Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Cameron, Welcome! Just keep in mind that if you have any doubts at all it would be best to wait and do your research before getting any shots (and hopefully none!). Remember that you can always add them but once they're in, you cannot take them out. Have you read any books on this subject yet? There are quite a few that we could all recommend for you to get started. Sheri B. Cheryl <che2you@...> wrote: What a painful journey to get to the love your life. You'll find all kinds of information here - the best advice is to read up - and go with your mommy heart. Ask questions here, nearly everyone has great sources, personal experience - " wish I woulda' or " glad I didn't " stories. Best thoughts for a worry free pregnancy and a wonderful birthing experience. Cheryl New Here Hi everyone, My name is Cameron and I am 23 weeks pregnant. I am trying to learn more about the harmful effects of vaccinations before I make any decisions to vaccinate this baby. My first child, Emerson Jade, was stillborn at 32 weeks. She was perfectly healthy but died from an umbilical cord accident. An amniotic band had attached where the cord inserted into the placenta and constricted the blood flow through her cord and caused her heart to stop beating. The dr's should have found this on ultrasound and there is no reason that she should not be here with me today. I then miscarried my second baby in July of last year due to chromosomal problems. She was a girl and we named her Jaden Olivia. We have no living children and we have lost too much already. I have just recently started to read up on some of the effects of vaccinations,i.e. autism, but I am trying to determine what other harmful effects can result as well. I just don't want to go through all this pain to have a living child and then do something to harm him. Sincerely, Cameron __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hi Cameron, Welcome to the list. My heart goes out to you regarding your losses. Wishing you all the best, Sandy New Here > Hi everyone, > My name is Cameron and I am 23 weeks pregnant. I am > trying to learn more about the harmful effects of > vaccinations before I make any decisions to vaccinate > this baby. > > My first child, Emerson Jade, was stillborn at 32 > weeks. She was perfectly healthy but died from an > umbilical cord accident. An amniotic band had > attached where the cord inserted into the placenta and > constricted the blood flow through her cord and caused > her heart to stop beating. The dr's should have found > this on ultrasound and there is no reason that she > should not be here with me today. I then miscarried > my second baby in July of last year due to chromosomal > problems. She was a girl and we named her Jaden > Olivia. > > We have no living children and we have lost too much > already. I have just recently started to read up on > some of the effects of vaccinations,i.e. autism, but I > am trying to determine what other harmful effects can > result as well. I just don't want to go through all > this pain to have a living child and then do something > to harm him. > > Sincerely, > Cameron > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hello Cameron, Welcome to the list. It's a good community and a great place to be when you have any doubts or reservations about vaccines. I am so sorry to read of your losses - I have had 5 miscarriages myself, although all were early stage so perhaps not so emotionally devastating as a stillbirth. I too wish you a safe outcome with this pregnancy and a safe labour and delivery. Are you hoping for a natural birth? I have a completely unvaccinated and unmedicated daughter, and made the decision not to vaccinate before I fell pregnant with her. Like you, I felt especially protective when I found I was pregnant and by then, I had read enough to convince me that there was nothing good about vaccines. The bottom line is that they don't work and that they are dangerous - and imho will cause a degree of damage to any child (or adult) to whom they are given, but it is the degree of damage that varies from person to person. My family emigrated to Australia last August, so I am keeping my head as low as I can now that I am in a country that strongly advocates vaccination against everything going. It is not mandatory here, but there is nothing that anyone can say to make me change my mind, so I just stay away from doctors then I don't get the hassle. ) I think it is necessary to have a modality of healthcare that you feel really comfortable with when you have children, and for me that has been homoeopathy. I am now studying to be a classical homoeopath, and rarely see a doctor. I deal with all the family's health