and cry, and nothing would help. Doctors had tried me on EVERYTHING it seems, and I had almost completely lost hope. THANK GOD, I ended up asking my GI doctor for something that would just knock me out during the episodes, so I wouldn't just have to suffer. He wrote me phenergan suppositories....my life will never be the same. These have been a MIRACLE for me since this past October, no joke. They do have a laxitive effect, and they put me to sleep for 2-4 hours, but then I'm fine! There have also been times where the suppository JUST stopped the spasms and didn't put me to sleep, though. Now, if I get hit with an episode in the morning before work, I only have to miss HALF a day of work, as opposed to an entire day (very important to me to be able to go to work). I definitely suggest giving these a try if the spasms are debilitating for you like they were for me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 I agree with Kim, but I take Donnatol at least 4 times a day just to keep the spasms from happening and they still happen. If real bad then a GI Cocktail. Warm to hot water also helps.  Good luck Sharon  From: Leda Mae <leda444@...> Subject: Re: Esophageal Spasms! " achalasia " <achalasia > Date: Friday, February 10, 2012, 8:14 AM  So sorry you're having this problem post HM!  I haven't had mine yet, but have found that Donnatal helps if I get to it quickly. Since I can't swallow at all with spasms, I just let it melt sublingualy and in most cases it brings relief. I hope you find your remedy quickly - and a doc that will help! Kim ________________________________ From: Lindell <lindelljackson@...> " achalasia " <achalasia > Sent: Thursday, February 9, 2012 4:44 PM Subject: Esophageal Spasms!  Hello Group! What does everyone do when they have Esophageal Spasms after they've had a HM? It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. Frustrated and in pain, Lindell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 That is known as a GI Cocktail and it is the most awesome thing when nothing else will work. I have been using it for years. I had my myotomy in 1999.  Sharon From: kotacj@... <kotacj@...> Subject: Re: Re: Esophageal Spasms! achalasia Date: Friday, February 10, 2012, 5:47 AM  I have just come from the emergency room,, but this time is was for myself not my son who had a heller with a dor 3 years ago on the 11th of this month. I suffer from gerd and last nights one was a dozy. I am saying this because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I too have given my son every know drug and liquid ( hot, cold, tepid, water, gatorade ext). Could this combination work for spasms too, I wonder. As luck would have it I just happen to have 2% lidocaine viscous st home. The next time my son has a spasm I will try this cocktail and see what if it is effective. Maybe, just maybe. Has anyone tried this combo, if so what was your experience? ...angela Connected by DROID on Verizon Wireless Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 When you talk about spasms, are you referring to a sharp pain in your chest like heartburn, that for me at times can be so severe that I just want to curl up in the fetal position and cry out in pain. The first few times I have had them I have thought it was an acid reflux attack but no matter what I have tried in the antiacid realm never takes the pain away. So I discovered the other day that eating a cup of yogurt help to subside the pain. Not quite sure why yogurt works for me but I am glad I finally have found something that helps. Sometimes I have to couple the yogurt with a hot shower before the pain subsides. Has anyone else tried a hot shower or yogurt? Thanks! I have recently been correctly diagnosed with Achalasia and preparing for HM with a Nissen Fundoplication surgery in April. For 4 years I suffered with this and the doctors kept telling me it was GERD and trying me every acid reflux medication under the sun but they all made me feel worse. I sure hope the HM relieves the insanity of what my life has become and I can get back to a normal life again. Thanks! Geoff On Fri, Feb 10, 2012 at 12:19 PM, Sharon Cline <sharon_cline@...>wrote: > ** > > > That is known as a GI Cocktail and it is the most awesome thing when > nothing else will work. I have been using it for years. I had my myotomy > in 1999. > > Sharon > > > > From: kotacj@... <kotacj@...