UPDATE

[Guest guest]

Hey Tommy,

So tell us what some of the things that are helping--could always use new ammo!

From: Holly <hollyjane11@...>bird mites Sent: Saturday, May 2, 2009 8:23:21 AMSubject: Re: Update

Tommy this is a good place to be. Even if you do become reinfected, it is much easier to get free again since they will only be surface infested. If you do feel something that means that you have hit a hot spot. When this happens to me, i immediately throw my clothes in the oven, and hit the shower and masque with NH2. Then spray anywhere you have touched, and the shower. Wash your clothes when they get out of the oven.Keep any dirty clothes bagged. This is what has helped me. > > From: Holly <hollyjane11@ ...>> Subject: Update> bird mites> Date: Friday, May 1, 2009, 5:38 PM> > > > > > > > > >

> > > > > > > > My skin is clear again. I cleared it out with ESP NH2 soap. I havent had time to go to the sauna as much. I think the sauna works more for getting them deep out of your skin. The ESP has worked well for clearing them out. My skin has been purging which i have never experienced before. We still have not cleaned out our attic though and i know they're up there just waiting for me. Im going to spend a couple of days snuggling my kids before i go up there. Life is good with no mites there to ruin every second of every day. > > I would have cleared them out earlier but i kept getting reinfected from the floors. I put DE down heavily and it cleared it up. HOWEVER, i had some lung problems with it. I had sprayed out our rental car heavily with Windex, and accidentally breathed some in. Then i noticed the DE kicked up much much more than the RP. My lungs were hurting so bad.

So please be careful when using windex or DE. I have never had that problem with RP.>

[Guest guest]

One personal protective measure you might consider when you venture

into the attic again is a Tyvek coverall. These are lightweight zip-

front one piece suits made of DuPont's nonwoven material that you

wear over your clothing. Impenetrable to dusts down to the .5 micron

level (most Hepa filters trap dusts in the .3 to .5 micron range) &

used for protection in dealing with pesticide dusts, fiberglass

insulation installation & removal and mold & asbestos remediation.

Painters & med lab technicians wear them, too. Even used in some low-

level hazmat conditions. They are textured on the outside & slick

on the inside.

These coveralls are considered disposable, but can be washed in cold

water & drip-dried according to the instructions sewn into mine.

(Haven't washed them yet & they still look fine after a month.)

They're treated to be anti-static, but say that is lost after

washing. Since you're using the Roach Prufe in your dryer, perhaps

you could pre-treat the coveralls that way on the air (no heat) dryer

setting to repel/impede any mites that may get on them.

Had used these in the past for house painting & other messy jobs.

When I was thinking about working in the garden again, remembered

these & thought they might give me an extra barrier to mites. My

husband picked up a pair at Lowe's - found in the middle of the towel

aisle, of all places. He had to hunt for them & paid $7 or $8.

Lowe's only carries the XL size, but at 5'6 " & 120 pounds, they're

not so big that they're clumsy. These are the most basic zip

coveralls with open sleeve & pant edges that can be cut with scissors

to length (don't ravel). I just tuck them into my boots & stretchy

rubbery garden gloves.

After gardening in this " ice cream " suit for weeks now, haven't found

any mites on me or the suit. Did spray the suit first by putting it

on a plastic clothes hanger, using a half-capful of Orange Plus

diluted in 20 ounces of water & allowing the coverall to air dry

before wearing. Since that dilution works a month here on walls,

floors & ceilings, have only sprayed the suit the one time.

I put the coveralls on outside & remove them before coming in the

house, storing them in a ziplock freezer bag (thicker than regular

ones) on the front porch between uses. Haven't seen any sign of mites

on the white coveralls or in the ziplock in a month. I do wear knee

pads over them to keep from abrading the knees. Also wear a Buzz-

Off kerchief tied loosely over my head to repel any mites that might

drop from the trees. Look a sight to anyone passing by, I'm sure!

These coveralls come in more protective styles than my basic model

from Lowes. The next step up has elastic sleeve & pant cuffs, then a

hood elasticized around the face & the full model with hood plus

attached non-slip booties. Pics with prices can be found here:

http://store.pksafety.net/tyvekcoveralls.html

Ordered 2 pairs of the hood plus booties model & the UPS shipping

charge was $7.72 for a total of $18.82. Then I found them for $.55

less here:

http://tinyurl.com/cwmedq

Cheapest I found the basic model I have now was here for less than $3

in the XL size:

http://tinyurl.com/c7uma6

Note that these pics do not show the blue Tyvek label that mine & the

others mentioned diplay on the outside chest area.

Also note that one source mentions they're useful for non-toxic dusts

& the other says for toxic dusts. Googling around gave a lot of info,

but DuPont's (manufacturer of Tyvek) site said to contact them for

specifics.

Found several sites selling the RECYCLED Tyvek coveralls at marginally

lower prices. These are somehow treated & sold again, apparently

having first been worn in cleanrooms rather than dirty situations.

Didn't trust or want these myself. Just be aware if you're looking at

sites for the Recycled description.

