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I'm sorry that you're still feeling like you're the only person in the world

with these problems.  As everyone has said, everyone responds differently.

 Attitude is EVERYTHING.  I've seen people try to give you advice on foods to

try, and you just shut them down.  Believe me that I understand it's difficult.

 4 weeks ago, I was attempting to eat perogies at breakfast, because even water

wouldn't go through.  You have to try to calm down, try EVERYTHING, and FIGHT

for yourself.  Don't keep saying " well, if it looked bad, someone would say

something. "  

I've not replied in a while, simply because I didn't feel like I was in a

position to say anything to you, but as I sit in the hospital 14 days post

ectomy, I can't sit back and read about how frustrated you are still.  DO

SOMETHING!  I know you are saying that you're doing everything, but if that's

the case then do MORE.  I've been through hell and back, and no, this isn't an

option for you.  There isn't a cure for this disease, there's only treatment.

 If one treatment doesn't work, you do something else, until you've done

everything, including how you look at it and how you adapt to it.

My prayers are with you , I do hope you eventually find some relief,

something to eat (even if it is chocolate and perogies, hell mix them together

even!) and that you begin to feel like we're all here with you, despite your

feelings of solitary.

kim in canada

________________________________

From: lindsayaus <lindsay_kite@...>

achalasia

Sent: Friday, April 13, 2012 10:41 PM

Subject: Hair falling out/thinning

 

Now I have established I am all alone here because I seem to be the only one who

has not responded to any surgery/dilations, I have one more question.

What can I take to stop or slow down my hair from falling out while I am forced

to wait for more treatments.

Hoping this time to get an answer before the thread gets hijacked!

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You might want to try myofacial release. I learned it from some

physical therapists in The Twin Cities (MN). I use it to

help release the pressure in the gut and

the myotomy area. I've discovered that

bloating, constipation and gas forming foods can change the

pressure and close the esophagus. I discovered

In desperation when I was unable to eat or drink

for four days about 8 weeks ago. There is

always hope . I have to remind myself

of this every meal and at night when laying

down and unable to sleep well because I can

only sleep on my back. We have to take what

we are given and figure out how to go forward

and have a decent quality of life.

I hope someone reminds me of that when

I head down to Mayo MN next month! :)

Faith

Sent from my iPod

On Apr 13, 2012, at 21:13, Kim <kimmydawn42@...> wrote:

> I'm sorry that you're still feeling like you're the only person in the world

with these problems. As everyone has said, everyone responds differently.

Attitude is EVERYTHING. I've seen people try to give you advice on foods to

try, and you just shut them down. Believe me that I understand it's difficult.

4 weeks ago, I was attempting to eat perogies at breakfast, because even water

wouldn't go through. You have to try to calm down, try EVERYTHING, and FIGHT

for yourself. Don't keep saying " well, if it looked bad, someone would say

something. "

>

> I've not replied in a while, simply because I didn't feel like I was in a

position to say anything to you, but as I sit in the hospital 14 days post

ectomy, I can't sit back and read about how frustrated you are still. DO

SOMETHING! I know you are saying that you're doing everything, but if that's

the case then do MORE. I've been through hell and back, and no, this isn't an

option for you. There isn't a cure for this disease, there's only treatment.

If one treatment doesn't work, you do something else, until you've done

everything, including how you look at it and how you adapt to it.

>

> My prayers are with you , I do hope you eventually find some relief,

something to eat (even if it is chocolate and perogies, hell mix them together

even!) and that you begin to feel like we're all here with you, despite your

feelings of solitary.

>

> kim in canada

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Friday, April 13, 2012 10:41 PM

> Subject: Hair falling out/thinning

>

>

>

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

>

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, I wish I knew. By the time I realized it was thinning, it was really

too late. I managed to stop the weight loss after the stay in the cardiac unit,

but it was starting then, and continued for about four months. Between ER and

the Heller, I only did ONE thing: avoid starvation. I bought food, fixed it, ate

it, regurged it and started all over. The only other thing I did was care for a

giant puppy and a very old and fragile cat. No parties, no job, no socializing.

Just cook/eat/uneat. I consider it a miracle that I didn't end up in ER again

and again like Jenn and some others. My hair's about 75% gone. The new hair is

approaching three inches. It's thick and curlier, and I'll be glad in a year or

two when I don't have to use hair spray to keep it where it belongs. My doc

said, six months to a year. I came real close last December to just giving

myself a butch cut. Glad now that I didn't. But my waist length hair is not

coming back for a long long time.

