Re: My 'expert' doc wants me to get a second opinion!

[Guest guest]

The last resort for Achalasia patients is Oesophagectomy. That is what i had

back in October 2004. Ok, i still have a few issues but the timing of my surgery

should have been done when i was first diagnosed with Vigorous Achalasia that is

why the HM won't work for some people and they have to resort to the ectomy for

any kind of relief. Have you ever thought about it?

from the UK

________________________________

From: lindsayaus <lindsay_kite@...>

achalasia

Sent: Tuesday, March 27, 2012 6:21 AM

Subject: My 'expert' doc wants me to get a second opinion!

 

What more can I say? I have had enough and it seems like nothing can be done

for me.

[Guest guest]

How do you know if it's vigorous, and what exactly does that mean in terms of

symptoms and treatment?

I only got diagnosed with A 7 months ago and have already had unsuccessful HM

and dilation and now even the ectomy was brought up in discussion. I thought

the ectomy was only a last resort after many many years!!!

>

> The last resort for Achalasia patients is Oesophagectomy. That is what i had

back in October 2004. Ok, i still have a few issues but the timing of my surgery

should have been done when i was first diagnosed with Vigorous Achalasia that is

why the HM won't work for some people and they have to resort to the ectomy for

any kind of relief. Have you ever thought about it?

> from the UK

>

>

> ________________________________

> From: lindsayaus <lindsay_kite@...>

> achalasia

> Sent: Tuesday, March 27, 2012 6:21 AM

> Subject: My 'expert' doc wants me to get a second opinion!

>

>

>  

>

> What more can I say? I have had enough and it seems like nothing can be done

for me.

>

>

>

>

>

>

>

[Guest guest]

HugZ!

http://www.flinders.edu.au/people/david.watson

http://www.hon.ch/OESO/books/Vol_5_Eso_Junction/Articles/art396.html

http://achalasiadoctors.wetpaint.com/page/Oceania+%26+Australia

Bon courage!

, WV

>

> What more can I say? I have had enough and it seems like nothing can be done

for me.

>

>

>

[Guest guest]

How did you know I was going to see ?

I have an appointment on April 5th so now I wait again.

> >

> > What more can I say? I have had enough and it seems like nothing can be

done for me.

> >

> >

> >

>

[Guest guest]

Lol! The marvels of google: it appeared that he was the only other expert on

Achalasia in Adelaide --

Eat more chocolate: it makes waiting easier. That's how I survived when I was

starving, and waiting three months. . . . It actually works two ways: it

slightly relaxes the LES, and it's fairly high calorie. Haven't had any for a

couple of months now. Don't even miss it grin. . . .

xox,

> > >

> > > What more can I say? I have had enough and it seems like nothing can be

done for me.

> > >

> > >

> > >

> >

>

[Guest guest]

I think eating chocolate is the only reason I am not losing more weight! Easter

is coming....better put in a big order with the Easter Bunny!

> > > >

> > > > What more can I say? I have had enough and it seems like nothing can be

done for me.

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Wow...I can't believe a radiologist got you diagnosed properly then a trained

surgeon said you didn't have A!

> >

> > The last resort for Achalasia patients is Oesophagectomy. That is what i had

back in October 2004. Ok, i still have a few issues but the timing of my surgery

should have been done when i was first diagnosed with Vigorous Achalasia that is

why the HM won't work for some people and they have to resort to the ectomy for

any kind of relief. Have you ever thought about it?

> > from the UK

> >

> >

> > ________________________________

> > From: lindsayaus <lindsay_kite@>

> > achalasia

> > Sent: Tuesday, March 27, 2012 6:21 AM

> > Subject: My 'expert' doc wants me to get a second opinion!

> >

> >

> >  

> >

> > What more can I say? I have had enough and it seems like nothing can be

done for me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I haven't been told it has done anything yet other than there is no motility.

Could it have gotten so stretched in such a short time when I have been eating

like a bird?

> > >

> > > The last resort for Achalasia patients is Oesophagectomy. That is what i

had back in October 2004. Ok, i still have a few issues but the timing of my

surgery should have been done when i was first diagnosed with Vigorous Achalasia

that is why the HM won't work for some people and they have to resort to the

ectomy for any kind of relief. Have you ever thought about it?

> > > from the UK

> > >

> > >

> > > ________________________________

> > > From: lindsayaus <lindsay_kite@>

> > > achalasia

> > > Sent: Tuesday, March 27, 2012 6:21 AM

> > > Subject: My 'expert' doc wants me to get a second opinion!

> > >

> > >

> > >  

> > >

> > > What more can I say? I have had enough and it seems like nothing can be

done for me.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

It started getting serious in June/July and got diagnosed on Sep 1 last year.

I had occasionally gotten the chest pain but I thought it was from reflux, but

that only happened a few times between 5 and 3 years I guess. The pain because

more frequent 2 1/2 years ago which is when they thought is was from gallstones,

so they took my gallbladder out.

I only had trouble with pastry sticking very occasionally in the 2 years prior

to being diagnosed. But around june july I found more stuff was getting stuck

even though I was chewing well and in small amounts.

> > > >

> > > > The last resort for Achalasia patients is Oesophagectomy. That is what i

had back in October 2004. Ok, i still have a few issues but the timing of my

surgery should have been done when i was first diagnosed with Vigorous Achalasia

that is why the HM won't work for some people and they have to resort to the

ectomy for any kind of relief. Have you ever thought about it?