> > Subject: Re: Re: Esophageal Spasms! > achalasia > Date: Friday, February 10, 2012, 5:47 AM > > > > > I have just come from the emergency room,, but this time is was for myself > not my son who had a heller with a dor 3 years ago on the 11th of this > month. I suffer from gerd and last nights one was a dozy. I am saying this > because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml > Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I > too have given my son every know drug and liquid ( hot, cold, tepid, water, > gatorade ext). Could this combination work for spasms too, I wonder. As > luck would have it I just happen to have 2% lidocaine viscous st home. The > next time my son has a spasm I will try this cocktail and see what if it is > effective. Maybe, just maybe. Has anyone tried this combo, if so what was > your experience? ...angela > > Connected by DROID on Verizon Wireless > > Re: Esophageal Spasms! > > Hi Lindell, > > I always have water on hand and that works most of the time. If it > doesn't, I then chew a Gaviscon and wash it down with water. > > > > > > > > Hello Group! > > What does everyone do when they have Esophageal Spasms after they've had > a HM? > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > it worse. > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > sipping luke warm water, ginger ale, and hot water bottles. > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > need a 2nd Surgery. > > I can tell you right now that I will not have a second surgery until I'm > down to 100 lbs. > > Frustrated and in pain, > > Lindell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 Geoffrey, that is exactly what we call spasms and they are painful. The pain is NCCP (Non-cardiac chest pain). For me they radiate up into my neck and arms and jaws. I have a pain tablet I can take as well as Donnatol (anti-spasm) and even Anti-acid. They help, but you just have to figure out what works for you.  Sharon Cline > > From: kotacj@... <kotacj@...> > Subject: Re: Re: Esophageal Spasms! > achalasia > Date: Friday, February 10, 2012, 5:47 AM > > > > > I have just come from the emergency room,, but this time is was for myself > not my son who had a heller with a dor 3 years ago on the 11th of this > month. I suffer from gerd and last nights one was a dozy. I am saying this > because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml > Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I > too have given my son every know drug and liquid ( hot, cold, tepid, water, > gatorade ext). Could this combination work for spasms too, I wonder. As > luck would have it I just happen to have 2% lidocaine viscous st home. The > next time my son has a spasm I will try this cocktail and see what if it is > effective. Maybe, just maybe. Has anyone tried this combo, if so what was > your experience? ...angela > > Connected by DROID on Verizon Wireless > > Re: Esophageal Spasms! > > Hi Lindell, > > I always have water on hand and that works most of the time. If it > doesn't, I then chew a Gaviscon and wash it down with water. > > > > > > > > Hello Group! > > What does everyone do when they have Esophageal Spasms after they've had > a HM? > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > it worse. > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > sipping luke warm water, ginger ale, and hot water bottles. > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > need a 2nd Surgery. > > I can tell you right now that I will not have a second surgery until I'm > down to 100 lbs. > > Frustrated and in pain, > > Lindell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 Before my HM surgery I had esophageal spasms for almost two years. What worked for me was eating apple always get rid of pain right away. So I always kept apple(s) in my car, office, at bed side or even in my jacket when I go out ... > > > > > > Hello Group! > > > What does everyone do when they have Esophageal Spasms after they've had > > a HM? > > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > > it worse. > > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > > sipping luke warm water, ginger ale, and hot water bottles. > > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > > need a 2nd Surgery. > > > I can tell you right now that I will not have a second surgery until I'm > > down to 100 lbs. > > > Frustrated and in pain, > > > Lindell > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 I have been having wicked spasms these last few weeks. I know it is stress. I can usually chug water and have it work, but if I am really stressy NOTHING gets through the LES so I end up chugging it to settle the spasms and regurging the water once it warms. Did this already once today. I am very interested in the malox and lidocaine. We always called that a pink lady at work. I think I might look in to this to see if it would work. Happy vday everyone! Jenn in Canada Sent from my CrackBerry® powered by Virgin Mobile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 How awful! i use carbonation.. but i take caffine. diet pepsi or whatever i can get my hands on. warm water is helpful for me too. if you are down to a hundred pounds you maybe should consider having something done. God Bless you! Kim in the Deep South > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 Everyone, I just had a spasm - one of those that comes on strong and fast. I thought I was going to be down for several hours at least. Then I remembered my mom left me some paregoric to try. I took about 1/2 tsp. and let it swish in my mouth before attempting to swallow (VERY hard for me to swallow anything with spasm). All I can say is my spasm was OVER in less than 10 minutes! I hope this is the answer - I do know it's hard to get now in the U.S., but I WILL find a way if needed. Just want to share this in hopes it can help some of you all. Kim ________________________________ From: Jenn Gerrits <adoptivemommy@...