My basic response to crap the Universe has gifted me with has for a long time

been: SHOW ME WHAT I NEED TO DO. Teach me what I need to learn from this,

because I don't want to do it again. Sometimes I do learn. And don't have to

do it again. Other times I drop the ball. . . .

xox

>

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

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wrote:

>

> What can I take to stop or slow down my hair from falling out while I

> am forced to wait for more treatments.

>

Extreme diets can make hair fall out. It does not seem to be any one

thing missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure

out that you are lacking enough of some nutrients then try to replace

them. Be careful with supplement pills that they don't sit in the

esophagus and burn it. Vitamin C is a bad one for that.

notan

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Kim,

I am insulted by your post. I have not 'shut' anyone down over food

suggestions. All I have ever done is try to make sense of all this and learn

what I can to deal with it. I know everyone is different and I know there is no

cure. I am trying everything I can and simply waiting to get through each step.

I am also angry that you tell me to 'calm down' when it is only reading your

post that gets me angry. I thought this was a support forum....guess I was

wrong on that count!

I hope everyone here gets what they want. I am going to go away quietly now and

deal with this the only way I feel I can....by myself.

If anyone wishes to email me privately then go ahead...unless you are too scared

to get 'shut down'.

I learned some great tips and tricks here but I don't think I will learn

anymore.

>

> I'm sorry that you're still feeling like you're the only person in the world

with these problems.  As everyone has said, everyone responds differently.

 Attitude is EVERYTHING.  I've seen people try to give you advice on foods to

try, and you just shut them down.  Believe me that I understand it's difficult.

 4 weeks ago, I was attempting to eat perogies at breakfast, because even water

wouldn't go through.  You have to try to calm down, try EVERYTHING, and FIGHT

for yourself.  Don't keep saying " well, if it looked bad, someone would say

something. "  

>

> I've not replied in a while, simply because I didn't feel like I was in a

position to say anything to you, but as I sit in the hospital 14 days post

ectomy, I can't sit back and read about how frustrated you are still.  DO

SOMETHING!  I know you are saying that you're doing everything, but if that's

the case then do MORE.  I've been through hell and back, and no, this isn't an

option for you.  There isn't a cure for this disease, there's only treatment.

 If one treatment doesn't work, you do something else, until you've done

everything, including how you look at it and how you adapt to it.

>

> My prayers are with you , I do hope you eventually find some relief,

something to eat (even if it is chocolate and perogies, hell mix them together

even!) and that you begin to feel like we're all here with you, despite your

feelings of solitary.

>

> kim in canada

>

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Friday, April 13, 2012 10:41 PM

> Subject: Hair falling out/thinning

>

>

>  

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

>

>

>

>

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Lindsey

Please do not give up please!!! Like you i had some difficulties after having a

HM and eventually went on to have the Oesophagectomy. Ok i still have some

issues and yes i still need a dilatation now and again but i simply get on with

life and rely on my Jejunal feeding tube for nurishment overnight. Don't give up

on this group yet as there are many out there who still rely on the group for

support and won't let the odd one or two people put them off seeking support. I

still need them.

from the UK

________________________________

From: lindsayaus <lindsay_kite@...>

achalasia

Sent: Saturday, April 14, 2012 8:00 AM

Subject: Re: Hair falling out/thinning

 

Kim,

I am insulted by your post. I have not 'shut' anyone down over food

suggestions. All I have ever done is try to make sense of all this and learn

what I can to deal with it. I know everyone is different and I know there is no

cure. I am trying everything I can and simply waiting to get through each step.

I am also angry that you tell me to 'calm down' when it is only reading your

post that gets me angry. I thought this was a support forum....guess I was

wrong on that count!

I hope everyone here gets what they want. I am going to go away quietly now and

deal with this the only way I feel I can....by myself.

If anyone wishes to email me privately then go ahead...unless you are too scared

to get 'shut down'.

I learned some great tips and tricks here but I don't think I will learn

anymore.

>

> I'm sorry that you're still feeling like you're the only person in the world

with these problems.  As everyone has said, everyone responds differently.

