Rare Disease Day, February 29th

[Guest guest]

Sandy wrote:

>

> Most people who have successful surgeries or treatments don't come

> back to this group. A total guess is that 90% don't come back. I've

> stayed in touch with quite a few that were very active here at the

> time I had surgery and most are still very satisfied, and don't check

> in here.

>

Last year we observed Rare Disease Day in this support group by posting

our stories. It was nice that some of the people who had moved on came

back to share how well they were doing. I hope many will return this

year. Perhaps you can spread the news and all those well doers will

return to offer hope. And those that aren't doing so well, it would be

nice to hear from them too.

If anyone wants to find those messages from last year you can check the

messages from last February and some of March.

Rare Disease Day

Focus for 2012: Solidarity, " Rare but strong together "

http://www.rarediseaseday.org/

http://www.rarediseaseday.org/country/finder

Participating countries/territories

notan