Figure the full suit with booties will be my choice when I get into

our attic to check on the heat pump up there. Thankfully, we don't

use it for storage.

Didn't you mention, Holly, that some of your stuff was stored in

banana boxes that were treated against pests & molds? If so, stuff in

those may still be mite free.

The mites here acted like chiggers (another mite with which I'm

unfortunately familiar) in many ways. Such as dropping from the

ceiling (outside chiggers climb brush & trees & launch from there) &

being slower in the cold. Seems their body temperatures rely on the

temps of the air or surface, as do those of many insects. So you may

want to go into the attic early in the day when the temps are cooler.

I'd avoid mid-afternoon until daylight by the actions of mites that

were (hopefully not anymore) here, considering it their primetime.

Also, the chiggers here can't endure the high temps of our blacktop

driveway in warm weather. They much prefer damp & shade. I'd enclose

any boxes in the attic in white plastic (so mites are easily spotted)

trash bags before removing them from the attic. d outside &

slipped into black garbage bags that absorb & intensify the heat, I'd

leave them on an asphalt drive or metal (such as a truck bed) on a

hot day & let them cook awhile before opening, sorting & cleaning

the contents right there. Wearing Tyvek coveralls, of course, along

with rubber gloves & boots.

Clear wide packing tape stuck around the tops of boots, protruding

above the top & then folded over the outside sticky-side out, kept

chiggers from getting to me in the past. Rubber boots can be hosed

off & /or soaked in Orange Plus or other solutions to kill any

hitchhikers. I'd probably wear a wide-brimmed hat slipped into a

white plastic garbage bag with the bag's open end taped shut inside

the hat's crown when dealing with a situation like your attic where

mites are dropping down. White plastic bags gave no traction to the

mites here & trapped them on the surface with static cling. Just

think of body armour - cheapest hazmat for mites.

Hope this gives you food for thought when next approaching the attic.

Gear up & good luck with dispatching the remaining mites while

keeping yourself clear. It can be done.

You've come so far, Holly. Cheering you on from the sidelines!

Best wishes, Sue

My skin is clear again. I cleared it out with ESP NH2 soap. I havent

had time to go to the sauna as much. I think the sauna works more for

getting them deep out of your skin. The ESP has worked well for

clearing them out. My skin has been purging which i have never

experienced before. We still have not cleaned out our attic though

and i know they're up there just waiting for me. Im going to spend a

couple of days snuggling my kids before i go up there. Life is good

with no mites there to ruin every second of every day.

I would have cleared them out earlier but i kept getting reinfected

from the floors. I put DE down heavily and it cleared it up. HOWEVER,

i had some lung problems with it. I had sprayed out our rental car

heavily with Windex, and accidentally breathed some in. Then i

noticed the DE kicked up much much more than the RP. My lungs were

hurting so bad. So please be careful when using windex or DE. I have

never had that problem with RP.

[Guest guest]

Big thank you Sue. You are so awesome! My hubbie and i are going to talk it over

tonight, and i will show him this. We def need to gear up for that. You have

been an angel on my path to wellness. Me and my babies thank you.

>

> My skin is clear again. I cleared it out with ESP NH2 soap. I havent

> had time to go to the sauna as much. I think the sauna works more for

> getting them deep out of your skin. The ESP has worked well for

> clearing them out. My skin has been purging which i have never

> experienced before. We still have not cleaned out our attic though

> and i know they're up there just waiting for me. Im going to spend a

> couple of days snuggling my kids before i go up there. Life is good

> with no mites there to ruin every second of every day.

> I would have cleared them out earlier but i kept getting reinfected

> from the floors. I put DE down heavily and it cleared it up. HOWEVER,

> i had some lung problems with it. I had sprayed out our rental car

> heavily with Windex, and accidentally breathed some in. Then i

> noticed the DE kicked up much much more than the RP. My lungs were

> hurting so bad. So please be careful when using windex or DE. I have

> never had that problem with RP.

>

[Guest guest]

Holly, Maybe we may want to look into patio/garage heaters that are suitable for

interior/exterior use. I was all excited when I bought a 1200 watt one from

Costco for $49.99 but duh, no stand! And the directions said to mount at a

height of eight feet. lol. It's seems like $169.00 is the starting price point

with the stand. I was thinking two in a room at a time, when it's warm out, will

get it pretty hot I hope. I'm not too excitied about using the fuel based

heaters in my home so I'm hoping that these will get it hot enuff for a gradual

send off of our friends. I know your trying to save coin but you were planning

on returning them. Hope the thought helps in the attic.

bob

> >

> > My skin is clear again. I cleared it out with ESP NH2 soap. I havent

> > had time to go to the sauna as much. I think the sauna works more for

> > getting them deep out of your skin. The ESP has worked well for

> > clearing them out. My skin has been purging which i have never

> > experienced before. We still have not cleaned out our attic though

> > and i know they're up there just waiting for me. Im going to spend a

> > couple of days snuggling my kids before i go up there. Life is good

> > with no mites there to ruin every second of every day.

