New here

[Guest guest]

Hi there

Welcome to the list!

I dont personally know of any docs in your neck of the woods, but I

do know that Shattock of the Autism Research Unit recently held

a conference in Prague (I think). The focus of the conference was

trying to get biomedical approaches to treating autism off the

ground in the ex iron curtain countries.

He may be able to put you in touch with your nearest doc. You can

contact him via the Autism Research Unit

http://osiris.sunderland.ac.uk/autism/

Otherwise there is Dr Heard over here for chelation. He is based at

the Breakspear Hospital in Hemmel Hempstead (listed on the ARI site)

but unfortunately his list is closed until at least April - it might

be longer....other listmates will know.

Hope this helps.

Zoe x

>

> Hello listmates,

>

> I am new to this group and thought I would post to see if anyone

has

> some suggestions as to where I could find a doctor to help with

> chelating my son.

>

> We are Americans living in the Czech Republic, and my son has

> Sensory Integration Dysfunction, some Aspberger traits too, but

> undiagnosed. We spent the last year in the USA getting sensory

> integration therapy and starting on the path of biomedical

> intervention. After doing the gfcf diet for 11 months, limiting

high

> phenols, and using digestive enzymes, he's doing great! Thankfully

> everything we've dealt with has been on the very mild end of the

> spectrum, so most people don't notice much wrong with him. But as

a

> mom, I see areas that we still need to address. Many of his

symptoms

> have gone away, though, with the interventions mentioned above.

All

> of this has been done without a doctor.

>

> So....we are at the point where we feel like we need to chelate

him.

> Had a hair test done, and he met one of Andy Cutler's counting

> rules. I would like to have the chelation be done under the care

of

> a physicial if possible....so if anyone knows of a decent doctor

in

> the Czech Republic, or Germany, Poland, or any other neighboring

> country, could you let me know? I see one doctor listed on the DAN

> list who is in Germany, but her profile doesn't tell whether she

> chelates or not.

>

> Any help is very much appreciated. Oh, and any suggestions on

where

> to get special food...we cannot find preservative free lunchmeat

> here- really just the bare minimum of things are here to make gfcf

> and low phenol diets work. So any suggestions are most

appreciated.

> We could even drive to Germany if we knew there was a very good

> health food store somewhere.

>

> Thanks so much!

> Satia

>

[Guest guest]

Hello there

Do you have further information on doctor Esser from Germany, eg a

web site or contact details for him/her?

For information, Dr Aitken is not a medical doctor.

Do you have further information on the Polish DAN doctor?

This information would be useful for the Treating Autism web site,

in case there are future similar enquiries about biomedical

doctors/practitioners from across Europe.

Thanks.

Zoe

> >

> > Hello listmates,

> >

> > I am new to this group and thought I would post to see if anyone

> has

> > some suggestions as to where I could find a doctor to help with

> > chelating my son.

> >

> > We are Americans living in the Czech Republic, and my son has

> > Sensory Integration Dysfunction, some Aspberger traits too, but

> > undiagnosed. We spent the last year in the USA getting sensory

> > integration therapy and starting on the path of biomedical

> > intervention. After doing the gfcf diet for 11 months, limiting

> high

> > phenols, and using digestive enzymes, he's doing great!

Thankfully

> > everything we've dealt with has been on the very mild end of the

> > spectrum, so most people don't notice much wrong with him. But

as a

> > mom, I see areas that we still need to address. Many of his

> symptoms

> > have gone away, though, with the interventions mentioned above.

All

> > of this has been done without a doctor.

> >

> > So....we are at the point where we feel like we need to chelate

> him.

> > Had a hair test done, and he met one of Andy Cutler's counting

> > rules. I would like to have the chelation be done under the care

of

> > a physicial if possible....so if anyone knows of a decent doctor

in

> > the Czech Republic, or Germany, Poland, or any other neighboring

> > country, could you let me know? I see one doctor listed on the

DAN

> > list who is in Germany, but her profile doesn't tell whether she

> > chelates or not.

> >

> > Any help is very much appreciated. Oh, and any suggestions on

where

> > to get special food...we cannot find preservative free lunchmeat

> > here- really just the bare minimum of things are here to make

gfcf

> > and low phenol diets work. So any suggestions are most

appreciated.

> > We could even drive to Germany if we knew there was a very good

> > health food store somewhere.

> >

> > Thanks so much!

> > Satia

> >

>

[Guest guest]

Yes you are right. Dr Aitken is not medical doctor.

However from these three (I have seen all of them) he made biggest

impression on me.

He is consulting with the Polish medical doctor - dr Magdalena Cubala-

Kuchrska. Dr Cubala attended the conference in Edinburgh. She will

attend one of the US conferences in the spring to get the DAN title.

Dr Esser (she) contact is in the ARI list. You will not find anything

on dr Esser in the internet (maybe it has changed lately). It seems

in Germany DAN is operated in underground. e.g. I have heard that

MB12 is forbidden in Germany.

> > >

> > > Hello listmates,

> > >

> > > I am new to this group and thought I would post to see if

anyone

> > has

> > > some suggestions as to where I could find a doctor to help with

> > > chelating my son.

