Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 I'm sorry that you're still feeling like you're the only person in the world with these problems.  As everyone has said, everyone responds differently.  Attitude is EVERYTHING.  I've seen people try to give you advice on foods to try, and you just shut them down.  Believe me that I understand it's difficult.  4 weeks ago, I was attempting to eat perogies at breakfast, because even water wouldn't go through.  You have to try to calm down, try EVERYTHING, and FIGHT for yourself.  Don't keep saying " well, if it looked bad, someone would say something. "  I've not replied in a while, simply because I didn't feel like I was in a position to say anything to you, but as I sit in the hospital 14 days post ectomy, I can't sit back and read about how frustrated you are still.  DO SOMETHING!  I know you are saying that you're doing everything, but if that's the case then do MORE.  I've been through hell and back, and no, this isn't an option for you.  There isn't a cure for this disease, there's only treatment.  If one treatment doesn't work, you do something else, until you've done everything, including how you look at it and how you adapt to it. My prayers are with you , I do hope you eventually find some relief, something to eat (even if it is chocolate and perogies, hell mix them together even!) and that you begin to feel like we're all here with you, despite your feelings of solitary. kim in canada ________________________________ From: lindsayaus <lindsay_kite@...> achalasia Sent: Friday, April 13, 2012 10:41 PM Subject: Hair falling out/thinning  Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. Hoping this time to get an answer before the thread gets hijacked! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 You might want to try myofacial release. I learned it from some physical therapists in The Twin Cities (MN). I use it to help release the pressure in the gut and the myotomy area. I've discovered that bloating, constipation and gas forming foods can change the pressure and close the esophagus. I discovered In desperation when I was unable to eat or drink for four days about 8 weeks ago. There is always hope . I have to remind myself of this every meal and at night when laying down and unable to sleep well because I can only sleep on my back. We have to take what we are given and figure out how to go forward and have a decent quality of life. I hope someone reminds me of that when I head down to Mayo MN next month! Faith Sent from my iPod On Apr 13, 2012, at 21:13, Kim <kimmydawn42@...> wrote: > I'm sorry that you're still feeling like you're the only person in the world with these problems. As everyone has said, everyone responds differently. Attitude is EVERYTHING. I've seen people try to give you advice on foods to try, and you just shut them down. Believe me that I understand it's difficult. 4 weeks ago, I was attempting to eat perogies at breakfast, because even water wouldn't go through. You have to try to calm down, try EVERYTHING, and FIGHT for yourself. Don't keep saying " well, if it looked bad, someone would say something. " > > I've not replied in a while, simply because I didn't feel like I was in a position to say anything to you, but as I sit in the hospital 14 days post ectomy, I can't sit back and read about how frustrated you are still. DO SOMETHING! I know you are saying that you're doing everything, but if that's the case then do MORE. I've been through hell and back, and no, this isn't an option for you. There isn't a cure for this disease, there's only treatment. If one treatment doesn't work, you do something else, until you've done everything, including how you look at it and how you adapt to it. > > My prayers are with you , I do hope you eventually find some relief, something to eat (even if it is chocolate and perogies, hell mix them together even!) and that you begin to feel like we're all here with you, despite your feelings of solitary. > > kim in canada > > ________________________________ > From: lindsayaus <lindsay_kite@...> > achalasia > Sent: Friday, April 13, 2012 10:41 PM > Subject: Hair falling out/thinning > > > > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 , I wish I knew. By the time I realized it was thinning, it was really too late. I managed to stop the weight loss after the stay in the cardiac unit, but it was starting then, and continued for about four months. Between ER and the Heller, I only did ONE thing: avoid starvation. I bought food, fixed it, ate it, regurged it and started all over. The only other thing I did was care for a giant puppy and a very old and fragile cat. No parties, no job, no socializing. Just cook/eat/uneat. I consider it a miracle that I didn't end up in ER again and again like Jenn and some