Re: Re: I am a Newbie to the site

[Guest guest]

It was not ordered, not sure why, but I also reacted to the CO2 used in the

laproscopic surgery and had major problems breathing and they had to open and

finish really quick. 

Sharon

From: no_fn_rulez <no_fn_rulez@...>

Subject: Re: I am a Newbie to the site

achalasia

Date: Saturday, February 25, 2012, 10:47 AM

 

>

> Sharon

> Curious. When did you have the HM and why no fundo?

>

>

>

>

[Guest guest]

I continue to have spasms (I have the vigorus version of a), and take donnatol,

Zegrid, and Tagamet (800 mg) pain med., Carafate at times, and the GI Cocktail

at times.  Cannot eat bread, so I still have problems and have a looksee or

dilation about once a year and sleep elevated all the time. 

Sharon

From: Kim <kimellenbailey@...>

Subject: Re: I am a Newbie to the site

" achalasia " <achalasia >

Date: Saturday, February 25, 2012, 11:31 AM

 

i didnt get a fundo either, Sharron. i have no reflux. My Dr.. Dr Marxx  did

not do it because i had had some surgery a long time ago and i had some scar

tissue there, and it would not work with a fundo. i have NO reflux and am good,

for someone with achalasia.. i dont take anything other than i have to take

bentyl sometimes and donnatal.. and sometimes galvascon..that is it. Kim Ellen

 

[Guest guest]

You have to eat meat on the rare side (live it!) and not the xtra lean. You

need fat to help it go down. 3 yrs later I still regurge overcooked or too

lean meat. My surgeon corroborated this.

in Santa Barbara

In a message dated 2/26/2012 7:03:46 A.M. Pacific Standard Time,

kimellenbailey@... writes:

I sleep elevated pretty high. Not reflux but I still have food in e. I

cannot eat bread either. Have done it before. Paid huge price. Not worth it.

Had part of a grilled hamburger patty last nite. Didn't do too well either.

Kim Ellen bailey

Sent from my iPad

[Guest guest]

I have to have everything cooked well done and very lean.  The fat will go

straight through me as I have no gallbladder (stones  -- had to have it

removed) to send bile to the liver to help digest............. Catch 22

sometimes..... LOL

 

Sharon (in Texas)

---

 

You have to eat meat on the rare side (live it!) and not the xtra lean. You

need fat to help it go down. 3 yrs later I still regurge overcooked or too

lean meat. My surgeon corroborated this.

in Santa Barbara

In a message dated 2/26/2012 7:03:46 A.M. Pacific Standard Time,

kimellenbailey@... writes:

I sleep elevated pretty high. Not reflux but I still have food in e. I

cannot eat bread either. Have done it before. Paid huge price. Not worth it.

Had part of a grilled hamburger patty last nite. Didn't do too well either.

Kim Ellen bailey

Sent from my iPad

[Guest guest]

Sharon

I too had my gall bladder removed about 20 years ago. I have never had

trouble with fat and always eat my meat rare. You might just try it and see if

you react adversely. We are all so different.

in Santa Barbara

In a message dated 2/26/2012 11:09:28 A.M. Pacific Standard Time,

sharon_cline@... writes:

I have to have everything cooked well done and very lean. The fat will go

straight through me as I have no gallbladder (stones -- had to have it

removed) to send bile to the liver to help digest............. Catch 22

sometimes..... LOL

Sharon (in Texas)

---

You have to eat meat on the rare side (live it!) and not the xtra lean.

You

need fat to help it go down. 3 yrs later I still regurge overcooked or too

lean meat. My surgeon corroborated this.

in Santa Barbara

In a message dated 2/26/2012 7:03:46 A.M. Pacific Standard Time,

_kimellenbailey@..._ (mailto:kimellenbailey@...) writes:

I sleep elevated pretty high. Not reflux but I still have food in e. I

cannot eat bread either. Have done it before. Paid huge price. Not worth

it.

Had part of a grilled hamburger patty last nite. Didn't do too well

either.

Kim Ellen bailey

Sent from my iPad

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

,

Over the years, I have learned and tried many things and I have to have

crunchier and more done.  I still have some life in my e and have many spasms

even after having the HM without a fundo.  I have the vigorous version of

A.   I also have gastroparasis and IBS, and eosinophilic gastroenteritis

(believed to be allergic to something) and major acid reflux.  I went through

all kinds of testing for the eosinophilic and was allergic to nothing, I take

antihistimes everyday and it has not shown back up.  But as sure as I eat

something that has a lot of fat in it.  It goes straight through me.  We all

are different.  And this disease will treat all of us differently as we are

learning and that is why we are so hard to treat. 