> > >

> > > We are Americans living in the Czech Republic, and my son has

> > > Sensory Integration Dysfunction, some Aspberger traits too, but

> > > undiagnosed. We spent the last year in the USA getting sensory

> > > integration therapy and starting on the path of biomedical

> > > intervention. After doing the gfcf diet for 11 months, limiting

> > high

> > > phenols, and using digestive enzymes, he's doing great!

> Thankfully

> > > everything we've dealt with has been on the very mild end of

the

> > > spectrum, so most people don't notice much wrong with him. But

> as a

> > > mom, I see areas that we still need to address. Many of his

> > symptoms

> > > have gone away, though, with the interventions mentioned above.

> All

> > > of this has been done without a doctor.

> > >

> > > So....we are at the point where we feel like we need to chelate

> > him.

> > > Had a hair test done, and he met one of Andy Cutler's counting

> > > rules. I would like to have the chelation be done under the

care

> of

> > > a physicial if possible....so if anyone knows of a decent

doctor

> in

> > > the Czech Republic, or Germany, Poland, or any other

neighboring

> > > country, could you let me know? I see one doctor listed on the

> DAN

> > > list who is in Germany, but her profile doesn't tell whether

she

> > > chelates or not.

> > >

> > > Any help is very much appreciated. Oh, and any suggestions on

> where

> > > to get special food...we cannot find preservative free

lunchmeat

> > > here- really just the bare minimum of things are here to make

> gfcf

> > > and low phenol diets work. So any suggestions are most

> appreciated.

> > > We could even drive to Germany if we knew there was a very good

> > > health food store somewhere.

> > >

> > > Thanks so much!

> > > Satia

> > >

> >

>

[Guest guest]

Oh my, I could have written this post myself. Almost the exact same

symptoms are going on with me, I think the only problem I don't have is the

café au lait spots and the breast cysts. I have had menstrual problems, but

I am now post menopause so that part is over. I have been seeing a

neurologist and they are trying to figure out what is going on. I was just

dx'd with Hashimoto's although I am pretty sure I have had it for many

years.

I wish I could tell you what is wrong, but I don't know what is wrong with

me. We must keep in touch with each other because it is entirely possible

that we are dealing with the same illness[es]. Mine have gotten so bad,

that I actually got SSD without having to fight them tooth and nail.

I just had an EMG and some problems were found, but the Doc that gave me the

test talked way over my head and was insistant that I get a more detailed

family history. I have another neuro appointment on Jan 2 and I will get

the results of the EMG translated at that time.

BTW, in spite of the negative tests for Lupus and MS, one or the other could

still be the problem. I had an MRI of the brain and it was clean, but I am

guessing we are going to MRI the spinal cord next.

Please, lets keep each other posted on our medical journey. I am going to

insist that they check my adrenal glands function. And it is true that if

you have one autoimmune disease, you are at greater risk to develop others.

Cody

New here

I am a 42 year old female, I was diagnosed 16 years ago with

Hashimoto's Thyroiditis, so I have become used to the symptoms of

this. My TSH levels have been really good for quite sometime now. But

I have started having a number of other symptoms most every day, I

have had all of these symptoms at various other times over the past

5-7 years, but they would come and go and usually would only last for

a few weeks or so, very seldom ever lasting longer than that.

Approximately 6 years ago I was checked for lupus and multiple

sclerosis because of my symptoms, at the time both of those tests came

back negative. I was told that I was very prone to other autoimmune

diseases though, since I have had several positive ANA(antinuclear

antibody) tests.

I know that some of my symptoms could be related to the medicine that

I am on, but I was having these symptoms on and off again for several

years before these medicines were started. The only medication I have

taken long term has been the thyroid replacement.

The medications I currently take are:

Levoxyl for the Hypothyroidism, been using for approximately 7 years

before Levoxyl, I was taking Synthyroid.

Lipitor for high cholesterol, been using for 2 months.

Nexium for heartburn, been using for 2 months.

Buspar for panic attacks, been using 5 months.

Zoloft for depression, been using 5 months.

Prometrium to regulate my menstrual cycle, just started taking this one.

Here are the symptoms that I am currently experiencing most of them on

a daily basis, and these have been getting worse over a period of

about 3 months. My eyes jerk involuntarily, I have some occasional eye

pain, and my eyes are usually dry sometimes to the point of being

bloodshot.. I have been having muscle weakness, muscle stiffness,

muscle pain, and muscle twitches. I have moderate joint pain and a

great deal of joint stiffness. I also have lower back pain, and pain

in the upper part of my back mainly between my shoulder blades,

sometimes this is just pain other times it is a burning pain.