> > I would have cleared them out earlier but i kept getting reinfected

> > from the floors. I put DE down heavily and it cleared it up. HOWEVER,

> > i had some lung problems with it. I had sprayed out our rental car

> > heavily with Windex, and accidentally breathed some in. Then i

> > noticed the DE kicked up much much more than the RP. My lungs were

> > hurting so bad. So please be careful when using windex or DE. I have

> > never had that problem with RP.

> >

>

[Guest guest]

My husband is looking today into the heaters that you mentioned earlier. We will

have to return it because we are moving cross country in a pickup, and will have

no need for it afterwards. All our stuff is being burned in the fire pit. It

actually feels so good to do it. Burn baby burn! I so cant wait to be done with

this nightmare, move on with life, and have more time for helping others. I have

learned a lesson or two. I will never take life or my family for granted again.

Will keep posted Bob. Keep it up, you WILL be there soon! Its like it kinda just

disappears overnight. When you dont feel biting anymore, you are there!!

Holly

> > >

> > > My skin is clear again. I cleared it out with ESP NH2 soap. I havent

> > > had time to go to the sauna as much. I think the sauna works more for

> > > getting them deep out of your skin. The ESP has worked well for

> > > clearing them out. My skin has been purging which i have never

> > > experienced before. We still have not cleaned out our attic though

> > > and i know they're up there just waiting for me. Im going to spend a

> > > couple of days snuggling my kids before i go up there. Life is good

> > > with no mites there to ruin every second of every day.

> > > I would have cleared them out earlier but i kept getting reinfected

> > > from the floors. I put DE down heavily and it cleared it up. HOWEVER,

> > > i had some lung problems with it. I had sprayed out our rental car

> > > heavily with Windex, and accidentally breathed some in. Then i

> > > noticed the DE kicked up much much more than the RP. My lungs were

> > > hurting so bad. So please be careful when using windex or DE. I have

> > > never had that problem with RP.

> > >

> >

>

[Guest guest]

Im not sure about those heaters but most of the electric heaters are equipped

with a thermometer that will switch it off at certain temps. I hope we find

something that will work soon, or i might just have to bite the bullet and go up

there.

> > >

> > > My skin is clear again. I cleared it out with ESP NH2 soap. I havent

> > > had time to go to the sauna as much. I think the sauna works more for

> > > getting them deep out of your skin. The ESP has worked well for

> > > clearing them out. My skin has been purging which i have never

> > > experienced before. We still have not cleaned out our attic though

> > > and i know they're up there just waiting for me. Im going to spend a

> > > couple of days snuggling my kids before i go up there. Life is good

> > > with no mites there to ruin every second of every day.

> > > I would have cleared them out earlier but i kept getting reinfected

> > > from the floors. I put DE down heavily and it cleared it up. HOWEVER,

> > > i had some lung problems with it. I had sprayed out our rental car

> > > heavily with Windex, and accidentally breathed some in. Then i

> > > noticed the DE kicked up much much more than the RP. My lungs were

> > > hurting so bad. So please be careful when using windex or DE. I have

> > > never had that problem with RP.

> > >

> >

>

[Guest guest]

Bob

In the past there have been a few others who tried to get by with electric

heaters to do the job, and they really didnt have much success as temps never

reached much over 100 F. They then moved on to other methods for the

environment.

I hear you about the concern of these huge propane heaters. If you have ever

seen one working them you know your dealing with a large flame roaring down a

barrel, so yip, there is a risk factor. And also you will have propane gas

released inside your home which is none to healthy either. We would open up

every window and door and let it air out for AT LEAST an hour before returning.

I just would hate to see people purchasing electric heaters as it really doesnt

seem like its enough. Its all or nothing with the heat treating I'm afraid.

good luck

z

[Guest guest]

Im finding that out as im researching heaters. Seems that all the propane ones

are outdoor heaters. My attic is basically my 3rd story of this house. I dont

think there is any other option then going up there and blasting it with

something, then cleaning it out.

>

> Bob

> In the past there have been a few others who tried to get by with electric

heaters to do the job, and they really didnt have much success as temps never

reached much over 100 F. They then moved on to other methods for the

environment.

>

> I hear you about the concern of these huge propane heaters. If you have ever

seen one working them you know your dealing with a large flame roaring down a

barrel, so yip, there is a risk factor. And also you will have propane gas

released inside your home which is none to healthy either. We would open up

every window and door and let it air out for AT LEAST an hour before returning.

>

> I just would hate to see people purchasing electric heaters as it really

doesnt seem like its enough. Its all or nothing with the heat treating I'm

afraid.

>

> good luck

> z

>

[Guest guest]

I think zmooks lives in a 3 story house (townhouse?) as well. Z, how did you

get the heat to disperse to the upper levels of your place?

> >

> > Bob

> > In the past there have been a few others who tried to get by with electric

heaters to do the job, and they really didnt have much success as temps never

reached much over 100 F. They then moved on to other methods for the

environment.