 Attitude is EVERYTHING.  I've seen people try to give you advice on foods

to try, and you just shut them down.  Believe me that I understand it's

difficult.  4 weeks ago, I was attempting to eat perogies at breakfast,

because even water wouldn't go through.  You have to try to calm down, try

EVERYTHING, and FIGHT for yourself.  Don't keep saying " well, if it looked

bad, someone would say something. "  

>

> I've not replied in a while, simply because I didn't feel like I was in a

position to say anything to you, but as I sit in the hospital 14 days post

ectomy, I can't sit back and read about how frustrated you are still.  DO

SOMETHING!  I know you are saying that you're doing everything, but if that's

the case then do MORE.  I've been through hell and back, and no, this isn't

an option for you.  There isn't a cure for this disease, there's only

treatment.  If one treatment doesn't work, you do something else, until

you've done everything, including how you look at it and how you adapt to it.

>

> My prayers are with you , I do hope you eventually find some relief,

something to eat (even if it is chocolate and perogies, hell mix them together

even!) and that you begin to feel like we're all here with you, despite your

feelings of solitary.

>

> kim in canada

>

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Friday, April 13, 2012 10:41 PM

> Subject: Hair falling out/thinning

>

>

>  

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

>

>

>

>

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I think you should eat/drink/take some protein. Protein is one of the main

nutrients needed for hair to grow. So I suggest taking protein, because it can

probably at least slow down, or it could even stop your hair loss.

Good Luck :)

>

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

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The chewable kids vitamins might be worth looking into. I cannot get those big

vitamin pills down without a lot of carbonated liquids.

Dan

Sent from my Samsung Epicâ„¢ 4G

notan ostrich <notan_ostrich@...> wrote:

wrote:

>

> What can I take to stop or slow down my hair from falling out while I

> am forced to wait for more treatments.

>

Extreme diets can make hair fall out. It does not seem to be any one

thing missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure

out that you are lacking enough of some nutrients then try to replace

them. Be careful with supplement pills that they don't sit in the

esophagus and burn it. Vitamin C is a bad one for that.

notan

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Raw Protein from Garden of Life is a powder

you can mix with water or other liquids.

The taste is okay and it does not have any

additives, just food. I think it's also organic. There

are 17 grams of protein per scoop.

Good luck and hang in there. You're not as

alone as you may feel.

Faith

Sent from my iPod

On Apr 13, 2012, at 20:41, " lindsayaus " <lindsay_kite@...> wrote:

> Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

>

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Faith that looks like a *great* idea!

>

> > Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> > What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> > Hoping this time to get an answer before the thread gets hijacked!

> >

> >

> >

> >

>

>

>

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Guest guest

This deserves a response.

I feel exactly what does because all the standard achalasia treatments

don't work for a minority of us. The majority will always proclaim how wonderful

their treatments are.

It's easy for others to say, " Try something different. " Well, the truth is if

you do pursue that route, your GI will probably invalidate your concerns and

suggest more failed treatments because those are their expertise.

If you've suffered iatrogenic damage from all these treatments, then the very

difficult task of basically becoming a medical student to find new treatments

experienced medical practitioners haven't haven't yet discovered becomes the

patent's responsibility. Going to my GI for a recent CT Scan didn't advance my

health interests in anyway.

For those of us who have (had) formed a successful relationship with a

practitioner who DOES understand, then the real possibility exists the DEA will

take away such care. After trying these, and many more meds, with little to no

success --

Antidepressants

Trazadone

Nortriptyline

Amitriptyline

Carbamazepine

Imipramine

Gabapentin

Pregabalin

Nifedipidine

Valproate

Baclofen

Nitroglycerin

Lyrica

I get angry, too, when something finally does work and it's taken away due to

this War on Doctors climate the DEA has fostered in this country. And it's

infuriating when other support groups - like the Pain Relief Network (PRN) - get

shut down because an abusive federal prosecutor silences and levies onerous

fines against it.

There's no reason why a VERY invasive, contraindicated esophagectomy surgery

should be done when pain management which had kept me healthy could be more

available.

Most of you in the majority won't understand what those of us in the minority

have to deal with.

Steve

> >

> > I'm sorry that you're still feeling like you're the only person in the world

with these problems.  As everyone has said, everyone responds differently.

 Attitude is EVERYTHING.  I've seen people try to give you advice on foods to

try, and you just shut them down.  Believe me that I understand it's difficult.