Sometimes my body jerks involuntarily usually at night. I sometimes

have numbness in my arms and fingersand in the past couple of days I

get the numbness in my legs also. I seem to itch all over my body. My

coordination has gotten worse I can't hold my arm out to the side and

touch my nose, I will usually end up touching my lip or chin, this

seems to be a little better with my left hand, which confuses me a

little since I am right handed. I walk a little funny now, I have to

keep my feet farther apart than normal to try and keep my balance, and

my feet seem to drag every once in a while, or sometimes it feels like

my feet stick to the floor, I also bump into things while walking. My

hands shake when I am trying to do something, my writing has gotten

terrible, sometimes it seems I have forgotten how to spell

properly(thank goodness for spell checkers), I miss things that I

reach for, I drop things more frequently, and my grip has gotten

weaker. I have a hard time keeping my balance, especially if I turn, I

can't maintain my balance if I try to stand on one foot, and I can't

close my eyes and bow my head while standing without swaying. I get

dizzy and light headed most every day. Sometimes my speech is jumbled,

so far this does not happen too often and sometimes I don't comprehend

what is said to me, this has got to where it happens at least once a

day, I am very forgetful, and it seems like I have trouble

concentrating, or thinking. I have some abdominal pain with minor

bloating, and alternating constipation and diarrhea. I have started

having more problems with nausea. I have started having some bladder

control problems with approximately 12 " accidents " in the past two

days, I have also had two episodes of bowel control problems. If I

don't take the Nexium I get heartburn daily, but so far the Nexium is

controlling that. I have frequent spells of getting slightly choked or

strangled when swallowing. I seem to be sensitive to heat and cold,

but my body feels cold most of the time. My hands turn pale and throb

when they get cold. My palms have a reddish tint to them. I have a

faint pink color that has come up on my cheeks and across my nose. I

get frequent headaches, I stay tired no matter how much I rest. Over

the past week my blood pressure has been higher than normal. I stay

thirsty and my mouth usually seems dry. I have been having daily

recurrent chest pain on my upper left side that seems to radiate down

my arm sometimes. My menstrual cycle has changed or gotten irregular

going from 3 to 6 weeks in between, my last menstrual period lasted

for 13 days, with normal for me has been being around 4 days. I have

also been having breast pain in my right breast.

I went to my general practitioner about a 1 ½ weeks ago, for some

routine blood work and a follow up on the Nexium and Lipitor. I told

him about some of these symptoms or at least the ones I thought of at

the time. While I was there for my checkup, he checked my blood

pressure and at the time it was 138/104, before that normal for me was

around 110-115/60-70. He ordered a stress test which was done last

week. During my stress test they wanted my heart rate to get to 178,

and I managed to get to that point, before the test started my blood

pressure was 127/66, which I assumed was normal. At the end of the

test my chest had started hurting mildly, I was somewhat short of

breath, dizzy and light headed and my blood pressure was 166/28. The

cardiologist said the EKG was normal, but that in a female that didn't

necessarily mean anything, that he wanted to do another test. I am now

waiting for the results of the Persantine Nuclear Scan, during the

stress test part my blood pressure ranged from 104/66 at the

beginning, to 156/42 at the end. When the stress test portion was over

I was having mild to moderate chest pain, was very short of breath,

and fairly dizzy and light headed. I also had my annual gyn exam this

week and during that my gyn told me that my breasts had a great deal

of cysts and she has ordered a mammogram to make sure that they are

nothing serious, and she also thinks that I have a mass in my uterus

so she has also ordered a pelvic ultrasound. I still have an upper GI

to be done later this week, and after the first of the year I have a

neurologist appointment. My gyn also suggested that I see a

dermatologist because I have a great deal of café au lait spots around

50-75 ranging in size from maybe a dime to the size of a salad plate.

She said she thought that these were associated with something she

just could not remember what.

I am sorry this was so long, but I feel like I am falling apart, my

husband, my daughter and my parents are worried about me because they

have noticed the changes in me, and I am beginning to get a little

worried now because these symptoms seem to be getting progressively worse.

