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I've been suffering from esophageal spasms ever since having nissen

fundoplication & hiatal hernia surgery on Oct 26, 2009.  I am currently

doctoring at OSU & have tried many drugs to prevent the spasms.  Also, no pain

medications seems to help once I get them.  I saw my doctor last Monday & they

have referred me to Dr who is a surgeon.  They want his opinion about

going in & possibly:

#1: clipping nerves in my esophagus

#2: making a hole in the side of my esophagus & going down next to it (doctor

mentioned achalasia here)

#3: removing esophagus & pulling up the stomach

#4: undoing the nissen

 

I'm looking for feedback on any of these procedures and/or Dr .  I was

fortunate enough to get an appointment for next Monday the 26th.

 

Thank you,

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Hi ,

I was about to have the fundo done when it got discovered I have A. Doing the

fundo by itself would have been very wrong and the opposite to what is required

with A.

>

> I've been suffering from esophageal spasms ever since having nissen

fundoplication & hiatal hernia surgery on Oct 26, 2009.  I am currently

doctoring at OSU & have tried many drugs to prevent the spasms.  Also, no pain

medications seems to help once I get them.  I saw my doctor last Monday & they

have referred me to Dr who is a surgeon.  They want his opinion about

going in & possibly:

> #1: clipping nerves in my esophagus

> #2: making a hole in the side of my esophagus & going down next to it (doctor

mentioned achalasia here)

> #3: removing esophagus & pulling up the stomach

> #4: undoing the nissen

>  

> I'm looking for feedback on any of these procedures and/or Dr .  I was

fortunate enough to get an appointment for next Monday the 26th.

>  

> Thank you,

>

>

>

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Hello lindsay,

It wouldn't be the first time doing a procedure before or after a prerequisite

sequence is very wrong.

But let's stick to 's questions

1. Severing the Vagus nerve is an option to reduce acid reflux

2. Never heard this one before. I would assume if achalaia were Dx'ed, cutting a

hole in the esophagus would be a direct means of inducing infection into the

chest cavity.

3. The gastric pull-up is usually performed after most other

procedures/surgeries fail. The vagus nerve is sometimes addressed st this point.

ly I wouldn't want an open conduit channeling feculent and purge,

complicating pulmonary problems.

4. Undoing the Nissan. It sounds like 's doctors are dealing with achalsia

in a haphazard, piece-meal approach.

I will also attest to others interested that pain management was infinitely

better for managing symptoms and improving my quality of life for many years

than all these basic surgical manipulations of the LES and esophagus. GI's and

surgeons won't tell you this because it isn't in their sphere of influence or

doesn't coincide with their opiophobia and opioignorance.

And now, without it, my current corpse, wasting-away appearnce must be a

" wonderful " outcome for all the GIs and surgeon's handiwork.

, be careful which way you choose, since much of achalasia treatments are

irreversible.

Steve

> >

> > I've been suffering from esophageal spasms ever since having nissen

fundoplication & hiatal hernia surgery on Oct 26, 2009.  I am currently

doctoring at OSU & have tried many drugs to prevent the spasms.  Also, no pain

medications seems to help once I get them.  I saw my doctor last Monday & they

have referred me to Dr who is a surgeon.  They want his opinion about

going in & possibly:

> > #1: clipping nerves in my esophagus

> > #2: making a hole in the side of my esophagus & going down next to it

(doctor mentioned achalasia here)

> > #3: removing esophagus & pulling up the stomach

> > #4: undoing the nissen

> >  

> > I'm looking for feedback on any of these procedures and/or Dr .  I was

fortunate enough to get an appointment for next Monday the 26th.

> >  

> > Thank you,

> >

> >

> >

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I've never been diagnosed with A.  I've had 3 menometry's at 3 different

facilities & each time they said it

wasn't A.  I'm drawing a blank as to the name of it but last year I wore a tube

in my nose & down my throat for 24 hrs.  It was to detect acid in my system but

none was located.  Of course I had a severe spasm attack only 13 hrs after

removal of the thing.  Some of the discomfort I experience in my throat I want

to say is a burning feeling but I hesitate to say it is acid reflux or

heartburn.  All those years I suffered from acid reflux I never once felt

heartburn, I only ever got slammed with the awful attacks that came one after

another, sometimes 7-10 in a row until I couldn't take it any longer & had to

drive to the hospital for a GI cocktail.  I told my husband once that I would

rather go through labor it hurt so bad.  At least I got something beautiful

after the ordeal was over.

 

________________________________

From: nailheader <stevenakamichi@...>

achalasia

Sent: Tuesday, March 20, 2012 10:40 PM

Subject: Re: Esophageal Surgeries

 

Hello lindsay,

It wouldn't be the first time doing a procedure before or after a prerequisite

sequence is very wrong.

But let's stick to 's questions

1. Severing the Vagus nerve is an option to reduce acid reflux

2. Never heard this one before. I would assume if achalaia were Dx'ed, cutting a

hole in the esophagus would be a direct means of inducing infection into the

chest cavity.