> > > > from the UK

> > > >

> > > >

> > > > ________________________________

> > > > From: lindsayaus <lindsay_kite@>

> > > > achalasia

> > > > Sent: Tuesday, March 27, 2012 6:21 AM

> > > > Subject: My 'expert' doc wants me to get a second opinion!

> > > >

> > > >

> > > > ÃÆ'‚ 

> > > >

> > > > What more can I say? I have had enough and it seems like nothing can be

done for me.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I would really like to know the difference between vigorous and classic and how

each one effects us differently!

> >

> > The last resort for Achalasia patients is Oesophagectomy. That is what i had

back in October 2004. Ok, i still have a few issues but the timing of my surgery

should have been done when i was first diagnosed with Vigorous Achalasia that is

why the HM won't work for some people and they have to resort to the ectomy for

any kind of relief. Have you ever thought about it?

> > from the UK

> >

> >

> > ________________________________

> > From: lindsayaus <lindsay_kite@>

> > achalasia

> > Sent: Tuesday, March 27, 2012 6:21 AM

> > Subject: My 'expert' doc wants me to get a second opinion!

> >

> >

> >  

> >

> > What more can I say? I have had enough and it seems like nothing can be

done for me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

From what you said I can't tell which I am. Don't all A's have spasms of some

sort, only some have them longer or worse than others.

> >

> > How do you know if it's vigorous, and what exactly does that mean in

> > terms of symptoms and treatment?

> >

>

> Historically achalasia was classified as vigorous or not. While doing a

> manometry if there seemed to be spasms then it was vigorous. In more

> recent years high resolution manometry has indicated that there was an

> overlap of of vigorous and non-vigorous achalasia as determined by older

> manometry techniques and that in the overlap was also a distinct

> version. So now there are three versions type l that is the classic

> non-vigorous achalasia and on the other end of the spectrum type lll

> achalasia with spasms. In between those two is type ll achalasia with

> esophageal compression. In the past type ll patients were hard to

> classify and sometime ended up in with the type llls and sometimes with

> the type ls in various studies depending on who did the classifying and

> how. That created a problem because the type lls are the most likely to

> benefit from treatment, any kind of treatment. Depending on if the lls

> ended up with the ls or with the llls could determine if it seemed that

> vigorous achalasia was harder or easier to treat than non-vigorous.

> Studies on that topic had conflicting results. Today it is thought that

> type ll is most like to benefit from treatment. Type lll is similar to

> DES and is least likely to benefit from treatment, any treatment.

>

> Being told that someone has vigorous achalasia doesn't mean much for

> predicting if they will benefit from treatment. They could be type ll or

> type lll, the most likely or the least likely to benefit.

>

> check this out:

>

> Achalasia: A New Clinically Relevant Classification by High-Resolution

> Manometry

> http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2894987

>

> notan

>

>

>

>

[Guest guest]

Just read the article Notan.....would say I must be a type 3 (vigorous) judging

by the lack of response to treatment. The article doesn't go on to say how

vigorous should be treated when regular things don't work. Guess that's because

there is nothing else to do!!

> > >

> > > How do you know if it's vigorous, and what exactly does that mean in

> > > terms of symptoms and treatment?

> > >

> >

> > Historically achalasia was classified as vigorous or not. While doing a

> > manometry if there seemed to be spasms then it was vigorous. In more

> > recent years high resolution manometry has indicated that there was an

> > overlap of of vigorous and non-vigorous achalasia as determined by older

> > manometry techniques and that in the overlap was also a distinct

> > version. So now there are three versions type l that is the classic

> > non-vigorous achalasia and on the other end of the spectrum type lll

> > achalasia with spasms. In between those two is type ll achalasia with

> > esophageal compression. In the past type ll patients were hard to

> > classify and sometime ended up in with the type llls and sometimes with

> > the type ls in various studies depending on who did the classifying and

> > how. That created a problem because the type lls are the most likely to

> > benefit from treatment, any kind of treatment. Depending on if the lls

> > ended up with the ls or with the llls could determine if it seemed that

> > vigorous achalasia was harder or easier to treat than non-vigorous.

> > Studies on that topic had conflicting results. Today it is thought that

> > type ll is most like to benefit from treatment. Type lll is similar to

> > DES and is least likely to benefit from treatment, any treatment.

> >

> > Being told that someone has vigorous achalasia doesn't mean much for

> > predicting if they will benefit from treatment. They could be type ll or

> > type lll, the most likely or the least likely to benefit.

> >

> > check this out:

> >

> > Achalasia: A New Clinically Relevant Classification by High-Resolution

> > Manometry

> > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2894987

> >

> > notan

> >

> >

> >

> >

[Guest guest]

Makes me wonder if most that 'hang around' here longer are those with the more

vigorous type!

> > >

> > > From what you said I can't tell which I am.

> > >

> >

> > I can't tell which type you are either. " Vigorous " is not a very helpful

> > term.

> >

> > > Don't all A's have spasms of some sort, only some have them longer or

> > > worse than others.

> > >

> >

> > No, not all with A have spasms. The type llls have spasms that are like

> > the spasms of DES, very strong and often painful. The types lls have

> > esophageal compression that can look like a spasm but is not the DES

> > type of spasm and is not painful. The esophageal compression of type lls

> > may help get food through the LES by pressurizing the esophagus. The

> > spasms of the type llls can close off the esophagus and act as

> > strictures before food or drink even has a chance to reach the LES. The

> > type Is have little muscle activity in the lower esophagus, not even

> > spasms or compression.

> >

> > Also, not everyone with A that has pain has spasms. Sometimes it is

> > other types of NCCP that seems just like spasms.

> >

> > notan

> >

> >