Therashaetha

~~~~ *** ~~~ *** ~~~ *** ~~~~

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--- Margaret Drabble

~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi Lori,

I'm so happy you decided to join. What a nice surprise this morning to see

your introduction. You have just entered a group of incredibly caring and

knowledgeable women (mostly women that is).

Lori is an acqaintance of mine - our boys are the same age and attend the same

school.

Anita

loris914 <loris914@...> wrote:

Just wanted to introduce myself, my son is 4.5 years old and was

diagnosed with autism at 20 months of age. He was typcially

developing and we had no developmental concerns until shortly after

his MMR vaccine at 15 months. Shortly after that vaccine he became

quiet and withdrawn. We have been treating him biomedically with the

DAN approach for 2.5 years.

Lori

[Guest guest]

hi lori,

welcome!

im sure you will learn a heap here... wondering how much improvement /

success you have had with the DAN doctor?

roweena x

On 09/01/2006, at 1:35 AM, loris914 wrote:

> Just wanted to introduce myself, my son is 4.5 years old and was

> diagnosed with autism at 20 months of age.  He was typcially

> developing and we had no developmental concerns until shortly after

> his MMR vaccine at 15 months.  Shortly after that vaccine he became

> quiet and withdrawn.  We have been treating him biomedically with the

> DAN approach for 2.5 years. 

>

> Lori

>

>

>

>

>

>

[Guest guest]

Welcome Lori. My son lost the ability to speak/coo/babble after the MMR

shot and was silent for over a year- then spoke in unintelligible jibberish

for a very long time. Now at age 6 (and after 3 years of speech therapy) he

is doing well.

Have you read " Evidence of Harm " by Kirby?- great book - It does

contain stories of children regressing and losing speech after the MMR shot.

New Here

> Just wanted to introduce myself, my son is 4.5 years old and was

> diagnosed with autism at 20 months of age. He was typcially

> developing and we had no developmental concerns until shortly after

> his MMR vaccine at 15 months. Shortly after that vaccine he became

> quiet and withdrawn. We have been treating him biomedically with the

> DAN approach for 2.5 years.

>

> Lori

>

>

>

>

>

>

>

[Guest guest]

Hi Lori --

Welcome to the group. I'm , live in NY with my DH and 2 great kids.

My son had a severe reaction to the DPT shot -- they tell me it was

specifically to the pertussis vaccine -- and a year and a half ago he had

whooping cough. We avoid meds whenever possible (which is almost always),

instead we choose nutrition (organic when possible) and organic whole food

supplements to fill in our nutritional gaps. :-)

I look forward to getting to know you.

Health & blessings,

Project MAHMA -- Moms At Home Making A difference...

and a lot of money!

1-866-312-8064

[Guest guest]

Hi Suzy - welcome Can't wait to hear more about you.Suzy <shp@...> wrote: Hello everyone, I am Suzy from DE I just signed up for support. I thinkI may have been a member on this list at one point can't remember??? Anywaycan't wait ot meet new friends and get and offer support. I will be back later with more info about me. ODAAT! Suzy )Live, Love, Laugh

[Guest guest]

welcome Suzy

[Guest guest]

I know that many of us have been trained and/or brainwashed by the educational

system and by the news media, powers that be, but we have to now think " out of

the box " so to speak and think for ourselves. The so-called government has been

telling its 'citizens' that they know better than us what is good for us, etc.

.. This is how they trap us into thinking that we are to obey them rather than

them obeying us, the sovereign flesh and blood creation of God. The human body

has its own immune system that no vaccine can match. Keep that in mind. Also,

the corporate government has converted the flesh and blood human to what some

call corporate entities, i.e. JOHN DOE, JOHN D. DOE and its other creations.

The laws, state and federal only pertains to these entitities, not the flesh and

blood creation of God. Please study the following sites: Commercial

Redemption. Strawman...STATE OF.............. . All these are misnomers and

only exist in our minds. In other words, they are

names only and strive or live: UNDER COLOR OF LAW.

momszilla1 <momszilla1@...> wrote: Hi, my name is and I am new to

this group. I have 3 boys the

oldest 4, middle just turned 3, and 8 months they keep me very busy to

say the least. My oldest was just diagnosed with autism and adhd which

doesn't help much at all and he was vaccinated...we were told there

was no link that genetics played the rold in that. I started learning

about vaccinations about 4 years ago and have learned many things

beginning with Mercury to the vaccine fillers and I cannot fathom the

idea of putting those fillers and ingredients into my kids veins after

learning that. I am glad my other 2 boys have had none and many

people told me many things like my kids won't get into school and

people thinking they knew what my legal rights were when they didn't.

It makes me sick just knowing that the pediatritians administer this

stuff to newborns to top it off. I recently aquired the 2006

immunization schedule and it doesn't have the added ones on it as far

as I can see, I need time to look and I barely have time to breath

somedays so please do not quote me on that. I will further check that

documentation. I like that there is a world of information with this

group, site it will really help to educate me further.

[Guest guest]

jusbelli.com commercial redemption learn the difference between the

definitions of STRAWMAN UNITED STATES republic v. democracy. Wow, so much

to mention.

momszilla1 <momszilla1@...> wrote: Hi, my name is and I am new

to this group. I have 3 boys the

oldest 4, middle just turned 3, and 8 months they keep me very busy to

say the least. My oldest was just diagnosed with autism and adhd which

doesn't help much at all and he was vaccinated...we were told there

was no link that genetics played the rold in that. I started learning

about vaccinations about 4 years ago and have learned many things

beginning with Mercury to the vaccine fillers and I cannot fathom the

idea of putting those fillers and ingredients into my kids veins after