3. The gastric pull-up is usually performed after most other

procedures/surgeries fail. The vagus nerve is sometimes addressed st this point.

ly I wouldn't want an open conduit channeling feculent and purge,

complicating pulmonary problems.

4. Undoing the Nissan. It sounds like 's doctors are dealing with achalsia

in a haphazard, piece-meal approach.

I will also attest to others interested that pain management was infinitely

better for managing symptoms and improving my quality of life for many years

than all these basic surgical manipulations of the LES and esophagus. GI's and

surgeons won't tell you this because it isn't in their sphere of influence or

doesn't coincide with their opiophobia and opioignorance.

And now, without it, my current corpse, wasting-away appearnce must be a

" wonderful " outcome for all the GIs and surgeon's handiwork.

, be careful which way you choose, since much of achalasia treatments are

irreversible.

Steve

> >

> > I've been suffering from esophageal spasms ever since having nissen

fundoplication & hiatal hernia surgery on Oct 26, 2009.  I am currently

doctoring at OSU & have tried many drugs to prevent the spasms.  Also, no pain

medications seems to help once I get them.  I saw my doctor last Monday & they

have referred me to Dr who is a surgeon.  They want his opinion

about going in & possibly:

> > #1: clipping nerves in my esophagus

> > #2: making a hole in the side of my esophagus & going down next to it

(doctor mentioned achalasia here)

> > #3: removing esophagus & pulling up the stomach

> > #4: undoing the nissen

> >  

> > I'm looking for feedback on any of these procedures and/or Dr .  I was

fortunate enough to get an appointment for next Monday the 26th.

> >  

> > Thank you,

> >

> >

> >

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Westerdes wrote:

>

> #1: clipping nerves in my esophagus

>

The clipping of nerve can get results. Cut nerves, actually the cut

axons of nerves, sometimes grow back.

> #2: making a hole in the side of my esophagus & going down next to it

> (doctor mentioned achalasia here)

>

Not sure, but he may be referring to POEM or another similar type of

endoscopic surgery where they tunnel between the layers of the

esophageal tissue to make a myotomy. The myotomy could be a long one

along more of the esophagus than a heller myotomy if it is for spasms

above the LES. This is new promising tech.

> #3: removing esophagus & pulling up the stomach

>

This would be the desperate or last option for most people, but

generally very effective with some side effects that take some getting

used to.

> #4: undoing the nissen

>

I think this is kind of a shot in the dark for spasms but worth

considering your surgeons opinion on it.

notan

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I had my visit with the surgeon on Monday, March 26th.  He said that none of

these suggestions would work for me.  I felt very depressed during my

appointment, very let down.  He did order a barium swallow which I have had

before.  Lucky for me though I had not eaten anything yet & they were able to

do the test that day.  At practically $4.00 a gal for gas, I hated to drive

there again just for the short test.  The test went the same as before, except

the surgeon ordered for me to swallow a solid this time.  During the test I was

given a small cookie.  When I swallowed it the doctor asked me if I swallowed

it yet which I replied yes.  I could see it on the monitor kind of suspended in

my esophagus.  He then asked me to swallow some saliva which I did & it barely

moved.  I will say that this part of the test got me a little excited because

it made me think that I had failed the test.  I called on Thursday & was told

that everything passed

through my wrap fine but my esophagus was not functioning property.  The nurse

stated it was having motility problems & that the surgeon would speak with me

about it at my next visit on April 9th.  Now the waiting game again to see if

there is anything that can be done. 

 

________________________________

From: notan ostrich <notan_ostrich@...>

achalasia

Sent: Sunday, March 25, 2012 7:43 PM

Subject: Re: Esophageal Surgeries

 

Westerdes wrote:

>

> #1: clipping nerves in my esophagus

>

The clipping of nerve can get results. Cut nerves, actually the cut

axons of nerves, sometimes grow back.

> #2: making a hole in the side of my esophagus & going down next to it

> (doctor mentioned achalasia here)

>

Not sure, but he may be referring to POEM or another similar type of

endoscopic surgery where they tunnel between the layers of the

esophageal tissue to make a myotomy. The myotomy could be a long one

along more of the esophagus than a heller myotomy if it is for spasms

above the LES. This is new promising tech.

> #3: removing esophagus & pulling up the stomach

>

This would be the desperate or last option for most people, but

generally very effective with some side effects that take some getting

used to.

> #4: undoing the nissen

>

I think this is kind of a shot in the dark for spasms but worth

considering your surgeons opinion on it.

notan

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wrote:

>

> ... The nurse stated it was having motility problems & that the

> surgeon would speak with me about it at my next visit on April 9th.

> Now the waiting game again to see if there is anything that can be done.

>

He may want to try to reduce the obstruction at the LES first to see if

that helps with the other problems.

notan

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