> >

> > I hear you about the concern of these huge propane heaters. If you have

ever seen one working them you know your dealing with a large flame roaring down

a barrel, so yip, there is a risk factor. And also you will have propane gas

released inside your home which is none to healthy either. We would open up

every window and door and let it air out for AT LEAST an hour before returning.

> >

> > I just would hate to see people purchasing electric heaters as it really

doesnt seem like its enough. Its all or nothing with the heat treating I'm

afraid.

> >

> > good luck

> > z

> >

>

[Guest guest]

, I also have it in one knee, likely due to a fall/injury years ago.

I find that after a round of PT and concentrated taping, exercises, etc. that I

am fine for awhile. I still can't push it, like riding my bike 45 miles, but I

can do normal stuff.

But, after a few years, even if I keep up the exercises, it somehow degenerates

and I have to go through PT and taping again. This last time, my PT was

excellent and I got more tips on how my gait may have contributed, and I am

hoping this will last longer.

What ever you do, if you are feeling good, do NOT stop those exercises! Keep

them up everyday forever, no matter how good that knee feels.

Of course, just my experience.

Ann

>

> Hey all,

> After 1 week of taping, I had a reaction to the tape and had to stop the tape

but now my physical therapist says my knee cap is now tracking normally without

the tape. YAY!!! I am continuing physical therapy for 2 more weeks before I go

back to see my doctor. How is everybody else doing? My physical therapist and

doctor make it seem like now after this I will be cured but from reading some of

the stories on this forum that seems not to be the case. My chondromalacia was

only in one knee from an injury so I am hoping that maybe it will be able to get

better and stay better but I don't know. What has been the experience of some of

you all?

>

>

[Guest guest]

Hi.

I was taking chondroitin/glucosamine for several years and I went through a

two-year period where my chondromalacia didn't bother me. Then, because I was

taking so many meds & supplements, I dropped the C/G, and the old

extra-sensitivity in my kneecap came back. So now I'm taking C/G again. I

thought the only thing it did was keep more cartilage from wearing away, but

maybe it does something else. Yes, I know someone on here thinks it's an

anti-inflammatory, but I don't. But maybe he's right.

Other Ann

, I also have it in one knee, likely due to a fall/injury years ago.

I find that after a round of PT and concentrated taping, exercises, etc. that

I am fine for awhile. I still can't push it, like riding my bike 45 miles, but I

can do normal stuff.

But, after a few years, even if I keep up the exercises, it somehow

degenerates and I have to go through PT and taping again. This last time, my PT

was excellent and I got more tips on how my gait may have contributed, and I am

hoping this will last longer.

What ever you do, if you are feeling good, do NOT stop those exercises! Keep

them up everyday forever, no matter how good that knee feels.

Of course, just my experience.

Ann

>

> Hey all,

> After 1 week of taping, I had a reaction to the tape and had to stop the

tape but now my physical therapist says my knee cap is now tracking normally

without the tape. YAY!!! I am continuing physical therapy for 2 more weeks

before I go back to see my doctor. How is everybody else doing? My physical

therapist and doctor make it seem like now after this I will be cured but from

reading some of the stories on this forum that seems not to be the case. My

chondromalacia was only in one knee from an injury so I am hoping that maybe it

will be able to get better and stay better but I don't know. What has been the

experience of some of you all?

>

>

[Guest guest]

Oh, ,

I am so excited for you. Bless you and that wonderful son of yours. Thank him

for me for what he is doing for our country. Tell him I love him!

Be blessed, be healthy and take good care,

Rashelle

Harness the Power of Oxygen.

It is Oxygen that burns fat. Age better, look better, feel better.

www.oxygenlift.net

Update

Hi All

Got a call from Jake today he is in Kuwait

On his way home to the states after one year of deployment

PTL , so excited

God's Blessings

Rettig (Army Mom of 2)

(Chaplain for Chapter 2 BSM SE WI)

The opinions reflected above are strictly my own and in no way reflect the

views of the Blue Star Mothers or the Proud Military Moms

[Guest guest]

Oh !

I have goosebumps reading this; knowing just how excited you and your beautiful

family are.

Thank you so much for the update; do know our prayers continue.

Love, Wanda

>

> Hi All

> Got a call from Jake today he is in Kuwait

> On his way home to the states after one year of deployment

> PTL , so excited

>

>

>

>

> God's Blessings

> Rettig (Army Mom of 2)

> (Chaplain for Chapter 2 BSM SE WI)

>

> The opinions reflected above are strictly my own and in no way reflect the

views of the Blue Star Mothers or the Proud Military Moms

>

>

>

>

[Guest guest]

Please do I do not see him until Aug 1

Wish I could be in Alaska just a tad far

Thanks much

God's Blessings

Rettig (Army Mom of 2)

(Chaplain for Chapter 2 BSM SE WI)

The opinions reflected above are strictly my own and in no way reflect the views

of the Blue Star Mothers or the Proud Military Moms

Re: Update

Oh !

I have goosebumps reading this; knowing just how excited you and your

beautiful family are.

Thank you so much for the update; do know our prayers continue.