learning that. I am glad my other 2 boys have had none and many

people told me many things like my kids won't get into school and

people thinking they knew what my legal rights were when they didn't.

It makes me sick just knowing that the pediatritians administer this

stuff to newborns to top it off. I recently aquired the 2006

immunization schedule and it doesn't have the added ones on it as far

as I can see, I need time to look and I barely have time to breath

somedays so please do not quote me on that. I will further check that

documentation. I like that there is a world of information with this

group, site it will really help to educate me further.

[Guest guest]

hello, my name is evelyn and my son has cystic fibrosis and asthma. anytime you need someone to talk to i am here. evelynRain <seanachai2002@...> wrote: I have been with my fiancee for three years now. I can't belive I didnot think of looking for a group before.My beloved has 60% lung capacity. He says it is like trying to breaththrough a coffee straw. The last few days have been horrid. Hischest hurt so badly he almost cried. I felt so helpless (like I doeverythime he has an attack resulting in a visit to the ER). Is thereanything I can do besides making him hot coffee, beating his back, andgetting treatments ready?We are also planning on having a baby in the next fourish years. Iam very concerned about having a baby with asthma. He

says his lifehas been hell with this disease. I have researched the odds of havingan asthmatic baby and cant find a reasonable answer. Some say one inthree others one in five. I have no clue. What I do know if it helpsanyone is that my side has zero asthmatics. His mother and fatherhave asthma but nowhere near as bad as his.Mostly I guess I am looking for people living with a loved one who hassevere asthma.Thank you for your time reading this.Rainy~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription

Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi Rain. Glad you joined the group! I just joined last night. I have been in groups before but have been very ill/under a lot of stress in the past few months and couldn't keep up. Now I think I can. I like the way I feel cared about and hope that I can do as much for everyone here as they are doing for me. I'm sooo sorry about your husband! He has asthma? I too have it so my heart goes out to both of you! All I can say is to have him keep using the treatments the dr gives him and to try to relax and take a few deep breaths and 'manage' his asthma by listening to soft music, watching tv, etc, anything that takes your mind off the illness or pain, and then keeping busy to make yourself tired. This is what I do. You are very caring! This is good and will surely help him! Just having someone there with you when you are so ill helps! I know how hard it is because when someone you love is so sick, you feel helpless, I have 2 kids that have

been very sick/in accidents the past 3 years and I know how hard it is! Have you thought about adoption instead? I have 4 kids and tho they all had some form of allergies/asthma at one time, they outgrew it. Still, it is a big consideration! My oldest son Mike got asthma at 8 months and had to be in an oxygen tent for 3 days! very scary but he outgrew it! The best of luck to you and your husband! ((((((( Hugs! ))))))) . Rain <seanachai2002@...> wrote: I have been with my fiancee for three years now. I can't belive I didnot think of looking for a group before.My beloved has 60% lung capacity. He says it is like trying to breaththrough a coffee straw. The last few days have been horrid. Hischest hurt so badly he almost cried. I felt so helpless (like I doeverythime he has an attack resulting in a visit to the ER).

Is thereanything I can do besides making him hot coffee, beating his back, andgetting treatments ready?We are also planning on having a baby in the next fourish years. Iam very concerned about having a baby with asthma. He says his lifehas been hell with this disease. I have researched the odds of havingan asthmatic baby and cant find a reasonable answer. Some say one inthree others one in five. I have no clue. What I do know if it helpsanyone is that my side has zero asthmatics. His mother and fatherhave asthma but nowhere near as bad as his.Mostly I guess I am looking for people living with a loved one who hassevere asthma.Thank you for your time reading this.Rainy~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at

/chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical

conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi Rainy,

Has your sweetie ever been tested for cystic fibrosis? I just ask as his

asthma is worse than normal or so it seems. I have asthma and it hardly

bothers me very often.

My daughter has cf and I was just thinking that if he hasn't been tested it

might be a good idea. There are more treatments now for cf and people are

living much longer. The thing is though, around 98% of males w/ cf are

sterile. Has he ever had a test on his sperm.? Sorry to be so nosy.

hope this helps somewhat if not it might give you an idea of how he could be

helped. Seeing a cf doc also might not be a bad idea. My daughter has a

machine called the Thairapy Vest and she just puts it on and it uses

compressed air to do her chest pt. It's so much easier than doing the

pounding by hand and more efficient.

good luck

[Guest guest]

Yep he has been tested for cf and its a negative(his words not mine)

He has also had a sperm thing and when I get my tubal reversal should

have no problem fathering a child. Lots of good strong swimmers

there. This was done recently as we wanted to know if a reversal

would be a waste of time since his meds might effect.

Ahhh I just remembered a web -site tha tmight help everyone/anyone.

We had trouble paying for his meds and a patient of his (he is an EMT)

that we go try www.needymeds.com now all way pay for is albuterol

and ipotropium.

[Guest guest]

Hi a -

I'm 50, in my second week of my 3rd challenge (ie, C3-W3-D2)

Started at about 178 and close to 40% bf

Currently about 152 and 27-29% bf

A suggestion (if you have access to a freezer), based on what I do for our

family: before each semester begins, at the end of the break, cook up a

storm and pack in individual portions.

n