others. My hair's about 75% gone. The new hair is approaching three inches. It's thick and curlier, and I'll be glad in a year or two when I don't have to use hair spray to keep it where it belongs. My doc said, six months to a year. I came real close last December to just giving myself a butch cut. Glad now that I didn't. But my waist length hair is not coming back for a long long time. My basic response to crap the Universe has gifted me with has for a long time been: SHOW ME WHAT I NEED TO DO. Teach me what I need to learn from this, because I don't want to do it again. Sometimes I do learn. And don't have to do it again. Other times I drop the ball. . . . xox > > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 wrote: > > What can I take to stop or slow down my hair from falling out while I > am forced to wait for more treatments. > Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Kim, I am insulted by your post. I have not 'shut' anyone down over food suggestions. All I have ever done is try to make sense of all this and learn what I can to deal with it. I know everyone is different and I know there is no cure. I am trying everything I can and simply waiting to get through each step. I am also angry that you tell me to 'calm down' when it is only reading your post that gets me angry. I thought this was a support forum....guess I was wrong on that count! I hope everyone here gets what they want. I am going to go away quietly now and deal with this the only way I feel I can....by myself. If anyone wishes to email me privately then go ahead...unless you are too scared to get 'shut down'. I learned some great tips and tricks here but I don't think I will learn anymore. > > I'm sorry that you're still feeling like you're the only person in the world with these problems. Â As everyone has said, everyone responds differently. Â Attitude is EVERYTHING. Â I've seen people try to give you advice on foods to try, and you just shut them down. Â Believe me that I understand it's difficult. Â 4 weeks ago, I was attempting to eat perogies at breakfast, because even water wouldn't go through. Â You have to try to calm down, try EVERYTHING, and FIGHT for yourself. Â Don't keep saying " well, if it looked bad, someone would say something. " Â > > I've not replied in a while, simply because I didn't feel like I was in a position to say anything to you, but as I sit in the hospital 14 days post ectomy, I can't sit back and read about how frustrated you are still. Â DO SOMETHING! Â I know you are saying that you're doing everything, but if that's the case then do MORE. Â I've been through hell and back, and no, this isn't an option for you. Â There isn't a cure for this disease, there's only treatment. Â If one treatment doesn't work, you do something else, until you've done everything, including how you look at it and how you adapt to it. > > My prayers are with you , I do hope you eventually find some relief, something to eat (even if it is chocolate and perogies, hell mix them together even!) and that you begin to feel like we're all here with you, despite your feelings of solitary. > > kim in canada > > > ________________________________ > From: lindsayaus <lindsay_kite@...> > achalasia > Sent: Friday, April 13, 2012 10:41 PM > Subject: Hair falling out/thinning > > > Â > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Lindsey Please do not give up please!!! Like you i had some difficulties after having a HM and eventually went on to have the Oesophagectomy. Ok i still have some issues and yes i still need a dilatation now and again but i simply get on with life and rely on my Jejunal feeding tube for nurishment overnight. Don't give up on this group yet as there are many out there who still rely on the group for support and won't let the odd one or two people put them off seeking support. I still need them. from the UK ________________________________ From: lindsayaus <lindsay_kite@...> achalasia Sent: Saturday, April 14, 2012 8:00 AM Subject: Re: Hair falling out/thinning  Kim, I am insulted by your post. I have not 'shut' anyone down over food suggestions. All I have ever done is try to make sense of all this and learn what I can to deal with it. I know everyone is different and I know there is no cure. I am trying everything I can and simply waiting to get through each step. I am also angry that you tell me to 'calm down' when it is only reading your post that gets me angry. I thought this was a support forum....guess I was wrong on that count! I hope everyone here gets what they want. I am going to go away quietly now and deal with this the only way I feel I can....by myself. If anyone wishes to email me privately then go ahead...unless you are too scared to get 'shut down'. I learned some great tips and tricks here but I don't think I will learn anymore. > > I'm sorry that you're still feeling like you're the only person in the world with these problems.  