problems homoeopathically and we are all fitter for it. When you are considering vaccination (or not) it is worth considering that homoeopathy offers safe and effective treatment for any of the *childhood ailments* that can be *prevented* by vaccinations with no harmful side effects and no suppression of symptoms. As such, it is an excellent *alternative* to allopathic treatment - and vaccination! Doctors will tell you otherwise, but it isn't in their financial interests to send patients to a homoeopath. These two websites http://www.nccn.net/~wwithin/vaccine.htm and http://www.whale.to are excellent starts to your vaccine *education*, and there are many others. Bookwise I would recommend the Vaccination Bible, published by What Doctors Don't Tell You (not sure about US availability though), " How to Raise a Healthy Child; in spite of your doctor " by Mendelson, " Vaccination Roulette " , published by the AVN and available through their website (www.avn.org.au). There are others but not off the top of my head. There are several homoeopathic books such as " Homeopathic Alternatives to Vaccination " (forgotten author just now, something) which are also worth a look. Sheri N's website (first one listed here) has a recommended reading list. Good luck with the remainder of your pregnancy - you'll have plenty of reading to do to while the time away. And if your husband had a bad reaction to the DPT - think VERY carefully before you get that vaccine for your child. Can I also recommend that you extend your reading to breastfeeding management because breastfeeding is probably the most important thing you can do for your child's immunological health at birth, and for life. Love, light and peace, Sue " As well consult a butcher on the value of vegetarianism as a doctor on the worth of vaccination. " - Bernard Shaw OT4VAX - Off-topic conversation for Vaccinations list members http://www.nccn.net/~wwithin/vaccine.htm - expansive information about vaccines! http://www.whale.to - more expansive information about vaccines! > Hi everyone, > My name is Cameron and I am 23 weeks pregnant. I am > trying to learn more about the harmful effects of > vaccinations before I make any decisions to vaccinate > this baby. > > My first child, Emerson Jade, was stillborn at 32 > weeks. She was perfectly healthy but died from an > umbilical cord accident. An amniotic band had > attached where the cord inserted into the placenta and > constricted the blood flow through her cord and caused > her heart to stop beating. The dr's should have found > this on ultrasound and there is no reason that she > should not be here with me today. I then miscarried > my second baby in July of last year due to chromosomal > problems. She was a girl and we named her Jaden > Olivia. > > We have no living children and we have lost too much > already. I have just recently started to read up on > some of the effects of vaccinations,i.e. autism, but I > am trying to determine what other harmful effects can > result as well. I just don't want to go through all > this pain to have a living child and then do something > to harm him. > > Sincerely, > Cameron > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 In a message dated 4/25/2006 1:15:43 P.M. Eastern Standard Time, jchabot@... writes: everytime she hears someone talk, whether it be a person, or tv, or radio, she counts the number of syllables in what they are saying and has to move her body to the number. Judy I haven't heard that yet on this board (but I've only been here for a month or so)... I'll be interested in what the others say about it as well. You mentioned this is her " newest " compulsion -- what are the others? How long has she shown OCD symptoms? Is she on meds? LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 hi, has been diagnosed with ocd at age 5, along with several other diagnosis. Every doctor I've taken her to, has said something different. For 4 yrs now, her doctors have been treating her for bipolar.(These are all local doctors, seeing I live in a small town) I finally got her in for an appt in Hartford, and they said, " definitely ocd " She is having another neuropsych eval done on May 15,in Hartford, to see if she has any co-morbid disorders, because everytime I put her on Zoloft, she goes " manic " .Therefore right now, I can't medicate her until all her testing is done. She has other compulsions and obsessions also, like doing these, " self-stimming rocking movements " (only in her room) She would never let anyone see her doing this!She is extremely obsessed with her hair, her weight(constantly weighing, etc, etc) Obsessed with her room-I can't touch anything in there(bureau, desk, bed, etc) Now, last night, I think she had an anxiety