 

Best Regards

Sharon

 

 

From: julieok@... <julieok@...>

Subject: Re: Re: I am a Newbie to the site

achalasia

Date: Sunday, February 26, 2012, 2:51 PM

 

Sharon

I too had my gall bladder removed about 20 years ago. I have never had

trouble with fat and always eat my meat rare. You might just try it and see if

you react adversely. We are all so different.

in Santa Barbara

In a message dated 2/26/2012 11:09:28 A.M. Pacific Standard Time,

sharon_cline@... writes:

I have to have everything cooked well done and very lean. The fat will go

straight through me as I have no gallbladder (stones -- had to have it

removed) to send bile to the liver to help digest............. Catch 22

sometimes..... LOL

Sharon (in Texas)

---

You have to eat meat on the rare side (live it!) and not the xtra lean.

You

need fat to help it go down. 3 yrs later I still regurge overcooked or too

lean meat. My surgeon corroborated this.

in Santa Barbara

In a message dated 2/26/2012 7:03:46 A.M. Pacific Standard Time,

_kimellenbailey@..._ (mailto:kimellenbailey@...) writes:

I sleep elevated pretty high. Not reflux but I still have food in e. I

cannot eat bread either. Have done it before. Paid huge price. Not worth

it.

Had part of a grilled hamburger patty last nite. Didn't do too well

either.

Kim Ellen bailey

Sent from my iPad

[Guest guest]

Kim,

I have not had problems eating cornbread.  That seems to work, because it does

not have the gluten in it that makes everything ball up and stick together.  So

I therefore eat a lot of popcorn to satisfy my cravings for bread. 

 

You are making me hungry.  I grew up in the country in North Alabama and we

grew a lot of our food; and we called Lima Beans........ Butter Beans....

LOL....  Wow what memories my childhood was great.  I love country cooking. 

 

Watch what your tummy is telling you, keep a close check on it.  You know your

body better than anyone and listen to it.  Sometimes a barium follow through

can tell the doctor a lot.  

Sharon

---

 

 Sharron. i can eat meat occasionally. i have eaten rare ribeye.. but cant eat

too much. i can tell it doesnt really PLOP down there.. and like you i have to

have crispy.. only way i can eat bread is crispy as a crouton... i am busy as we

speak cooking a hen off the bone for some dumplings and cooking green limas etc

and going to make cornbread. of this.. i wont eat anything but maybe some broth

of the dumplings and maybe some beans.. but life goes on, doesnt it? LOL...Fried

catfish (real crispy) seems to work ok.. but one filet is all i can do.. i am

noticing some symptoms lately( i had the myotomy in september)  that are not

too good and make me feel anxious. i find myself being able to eat as well as i

did inititally  and i am getting concerned. i am just going to watch it. guess

that is all i can do for now. Kim Ellen ,  

[Guest guest]

Hi Sharon,

 

I was just wondering, my doctor thinks I have eosinophilic gastroenteritis

because I keep getting reaccuring viral infections that ulcerate in my mouth.

Did you get these too?

 

Kim A

________________________________

From: Sharon Cline <sharon_cline@...>

achalasia

Sent: Monday, February 27, 2012 12:42 AM

Subject: Re: Re: I am a Newbie to the site

 

,

Over the years, I have learned and tried many things and I have to have

crunchier and more done.  I still have some life in my e and have many spasms

even after having the HM without a fundo.  I have the vigorous version of

A.   I also have gastroparasis and IBS, and eosinophilic gastroenteritis

(believed to be allergic to something) and major acid reflux.  I went through

all kinds of testing for the eosinophilic and was allergic to nothing, I take

antihistimes everyday and it has not shown back up.  But as sure as I eat

something that has a lot of fat in it.  It goes straight through me.  We all

are different.  And this disease will treat all of us differently as we are

learning and that is why we are so hard to treat. 

 

Best Regards

Sharon

 

 

From: julieok@... <julieok@...>

Subject: Re: Re: I am a Newbie to the site

achalasia

Date: Sunday, February 26, 2012, 2:51 PM

 

Sharon

I too had my gall bladder removed about 20 years ago. I have never had

trouble with fat and always eat my meat rare. You might just try it and see if

you react adversely. We are all so different.

in Santa Barbara

In a message dated 2/26/2012 11:09:28 A.M. Pacific Standard Time,

sharon_cline@... writes:

I have to have everything cooked well done and very lean. The fat will go

straight through me as I have no gallbladder (stones -- had to have it

removed) to send bile to the liver to help digest............. Catch 22

sometimes..... LOL

Sharon (in Texas)

---

You have to eat meat on the rare side (live it!) and not the xtra lean.

You

need fat to help it go down. 3 yrs later I still regurge overcooked or too

lean meat. My surgeon corroborated this.

in Santa Barbara

In a message dated 2/26/2012 7:03:46 A.M. Pacific Standard Time,

_kimellenbailey@..._ (mailto:kimellenbailey@...) writes:

I sleep elevated pretty high. Not reflux but I still have food in e. I

cannot eat bread either. Have done it before. Paid huge price. Not worth

it.

Had part of a grilled hamburger patty last nite. Didn't do too well

either.

Kim Ellen bailey

Sent from my iPad