> achalasia Sent: Tuesday, February 14, 2012 7:23 AM Subject: Re: Re: Esophageal Spasms! I have been having wicked spasms these last few weeks. I know it is stress. I can usually chug water and have it work, but if I am really stressy NOTHING gets through the LES so I end up chugging it to settle the spasms and regurging the water once it warms. Did this already once today. I am very interested in the malox and lidocaine. We always called that a pink lady at work. I think I might look in to this to see if it would work. Happy vday everyone! Jenn in Canada Sent from my CrackBerry® powered by Virgin Mobile. ------------------------------------ HealthShare International Support Network and CheckOrphan have teamed up to offer a private, nonprofit, global community serving patients, family members, friends, educators and medical professionals. We are dedicated to providing the latest news and disease information and support. The CheckOrphan-HealthShare community center is the meeting place for all of our individual support group members. The community center offers members a safe and private environment to come together, make friends, share information and support with others beyond their own private communities. Join us at http://myhealthshare.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 Ok it's official, the lidocaine and Maalox combination worked on my son's spasm, took it 10 min ago, spasm 95 percent eliminated. Happy saint valentines day. Connected by DROID on Verizon Wireless Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 Hope he enjoyed his pink lady! Lol Sent from my CrackBerry® powered by Virgin Mobile. Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Don't think he enjoyed it, but he was thrilled with the results. Do any of u A folks have issues with food texture? Every since Dakota was a little guy seems he always had these food texture issues. The most picky eater I have ever seen. He will also develop randomly what has been called a geographical tongue, it comes and goes. I have heard some of these symptoms can be associated with asbergers. Though the texture and tongue thing seem to be the only similarity. Just wondering? Connected by DROID on Verizon Wireless Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Well, I think I am going to have to find a new solution for resolving my spasms. Yesterday morning, I had a major episode that lasted for 4+ hours. Was so strong that I became very weak and could barely stand up. Tried lukewarm water and it did help lessen the pain but it just would not go away. The end result is that before this episode I was still able to eat solid foods, well now that seems to be a thing I use to be able to do. Looks like I may be on a liquid diet until after surgery in April. I am going to look into trying all of your liquid suggestions and see what works. BTW - I could accept losing 100 lbs. to get down to 250 lbs. at one time I was close to 500 lbs. over 5 years ago, today just dropped below 350 lbs. goal is 225 lbs. I am a 6' tall muscular man so 225 is a good weight for my build. Geoff On Wed, Feb 15, 2012 at 8:23 AM, kotacj@... <kotacj@...> wrote: > ** > > > Don't think he enjoyed it, but he was thrilled with the results. Do any of > u A folks have issues with food texture? Every since Dakota was a little > guy seems he always had these food texture issues. The most picky eater I > have ever seen. He will also develop randomly what has been called a > geographical tongue, it comes and goes. I have heard some of these symptoms > can be associated with asbergers. Though the texture and tongue thing seem > to be the only similarity. Just wondering? > > Connected by DROID on Verizon Wireless > > Re: Esophageal Spasms! > > Hi Lindell, > > I always have water on hand and that works most of the time. If it > doesn't, I then chew a Gaviscon and wash it down with water. > > > > > > > > > > Hello Group! > > > What does everyone do when they have Esophageal Spasms after they've had > a HM? > > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > it worse. > > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > sipping luke warm water, ginger ale, and hot water bottles. > > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > need a 2nd Surgery. > > > I can tell you right now that I will not have a second