As everyone has said, everyone responds differently.  Attitude is EVERYTHING.  I've seen people try to give you advice on foods to try, and you just shut them down.  Believe me that I understand it's difficult.  4 weeks ago, I was attempting to eat perogies at breakfast, because even water wouldn't go through.  You have to try to calm down, try EVERYTHING, and FIGHT for yourself.  Don't keep saying " well, if it looked bad, someone would say something. "  > > I've not replied in a while, simply because I didn't feel like I was in a position to say anything to you, but as I sit in the hospital 14 days post ectomy, I can't sit back and read about how frustrated you are still.  DO SOMETHING!  I know you are saying that you're doing everything, but if that's the case then do MORE.  I've been through hell and back, and no, this isn't an option for you.  There isn't a cure for this disease, there's only treatment.  If one treatment doesn't work, you do something else, until you've done everything, including how you look at it and how you adapt to it. > > My prayers are with you , I do hope you eventually find some relief, something to eat (even if it is chocolate and perogies, hell mix them together even!) and that you begin to feel like we're all here with you, despite your feelings of solitary. > > kim in canada > > > ________________________________ > From: lindsayaus <lindsay_kite@...> > achalasia > Sent: Friday, April 13, 2012 10:41 PM > Subject: Hair falling out/thinning > > >  > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 I think you should eat/drink/take some protein. Protein is one of the main nutrients needed for hair to grow. So I suggest taking protein, because it can probably at least slow down, or it could even stop your hair loss. Good Luck > > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 The chewable kids vitamins might be worth looking into. I cannot get those big vitamin pills down without a lot of carbonated liquids. Dan Sent from my Samsung Epicâ„¢ 4G notan ostrich <notan_ostrich@...> wrote: wrote: > > What can I take to stop or slow down my hair from falling out while I > am forced to wait for more treatments. > Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Raw Protein from Garden of Life is a powder you can mix with water or other liquids. The taste is okay and it does not have any additives, just food. I think it's also organic. There are 17 grams of protein per scoop. Good luck and hang in there. You're not as alone as you may feel. Faith Sent from my iPod On Apr 13, 2012, at 20:41, " lindsayaus " <lindsay_kite@...> wrote: > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Faith that looks like a *great* idea! > > > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 This deserves a response. I feel exactly what does because all the standard achalasia treatments don't work for a minority of us. The majority will always proclaim how wonderful their treatments are. It's easy for others to say, " Try something different. " Well, the truth is if you do pursue that route, your GI will probably invalidate your concerns and suggest more failed treatments because those are their expertise. If you've suffered iatrogenic damage from all these treatments, then the very difficult task of basically becoming a medical student to find new treatments experienced medical practitioners haven't haven't yet discovered becomes the patent's responsibility. Going to my GI for a recent CT Scan didn't advance my health interests in anyway. For those of us who have (had) formed a successful relationship with a practitioner who DOES understand, then the real possibility exists the DEA will take away such care. After trying these, and many more meds, with little to no success -- Antidepressants Trazadone Nortriptyline Amitriptyline Carbamazepine Imipramine Gabapentin Pregabalin Nifedipidine Valproate Baclofen Nitroglycerin Lyrica I get angry, too, when something finally does work and it's taken away due to this War on Doctors climate the DEA has fostered in this country. And it's infuriating when other support groups - like the Pain Relief Network (PRN) - get shut down because an abusive federal prosecutor silences and levies onerous fines against it. There's no reason why a VERY invasive, contraindicated esophagectomy surgery should be done when pain management which had kept me healthy could be more available. Most of you in the majority won't understand what those of us in the minority have to deal with. Steve > > > > I'm sorry that you're still feeling like you're the only person in the world with these problems. Â As everyone has said, everyone responds differently. Â Attitude is EVERYTHING. Â