attack. This happened before, and when I took her to the ER, that is what they said. She was crying over being nauseas, which she constantly does, and her legs were shaking. I don't know what to do right now. This is a nightmare!!!!!! Thanks for listening hugs Judy in CT jtlt@... wrote: In a message dated 4/25/2006 1:15:43 P.M. Eastern Standard Time, jchabot@... writes: everytime she hears someone talk, whether it be a person, or tv, or radio, she counts the number of syllables in what they are saying and has to move her body to the number. Judy I haven't heard that yet on this board (but I've only been here for a month or so)... I'll be interested in what the others say about it as well. You mentioned this is her " newest " compulsion -- what are the others? How long has she shown OCD symptoms? Is she on meds? LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 Hi Judy! Well, counting is common with OCD, and as to the things OCD has people do, it doesn't surprise me with your daughter! How long has she had OCD? I have a son, 17, with OCD. His problems began around age 11.5. You mention many O's and C's, is she seeing a therapist or on any medication? My son's OCD began with a lot of touching type compulsions, some " movement " type things. And I could tell sometimes he was " thinking " something. He wasn't at all willing to talk about things so I had to nag/guess and just observe. He also had some repetitive things. And the list could go on!! Anyway, after the worst of times, things did get MUCH better! And now his OCD began " acting up " again with some scrupulosity/religious type things and bad thoughts. None of the previously more " physical " type rituals/compulsions that he had the " first go-round. " Does your daughter want to work on stopping her counting of syllables? Is she working on any other of her OC problems now? We never could find a therapist in our area and just ended up managing on our own, but a slow process that way! single mom, 3 sons , 17, with OCD, dysgraphia and Aspergers(autism) > > > > Hi everyone, > I'm new to this group, and I have a 9yr old dd with ocd. She has many obsessions and compulsions, but her newest is very troubling to me, and I was wondering if any of you have ever experienced this with your child. > I have been noticing lately, as well as her teacher, that she is constantly moving her hands and feet, or her eyebrows up and down. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi I'm a single mom to 3 kids also! Fun huh? especially with a special needs child or two! My dd was diagnosed the first time at age 5, but has had so many different diagnosis since than, every doctor around was calling her a puzzle. Finally I have gotten her evaluated in the major cities, and so far she still has 2 more evals to go, but the 2 in Hartford said " definitely OCD " .Now it's just a matter of making sure she doesn't have bipolar with it, so we can medicate her effectively, and get her the therapy she needs. It has been a really rough road for her. She has been difficult since birth-LOL! She has been on so many different meds, it's ridiculous! They just could never come up with the right combination. They kept adding a mood stabilizer, which always took a toll on her. She desperately needs meds and therapy now, but until we get her evaluation completed,there is nothing we can do, besides pray she doesn't need to be hospitalized until than. Thanks for responding to my post! hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 New here I suppose I might have introduced myself before jumping in, and askign questions and for advice. My name is .Hi , I'm . Glad you're here! I'm from Maine. I'm a Kentucky Gal. I am the married mother of four children. I'm the married mother of 2. I have a boy,22 and a girl 26.And 2 granddaughters. Boy 22, Boy, 22twin boys 21 and girl 17. Yes, I am insane.If you was sane it would't be any fun! And, along the path to insanity, it got fat. I think its the law that the two goes hand in hand:) Can't blame it on pregnancy anymore since the youngest is 17 can I? I don't see why not....I still blame my weight on it. It's the cause...truly it is....Really....quit laughing ....I'm serious here.I've been dieting and moving for a month. I cross country ski (not this year, no snow) and am walking 30 minutes most days. I'm counting calories to lose. I've been at it since January 27th. I also am counting calories and walking. I now must take the time to confess....I have been know to cheat on my calories. Although I am still eating way below what I used to I don't stay within my goal calories but I am still working on it.Good luck to us all!Glad you are here. Keep us posted on how it's going with you. Good or bad we'd like to hear