Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Hi, My brother was in the same situation last week. He had to drink 1-2 glasses of water and this helped. He says occasionally this happens - not sure why ... Last time he had corns ... Maybe That got stuck Regards Hassaan Sent from my iPhone On 20, جنوری 2012, at 16:17, " Jenn Gerrits " <adoptivemommy@...> wrote: > So I could feel something stuck yesterday that just didn't seem to be going anywhere. It wasn't affecting anything other than being annoying to feel it there. I regurged a lot in my sleep last night and it seems to have dislodged. I don't want to go to the hosp every time something like this happens. At what point do we need to go in? > > This is all still so new to me. I have a lot to learn. :/ > > Jenn > Sent from my CrackBerry® powered by Virgin Mobile. > > ------------------------------------ > > As a member of this group, you are invited to join the HealthShare Groups community center located at http://healthsharegroups.org. The community center brings together members from over 1200 disease specific support groups for sharing of information and support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 I think I would start to worry if it's there for days and you can't eat or drink. Otherwise, I think occasional issues are bound to happen, and just need to try to stay calm, move around, and try to drink fluids to get it moving. > > So I could feel something stuck yesterday that just didn't seem to be going anywhere. It wasn't affecting anything other than being annoying to feel it there. I regurged a lot in my sleep last night and it seems to have dislodged. I don't want to go to the hosp every time something like this happens. At what point do we need to go in? > > This is all still so new to me. I have a lot to learn. :/ > > Jenn > Sent from my CrackBerry� powered by Virgin Mobile. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Jenn, it sounds like your LES is getting pretty close to permanently closing. For me, when it happened, it was virtually overnight, and solid. On my barium swallow, the opening was less than 4mm. There was NO food in my esophogus, and the thin liquid was only just drip drip drip. If it had been water, it wouldn't have been enough to keep me hydrated. And I wasn't. With five days of an IV drip running 24 hours a day, I " gained " 16 pounds, all pretty much water, as they were allowing me nothing by mouth. Which means I was running very close to two gallons short. The small dilation with the endoscopy helped a tiny bit, and I simply switched to food ALL compponenets of which were less than 4mm. (Size of a green pea.) It helps to visualize what your're working with. . . . Lots of mashed pototes with extra butter, washed down with Mountain Dew. . . . Soda crackers with chicken pâté, washed down with Mountain Dew. . . . The crackers turn almost immediately into mush, the molecules of which don't wish to cling together as does fresh bread. Glad you're seeing the surgeon soon. You might want to ask for a potassium script, as I'd lay you dollars to donuts that's running low. . . . Maybe you can get them to do a blood test for electrolytes, which are very likely to be skewed to high heavens at this point. Better, might be to get to your primary care giver with your concerns. Check out web pages for adult home made electrolyte enhancers. (Gatoraid is NOT theraputic!) http://www.medicinenet.com/electrolyte_solution-oral/article.htm Hang in there: it's about to get better!! MUCH better. > > So I could feel something stuck yesterday that just didn't seem to be going anywhere. It wasn't affecting anything other than being annoying to feel it there. I regurged a lot in my sleep last night and it seems to have dislodged. I don't want to go to the hosp every time something like this happens. At what point do we need to go in? > > This is all still so new to me. I have a lot to learn. :/ > > Jenn > Sent from my CrackBerry® powered by Virgin Mobile. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 " compponenets " ? Yikes! What was my spellchecker thinking, lol1? Lets try " components " ~~ Been thinking back over the progress of this disease, for me, and others here. We *know* the reason it happens is that the nerve receptors for relaxation in the LES and esophagus stop working/die. But. It's SO uneven. There are episodes, of days, or weeks or even months, where it's awful. And then it gets " better " ~~BUT: it's NOT really getting better, is it? Just waiting for the next time around. And when it is being better, we all just relax, say " Whew! " and believe/hope/pray that whatever it is, it stays gone. But of course it *doesn't* stay gone, it comes back in a slightly different form. And then finally, in a much worse/final form. Some are " lucky " and don't have the years long buildup, are just hit with the final stage, full blown, or nearly so. What I want to know is WHY? I know in my own case, initially, it just left on its own; later, I was adding things, pills, to my diet, that aided with nerve transmission, and " tube " relaxation (me n my doc were working with a Diffuse Esaphogeal Spasm model, and those meds DID help. In my case, Hyoscyamine (Levsin) -- which I've noted a number of members in the early days of this board were taking -- with my doc's blessing and aid, and Viagra (on my own) -- both *helped* but clearly didn't cure whatever was going on. The vitamin B100 combo did, also. Some. The irony is, I think, that the last year was the MOST pain free I've had since it started. That invisible hand clutching at the throat, esophagus, was gone. That solid engorged blockage didn't happen any more. Everything was just pretty effortlessly returned. Or almost everything. Meanwhile, I simply began to starve to death. I think the increased saliva and mucous is simply our body's attempt to make movement in the " pipe " easier -- as if it (the body) says to itself: well this isn't working, what can I do to help? -- I also think for me, BECAUSE of my nine months of morning sickness with my first kid, it meant regurging, as opposed to trying to force it on into the stomach, with the resultant enlargement of the esophagus. But what causes the " flare up " ? The really bad periods? Some of my worst were at times I was exquisitely happy; and some of the best were at a time I was devastated over the death of my mate. Looking for causes of exacerbation and amelioration in the progress of this " condition " in the medical literature, and it just isn't there. Not only NOT a cause of concern for the medical community, not even an item to notice. It's easy to say it's just stress, but I don't think it is. Guess I'll prolly be dead before they find out, if they ever do. . .. . And, Ah, well. . . . Not going to solve this on a cold icy winter morning. xox > > > > So I could feel something stuck yesterday that just didn't seem to be going anywhere. It wasn't affecting anything other than being annoying to feel it there. I regurged a lot in my sleep last night and it seems to have dislodged. I don't want to go to the hosp every time something like this happens. At what point do we need to go in? > > > > This is all still so new to me. I have a lot to learn. :/ > > > > Jenn > > Sent from my CrackBerry® powered by Virgin Mobile. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.