I've seen people try to give you advice on foods to try, and you just shut them down. Â Believe me that I understand it's difficult. Â 4 weeks ago, I was attempting to eat perogies at breakfast, because even water wouldn't go through. Â You have to try to calm down, try EVERYTHING, and FIGHT for yourself. Â Don't keep saying " well, if it looked bad, someone would say something. " Â > > > > I've not replied in a while, simply because I didn't feel like I was in a position to say anything to you, but as I sit in the hospital 14 days post ectomy, I can't sit back and read about how frustrated you are still. Â DO SOMETHING! Â I know you are saying that you're doing everything, but if that's the case then do MORE. Â I've been through hell and back, and no, this isn't an option for you. Â There isn't a cure for this disease, there's only treatment. Â If one treatment doesn't work, you do something else, until you've done everything, including how you look at it and how you adapt to it. > > > > My prayers are with you , I do hope you eventually find some relief, something to eat (even if it is chocolate and perogies, hell mix them together even!) and that you begin to feel like we're all here with you, despite your feelings of solitary. > > > > kim in canada > > > > > > ________________________________ > > From: lindsayaus <lindsay_kite@> > > achalasia > > Sent: Friday, April 13, 2012 10:41 PM > > Subject: Hair falling out/thinning > > > > > > Â > > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question. > > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2012 Report Share Posted April 15, 2012 Lindsey, We are here for you but sometimes it feels like you want to let this beat you. It breaks my heart to know that you haven't found a treatment that works for you. It is very difficult to keep a positive attitude when all doctors do is give you the runaround. Please stay with this group. Every day I pray that the next appointment brings you the answers you need. S -- Hair falling out/thinning > > > Â > Now I have established I am all alone here because I seem to be the only one who has not responded to any surgery/dilations, I have one more question > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 i understand Linsay's frustration with GIs doctor not addressing patients who haven't responded to typical treatment modalities. Again, these comments are about achalasians in the <10% " minority " group who don't receive positive outcomes to surgeries or LES manipulations. One problem is doctors don't want to face failures, or they direct them back to the patient. When i had mutiple dilations with no effect, I asked my GI for advice on what to pursue next.Hhe explained the dilators were probably not large enough and suggested a course of increasing dilators with longer durations of full pneumatic expansion. When the last and largest one clearly was painfully ripping up my LES, and I raised my arm to alert him, he just said, " Wait 120 seconds more. " Normally I can tolerate any achalasia procedure and don't mind my body being operated on; but this felt like a lethal cardiac arrest combined with my innards being ripped open. He had no ostensible concern for my pain. In fact, I had to go to the ER later after the GI dept. refused to treat the pain. And in my records, he wrote I had specifically asked for this damaging dilation when it was his recommendation. So - the point is, if even our doctors are going to throw their dirtiwork back in our faces and deny us treatment for their mistakes, how are we supposed to be optimistic for novel, treatment appraoches for those of us who typically don't respond? Steve > > > > I'm sorry that you're still feeling like you're the only person in the > world with these problems. Â As everyone has said, everyone responds > differently. Â Attitude is EVERYTHING. Â I've seen people try to give you > advice on foods to try, and you just shut them down. Â Believe me that I > understand it's difficult. Â 4 weeks ago, I was attempting to eat perogies > at breakfast, because even water wouldn't go through. Â You have to try to > calm down, try EVERYTHING, and FIGHT for yourself. Â Don't keep saying " well > if it looked bad, someone would say something. " Â > > > > I've not replied in a while, simply because I didn't feel like I was in a > position to say anything to you, but as I sit in the hospital 14 days post > ectomy, I can't sit back and read about how frustrated you are still. Â DO > SOMETHING! Â I know you are saying that you're doing everything, but if that > s the case then do MORE. Â I've been through hell and back, and no, this isn > t an option for you. Â There isn't a cure for this disease, there's only > treatment. Â If one treatment doesn't work, you do something else, until you > ve done