Love, Wanda

>

> Hi All

> Got a call from Jake today he is in Kuwait

> On his way home to the states after one year of deployment

> PTL , so excited

>

>

>

>

> God's Blessings

> Rettig (Army Mom of 2)

> (Chaplain for Chapter 2 BSM SE WI)

>

> The opinions reflected above are strictly my own and in no way reflect the

views of the Blue Star Mothers or the Proud Military Moms

>

>

>

>

[Guest guest]

Thank you so very much

God's Blessings

Rettig (Army Mom of 2)

(Chaplain for Chapter 2 BSM SE WI)

The opinions reflected above are strictly my own and in no way reflect the views

of the Blue Star Mothers or the Proud Military Moms

Update

Hi All

Got a call from Jake today he is in Kuwait

On his way home to the states after one year of deployment

PTL , so excited

God's Blessings

Rettig (Army Mom of 2)

(Chaplain for Chapter 2 BSM SE WI)

The opinions reflected above are strictly my own and in no way reflect the

views of the Blue Star Mothers or the Proud Military Moms

[Guest guest]

That's great !!!!

Love, Liz

____________________________________________________________

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[Guest guest]

>

> Just checking in and saying hello,,,

>

> I had seen my medical doctor and he refered me to do a sleep test. I never had

it done and am nervous about it.

>

> My eating is poorly and way to much sweets and carbs.

>

> Does any of you ladies done this test.

>

> Liliann

>

Hi Liliann:

I have had the sleep study and there is nothing to fear. Most likely they

will attach some painless electrodes to your skin to monitor your sleep.

Depending on where you have the test, mine was at a hospital, they will let you

go to sleep like normal and then watch to see your breathing habits. I have

sleep apnea myself which is probably what the doctor is monitoring you for. I

do use a sleep apnea machine (cpap machine) when I sleep and it helps so much.

I stopped breathing when I slept and woke up with terrible headaches and just

dragged all day and the machine which just keeps your breathing passages open at

night really helped. I didn't have much trouble getting used to wearing the

mask. There are many different kinds of masks and you may need to try a couple

different types to find which is most comfortable for you. I used to fall

asleep driving I was so tired so I'm very grateful for my machine. It doesn't

hurt and really helps me so much. Feel free to ask me any questions about using

the machine ect. I've had mine for over ten years. Good Luck. Donna

[Guest guest]

I did the sleep test a few years ago. It is nerveracking, but the people there do it often and they do a great job of answering questions and treating you with respect and dignity. You get a lot of paperwork and information when you set up your appointment. They tell you exactly what to bring and what to expect.When you get there, they show you to your bedroom and ask you to put on your pjs. Then you sit with one technician and the wire you up! They put electrodes in several places. (The grossest part is in the morning when they take them off and your hair is globbed with all the gunk!) apmleehere@...From: Liliann Burawski <liliannb012@...>100-plus Sent: Wednesday, September 9, 2009 6:55:39 PMSubject: Update

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

Hi, Liliann! I've had the sleep study done. Where I was, they put me in

a private room that looked a lot like an upscale hotel room. The nurse

attached leads (like in an EKG) to my head, upper chest, and legs, and

I was allowed to watch tv until I was sleepy. I took my sleeping pill

and other meds, as usual. They monitored me while I slept to see how

many times I woke up.

They determined that I have sleep apnea, and I went back for a second

study to fit me for a cpap machine. I'm supposed to use the cpap every

night, but I've had a cough, so I've skipped it for the past week. I'll

start using it again tomorrow night. I've just started using it so I'm

still getting used to it, but I can tell you that the night of the

second study was the best sleep I'd had in years.

I took water and a snack with me, since they didn't provide anything

like that. Your organization might be different.

The stuff they put the leads on you with is very sticky, so you'll need

to wash it off your body and out of your hair, but I didn't have any

trouble with doing that. It's a minor inconvenience.

If you have any questions, feel free too ask. I hope this helped.

Hugs,

Kay

Liliann Burawski wrote:

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep

test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

I have, Lillian, and so has my huband. It's not a terrible experience. It's uncomfortable, but considering other stuff I've had done (lumbar puncture, for instance) it's not the worst thing you can go through.

When I had it done, I went to the lab beforehand to fill out paperwork and get everything situated. The night of the study, the technician attached a lot of sensors to my body. Most of them were put at different places on my scalp similar to what they'd do if you have an EEG done (don't bother doing your hair). They also put some sensors on my chest to follow my heartbeat, and on my legs to check for movement while I sleep. They'll also put a one of those clip on sensors on your finger to take your pulse and one of those air tube things that have the little prongs that go into your nose (I have NO idea what they're called). It might also have something that cups over your front teeth - it's to monitor your breathing.

