Re: Achalasia link to Trigeminal Neuralgia?

[Guest guest]

Wow!

It sounds like the ER really gave you Cadillac care! In my last visit to the ER,

a physician dismissed achalasia as being merely a " swallowing disorder. " <rolls

eyes>

Yes, I've had pain in the chest, back, shoulders, jaw. I'm glad others admit to

it.

One pain management doc did prescribe Gabapentin, which wasn't effective. My PCP

also tried it along with Nifedipine, and many other meds, with varying results.

Curiously my GI seems to enjoy to comment on how much worse my achalasia gets

without doing anything about it ( " we don't do meds here " ). Can't say I blame him

after the DEA had its War on Doctors witch-hunt in town.

One caveat about Percocet: the FDA has strongly suggesting against chronic use

of Percocet and Vicodin due their NSAID content causing liver toxicity and

severe gastroesophageal ulcerations.

There are much safer analgesics, like MSIR - which in liquid formulation is

easier to ingest than pills and won't cause damage to your GI tract. Usually the

combination of a long-acting and short-acting analgesic produce positive

outcomes for achalasia pain symptoms.

Steve

>

> Hi everyone! Haven't posted in a while but read daily. Had my HM with fundo

Nov 2008, and am much better, still occasional issues but tolerable. Last week i

suddenly developed a gnawing pain in my jaw, figured maybe grinding teeth withut

realizing. The pain then progressed to the whole right side of my face to my

ear, with pain in my teeth. I have never had a cavity so i assumed maybe that

was it or an abscessed tooth. Starting taking anti-biotics to be safe just in

case. By Sunday pain was so severe i went to ER. BP was 195/100! had a CT which

was normal. Got preliminary dignosis of Trigeminal Neuralgia. Saw Neurologist

which agreed. Bloodwork done to rule out MS, Lyme, auto-immune disorders. MRI

tomorrow. On regimen of gabapentin, percocet for breakthrough pain and they want

me to start Baclofen.I remember reading that with Achalsia the nerves in the

esophogus " die " . Does anyone think there is a potential link here? Hope all my

fellow achalasians are ok. Thanks

>

[Guest guest]

OMG!! My stepdaughter has t.n. she and I are usually making light of the fact

that she cannot chew and I cannot swallow. Together we could eat lol. She Is

literally incapacitated single mom w two young sons. Is a registered nurse yet

doesn't work in that field now bcz of pain and meds she is on to relieve her

terrible pain. She is also a school teacher. She cannot even go out in the wind

it hurts her little face so badly. God bless you.

Sent from my iPhone

[Guest guest]

This is interesting.

I have this intense pressure only on the left side of my face, head with a

stabbing, burning sensation around one eye, which persists constantly. Sometimes

I get shooting pains in the neck, shoulders and extremities. One finger has gone

permanenetly numb. Haven't slept at all for 4 1/2 months. Even the simplest life

functions have become almost impossible.

These symptoms of trigeminal neuralgia have exacerbated many years after I had

stable pain management for achalasia NCCP and spasms. My blood pressure also has

skyrocketed from a consistent, normal baseline to stage II hypertension.

This dramatic rise in blood pressure is one indication of untreated or poorly

managed pain.

With this constant pain, it's very difficult not to get angry.

Steve

>

> Several years ago I met a women who had " Trigeminal Neuralgia " , I'm trying to

stir my memory about what she told me.  I remember she was in horrible pain and

she did alot of research on the matter and found a specialist surgeon that did

surgery on her and it helped. Seems like the surgery stripped the nerve so that

it stopped the pain.  My husband suffered with a different type of neuralgia

for many years and finding the right surgeon took a long time. 

>  

> Would this type of nerve pain come from dental work???  I am very sorry that

you are going through this and achalasia both together, but I don't think they

are related.  If your situation does not get better, start researching a

specialist who can do surgery, but again MAKE SURE they are the best of the best

and then make decisions. 

>  

> Your in my thoughts!  

>  

> Julee in Oregon

>

>

> ________________________________

> From: Kim <kimellenbailey@...>

> " achalasia " <achalasia >

> Sent: Friday, April 13, 2012 8:32 AM

> Subject: Re: Achalasia link to Trigeminal Neuralgia?

>

>

>

>  

>

> OMG!! My stepdaughter has t.n. she and I are usually making light of the fact

that she cannot chew and I cannot swallow. Together we could eat lol. She Is

literally incapacitated single mom w two young sons. Is a registered nurse yet

doesn't work in that field now bcz of pain and meds she is on to relieve her

terrible pain. She is also a school teacher. She cannot even go out in the wind

it hurts her little face so badly. God bless you.

>

> Sent from my iPhone

>

>

>

[Guest guest]

> Would this type of nerve pain come from dental work???

I have a friend whose TN *was* triggered by dental work!! She was about to have

the nerve just cut when they, as a final desperate try, sent her to a pain

clinic. There they taught her self hypnosis and it worked!! She still has

residual sinus pain, but can live with it. and does. Might be something to look

into when nothing else works.

xox