At 10:37 AM 3/14/2006, you wrote:

>While I am new to this group I am not new to BFL. This is my 3rd time

>starting BFL! Once in 1999, and then again about a year ago. I was

>extreamly happy with my results last year and lost all my " baby

>weight " and 10 lbs more, however as a student my schedule changes evey

>semester and I had a hard time keeping it up this past year.

>I am 5'0, 130 lbs., my goal is 110 - 115

>Just curious where is everyone else in the program?

[Guest guest]

hi erica!

i am on day 2 of my first BFL challenge. I am really excited and motivated. I

think this club is so great to help when no one around us is going through the

changes we are going through.

look forward to hearing from you (and everyone else) these next 12 weeks!

take care!

elizabeth

a Salmans <jlsers2@...> wrote: While I am new to this group I am

not new to BFL. This is my 3rd time

starting BFL! Once in 1999, and then again about a year ago. I was

extreamly happy with my results last year and lost all my " baby

weight " and 10 lbs more, however as a student my schedule changes evey

semester and I had a hard time keeping it up this past year.

I am 5'0, 130 lbs., my goal is 110 - 115

Just curious where is everyone else in the program?

[Guest guest]

Hi ,

You are not alone as you will soon find out... My 2-year old was

diagnosed with last year after many, many tests. For us,

Prednisone works. My son gets a fever about every 45 days or so. I

call the Dr office, we get a sigle dose of Prednisone and the fever is

gone 2 hours later.

Again, this works for us but not for everyone.

Regards,

Joe

________________________________

From: [mailto: ] On Behalf Of

do u really want to know

Sent: Thursday, March 16, 2006 5:54 PM

Subject: new here

Hello to everyone,

I am new here. My name is , I am the Father of 3 year old

Kylie. We started noticing kylies pattern about 1 year ago. Every

two weeks , a fever ranging from 98 to 99 on the first day ,then

anywhere to 100 to 102.9 the second ,then gradually working its way

out the third day, then magically it was gone. we to were told, like

many others here that it was just a virus. Our ped. was convinced it

was a u.t.i. When kylie started shaking at night from the fevers

was when i had enough, i said somethings wrong, it just seems to

weird to be happening exactly every two weeks, even almost to the

time of day. So we were referred to infectious disease at rileys in

indy. The dr. there was very quick to diagnose kylie with recurring

fever syndrome, or . Since then we have not had any tests ran

or been back to the dr. Kylie just went a month without a fever,

then about 2 and a half weeks ago, and i pray that its not but it

seems to be returning to the two week episodes. I did notice that

it seemed to be a little higher than normal, usually does not go

above 103.5. we do not give anything besides , tylenol , motrin,

and just last time tried ibuprofen. I am very pleased to have

someone to talk to, it seems maybe as my wife has just accepted it.

I can't. Maybe im over obsessing about it, i dont know. I feel so

helpless that i can not do anything to help my little girl, except

give her tylenol, etc and pray that the fevers go away. How can we

put a remote control car on an asteroid a million miles away, but

nobody can tell me why my daughter keeps getting fevers? I am

sorry, but it feels good to get this off my chest. I am 27 years

old, so i am fairly young myself, please send me any info you have,

and let me know how you have dealt with this. If there is anything

you know of that I can do to help my little girl, please let me

know. You are all in my prayers. Thank you for listening.

[Guest guest]

I can relate my daughter has had these fevers for 1 1/2 years now

and her fevers are every two weeks. I am also 27 and my spouse seems

to have accepted it (not doing any research or questioning) better

then I. I feel like all I can do is pray, question and read about

these illnesses to try to gain as much knowledge as possible. We

have had lots of blood work and genetic test done as well as tried

Prednisolone. and are now trying Cimetidtine and are looking into

getting a tonsillectomy this summer. For us the Pred. works to stop

the fevers within hours but then they come back quicker. We don't

know yet if the Cim. is working, but this fever came at three weeks

instead of two so maybe it's helping a little. And the tonsil. I

feel is worth trying because I know it has working for many others

and if there is even a small chance I feel like it is worth taking.

Well, this is a small insight into what we have done, of course

everyone has to do what they feel is right for their own child. I

would say keep on asking questions and researching (there are some

good links on this site) because it is only through actions that we

can get answers. It feels overwhelming but knowing that other

people are going through this and that others understand our

frustration is a comfort in a time of uncertainty. I hope my info

helps a little. You can always email me if you want more info.

Mother of ee 22 months

Diagnosed with

[Guest guest]

Dear ,

I have been a member of this group for quite awhile but mostly read

messages & don't respond. Your posting really touched me and brought back

many memories of how hard it was when my son (now almost 10) was just a

little guy. You will get a tremendous amount of information from this

group - probably more than from most doctors. Stick with it and fight for

your daughter and what is right for her. In my son's case, he started fever

episodes very young, just months old, and was not diagnosed until he was

four. We did 4 years of prednisone which worked great until it started

bringing the fevers closer together when he was about 8 years old. He then

had his tonsils & adenoids out a year and a half ago and has been episode

free since. I continue to read messages because the illness has had such a

profound effect on our life. Again, read the messages, ask questions and

you will learn.

Good luck & God Bless,

Alisha

Mom to Victor

new here

Hello to everyone,

I am new here. My name is , I am the Father of 3 year old

Kylie. We started noticing kylies pattern about 1 year ago. Every

two weeks , a fever ranging from 98 to 99 on the first day ,then