 4 weeks ago, I was attempting to eat perogies at breakfast, because even water

wouldn't go through.  You have to try to calm down, try EVERYTHING, and FIGHT

for yourself.  Don't keep saying " well, if it looked bad, someone would say

something. "  

> >

> > I've not replied in a while, simply because I didn't feel like I was in a

position to say anything to you, but as I sit in the hospital 14 days post

ectomy, I can't sit back and read about how frustrated you are still.  DO

SOMETHING!  I know you are saying that you're doing everything, but if that's

the case then do MORE.  I've been through hell and back, and no, this isn't an

option for you.  There isn't a cure for this disease, there's only treatment.

 If one treatment doesn't work, you do something else, until you've done

everything, including how you look at it and how you adapt to it.

> >

> > My prayers are with you , I do hope you eventually find some relief,

something to eat (even if it is chocolate and perogies, hell mix them together

even!) and that you begin to feel like we're all here with you, despite your

feelings of solitary.

> >

> > kim in canada

> >

> >

> > ________________________________

> > From: lindsayaus <lindsay_kite@>

> > achalasia

> > Sent: Friday, April 13, 2012 10:41 PM

> > Subject: Hair falling out/thinning

> >

> >

> >  

> > Now I have established I am all alone here because I seem to be the only one

who has not responded to any surgery/dilations, I have one more question.

> > What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> > Hoping this time to get an answer before the thread gets hijacked!

> >

> >

> >

> >

> >

> >

> >

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Lindsey,

We are here for you but sometimes it feels like you want to let this beat

you. It breaks my heart to know that you haven't found a treatment that

works for you. It is very difficult to keep a positive attitude when all

doctors do is give you the runaround. Please stay with this group. Every day

I pray that the next appointment brings you the answers you need.

S

-- Hair falling out/thinning

>

>

> Â

> Now I have established I am all alone here because I seem to be the only

one who has not responded to any surgery/dilations, I have one more question

> What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

> Hoping this time to get an answer before the thread gets hijacked!

>

>

>

>

>

>

>

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i understand Linsay's frustration with GIs doctor not addressing patients who

haven't responded to typical treatment modalities.

Again, these comments are about achalasians in the <10% " minority " group who

don't receive positive outcomes to surgeries or LES manipulations.

One problem is doctors don't want to face failures, or they direct them back to

the patient. When i had mutiple dilations with no effect, I asked my GI for

advice on what to pursue next.Hhe explained the dilators were probably not large

enough and suggested a course of increasing dilators with longer durations of

full pneumatic expansion.

When the last and largest one clearly was painfully ripping up my LES, and I

raised my arm to alert him, he just said, " Wait 120 seconds more. " Normally I

can tolerate any achalasia procedure and don't mind my body being operated on;

but this felt like a lethal cardiac arrest combined with my innards being ripped

open. He had no ostensible concern for my pain. In fact, I had to go to the ER

later after the GI dept. refused to treat the pain.

And in my records, he wrote I had specifically asked for this damaging dilation

when it was his recommendation.

So - the point is, if even our doctors are going to throw their dirtiwork back

in our faces and deny us treatment for their mistakes, how are we supposed to be

optimistic for novel, treatment appraoches for those of us who typically don't

respond?

Steve

> >

> > I'm sorry that you're still feeling like you're the only person in the

> world with these problems. Â As everyone has said, everyone responds

> differently. Â Attitude is EVERYTHING. Â I've seen people try to give you

> advice on foods to try, and you just shut them down. Â Believe me that I

> understand it's difficult. Â 4 weeks ago, I was attempting to eat perogies

> at breakfast, because even water wouldn't go through. Â You have to try to

> calm down, try EVERYTHING, and FIGHT for yourself. Â Don't keep saying " well

> if it looked bad, someone would say something. " Â

> >

> > I've not replied in a while, simply because I didn't feel like I was in a

> position to say anything to you, but as I sit in the hospital 14 days post

> ectomy, I can't sit back and read about how frustrated you are still. Â DO

> SOMETHING! Â I know you are saying that you're doing everything, but if that

> s the case then do MORE. Â I've been through hell and back, and no, this isn

> t an option for you. Â There isn't a cure for this disease, there's only

> treatment. Â If one treatment doesn't work, you do something else, until you

> ve done everything, including how you look at it and how you adapt to it.

