Re: Scared about esophageal manometry or esophageal motility test!? Double Update

[Guest guest]

Absolutely GREAT!! Thank you so much Harry for getting back to us. I've been

holding you in the light all day!! I'm so glad you made it through. And

terrific reporting, BTW.

HugZ

> > >

> > > Has any one had this done before, if you have, what was it like. From what

I know, the doctors anethesize your nose, then put a tube down your nose into

your esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> > >

> >

>

[Guest guest]

This is beyond a doubt the best achalasia story!

Everyone faces medical problems differently, but something you should understand

even if you don't like all the invasive techniques, the diagnoses will

inevitably help your condition.

What's worse is being dismissed when you present something to doctor that

clearly isn't right.

When I was 14 and presented severe achalasia symptoms to my doctor, he said,

" Chew your food more thoroughly. " I felt demeaned, like he was speaking to some

kid learning table manners. Later after an X-Ray, he admitted there was

something wrong.

You do have a great talent for communicating. Use it effectively so your doctors

understand exactly how you feel.

Steve

> > >

> > > Has any one had this done before, if you have, what was it like. From what

I know, the doctors anethesize your nose, then put a tube down your nose into

your esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> > >

> >

>

[Guest guest]

Good job Harry! 

 

That test truely is the pits, just because of the way it has to be done.  I'm

glad your done and now they can let you know what they found out.  I'm very

interested to hear so get back to us!!!  Glad they were nice to you and had

some humor, which really helps!

 

Julee in Oregon

________________________________

From: spiderfan108 <spiderfan108@...>

achalasia

Sent: Friday, April 13, 2012 1:58 PM

Subject: Scared about esophageal manometry or esophageal motility

test!? " Double Update "

 

Hello!

Thank you all so much for replying and reading! I have just did it a couple of

hours ago. I will explain what happened for others who are worried about the

test. This time, the hospital I went to have improved A LOT! The staff there

were very friendly, and it was so much better this time. The first thing that

happened, was registration, then I was taken to the prep room, (Same area where

I was last time!) and they took my blood pressure, weight, heart beat, and all

the other stuff. The wait time to get into the procedure room was about 15

minutes. They gave me an ipod touch to play with while I was waiting (Last time

I had a game boy). Unlike last time, they explained everything to me, but I was

still a bit nervous. Soon, they took me down to the procedure room, and the

first thing they did was numb one of my nostrils with some gel. It did not smell

bad, it just smelled pretty much like nothing, I also had to sniff the gel up,

but still nothing smelled

bad. They showed me the wire, and it was about the size of a straw. It also

flopped around to because it was flexible. There was droplets of water coming

out through tiny holes throughout the wire, to help it go in easier. There was a

TV in the room, and they let me hold onto the ipod touch. After a few minutes,

they started to get ready to begin, and my nose was numb, but it was kind of

hard to feel the numbness. There was three hospital people in the room. There

was a nurse holding the wire, another nurse giving instructions and watching the

monitor thing for the wire, and another counselor like person sitting in a chair

next to me. They were all very nice and humorous. Soon, the wire nurse rubbed

the wire in some gel. The counselor nurse told me to squeeze her hands very

tightly whenever I felt the need to. Sadly, at the last second, I pulled my head

a way. I was still very scared and nervous. I am a little embarrassed to say

this, but it took

everyone about an hour to finally convince me to stay still and relax, because

the whole time I was shaking and crying. The nurses were all very patient with

me. Finally, I calmed down enough for them to do the procedure. The counselor

told me to take big deep breathes, and squeeze her hand. I was also told to

swallow as much as I can to make it go down easier. They told me that if I was

still, then it would only take 5 seconds to get it down. I kind of didn't

believe that, but I reluctantly said ok. The wire nurse put it in my nose and it

hurt a little, and it was a very bad feeling, but amazingly, they got it down in

less than 5 seconds. It is a good thing I squeezed her hand because it was a

pretty intense feeling, but I hardly even gagged. Of course it felt pretty weird

afterwards, but not the worse feeling. You can feel the wire in your throat, but

it does not hurt much. They were adjusting the wire for about 5 min. then it was

time for me to start

swallowing water. The hardest part is not swallowing. You have to not swallow

for about a minute then they can move on to the next swallowing of water. It was

literally impossible not to swallow. It is like when someone says don't smile,

you smile. Now I see why it takes an hour. If you make the smallest swallow, you

have to start all over again, and for some reason, when your body gets the urge

to swallow, and you try not to, your body makes you swallow without you even

knowing it. So it took quite a while to do all the swallows. After about an

hour, we did it! We finished! I did 10 swallows. They pulled the wire out then.

It hurted a lot when they pulled it out, especially in my nose, but the hurtness

went a way quickly, and it takes only a second to get it out. Then I had no pain

anywhere, and I was allowed to leave. The test was not fun, but not very painful

either. It was a relief to have it done with. Thank you all for replying, and I

was thinking

of all the posts while I was in the procedure room, and your posts helped me to

calm down and do the procedure. I will be sure to let you guys know what the

results are, in fact, the doctor was in the hospital then, and I think the

nurses are going to try to get the study to him today. Thank you!

> >

> > Has any one had this done before, if you have, what was it like. From what I

know, the doctors anethesize your nose, then put a tube down your nose into your

esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> >

>