The test itself usually goes over night and the technician will explain all the details of how he or she will be conducting it. Your job is to fall asleep. Besides apneas they will also look to see if you reach all the stages of

sleep and if anything interrupts that, so the study is helpful to

identify other potential issues. They might want you to try and sleep mostly on your back or in another position, just depending on what they're looking for. And be aware that all those cables probably won't make it very comfy for you. My technician tied them all up at the top of my head like a ponytail, which kept them out of the way but meant I basically couldn't move once I settled in for the night. BUT they're monitoring you both audio and video so if you need to get up or have any problems or questions all you need to do is talk and they'll hear you. Yes, there is some weirdness knowing that a stranger will be watching you sleep, but the good thing is that it's not super obvious. They watch by camera, not some giant " one way " mirror in the room or anything. If you kick blankets off like I do, you might feel more comfortable in pj's instead of a night gown.

They might have the study split into two different sessons. The first is usually just to monitor your sleeping, unless they find something very elevated. What the technician explained to my husband is that if he had more than 80 apneas (basically if he stopped breathing 80 times) during the night then they'd come in and begin fitting him with a cpap machine. But he could have 79 and she couldn't do anything. She explained that it was a health insurance thing: they won't pay for the shift from one part of the study to the other unless he passed that number. The second part of the study, if they decide it's necessary, is done at a later time and it's to outfit you with a cpap machine (assuming you're going in because of suspicions of sleep apnea). The cpap machine creates an airflow of positive pressure meant to help keep your passages open so that your breathing is not obstructed. I have not used one, but from what others have told me it does take some getting used to but the results are worth it.

Now, don't expect to rest well, which is annoying considering it's a SLEEP study, but somehow they figure things out. I think that as long as you get a certain amount of sleep it works out alright. For my husband they gave him a sleeping pill to help him relax, myself I didn't have any help. Remember to take some comfy pjs and a book or something to do before you fall asleep. They might have a tv - the rooms I've been in for my own and my husband's were made to look a lot like hotel rooms. Also, take some shampoo and other personal items like that. Chances are that you'll have the opportunity to shower the next morning and the paste they use to affix all those sensors to your head is a pain to get out of your hair, especially if it's long.

I think that's all I can remember about my own experiences (and you're probably tired of reading this!). Like I said, it's a bit uncomfy but not awful, just don't plan anything hectic for the next day if you can avoid it.

JenOn Wed, Sep 9, 2009 at 7:55 PM, Liliann Burawski <liliannb012@...> wrote:

Just checking in and saying hello,,,

 

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

 

My eating is poorly and way to much sweets and carbs.

 

Does any of you ladies done this test.

 

Liliann

[Guest guest]

Thank you,a

From: pmleehere <pmleehere@...>100-plus Sent: Wednesday, September 9, 2009 8:31:09 PMSubject: Re: Update

I did the sleep test a few years ago. It is nerveracking, but the people there do it often and they do a great job of answering questions and treating you with respect and dignity. You get a lot of paperwork and information when you set up your appointment. They tell you exactly what to bring and what to expect.When you get there, they show you to your bedroom and ask you to put on your pjs. Then you sit with one technician and the wire you up! They put electrodes in several places. (The grossest part is in the morning when they take them off and your hair is globbed with all the gunk!)

apmleehere (DOT) com

From: Liliann Burawski <liliannb012>100-plus@group s.comSent: Wednesday, September 9, 2009 6:55:39 PMSubject: Update

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

thank you,kay

From: Kay <kaywt@...>100-plus Sent: Wednesday, September 9, 2009 8:57:45 PMSubject: Re: Update

Hi, Liliann! I've had the sleep study done. Where I was, they put me in a private room that looked a lot like an upscale hotel room. The nurse attached leads (like in an EKG) to my head, upper chest, and legs, and I was allowed to watch tv until I was sleepy. I took my sleeping pill and other meds, as usual. They monitored me while I slept to see how many times I woke up. They determined that I have sleep apnea, and I went back for a second study to fit me for a cpap machine. I'm supposed to use the cpap every night, but I've had a cough, so I've skipped it for the past week. I'll start using it again tomorrow night. I've just started using it so I'm still getting used to it, but I can tell you that the night of the second study was the best sleep I'd had in years.I took water and a snack with me, since they didn't provide anything like that. Your organization might be different.The stuff they put the leads on you with is very

sticky, so you'll need to wash it off your body and out of your hair, but I didn't have any trouble with doing that. It's a minor inconvenience.If you have any questions, feel free too ask. I hope this helped.Hugs,KayLiliann Burawski wrote:

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

thank you,jen

From: Geiar N'Dege <geiarsemail@...>100-plus Sent: Wednesday, September 9, 2009 9:02:35 PMSubject: Re: Update