everything, including how you look at it and how you adapt to it. > > > > My prayers are with you , I do hope you eventually find some relief > something to eat (even if it is chocolate and perogies, hell mix them > together even!) and that you begin to feel like we're all here with you, > despite your feelings of solitary. > > > > kim in canada > > > > > > ________________________________ > > From: lindsayaus <lindsay_kite@> > > achalasia > > Sent: Friday, April 13, 2012 10:41 PM > > Subject: Hair falling out/thinning > > > > > > Â > > Now I have established I am all alone here because I seem to be the only > one who has not responded to any surgery/dilations, I have one more question > > > What can I take to stop or slow down my hair from falling out while I am > forced to wait for more treatments. > > Hoping this time to get an answer before the thread gets hijacked! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 Steve wrote: > > When the last and largest one clearly was painfully ripping up my LES, > and I raised my arm to alert him, he just said, " Wait 120 seconds > more. " Normally I can tolerate any achalasia procedure and don't mind > my body being operated on; but this felt like a lethal cardiac arrest > combined with my innards being ripped open. He had no ostensible > concern for my pain. In fact, I had to go to the ER later after the GI > dept. refused to treat the pain. > I can't imagine a dilatation large enough to be effective not hurting tremendously. If it is large enough to not just stretch the muscle but brake muscle fibers it is going to be painful. That is, unless they put the patient out. It used to be uncommon to put a patient out for out patient endoscopic procedures. Remember all the colonoscopy horror stories from years ago. Today it is common to be out for at least that part of the dilatation if not for the whole procedure, even for EGD without dilatation. Needing a trip to the ER is certainly not typical. That could have indicated a mucosal tear or perforation of the esophagus. Seems you are not just in the unlucky unsuccessful 15% but maybe also in an even smaller morbidity group. (15%, the rate for unsuccessful dilatation is higher than the rate for those that don't get success of any kind). notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2012 Report Share Posted April 18, 2012 Notan said: " I can't imagine a dilatation large enough to be effective not hurting tremendously. " Me too. I've had a number of endoscopies (at different clinics with different combinations of drugs) and never had any discomfort at all. But not when I was having the tests that eventually diagnosed the achalasia. I came out of the drugs just as the scope was being pulled out (as usual) and OMG. Felt like they were ripping out my esophagus. The pain from that had barely subsided and the nurse was getting me ready to leave the room when I was hit with a whole cascade of esophageal spasms. Could barely walk out of the room for the pain and the assistant was very concerned. Not the doc though (I called a few days later and had my case transferred to someone else). So I can't imagine having a dilation without some greater degree of anesthetic if just putting something the size of a regular endoscope through the LES can be so painful to someone with achalasia. Something for patients to check out ahead of time. " Remember all the colonoscopy horror stories from years ago. " Good thing I never heard them! At our clinic conscious sedation for an upper or lower GI consists of two drugs: Midazolam, a sedative that also causes amnesia and Fentanyl, for pain. I told them to ease way up on the former (the idea of not knowing if I had been in pain freaked me out) and to go heavy on the latter. Consequently I was awake for my colonoscopy 6 years ago and remembered the whole thing. The doc had a hard time getting the scope around the splenic bend and it hurt (as a very bad gas pain) for like 20-30 seconds but otherwise-no pain at all. Hopped off the bed afterward and walked back to the recovery area with a smile on my face. Good thing the sphincter down below was not as tight as the one up above! