Re: update: (from ) newly diagnosed with ....find expert doctor?

March 12, 2012

Hope you have success with your doctor and treatment.

I too am so grateful for this supportive group and all the information I have

learned here.

>

> First of all, you guys are great! This is the first time I join a group

> and I never expected to receive SO much support and advice from those

> who experience achalasia! I have learned a lot from all of you and I am

> taking your advice:Since I was so confused about *if* I had a true

> achalasia diagnosis, I send my brother-in-law (anesthesiologist) in

> Texas my records. He showed 2 gastroenterologists my records and both

> agreed that it is indeed achalasia with esophageal spasms. They also

> agreed that if they were treating me, they would suggest the botox

> injections*with* dilation. SO, I am going to Dr. at Ochsner

> in New Orleans as some of you have suggested (thanks!) My appointment is

> Monday 3/19 and I will be there 1 and 1/2 hours early to make sure I

> don't get stuck in traffic and miss the doctor again! He is SO booked

> up, but they did hear me out and put me in asap because of my insurance

> situation. This doctor is very experienced with A and I will mention

> about being treated early and aggressively - and maybe NOT botox, since

> it is such a temporary fix. I appreciate this group especially because

> my husband is not supportive. I know he cares, and I tried to explain

> the road ahead with achalasia, but he's never been sick a day in his

> life so he's not really interested in talking about it - maybe that's a

> good thing, but I'm grateful for this group and the internet! I'll

> keep you posted.....

>

March 25, 2012

wrote:

>

> ... My appointment is Monday 3/19 ...

>

What did you find out? Botox is sometimes a good way to go as a test

before surgery when there are spasm such as in DES. If it works then the

surgery should work too. A negative result doesn't tell anything about

surgery though.

notan

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