> >

> > My prayers are with you , I do hope you eventually find some relief

> something to eat (even if it is chocolate and perogies, hell mix them

> together even!) and that you begin to feel like we're all here with you,

> despite your feelings of solitary.

> >

> > kim in canada

> >

> >

> > ________________________________

> > From: lindsayaus <lindsay_kite@>

> > achalasia

> > Sent: Friday, April 13, 2012 10:41 PM

> > Subject: Hair falling out/thinning

> >

> >

> > Â

> > Now I have established I am all alone here because I seem to be the only

> one who has not responded to any surgery/dilations, I have one more question

>

> > What can I take to stop or slow down my hair from falling out while I am

> forced to wait for more treatments.

> > Hoping this time to get an answer before the thread gets hijacked!

> >

> >

> >

> >

> >

> >

> >

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Steve wrote:

>

> When the last and largest one clearly was painfully ripping up my LES,

> and I raised my arm to alert him, he just said, " Wait 120 seconds

> more. " Normally I can tolerate any achalasia procedure and don't mind

> my body being operated on; but this felt like a lethal cardiac arrest

> combined with my innards being ripped open. He had no ostensible

> concern for my pain. In fact, I had to go to the ER later after the GI

> dept. refused to treat the pain.

>

I can't imagine a dilatation large enough to be effective not hurting

tremendously. If it is large enough to not just stretch the muscle but

brake muscle fibers it is going to be painful. That is, unless they put

the patient out. It used to be uncommon to put a patient out for out

patient endoscopic procedures. Remember all the colonoscopy horror

stories from years ago. Today it is common to be out for at least that

part of the dilatation if not for the whole procedure, even for EGD

without dilatation.

Needing a trip to the ER is certainly not typical. That could have

indicated a mucosal tear or perforation of the esophagus. Seems you are

not just in the unlucky unsuccessful 15% but maybe also in an even

smaller morbidity group. (15%, the rate for unsuccessful dilatation is

higher than the rate for those that don't get success of any kind).

notan

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Notan said:

" I can't imagine a dilatation large enough to be effective not hurting

tremendously. "

Me too. I've had a number of endoscopies (at different clinics with different

combinations of drugs) and never had any discomfort at all. But not when I was

having the tests that eventually diagnosed the achalasia. I came out of the

drugs just as the scope was being pulled out (as usual) and OMG. Felt like they

were ripping out my esophagus. The pain from that had barely subsided and the

nurse was getting me ready to leave the room when I was hit with a whole cascade

of esophageal spasms. Could barely walk out of the room for the pain and the

assistant was very concerned. Not the doc though (I called a few days later and

had my case transferred to someone else). So I can't imagine having a dilation

without some greater degree of anesthetic if just putting something the size of

a regular endoscope through the LES can be so painful to someone with achalasia.

Something for patients to check out ahead of time.

" Remember all the colonoscopy horror stories from years ago. "

Good thing I never heard them! At our clinic conscious sedation for an upper or

lower GI consists of two drugs: Midazolam, a sedative that also causes amnesia

and Fentanyl, for pain. I told them to ease way up on the former (the idea of

not knowing if I had been in pain freaked me out) and to go heavy on the latter.

Consequently I was awake for my colonoscopy 6 years ago and remembered the whole

thing. The doc had a hard time getting the scope around the splenic bend and it

hurt (as a very bad gas pain) for like 20-30 seconds but otherwise-no pain at

all. Hopped off the bed afterward and walked back to the recovery area with a

smile on my face.

Good thing the sphincter down below was not as tight as the one up above!

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Notan said:

" Extreme diets can make hair fall out. It does not seem to be any one thing

missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure out that

you are lacking enough of some nutrients then try to replace them. Be careful

with supplement pills that they don't sit in the esophagus and burn it. Vitamin

C is a bad one for that. "

Yes (I almost always agree with what you write notan). If this happened to me

(and I couldn't eat solid food for a month before my HM so it almost did), I

would be very concerned with developing protein-calorie malnutrition. Especially

if I was losing hair because that is a classic symptom.

I don't know what has or has not been recommended for you so excuse me if I

repeat what others have said. All I know is what worked for me.

Like I said, getting protein and a smaller amount of carbs into my stomach was

my main concern (I'm a nutritionist). There was only so much liquid that could

filter through my LES each day and I had to be sure to make the best of it so no

water at all. But then I had the advantage of knowing I was having surgery in a

month so I wasn't worried about vitamins.