anywhere to 100 to 102.9 the second ,then gradually working its way

out the third day, then magically it was gone. we to were told, like

many others here that it was just a virus. Our ped. was convinced it

was a u.t.i. When kylie started shaking at night from the fevers

was when i had enough, i said somethings wrong, it just seems to

weird to be happening exactly every two weeks, even almost to the

time of day. So we were referred to infectious disease at rileys in

indy. The dr. there was very quick to diagnose kylie with recurring

fever syndrome, or . Since then we have not had any tests ran

or been back to the dr. Kylie just went a month without a fever,

then about 2 and a half weeks ago, and i pray that its not but it

seems to be returning to the two week episodes. I did notice that

it seemed to be a little higher than normal, usually does not go

above 103.5. we do not give anything besides , tylenol , motrin,

and just last time tried ibuprofen. I am very pleased to have

someone to talk to, it seems maybe as my wife has just accepted it.

I can't. Maybe im over obsessing about it, i dont know. I feel so

helpless that i can not do anything to help my little girl, except

give her tylenol, etc and pray that the fevers go away. How can we

put a remote control car on an asteroid a million miles away, but

nobody can tell me why my daughter keeps getting fevers? I am

sorry, but it feels good to get this off my chest. I am 27 years

old, so i am fairly young myself, please send me any info you have,

and let me know how you have dealt with this. If there is anything

you know of that I can do to help my little girl, please let me

know. You are all in my prayers. Thank you for listening.

[Guest guest]

It is SO awesome and such a priviledge to be able to participate (mostly

read) with other families across the nation that have had or are having

same or similar circumstances that I had with my son, , until 6

years ago. His fevers started early and weren't diagnosed until he was

almost 3 years old. I could SO relate to Alisha's situation with her

son Victor. My son has been in 'remission' of the fevers since he was

5, after his tonsillectomy and adenoids removal, and is now 11, but, I'm

wondering if he is beginning to relapse back in to the fevers again.

I'm beginning to chart them on a calendar again. We won't know for a

few months yet. I hear the stories about what the parent's are going

through and remember how traumatic it was when was such a baby

and realizing that he had this fever disorder that may last his entire

childhood. It is frightening to think your child is missing out on a

lot of activities and things because of his/her fever episodes. We had

to plan our vacations around it. Sometimes, we resorted to the

Prednisolone, when the fever fell at an inopportune time, but mostly

just rode each episode out. His pediatrician didn't recommend

Prednisolone for long time use. It was helpful in getting rid of the

fever within 24 hours each episode. So, I was thankful that it was

and not something more 'tragic', however, it didn't make living

with it any easier. As a parent, to see your child SO sick and not

really be able to do a whole lot for them except pamper them with a lot

of love and care, and wait it out is heart wrenching. And each and

every time you tried to talk to someone else about it, a family member

or a co-worker, or a friend, or yet ANOTHER doctor or nurse, who had

never heard of this before, you had to explain the acronym , what

it means, how it affects your child, you and your family, and they just

don't know anything about it and have no idea what a 'profound effect'

it is having on you, your child, or your family. I can relate to each

of the stories about their children on this 'BLOG' and I thank FRAN for

having the insight to start the group to allow us to communicate with

one another and share our stories. I find comfort in knowing that there

are others to talk to about this wierd fever happening to our children.

People who are experiencing it first hand. What in the world caused

this? Ugh. Maybe someday we'll know. With the members in this group

- we have a GREAT deal of information and resource pool to share. As

's pediatrician said yesterday, Dr. Stone, Vestavia

Pediatrics, " Don't minimize your knowledge of this. Sometimes you

parent's know more than a lot of Doctors " . For those of you with a sick

child at home today... God Bless You AND them. Love your children and

just be there for them and know there's a mom out here who can identify

with what you are going through.

Dana

Mother of (16), and (11 - - remission - until proven

otherwise)

Birmingham, AL

_____

From: [mailto: ] On Behalf Of

Alisha Elischer

Sent: Thursday, March 16, 2006 11:14 PM

Subject: RE: new here

Dear ,

I have been a member of this group for quite awhile but mostly read

messages & don't respond. Your posting really touched me and brought

back

many memories of how hard it was when my son (now almost 10) was just a

little guy. You will get a tremendous amount of information from this

group - probably more than from most doctors. Stick with it and fight

for

your daughter and what is right for her. In my son's case, he started

fever

episodes very young, just months old, and was not diagnosed until he was

four. We did 4 years of prednisone which worked great until it started

bringing the fevers closer together when he was about 8 years old. He

then

had his tonsils & adenoids out a year and a half ago and has been

episode

free since. I continue to read messages because the illness has had

such a

profound effect on our life. Again, read the messages, ask questions

and

you will learn.

Good luck & God Bless,

Alisha

Mom to Victor

new here

Hello to everyone,

I am new here. My name is , I am the Father of 3 year old

Kylie. We started noticing kylies pattern about 1 year ago. Every

two weeks , a fever ranging from 98 to 99 on the first day ,then

anywhere to 100 to 102.9 the second ,then gradually working its way

out the third day, then magically it was gone. we to were told, like

many others here that it was just a virus. Our ped. was convinced it

was a u.t.i. When kylie started shaking at night from the fevers

was when i had enough, i said somethings wrong, it just seems to