I have, Lillian, and so has my huband. It's not a terrible experience. It's uncomfortable, but considering other stuff I've had done (lumbar puncture, for instance) it's not the worst thing you can go through. When I had it done, I went to the lab beforehand to fill out paperwork and get everything situated. The night of the study, the technician attached a lot of sensors to my body. Most of them were put at different places on my scalp similar to what they'd do if you have an EEG done (don't bother doing your hair). They also put some sensors on my chest to follow my heartbeat, and on my legs to check for movement while I sleep. They'll also put a one of those clip on sensors on your finger to take your pulse and one of those air tube things that have the little prongs that go into your nose (I have NO idea what they're called). It might also have something that cups over your front teeth - it's to monitor your breathing.The test

itself usually goes over night and the technician will explain all the details of how he or she will be conducting it. Your job is to fall asleep. Besides apneas they will also look to see if you reach all the stages of sleep and if anything interrupts that, so the study is helpful to identify other potential issues. They might want you to try and sleep mostly on your back or in another position, just depending on what they're looking for. And be aware that all those cables probably won't make it very comfy for you. My technician tied them all up at the top of my head like a ponytail, which kept them out of the way but meant I basically couldn't move once I settled in for the night. BUT they're monitoring you both audio and video so if you need to get up or have any problems or questions all you need to do is talk and they'll hear you. Yes, there is some weirdness knowing that a stranger will be watching you sleep, but the good thing is that it's not

super obvious. They watch by camera, not some giant "one way" mirror in the room or anything. If you kick blankets off like I do, you might feel more comfortable in pj's instead of a night gown. They might have the study split into two different sessons. The first is usually just to monitor your sleeping, unless they find something very elevated. What the technician explained to my husband is that if he had more than 80 apneas (basically if he stopped breathing 80 times) during the night then they'd come in and begin fitting him with a cpap machine. But he could have 79 and she couldn't do anything. She explained that it was a health insurance thing: they won't pay for the shift from one part of the study to the other unless he passed that number. The second part of the study, if they decide it's necessary, is done at a later time and it's to outfit you with a cpap machine (assuming you're going in because of suspicions of sleep apnea). The cpap

machine creates an airflow of positive pressure meant to help keep your passages open so that your breathing is not obstructed. I have not used one, but from what others have told me it does take some getting used to but the results are worth it.Now, don't expect to rest well, which is annoying considering it's a SLEEP study, but somehow they figure things out. I think that as long as you get a certain amount of sleep it works out alright. For my husband they gave him a sleeping pill to help him relax, myself I didn't have any help. Remember to take some comfy pjs and a book or something to do before you fall asleep. They might have a tv - the rooms I've been in for my own and my husband's were made to look a lot like hotel rooms. Also, take some shampoo and other personal items like that. Chances are that you'll have the opportunity to shower the next morning and the paste they use to affix all those sensors to your head is a pain to get out of

your hair, especially if it's long.I think that's all I can remember about my own experiences (and you're probably tired of reading this!). Like I said, it's a bit uncomfy but not awful, just don't plan anything hectic for the next day if you can avoid it. Jen

On Wed, Sep 9, 2009 at 7:55 PM, Liliann Burawski <liliannb012> wrote:

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

Hello again,, I just realized last night that from what you ladies had done,...I had it done last year,but never follow up due of my relaspe of my depression. Now I just need to get the files from the hospital to give to my medical doctor.

From: Geiar N'Dege <geiarsemail@...>100-plus Sent: Wednesday, September 9, 2009 9:02:35 PMSubject: Re: Update

I have, Lillian, and so has my huband. It's not a terrible experience. It's uncomfortable, but considering other stuff I've had done (lumbar puncture, for instance) it's not the worst thing you can go through. When I had it done, I went to the lab beforehand to fill out paperwork and get everything situated. The night of the study, the technician attached a lot of sensors to my body. Most of them were put at different places on my scalp similar to what they'd do if you have an EEG done (don't bother doing your hair). They also put some sensors on my chest to follow my heartbeat, and on my legs to check for movement while I sleep. They'll also put a one of those clip on sensors on your finger to take your pulse and one of those air tube things that have the little prongs that go into your nose (I have NO idea what they're called). It might also have something that cups over your front teeth - it's to monitor your breathing.The test

itself usually goes over night and the technician will explain all the details of how he or she will be conducting it. Your job is to fall asleep. Besides apneas they will also look to see if you reach all the stages of sleep and if anything interrupts that, so the study is helpful to identify other potential issues. They might want you to try and sleep mostly on your back or in another position, just depending on what they're looking for. And be aware that all those cables probably won't make it very comfy for you. My technician tied them all up at the top of my head like a ponytail, which kept them out of the way but meant I basically couldn't move once I settled in for the night. BUT they're monitoring you both audio and video so if you need to get up or have any problems or questions all you need to do is talk and they'll hear you. Yes, there is some weirdness knowing that a stranger will be watching you sleep, but the good thing is that it's not

super obvious. They watch by camera, not some giant "one way" mirror in the room or anything. If you kick blankets off like I do, you might feel more comfortable in pj's instead of a night gown. They might have the study split into two different sessons. The first is usually just to monitor your sleeping, unless they find something very elevated. What the technician explained to my husband is that if he had more than 80 apneas (basically if he stopped breathing 80 times) during the night then they'd come in and begin fitting him with a cpap machine. But he could have 79 and she couldn't do anything. She explained that it was a health insurance thing: they won't pay for the shift from one part of the study to the other unless he passed that number. The second part of the study, if they decide it's necessary, is done at a later time and it's to outfit you with a cpap machine (assuming you're going in because of suspicions of sleep apnea). The cpap