it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Judy, Thought I'd share my niece's story with you - she was dx'd with OCD at around 11, and then spent a couple years (wasted years, my brother and sister-in-law will say) with " talk therapy " and every med available at the time (mid-90's). To them the meds were a nightmare, nothing worked for her, then all the side effects on top of OCD. They had given up hope. It wasn't until they found the right therapist who treated OCD in children with CBT and ERP that they saw the light at the end of the tunnel. They got her off all the meds and painstakingly (sp?) worked at the therapy. They will say that going without meds is very difficult, but once the child gets the tools to fight OCD, it's a lifelong advantage, as opposes to meds that " poop out " or have adverse side effects. I took a couple years, but today my niece is away at college and a very happy, outgoing, fearless young woman. I think at times she still needs to " re-train " her brain, but for the most part her OCD is controlled. It sounds like it's possible all your daughter's issues are coming from her OCD; I would think my daughter has ODD and bi-polar if I didn't know better, I'm sure an outsider would, too, if they saw her in an OCD moment. I hope you get the evaluations in soon, so you can start the process needed for your daughter. Just wondering, why do you need to have 4 evaluations? For insurance purposes? Seems to me like having 2 already confirm OCD is enough. I can't imagine what it's like to deal with this as a single mom, I am drowning as it is, even with a husband who can help with my other child while I'm with . My hat's off to you! nna. > > Hi > I'm a single mom to 3 kids also! Fun huh? especially with a special needs child or two! > My dd was diagnosed the first time at age 5, but has had so many different diagnosis since than, every doctor around was calling her a puzzle. Finally I have gotten her evaluated in the major cities, and so far she still has 2 more evals to go, but the 2 in Hartford said " definitely OCD " .Now it's just a matter of making sure she doesn't have bipolar with it, so we can medicate her effectively, and get her the therapy > she needs. It has been a really rough road for her. She has been difficult since birth-LOL! > She has been on so many different meds, it's ridiculous! They just could never come up with the right combination. They kept adding a mood stabilizer, which always took a toll on her. She desperately needs meds and therapy now, but until we get her evaluation completed,there is nothing we can do, besides pray she doesn't need to be hospitalized until than. > Thanks for responding to my post! > hugs > Judy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 nna, Thank you for the response. I am actually having two more evaluations. She is going for a study on Monday in MA, than to a neurologist in CT on the 15th. My dd has actually been diagnosed with OCD once, at age 5, than had several different diagnosis in the meantime. All the doctors kept thinking it was ODD, and bipolar. She also had one more diagnosis of OCD at age 7 when she was hospitalized . The problem is she is extremely inconsistent, and until recently, she has been a master at hiding what is going on with her. She just told me last night about this counting syllables in her head. I could never get anything out of her. The last time she was hospitaized they said, " bipolar and anxiety because they never saw any symptoms of the ocd. Now it is coming out full force and she is finally able to say what is going on. This kid has been on so many drugs, it's pathetic. I finally said, " No More!!!! " One of the doctors told me I'd be charged with neglect if she has bipolar and she hurts herself and I rerused to medicate her. I was furious. I told him, " I'll take my chances " I can't imagine what all these senseless meds have done to her little body. All these unecsessary mood stabilizers the doctor insisted I put her on for her bipolar.She was on Depakote for almost a year, and lost alot of her hair.She is the most beautiful little girl with long blonde curly hair and blue eyes. When she was on that depakote, she looked nothing at all like herself. Her liver enzymes were highly elevated, and she gained nearly 30lbs. I don't even think she has bipolar!!!! I will know for sure soon. Like I said earlier, I live in a small town where these doctors don't know much. I'm probably going to have to drive 5 hours to get her the therapy she needs. I bet there isn't one psychologist around here who knows about CBT therapy. Sigh!!!! I could just cry!!!!!!! I'm so sorry to ramble on and on hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 In a message dated 