Re: Scared about esophageal manometry or esophageal motility test!? Update

[Guest guest]

Wow, Harry! No wonder you're so worried! You'd think peeps working in a

*children's* hospital would/could do a bit better than that!!

And Friday the Thirteenth? My parents were married that day, loved each other

till they died, had nine kids who loved them and whom they loved: How can it NOT

be the LUCKIEST DAY IN THE WORLD!!? BTW, in Greece it's considered a LUCKY

number! You can buy all kinds of things like keychains, and neck medals with 13

on them.

When you're done and come back, take a look at Sue's posts -- she has a daughter

who was just diagnosed, who is, tah dah: 14 years old!!

Maybe you guys could talk together -- you sure have something in common!

HugZ!!

(and Harry is a *terrific* name. . . . Name of the father of my kids, lol!

Work a bit of magic for yourself, eh?)

> >

> > Has any one had this done before, if you have, what was it like. From what I

know, the doctors anethesize your nose, then put a tube down your nose into your

esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> >

>

[Guest guest]

Hi Harry,

You had a tough time. If you go in tomorrow and they don't explain anything to

you, then ask. Sometimes people get carried away with what they are doing and

get very focused and forget about the person that they are trying to help. More

times than not, they are very happy to help you understand and help get you

calm. I think whether you are 15 or 55, achalasia and all the tests that go

with it can be very scary and uncomfortable. I'm kind of new to this group and

had never met another person in 21 years that had achalasia. So, it's good you

are connecting with others now. I wish I had known about this group. I've

already learned some new techniques to get food down.

Good luck to you. I will probably be having one in a month or two.

Best Regards:)

Scared about esophageal manometry or esophageal motility

test!? " Update "

Thank you so much for replying! It's really is helping me to be less scared and

more confident about taking the test. I am still quite a bit scared, but thanks

to you guys, I know I will try my best to be calm during the test. It will be

tommorow pretty early in the morning. Again, thank you all for replying, and I

will be sure to write again soon about for people in the future who are going to

take this test. I forgot to introduce my self in the original post so I will

now. My name is Harry. Right now, I am 14 years old. I started showing symptoms

of whatever I have 4-5 years ago. I didn't ask for help until about one year in.

I was taken to a gastrolegest and she thought I had GERD, and ordered an

endoscopy. I went to a cooks children hospital to do it, and it was the worst

experience of my life. They did all the prepartations for the endoscopy in an

area surrounded by curtains. A lot of people were in the area, and I could hear

some screaming, and I did see a mother who wa s going to give birth or something

being rushed through these hospital doors. I was not in a room. I was extremely

scared. After an hour of wating, a nurse bought me down to the room, and right

when I get in there, they did not explain anything to me. All the guys in the

room just grabbed me and held down by my hands and feet. Then they put a mask on

me, while I was struggling as hard as I could. They gassed me, and It was the

worst smell ever! Smelled like very strong nail polish, and rotten bananas. I

felt every single one of my senses, hearing, feeling, and seeing, just slowly

drift away. It was terrifying, especially since I was being held down and was

struggling the whole time. Then, I was out. They did a endoscopy and also put

some weird wire down my throat into my stomach, and it had an moniter attached

to it. I could feel the wire in the back of my throat and the wire was taped

under my nose. It is suppose to measure reflux. I had to have it on for one day.

It turns out, I had mild reflux, and the doctor put me on reflux medicine for

half a year. Every single time I went to the pediatrician, which was two times a

year, I told her about my symptoms of dyphagia and regurgitation, but she never

listened. Finally, 4 years later when I am 14, there was a different doctor. She

believed me. I had to do a barium swallow at a x-ray place over Christmas break.

When she saw the results she sent me to a gastrologist, who is not with cooks

children. He then ordered another endoscopy since it has been so long since the

last one (And I still remember it like it was last week)at a different hospital.