machine creates an airflow of positive pressure meant to help keep your passages open so that your breathing is not obstructed. I have not used one, but from what others have told me it does take some getting used to but the results are worth it.Now, don't expect to rest well, which is annoying considering it's a SLEEP study, but somehow they figure things out. I think that as long as you get a certain amount of sleep it works out alright. For my husband they gave him a sleeping pill to help him relax, myself I didn't have any help. Remember to take some comfy pjs and a book or something to do before you fall asleep. They might have a tv - the rooms I've been in for my own and my husband's were made to look a lot like hotel rooms. Also, take some shampoo and other personal items like that. Chances are that you'll have the opportunity to shower the next morning and the paste they use to affix all those sensors to your head is a pain to get out of

your hair, especially if it's long.I think that's all I can remember about my own experiences (and you're probably tired of reading this!). Like I said, it's a bit uncomfy but not awful, just don't plan anything hectic for the next day if you can avoid it. Jen

On Wed, Sep 9, 2009 at 7:55 PM, Liliann Burawski <liliannb012> wrote:

Just checking in and saying hello,,,

I had seen my medical doctor and he refered me to do a sleep test. I never had it done and am nervous about it.

My eating is poorly and way to much sweets and carbs.

Does any of you ladies done this test.

Liliann

[Guest guest]

,

I know what you mean about not getting the right diagnosis early...Karrie was

misdiagnosed at KKI (and we flew there from St. Louis for each visit!!). I was

told she had bipolar. She was started on meds for bipolar. Ended up on 8

different meds, mostly to treat the side effects of the other meds. She also

ended up with 14 new medical diagnosis. Thank God I found a doctor in St. Louis

who correctly diagnosed her with ASD. She now is med free and most of the other

medical dx's have disappeared.

Karrie now has a cyst in her brain that is growing. It has been lying dormant

since her birth and for some reason, it has just started to grow. It presses on

some cranial nerves. I'm scared silly, but have to have faith.

Karrie has her 4th IEP this year on Friday. I found a woman who offered to come

to the IEP with me. She used to work with an agency here that is supported by

grants from the state and federal boards of education. The agency promotes

inclusion and this woman has already told me that the state board will take care

of any " issues " that the district throws in the way of getting Karrie out of the

program she is in. Since she moved to the middle school this year, she was

placed in a life skills class. The focus is on personal hygiene and recycling. I

have made it clear that she is not to be doing those things at school, since I

am her mom and have made sure she is independent with hygiene. As far as

recycling, she is to be doing academics. So now, she does 2 worksheets a day and

then colors the rest of the day. She has already met all of her IEP goals for

the year.

How did I get so far off target here??? Anyway, great news about the respirdal!!

Hopefully you will see a continuance of this wonderful progress!!! Keep us

informed!

Sue mom to Kate 20 and Karrie 13 w/ds and mild autism

--

---- CSBC <cindysue@...> wrote:

> Happy Belated Thanksgiving everyone! I love having these extra long weekends

with . We both are going to hate getting back into our weekday routines.

>

> Anyway, thought I would take a few minutes to do a update. He's been

off all behavioral medications for 1 1/2 years, give or take a month. Slowly,

he has reverted back to needing medication. We are trying respirdal again. I

also am having a psychiatrist treat him instead of his DS doctor who is a

neurologist.

>

> KKI did assess and gave him the ASD diagnosis. I am very dissapointed

that Dr. Capone at KKI didn't have him assessed when I asked about all his

behaviors going way back to when he was 2 years old. I knew, my family knew and

somewhere along the line, the professional experts missed the boat. He had

originally been diagnosed by a local psychologist 3 years ago when we moved

here. At the time, 's KKI doctors disagreed. How much did miss

out on therapy wise by not being properly diagnosed years ago??

>

> At the same time, KKI was treating for his seizures. He had over 100

in one year and all the neurlogist at KKI did was increase his seizure meds.

When I told him I found a local neurlogist to see him, then he wanted to switch

mediations. I knew I would not take back to the neurology clinic at KKI

...the local neurologist has been most helpful. He also coordinated

seeing a psychiatrist- called him ahead of time b/c 's needs are so

complex.

>

> I went to see the psychiatrist first for obvious reasons. I cautioned him

that would give us a hard time just getting into the office and would

probably refuse to go back to an exam room. I was right...so the psychiatrist

saw in the lobby (b/c of 's behaviors, he wanted him to be the

last appointment of the day..so it was no big deal to be seen in the lobby).

>

> So is back on respirdal. He told his babysitter that mommy and daddy

took him to the doctor for his head, he got pills and now feels better?!?!?! He

started on thanksgiving eve..yesterday he asked me for 13 sheets of paper and a

pen. He wrote his numbers 1-13 and then the alphabet. He also drew pictures of

various people, dogs and our house. I don't know if this is the medicine or

what. I'm anxious for him to go back to school to see how he does there. We

see the doctor again on Tuesday.

>

>

>

>

>

>