surgery until I'm > down to 100 lbs. > > > Frustrated and in pain, > > > Lindell > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Geof, I hope you do find a solution to the spasms. My memory of them about equals hell on earth. But as for the not being able to do solid foods. . . . You need to know, that first the solids go, and *then* the liquids go. You need to get VERY CLEAR on the fact that Achalasia is not some new wonder diet. The calorie deficit is NOT a healthy one: it's an across the board famine. I talked to some adult survivors of China's last " famine " (The Three Hard Years -- 1956 - 1959) when I lived there, and there are possible life-long problems caused by a period of starvation or near-starvation. Google. Once the liquids go, it's a *very* short period before you are in serious trouble. You need to tell your doctor NOW about the change. Get your electrolytes mapped now, and monitor them. And you need to take especially good care of yourself. You are simply in danger. Good luck, and bon courage. > > Well, I think I am going to have to find a new solution for resolving my > spasms. Yesterday morning, I had a major episode that lasted for 4+ hours. > Was so strong that I became very weak and could barely stand up. Tried > lukewarm water and it did help lessen the pain but it just would not go > away. The end result is that before this episode I was still able to eat > solid foods, well now that seems to be a thing I use to be able to do. > Looks like I may be on a liquid diet until after surgery in April. I am > going to look into trying all of your liquid suggestions and see what > works. BTW - I could accept losing 100 lbs. to get down to 250 lbs. at one > time I was close to 500 lbs. over 5 years ago, today just dropped below 350 > lbs. goal is 225 lbs. I am a 6' tall muscular man so 225 is a good weight > for my build. > > Geoff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Can you buy lidocaine over the counter? ________________________________ From: Sharon Cline <sharon_cline@...> achalasia Sent: Friday, February 10, 2012 11:19 AM Subject: Re: Re: Esophageal Spasms!  That is known as a GI Cocktail and it is the most awesome thing when nothing else will work. I have been using it for years. I had my myotomy in 1999.  Sharon From: kotacj@... <kotacj@...> Subject: Re: Re: Esophageal Spasms! achalasia Date: Friday, February 10, 2012, 5:47 AM  I have just come from the emergency room,, but this time is was for myself not my son who had a heller with a dor 3 years ago on the 11th of this month. I suffer from gerd and last nights one was a dozy. I am saying this because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I too have given my son every know drug and liquid ( hot, cold, tepid, water, gatorade ext). Could this combination work for spasms too, I wonder. As luck would have it I just happen to have 2% lidocaine viscous st home. The next time my son has a spasm I will try this cocktail and see what if it is effective. Maybe, just maybe. Has anyone tried this combo, if so what was your experience? ...angela Connected by DROID on Verizon Wireless Re: Esophageal Spasms! Hi Lindell, I always have water on hand and that works most of the time. If it doesn't, I then chew a Gaviscon and wash it down with water. > > Hello Group! > What does everyone do when they have Esophageal Spasms after they've had a HM? > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes it worse. > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to sipping luke warm water, ginger ale, and hot water bottles. > If I call my GI, he'll tell me that I had an incomplete myotomy and I need a 2nd Surgery. > I can tell you right now that I will not have a second surgery until I'm down to 100 lbs. > Frustrated and in pain, > Lindell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Geoffrey, About 5 years ago my previous GI diagnosed me with Acid reflux then last June GERD. It turns out I have neither as confirmed with my last dilation at Froedert Hospital. My GI then wanted me to continue acid reflux medicine and everything would be fine. So I no longer try and take antacids as they weren't working for my chest pain - now I know why because I didn't have that. I do eat yogurt but not enough. I will try that daily and see if that helps. Thanks  Kim A ________________________________ From: Geoffrey Crego <gcrego@...> achalasia Sent: Friday, February 10, 2012 1:09 PM Subject: Re: Re: Esophageal Spasms!  