This time everything went great. They told me exactly what they were doing

before the procedure, and even offered to let me hold the mask up to my

face(Though I didn't since I was still very scared due to my previous

experience, in fact I admit, I got kind of worked up). Afterwards, the doctor

told me that it seems very likely that I have achalasia, and I am going to have

to have an esophageal manometry. He also mention that it might be a problem

considering that I got pretty worked up about the gas. This was in late

December. I knew what it was, and I was like no big deal, it is going to be

quite a while before I have to do it. It has been quite awhile. Today is April

12, 2012. My procedure is tommorow, on Friday the 13th. I kind of have a fear of

the number 13... And... I am going to have it ironically, where I began. At the

cooks children hospital I had my first horrible hospital experience almost 4

years ago. Friday the 13th... That hospital... not a good combination. I am very

scared, but because of all your replies, I may just build up the bravery to do

this. I just hope I am not... unlucky... and have a horrible experience like the

first time. Thank you for reading it, thought I doubt anyone will read this

whole thing but if you did, thank you! I will probably be up all night tonight

due to nervousness, but thanks to y ou guys I will try to be calm, in fact, I

will be calm. I will be sure to tell you how it went, and what the results were.

Again, thank you for replying and reading, it is really helping.

>

> Has any one had this done before, if you have, what was it like. From what I

know, the doctors anethesize your nose, then put a tube down your nose into your

esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

>

[Guest guest]

Hi Harry,

 

We all know that there are children out there with achalasia, but I can't

remember the last time one posted on his own here. Seems so strange, since it is

always the parent.  Its good to get a first person account, and I hope it

helps others your age.  Speaking about parents, it just seemed very odd to me

that throughout all of this you never mentioned your parents once.?

 

Good luck today with your manometry test. We are all rooting for you!

 

 

PS: Contrary to what you wrote, I am willing to bet that most people will have

read your entire message.

________________________________

From: puddleriver13 <puddleriver13@...>

achalasia

Sent: Friday, April 13, 2012 9:26 AM

Subject: Re: Scared about esophageal manometry or esophageal

motility test!? " Update "

 

Wow, Harry! No wonder you're so worried! You'd think peeps working in a

*children's* hospital would/could do a bit better than that!!

And Friday the Thirteenth? My parents were married that day, loved each other

till they died, had nine kids who loved them and whom they loved: How can it NOT

be the LUCKIEST DAY IN THE WORLD!!? BTW, in Greece it's considered a LUCKY

number! You can buy all kinds of things like keychains, and neck medals with 13

on them.

When you're done and come back, take a look at Sue's posts -- she has a daughter

who was just diagnosed, who is, tah dah: 14 years old!!

Maybe you guys could talk together -- you sure have something in common!

HugZ!!

(and Harry is a *terrific* name. . . . Name of the father of my kids, lol! Work

a bit of magic for yourself, eh?)

> >

> > Has any one had this done before, if you have, what was it like. From what I

know, the doctors anethesize your nose, then put a tube down your nose into your

esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> >

>

[Guest guest]

, we had Scarlett last fall. She was 17. In the event, it wasn't

Achalasia.

achalasia/message/63142

> > >

> > > Has any one had this done before, if you have, what was it like. From what

I know, the doctors anethesize your nose, then put a tube down your nose into

your esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> > >

> >

>

>

>

>

>

[Guest guest]

Hi Harry, My name is and I live in Thunder Bay, Ontario. I just

wanted to let you know I am thinking about you today and I read your story:-) I

have had all the testing years ago, but I still remember it well. I was

diagnosed at 25 and I'm 46 now. I've also had a few surgeries and I'm doing

great now. I just wanted to write some encouraging words and let you know that,

yes, we read the posts! Best of luck today. .

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[Guest guest]

Hi ,

 

That was some story Scarlett posted.  How is she doing now?

 

________________________________

From: puddleriver13 <puddleriver13@...>

achalasia

Sent: Friday, April 13, 2012 1:26 PM

Subject: Re: Scared about esophageal manometry or esophageal

motility test!? " Update "

 

, we had Scarlett last fall. She was 17. In the event, it wasn't

Achalasia.

achalasia/message/63142

> > >

> > > Has any one had this done before, if you have, what was it like. From what

I know, the doctors anethesize your nose, then put a tube down your nose into

your esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

> > >

> >

>

>

>

>

>

[Guest guest]

Yes I did read all through this.  Sorry about all your problems.  Hope this

brings you come good news, hope everything went well.  We are here for you.