I found the casein in milk coagulated in my esophagus (and was regurgitated) so

I should have been looking for a nondairy protein source. Whey protein should be

alright and has the added benefit of promoting a healthy immune system. Soy and

egg are good sources as well. The supplement I took also contained a

carbohydrate source instead of a noncaloric sweetener so I didn't burn the

protein for energy. Protein drinks designed for muscle builders can contain

(what I consider to be) dangerously unbalanced vitamin levels. Protein drinks

designed for dieters can contain noncaloric sweeteners and too few carbs.

From 4 pm-6 pm I sipped on an electrolyte supplement and then regurgitated

everything left over just before I went to bed.

--- wrote:

> > What can I take to stop or slow down my hair from falling out while I am

forced to wait for more treatments.

Notan said:

Extreme diets can make hair fall out. It does not seem to be any one thing

missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure out that

you are lacking enough of some nutrients then try to replace them. Be careful

with supplement pills that they don't sit in the esophagus and burn it. Vitamin

C is a bad one for that.

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Guest guest

Hair loss is also a symptom hypothyroidism which can occur after surgery,

stress, or severe illness.

My hypothyroidism was diagnosed just 3 months after my yotomy.

Marci

Nor. Cal

Connected by DROID on Verizon Wireless

Re: Hair falling out/thinning

Notan said:

" Extreme diets can make hair fall out. It does not seem to be any one thing

missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure out

that you are lacking enough of some nutrients then try to replace them. Be

careful with supplement pills that they don't sit in the esophagus and burn

it. Vitamin C is a bad one for that. "

Yes (I almost always agree with what you write notan). If this happened to

me (and I couldn't eat solid food for a month before my HM so it almost

did), I would be very concerned with developing protein-calorie

malnutrition. Especially if I was losing hair because that is a classic

symptom.

I don't know what has or has not been recommended for you so excuse me if I

repeat what others have said. All I know is what worked for me.

Like I said, getting protein and a smaller amount of carbs into my stomach

was my main concern (I'm a nutritionist). There was only so much liquid that

could filter through my LES each day and I had to be sure to make the best

of it so no water at all. But then I had the advantage of knowing I was

having surgery in a month so I wasn't worried about vitamins.

I found the casein in milk coagulated in my esophagus (and was regurgitated)

so I should have been looking for a nondairy protein source. Whey protein

should be alright and has the added benefit of promoting a healthy immune

system. Soy and egg are g

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  • 2 weeks later...
Guest guest

I had a 1/3 or better of my beautiful hair fall out but it is finally getting

better afte 6 months!

 

Kim A

________________________________

From: " marcenerainey@... " <marcenerainey@...>

achalasia

Sent: Wednesday, April 18, 2012 10:42 PM

Subject: Re: Re: Hair falling out/thinning

 

Hair loss is also a symptom hypothyroidism which can occur after surgery,

stress, or severe illness.

My hypothyroidism was diagnosed just 3 months after my yotomy.

Marci

Nor. Cal

Connected by DROID on Verizon Wireless

Re: Hair falling out/thinning

Notan said:

" Extreme diets can make hair fall out. It does not seem to be any one thing

missing in the diet that accounts for it. If you get enough

calories and basic nutrition hair usually comes back. If you can figure out

that you are lacking enough of some nutrients then try to replace them. Be

careful with supplement pills that they don't sit in the esophagus and burn

it. Vitamin C is a bad one for that. "

Yes (I almost always agree with what you write notan). If this happened to

me (and I couldn't eat solid food for a month before my HM so it almost

did), I would be very concerned with developing protein-calorie

malnutrition. Especially if I was losing hair because that is a classic

symptom.

I don't know what has or has not been recommended for you so excuse me if I

repeat what others have said. All I know is what worked for me.

Like I said, getting protein and a smaller amount of carbs into my stomach

was my main concern (I'm a nutritionist). There was only so much liquid that

could filter through my LES each day and I had to be sure to make the best

of it so no water at all. But then I had the advantage of knowing I was

having surgery in a month so I wasn't worried about vitamins.

I found the casein in milk coagulated in my esophagus (and was regurgitated)

so I should have been looking for a nondairy protein source. Whey protein

should be alright and has the added benefit of promoting a healthy immune

system. Soy and egg are g

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