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2012 Report Share Posted April 18, 2012 Notan said: " Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. " Yes (I almost always agree with what you write notan). If this happened to me (and I couldn't eat solid food for a month before my HM so it almost did), I would be very concerned with developing protein-calorie malnutrition. Especially if I was losing hair because that is a classic symptom. I don't know what has or has not been recommended for you so excuse me if I repeat what others have said. All I know is what worked for me. Like I said, getting protein and a smaller amount of carbs into my stomach was my main concern (I'm a nutritionist). There was only so much liquid that could filter through my LES each day and I had to be sure to make the best of it so no water at all. But then I had the advantage of knowing I was having surgery in a month so I wasn't worried about vitamins. I found the casein in milk coagulated in my esophagus (and was regurgitated) so I should have been looking for a nondairy protein source. Whey protein should be alright and has the added benefit of promoting a healthy immune system. Soy and egg are good sources as well. The supplement I took also contained a carbohydrate source instead of a noncaloric sweetener so I didn't burn the protein for energy. Protein drinks designed for muscle builders can contain (what I consider to be) dangerously unbalanced vitamin levels. Protein drinks designed for dieters can contain noncaloric sweeteners and too few carbs. From 4 pm-6 pm I sipped on an electrolyte supplement and then regurgitated everything left over just before I went to bed. --- wrote: > > What can I take to stop or slow down my hair from falling out while I am forced to wait for more treatments. Notan said: Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2012 Report Share Posted April 18, 2012 Hair loss is also a symptom hypothyroidism which can occur after surgery, stress, or severe illness. My hypothyroidism was diagnosed just 3 months after my yotomy. Marci Nor. Cal Connected by DROID on Verizon Wireless Re: Hair falling out/thinning Notan said: " Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. " Yes (I almost always agree with what you write notan). If this happened to me (and I couldn't eat solid food for a month before my HM so it almost did), I would be very concerned with developing protein-calorie malnutrition. Especially if I was losing hair because that is a classic symptom. I don't know what has or has not been recommended for you so excuse me if I repeat what others have said. All I know is what worked for me. Like I said, getting protein and a smaller amount of carbs into my stomach was my main concern (I'm a nutritionist). There was only so much liquid that could filter through my LES each day and I had to be sure to make the best of it so no water at all. But then I had the advantage of knowing I was having surgery in a month so I wasn't worried about vitamins. I found the casein in milk coagulated in my esophagus (and was regurgitated) so I should have been looking for a nondairy protein source. Whey protein should be alright and has the added benefit of promoting a healthy immune system. Soy and egg are g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2012 Report Share Posted April 30, 2012 I had a 1/3 or better of my beautiful hair fall out but it is finally getting better afte 6 months!  Kim A ________________________________ From: " marcenerainey@... " <marcenerainey@...> achalasia Sent: Wednesday, April 18, 2012 10:42 PM Subject: Re: Re: Hair falling out/thinning  Hair loss is also a symptom hypothyroidism which can occur after surgery, stress, or severe illness. My hypothyroidism was diagnosed just 3 months after my yotomy. Marci Nor. Cal Connected by DROID on Verizon Wireless Re: Hair falling out/thinning Notan said: " Extreme diets can make hair fall out. It does not seem to be any one thing missing in the diet that accounts for it. If you get enough calories and basic nutrition hair usually comes back. If you can figure out that you are lacking enough of some nutrients then try to replace them. Be careful with supplement pills that they don't sit in the esophagus and burn it. Vitamin C is a bad one for that. " Yes (I almost always agree with what you write notan). If this happened to me (and I couldn't eat solid food for a month before my HM so it almost did), I would be very concerned with developing protein-calorie malnutrition. Especially if I was losing hair because that is a classic symptom. I don't know what has or has not been recommended for you so excuse me if I repeat what others have said. All I know is what worked for me. Like I said, getting protein and a smaller amount of carbs into my stomach was my main concern (I'm a nutritionist). There was only so much liquid that could filter through my LES each day and I had to be sure to make the best of it so no water at all. But then I had the advantage of knowing I was having surgery in a month so I wasn't worried about vitamins. I found the casein in milk coagulated in my esophagus (and was regurgitated) so I should have been looking for a nondairy protein source. Whey protein should be alright and has the added benefit of promoting a healthy immune system. Soy and egg are g Quote Link to comment Share on other sites More sharing options...
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