 

Suzanne

From: spiderfan108 <spiderfan108@...>

Subject: Scared about esophageal manometry or esophageal motility

test!? " Update "

achalasia

Date: Thursday, April 12, 2012, 9:40 PM

 

Thank you so much for replying! It's really is helping me to be less scared and

more confident about taking the test. I am still quite a bit scared, but thanks

to you guys, I know I will try my best to be calm during the test. It will be

tommorow pretty early in the morning. Again, thank you all for replying, and I

will be sure to write again soon about for people in the future who are going to

take this test. I forgot to introduce my self in the original post so I will

now. My name is Harry. Right now, I am 14 years old. I started showing symptoms

of whatever I have 4-5 years ago. I didn't ask for help until about one year in.

I was taken to a gastrolegest and she thought I had GERD, and ordered an

endoscopy. I went to a cooks children hospital to do it, and it was the worst

experience of my life. They did all the prepartations for the endoscopy in an

area surrounded by curtains. A lot of people were in the area, and I could hear

some screaming, and I

did see a mother who was going to give birth or something being rushed through

these hospital doors. I was not in a room. I was extremely scared. After an hour

of wating, a nurse bought me down to the room, and right when I get in there,

they did not explain anything to me. All the guys in the room just grabbed me

and held down by my hands and feet. Then they put a mask on me, while I was

struggling as hard as I could. They gassed me, and It was the worst smell ever!

Smelled like very strong nail polish, and rotten bananas. I felt every single

one of my senses, hearing, feeling, and seeing, just slowly drift away. It was

terrifying, especially since I was being held down and was struggling the whole

time. Then, I was out. They did a endoscopy and also put some weird wire down my

throat into my stomach, and it had an moniter attached to it. I could feel the

wire in the back of my throat and the wire was taped under my nose. It is

suppose to measure

reflux. I had to have it on for one day. It turns out, I had mild reflux, and

the doctor put me on reflux medicine for half a year. Every single time I went

to the pediatrician, which was two times a year, I told her about my symptoms of

dyphagia and regurgitation, but she never listened. Finally, 4 years later when

I am 14, there was a different doctor. She believed me. I had to do a barium

swallow at a x-ray place over Christmas break. When she saw the results she sent

me to a gastrologist, who is not with cooks children. He then ordered another

endoscopy since it has been so long since the last one (And I still remember it

like it was last week)at a different hospital. This time everything went great.

They told me exactly what they were doing before the procedure, and even offered

to let me hold the mask up to my face(Though I didn't since I was still very

scared due to my previous experience, in fact I admit, I got kind of worked up).

Afterwards,

the doctor told me that it seems very likely that I have achalasia, and I am

going to have to have an esophageal manometry. He also mention that it might be

a problem considering that I got pretty worked up about the gas. This was in

late December. I knew what it was, and I was like no big deal, it is going to be

quite a while before I have to do it. It has been quite awhile. Today is April

12, 2012. My procedure is tommorow, on Friday the 13th. I kind of have a fear of

the number 13... And... I am going to have it ironically, where I began. At the

cooks children hospital I had my first horrible hospital experience almost 4

years ago. Friday the 13th... That hospital... not a good combination. I am very

scared, but because of all your replies, I may just build up the bravery to do

this. I just hope I am not... unlucky... and have a horrible experience like the

first time. Thank you for reading it, thought I doubt anyone will read this

whole thing but if

you did, thank you! I will probably be up all night tonight due to nervousness,

but thanks to you guys I will try to be calm, in fact, I will be calm. I will be

sure to tell you how it went, and what the results were. Again, thank you for

replying and reading, it is really helping.

>

> Has any one had this done before, if you have, what was it like. From what I

know, the doctors anethesize your nose, then put a tube down your nose into your

esophagus while you are awake. I heard it is painful and there is a lot of

gagging! The doctor said it would take one hour!? Why would it take an whole

hour!? It seemed more like a 15-20 min. test! Is this true? I am so scared and I

am going to have it done this Friday!!!!!! (The doctor thinks I have achalasia

due to evidence from an barium swallow and an endoscopy)

>