Re: Re: My story-post Heller/Dor

[Guest guest]

Wow! An inspiring story! I am going for my HM in about 6 weeks. Amazingly enough

more food is going down now that I have left my husband lol. I eat about one

meal a day now plus my fluids.

My q is for : why no chocolate?

My doc doesn't delay eating for long, but I will be taking my time. I know I am

very good at growing scar tissue and I don't want to mess things up!

Jenn in NB

(Who just woke up and now needs to go to the (for the morning vomit)

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Re: My story-post Heller/Dor

Hi ,

I was surprised too when told I could eat anything at week 2, but to proceed

with caution. For the first 2 weeks I was on a full liquid diet and when I went

in to see the doctor for the first f/u appt. I was expecting to graduate to a

soft diet. She totally surpised me by saying I could eat whatever I wanted and

also I was allowed to resume full activity w/o restriction. The steri strips

were still on a few of the incisions so I was very careful about lifting things

for a while, but other than that I did everything as before.

One thing I noticed in this group is that many doctors follow different diet

protocols post surgery. Some people are eating after 1 week, some after 2, some

after 4 and so on. Glad to hear you are doing well.

Lynn

>

> Glad to hear you are all doing well ladies. I am exactly 15 days post

> Heller/Toupet and doing quite well.

> I too have suffered gradually for about 3 years with a final diagnosis last

> July. After my manometry -- results were zero motility

> although my Esophagus was in good shape. What saved me was the fact that I

> had to modify my diet because many foods would not pass.

> I only lost about 25 lbs. which was good because I'm at my ideal weight

> now.

>

> Lynn, I'm surprised that after 2 weeks they allowed you to eat anything.

> I'm was on a liquid diet for 1 week and now on a soft diet for 2 months.

> No coffee, chocolate (that's killing me) and a list of other foods but

> thats OK. I know my life will never be the same with A but I'm happy with

> the outcome of the surgery.

> For dinner I had salmon and went down quite well. Chew thoroughly, small

> bites water etc. Hopefully things will stay positive down the road.

>

> If anyone in this group is looking for a great surgeon and lives in the NY

> Metro area his name is Ashutosh Kaul, MD. He is Director of Minimally

> Invasive Surgery

> at Westchester Medical Center, Valhalla, NY and Associate Professor at New

> York Medical College. In practice for 25 years. He saved my life.

>

> Best to all,

>

>

> Wappingers Falls, NY

>

>

>

[Guest guest]

Regurging. Spit, mucous and a bit of food from the night before.

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Re: My story-post Heller/Dor

Hey, Jenn ~~ Just kinda guessing here about the chocolate, but it's on the list

of no-no's for GERD (it relaxes the LES -- as does coffee), so since one of the

unknowns after surgery is whether or not acid reflux will be a problem, the

restriction may be to avoid a false diagnosis of post Heller induced GERD. But

that's being charitable on my part: Some doctors can't seem to keep straight the

difference between Achalasia and GERD. . . . At least that's been true in my

case. After my release from the hospital the first time (cardiac

unit/starvation), two of the four meds I was given scripts for were anti-GERD.

One of the actual anti-A meds, I was known to be allergic to (calcium channel

blocker); and the potassium prescription was a HUGE pill, bigger than the LES

opening, and and *if* I had taken it, would have just sat at that junction, and

burned the chit out of my esophagus. . . . We NEED, for our own survival to

question *everything*. . . .

Post-Heller, the dietitian brought me a sheet entitled " Diet for post Nissen

fundoplication " which is an anti-GERD surgery. . . . The Nissen is designed to

*increase* the tightness of the LES: which is exactly the opposite of the

Heller. . . .

I had to laugh about eating better after leaving: after I left my first

marriage, I was suddenly able to grow house plants! Up to that point every

single plant I brought home withered. . . . for ten years. . . .

Unhappiness/stress plays a huge part in our health. My only other BIG illness

of my life was Graves Disease, which is an auto immune disorder, and genetic.

But is *known* to be triggered by stress. Interestingly, both President Bush

and his wife Barbara have it. HERS was triggered when HE ran for President in

1980. HIS was triggered by having to run the Gulf War. MINE was triggered by

being an editor for a Big Eight accounting firm, lol!

You're vomiting in the morning? Or regurging?

And congrats on getting the Heller so quickly!

Cheers,

(in WV)

>

> Wow! An inspiring story! I am going for my HM in about 6 weeks. Amazingly

enough more food is going down now that I have left my husband lol. I eat about

one meal a day now plus my fluids.

>

> My q is for : why no chocolate?

>

> My doc doesn't delay eating for long, but I will be taking my time. I know I

am very good at growing scar tissue and I don't want to mess things up!

>

>

> Jenn in NB

> (Who just woke up and now needs to go to the (for the morning vomit)