4/27/2006 7:45:50 AM Pacific Standard Time, whanscom@... writes: I suppose I might have introduced myself before jumping in, and askign questions and for advice. My name is . I'm from Maine. I am the married mother of four children. Boy 22, twin boys 21 and girl 17. Yes, I am insane. And, along the path to insanity, it got fat. Can't blame it on pregnancy anymore since the youngest is 17 can I?I've been dieting and moving for a month. I cross country ski (not this year, no snow) and am walking 30 minutes most days. I'm counting calories to lose. Hi again, ... thanks for telling us a little about you. I am , 38 and single mom of 3 boys: 9, 11 and 13. The two youngest live with their father. I started "my program" of health and well-being last June, basically walking TONS and being more mindful of what I eat. In October, I added Curves to my repertoire (LOL) and have lost about 26 lbs or so and 46 inches.... it's been slow progress, but I would rather take a break here and there for a treat or two so I don't feel totally deprived, ya know.... Keep up the good work~ Kell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 , wow. Great job. I bet all that exercise makes you feels tons better! > > In a message dated 4/27/2006 7:45:50 AM Pacific Standard Time, whanscom@... > writes: > I suppose I might have introduced myself before jumping in, and > askign questions and for advice. My name is . I'm from Maine. > I am the married mother of four children. Boy 22, twin boys 21 and girl > 17. Yes, I am insane. And, along the path to insanity, it got fat. Can't > blame it on pregnancy anymore since the youngest is 17 can I? > > I've been dieting and moving for a month. I cross country ski (not this > year, no snow) and am walking 30 minutes most days. I'm counting > calories to lose. > > > Hi again, ... thanks for telling us a little about you. I am , 38 and single mom of 3 > boys: 9, 11 and 13. The two youngest live with their father. I started " my program " of > health and well-being last June, basically walking TONS and being more mindful of what I > eat. In October, I added Curves to my repertoire (LOL) and have lost about 26 lbs or so > and 46 inches.... it's been slow progress, but I would rather take a break here and there for > a treat or two so I don't feel totally deprived, ya know.... > > Keep up the good work~ > Kell > > > 100-Plus Files page 100-plus/files > 100-Plus Links page 100-plus/links > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Welcome , This is a great group. They are wonderful and so supportive. I hope you are able to get as much out of it as I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Judy, This is the place to ramble! And cry! I have been crying for 2 weeks now, just so heartbreaking to see my sweet girl going through this again. I am surprised that they give Depakote to such a young person, I have several bi-polars in my family and know what side effects those drugs can have, just awful. I don't blame you for steering clear of meds after such an experience. Again, though, I'm trying to figure out why you need to wait for all these evals to start searching for a psychologist. I'm sure there will be a waiting list, by the time you get to see someone, you'll have all your results. Can you start searching now? Sounds like you need help ASAP. Hugs to you as well - nna. NY > > nna, > Thank you for the response. I am actually having two more evaluations. She is going for a study on Monday in MA, than to a neurologist in CT on the 15th. > My dd has actually been diagnosed with OCD once, at age 5, than had several different diagnosis in the meantime. All the doctors kept thinking it was ODD, and bipolar. She also had one more diagnosis of OCD at age 7 when she was hospitalized . The problem is she is extremely inconsistent, and until recently, she has been a master at hiding what is going on with her. She just told me last night about this counting syllables in her head. I could never get anything out of her. The last time she was hospitaized they said, " bipolar and anxiety because they never saw any symptoms of the ocd. > Now it is coming out full force and she is finally able to say what is going on. This kid has been on so many drugs, it's pathetic. I finally said, " No More!!!! " One of the doctors told me I'd be charged with neglect if she has bipolar and she hurts herself and I rerused to medicate her. I was furious. I told him, " I'll take my chances " I can't imagine what all these senseless meds have done to her little body. All these unecsessary mood stabilizers the doctor insisted I put her on for her bipolar.She was on Depakote for almost a year, and lost alot of her hair.She is the most beautiful little girl with long blonde curly hair