Re: Tips for maintaining energy?

[Guest guest]

Something I have recently rediscovered was rice and cream of chicken soup. Rice

can be tough on me too but I make 2 serving of rice, add a can of soup with

almond milk. Very filling!

________________________________

From: Montoya <medhelpinfo@...>

" achalasia " <achalasia >

Sent: Saturday, March 31, 2012 1:13 AM

Subject: Re: Re: Tips for maintaining energy?

 

Here are some thoughts as I reflect back to " those days " , which were torture for

me as surely they are for you and others who are still suffering and not able to

eat a decent meal.  I could eat " shrimp " for some reason that kinda thing

wasn't too bad, and also always ate sushi, but had to skip lots of the rice as

it would NOT go down.  Noodles work better than potatoes, lots of soups and

crispy things like toasted bread or fried tortilla's.  Always small portions, I

would take a few bites literally every hour on some days!!!  The higher the

fat, the longer it will sustain you. 

 

Also, and I don't know if this would help everyone, but it did help me near the

end when my LES seemed to stay shut...I would drink some alcohol before meals

and it did seem to relax my LES and me!!!!  Worked sometimes!  I was never a

big drinker, nor did I like wine that much, but a mixed drink worked better for

me. 

 

The circle of food gets smaller and smaller when you have achalsia, this is

something that you need to pound into your doc's head, it just amazes me that we

suffer so much and there seems such little understanding of this disorder.

 

Thinking of you! 

 

Julee in Oregon

 

 

________________________________

From: lindsayaus <lindsay_kite@...>

achalasia

Sent: Friday, March 30, 2012 10:56 PM

Subject: Re: Tips for maintaining energy?

 

I will not blend meat or chicken....I can't eat food like that! I only puree

fruit and vegetables.

> >

> > My diet at the moment is pretty much yogurt, soup, Sustagen (like Ensure),

gelati/icecream and chocolate.

> > I can feel my energy level dropping and although I don't regurge, I can't

seem to get enough into me. I feel full all the time even though I hardly eat or

drink anything.

> > Anyone have any great suggestions for energy in a liquid?

> >

> >

> >

>

[Guest guest]

I have heard his name several times in older posts so hopefully it turns out

better than expected.

 

Kim A

________________________________

From: Leda Mae <leda444@...>

" achalasia " <achalasia >

Sent: Saturday, March 31, 2012 7:39 AM

Subject: Re: Re: Tips for maintaining energy?

 

Good luck.  My surgery is scheduled for the 24th - he's supposed to be very

good (fingers crossed) with good outcomes. If this proves to be the case, you're

welcome to stay with me and check him out. Dan at Emory (Atlanta)

Kim

________________________________

From: lindsayaus <lindsay_kite@...>

achalasia

Sent: Saturday, March 31, 2012 9:13 AM

Subject: Re: Tips for maintaining energy?

 

Hi Kim,

My surgeon has told me to get a second opinion before rushing back into surgery,

so I am off on Thursday to meet with another GI specialist.

I will look into the G3 thing.

>

> , I'm so sorry you're still struggling. Haven't been reading posts

daily - I'm moving and that's proven to be a huge project (not to mention

stressful).

>

> I take a liquid supplement called G3 - It gives me energy, and all the

nutrients I don't get because I can't eat fruits and veggies. At least not in

the quantities we're supposed to to get our nutrients. It's pleasant tasting and

not acidic so it doesn't bother my E.  The primary ingredient is from the GAC

superfruit from SE Asia - used there for healing purposes. Has very high

quantities of vitamins and other nutrients. You can read about it on this link -

if you're interested I can help you get it. But it 's been my salvation through

all this. One of the other benefits is that is reduces inflammation and improves

our immune response - pretty important for A:

  http://www.pxscanner.com/content/pxscanner/en_US/g3/benefit.html

>

> Since I've been so busy moving I haven't read the posts daily - what's the

next step with your doctor? Is there something he plans to do to correct

whatever is going on?  I really do hope this clears up for you.

>

> Kim

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Friday, March 30, 2012 8:08 PM

> Subject: Tips for maintaining energy?

>

>

>  

> My diet at the moment is pretty much yogurt, soup, Sustagen (like Ensure),

gelati/icecream and chocolate.

> I can feel my energy level dropping and although I don't regurge, I can't seem

to get enough into me. I feel full all the time even though I hardly eat or

drink anything.

> Anyone have any great suggestions for energy in a liquid?

>

>

>

>

>

>

>

[Guest guest]

Thanks Steve - I guess we all have to find things that can sustain through those

tougher times! 

________________________________

From: nailheader <stevenakamichi@...>

achalasia

Sent: Wednesday, April 4, 2012 1:22 PM

Subject: Re: Tips for maintaining energy?

 

Hello Kim and ,

Those are good choices. Cream of wheat used to be my favorite. For energy and

weight gain, I also used to make shakes from Hagaen-Daz, and homemade chocolate

sauce.

One problem is liquids and viscous mixtures seem to require extra effort to get

down. At times, The LES just doesn't seem to open. The sensation, when it is

forced open, feels like the last dilation when the largest dilator painfully

ripped open the LES. It was like having having your innerds torn apart, or

having some high-caliber projectile rip through your chest cavity. For pain, it

was the worst imaginable - especially when sustaining your nutrient needs is

paramount.

Another issue to maintaining energy is having an appetite. it's difficult to

force food down if you don't have an appetite. I never really felt enough

energy, ate enough or weighed normally until the pain was addressed.

Don't give up. There are treatments available.

Steve

Steve

>

> What about oatmeal, cream of wheat ( one of my new forced faves!) or grits,

scrambled eggs, cottage cheese? You can't eat any of that???

>  

> Kim A

>

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Friday, March 30, 2012 7:08 PM

> Subject: Tips for maintaining energy?

>

>

>  

> My diet at the moment is pretty much yogurt, soup, Sustagen (like Ensure),

gelati/icecream and chocolate.

> I can feel my energy level dropping and although I don't regurge, I can't seem

to get enough into me. I feel full all the time even though I hardly eat or

drink anything.

> Anyone have any great suggestions for energy in a liquid?

>

>

>

>

>

>

>