weird to be happening exactly every two weeks, even almost to the

time of day. So we were referred to infectious disease at rileys in

indy. The dr. there was very quick to diagnose kylie with recurring

fever syndrome, or . Since then we have not had any tests ran

or been back to the dr. Kylie just went a month without a fever,

then about 2 and a half weeks ago, and i pray that its not but it

seems to be returning to the two week episodes. I did notice that

it seemed to be a little higher than normal, usually does not go

above 103.5. we do not give anything besides , tylenol , motrin,

and just last time tried ibuprofen. I am very pleased to have

someone to talk to, it seems maybe as my wife has just accepted it.

I can't. Maybe im over obsessing about it, i dont know. I feel so

helpless that i can not do anything to help my little girl, except

give her tylenol, etc and pray that the fevers go away. How can we

put a remote control car on an asteroid a million miles away, but

nobody can tell me why my daughter keeps getting fevers? I am

sorry, but it feels good to get this off my chest. I am 27 years

old, so i am fairly young myself, please send me any info you have,

and let me know how you have dealt with this. If there is anything

you know of that I can do to help my little girl, please let me

know. You are all in my prayers. Thank you for listening.

[Guest guest]

What a painful journey to get to the love your life.

You'll find all kinds of information here - the best advice is to read up - and

go with your mommy heart.

Ask questions here, nearly everyone has great sources, personal experience -

" wish I woulda' or " glad I didn't " stories.

Best thoughts for a worry free pregnancy and a wonderful birthing experience.

Cheryl

New Here

Hi everyone,

My name is Cameron and I am 23 weeks pregnant. I am

trying to learn more about the harmful effects of

vaccinations before I make any decisions to vaccinate

this baby.

My first child, Emerson Jade, was stillborn at 32

weeks. She was perfectly healthy but died from an

umbilical cord accident. An amniotic band had

attached where the cord inserted into the placenta and

constricted the blood flow through her cord and caused

her heart to stop beating. The dr's should have found

this on ultrasound and there is no reason that she

should not be here with me today. I then miscarried

my second baby in July of last year due to chromosomal

problems. She was a girl and we named her Jaden

Olivia.

We have no living children and we have lost too much

already. I have just recently started to read up on

some of the effects of vaccinations,i.e. autism, but I

am trying to determine what other harmful effects can

result as well. I just don't want to go through all

this pain to have a living child and then do something

to harm him.

Sincerely,

Cameron

__________________________________________________

[Guest guest]

Cheryl,

Thank you for welcoming me to this group. To be

honest, I didn't even think to question vaccinations

until one of my friends told me that she was not going

to vaccinate her daughter. This friend also had a

stillborn daughter due to an umbilical cord accident

and I knew that she wouldn't do anything to harm her

next child so it made me start to ask questions.

Another friend of mine has an autistic child and she

started to notice a change in him a few days after his

first round of vaccinations as a baby but it wasn't

diagnosed until he was older. She shared with me an

article written by Kennedy Jr. that was in the

Rolling Stone magazine, June 2005 and it was really

eye-opening about the connection between the

preservative Thimerosal and austism. I know that you

can ask for Thimerosal-free vaccines but past that I

need to read up on how vaccinations can be dangerous

in other ways, i.e. the link to cancer.

I received a lot of articles by signing up with this

group and I have to say that it is overwhelming, but I

will go through them one at a time.

All my best,

Cameron

--- Cheryl <che2you@...> wrote:

> What a painful journey to get to the love your life.

> You'll find all kinds of information here - the best

> advice is to read up - and go with your mommy heart.

> Ask questions here, nearly everyone has great

> sources, personal experience - " wish I woulda' or

> " glad I didn't " stories.

>

> Best thoughts for a worry free pregnancy and a

> wonderful birthing experience.

>

> Cheryl

>

> New Here

>

>

> Hi everyone,

> My name is Cameron and I am 23 weeks pregnant. I

> am

> trying to learn more about the harmful effects of

> vaccinations before I make any decisions to

> vaccinate

> this baby.

>

> My first child, Emerson Jade, was stillborn at 32

> weeks. She was perfectly healthy but died from an

> umbilical cord accident. An amniotic band had

> attached where the cord inserted into the placenta

> and

> constricted the blood flow through her cord and

> caused

> her heart to stop beating. The dr's should have

> found

> this on ultrasound and there is no reason that she

> should not be here with me today. I then

> miscarried

> my second baby in July of last year due to

> chromosomal

> problems. She was a girl and we named her Jaden

> Olivia.

>

> We have no living children and we have lost too

> much

> already. I have just recently started to read up

> on

> some of the effects of vaccinations,i.e. autism,

> but I

> am trying to determine what other harmful effects

> can

> result as well. I just don't want to go through

> all

> this pain to have a living child and then do

> something

> to harm him.

>

> Sincerely,

> Cameron

>

> __________________________________________________

>

[Guest guest]

Hi Cameron --

I'm so sorry for your loses, and I pray all will go well with this pregnancy

and delivery.

I wish I had your questions before my first child was born. It took DS

having a severe allergic reaction to one of the DPT before I became

concerned - thankfully the allergic reaction is the only issue that I'm

aware of. Now both DS and DD are partially vaxed - live and learn.

This group has great info and I'm sure you'll find some answers.

Health & blessings,

CREATING HEALTHIER LIVES...

one family at a time!

http://www.Shaklee.net/ExcitingHealth

1-866-312-8064

http://www.TheMomPack.com