When you talk about spasms, are you referring to a sharp pain in your chest like heartburn, that for me at times can be so severe that I just want to curl up in the fetal position and cry out in pain. The first few times I have had them I have thought it was an acid reflux attack but no matter what I have tried in the antiacid realm never takes the pain away. So I discovered the other day that eating a cup of yogurt help to subside the pain. Not quite sure why yogurt works for me but I am glad I finally have found something that helps. Sometimes I have to couple the yogurt with a hot shower before the pain subsides. Has anyone else tried a hot shower or yogurt? Thanks! I have recently been correctly diagnosed with Achalasia and preparing for HM with a Nissen Fundoplication surgery in April. For 4 years I suffered with this and the doctors kept telling me it was GERD and trying me every acid reflux medication under the sun but they all made me feel worse. I sure hope the HM relieves the insanity of what my life has become and I can get back to a normal life again. Thanks! Geoff On Fri, Feb 10, 2012 at 12:19 PM, Sharon Cline <sharon_cline@...>wrote: > ** > > > That is known as a GI Cocktail and it is the most awesome thing when > nothing else will work. I have been using it for years. I had my myotomy > in 1999. > > Sharon > > > > From: kotacj@... <kotacj@...> > Subject: Re: Re: Esophageal Spasms! > achalasia > Date: Friday, February 10, 2012, 5:47 AM > > > > > I have just come from the emergency room,, but this time is was for myself > not my son who had a heller with a dor 3 years ago on the 11th of this > month. I suffer from gerd and last nights one was a dozy. I am saying this > because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml > Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I > too have given my son every know drug and liquid ( hot, cold, tepid, water, > gatorade ext). Could this combination work for spasms too, I wonder. As > luck would have it I just happen to have 2% lidocaine viscous st home. The > next time my son has a spasm I will try this cocktail and see what if it is > effective. Maybe, just maybe. Has anyone tried this combo, if so what was > your experience? ...angela > > Connected by DROID on Verizon Wireless > > Re: Esophageal Spasms! > > Hi Lindell, > > I always have water on hand and that works most of the time. If it > doesn't, I then chew a Gaviscon and wash it down with water. > > > > > > > > Hello Group! > > What does everyone do when they have Esophageal Spasms after they've had > a HM? > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > it worse. > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > sipping luke warm water, ginger ale, and hot water bottles. > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > need a 2nd Surgery. > > I can tell you right now that I will not have a second surgery until I'm > down to 100 lbs. > > Frustrated and in pain, > > Lindell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 I have not heard of Donnatal - what is it? ________________________________ From: Sharon Cline <sharon_cline@...> achalasia Sent: Monday, February 13, 2012 9:13 PM Subject: Re: Re: Esophageal Spasms!  Geoffrey, that is exactly what we call spasms and they are painful. The pain is NCCP (Non-cardiac chest pain). For me they radiate up into my neck and arms and jaws. I have a pain tablet I can take as well as Donnatol (anti-spasm) and even Anti-acid. They help, but you just have to figure out what works for you.  Sharon Cline > > From: kotacj@... <kotacj@...> > Subject: Re: Re: Esophageal Spasms! > achalasia > Date: Friday, February 10, 2012, 5:47 AM > > > > > I have just come from the emergency room,, but this time is was for myself > not my son who had a heller with a dor 3 years ago on the 11th of this > month. I suffer from gerd and last nights one was a dozy. I am saying this > because the ER doctor gave me Maalox with 2% lidocaine mixed in it. 30ml > Maalox and 5 ml lidocaide, 2 minutes later the pain was completely gone. I > too have given my son every know drug and liquid ( hot, cold, tepid, water, > gatorade ext). Could this combination work for spasms too, I wonder. As > luck would have it I just happen to have 2% lidocaine viscous st home. The > next time my son has a spasm I will try this cocktail and see what if it is > effective. Maybe, just maybe. Has anyone tried this combo, if so what was > your experience? ...angela > > Connected by DROID on Verizon Wireless > > Re: Esophageal Spasms! > > Hi Lindell, > > I always have water on hand and that works most of the time. If it > doesn't, I then chew a Gaviscon and wash it down with water. > > > > > > > > Hello Group! > > What does everyone do when they have Esophageal Spasms after they've had > a HM? > > It's got to be caffeine free. Sipping on a coke, coffee, or tea makes > it worse. > > I tried everything from Nitro tabs, valium, verapamil, nifedipine, to > sipping luke warm water, ginger ale, and hot water bottles. > > If I call my GI, he'll tell me that I had an incomplete myotomy and I > need a 2nd Surgery. > > I can tell you right now that I will not have a second surgery until I'm > down to 100 lbs. > > Frustrated and in pain, > > Lindell > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.