and blue eyes. When she was on that depakote, she looked nothing at all like herself. Her liver enzymes were highly elevated, and she gained nearly 30lbs. I don't even think she has bipolar!!!! I will know for sure soon. Like I said earlier, I live in a small town where these doctors don't know much. I'm probably going to have to drive 5 hours to get > her the therapy she needs. I bet there isn't one psychologist around here who knows about CBT therapy. > Sigh!!!! I could just cry!!!!!!! > I'm so sorry to ramble on and on > hugs > Judy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 In a message dated 4/28/2006 4:46:05 AM Pacific Standard Time, whanscom@... writes: I bet all that exercise makes you feels tons better! For the most part, I would have to say "YES" , but this week, I have been trying to think of every excuse in the book to NOT do it... fortunately, I have still met my goals this week ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 nna, Maybe your right. I could at least start searching for a therapist now. . I just thought I'd have to wait, seeing she'll need medication also. I know someone mentioned Omega 3 and inositol? I wonder if that would help her until I can get her on the right meds.I've been using Benadryl to get her to sleep, and the pharmacist said that it could cause behavioral problems. hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 nna, Maybe your right. I could at least start searching for a therapist now. . I just thought I'd have to wait, seeing she'll need medication also. I know someone mentioned Omega 3 and inositol? I wonder if that would help her until I can get her on the right meds.I've been using Benadryl to get her to sleep, and the pharmacist said that it could cause behavioral problems. hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 In a message dated 4/28/2006 8:31:54 P.M. Eastern Standard Time, jchabot@... writes: I've been using Benadryl to get her to sleep, and the pharmacist said that it could cause behavioral problems. Judy I've heard of a lot of parents (for a lot of reasons) using things like Benadryl to get their kids to sleep. The problem is that there are other things in that sort of medication that your kids just dont need to take. Have you ever tried Melatonin? I actually take it (at the suggestion of my GYN) to help me go to sleep. It is what the body naturally produces to make you sleepy. It comes over-the-counter in 3mg pills. It just makes you groggy & able to sleep. It's worked quite well for me. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 In a message dated 4/28/2006 1:53:59 P.M. Eastern Standard Time, mdonlon@... writes: Again, though, I'm trying to figure out why you need to wait for all these evals to start searching for a psychologist. I'm sure there will be a waiting list Judy- I agree with nna - start looking now. Once we found a pdoc, it took nearly 2 months to actually get in to see her! Find someone & make your appt now. You can always cancel if need be -- just mark your calendar for 1-2 weeks prior to the appt so you can reconsider your situation at that time. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Welcome . What part of Maine. I am from southern NH. Today it is sunny here. Waiting for some rain. Good day to walk. NH... Mom to Abby Liz 10/94 Anne 7/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Hi, Pam, welcome to the group. I am the grandmother of a 13 year old autistic boy. I have worked with him for 10 years. This is a great group; you will find that they are very helpful. Wow, you have your hands full with 9 children. LOL, Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 "Only 6 kids". I guess it is all in your perspective; that still sounds like a monumental task to me. You must be very special people. I know you will have a lot to share. What are you doing with all the kids this summer? Do you have help? Do your grandchildren live near you? My 17 year old granddaughter moved in with us in April. She will be a senior this coming school year. Between her and her autistic brother I sometimes feel overwhelmed; I can't imagine having four more besides. You are an inspiration. Tell me how you manage. LOL, Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Pat, Thanks for the warm welcome. I do have my hands full, but should explain that only 6 kids still living at home. They are ages 19, almost 19, 11, 9, 6 and 4. The 5 youngest ones are adopted and almost all of them have special needs. They bring many joys as well as challenges to our lives. We are also the grandparents of 3 grandsons ages 11 mos, 2 yrs, and 4. We only have 1 daughter out of all 9 kids. Pam > > Hi, Pam, welcome to the group. I am the grandmother of a 13 year old > autistic boy. I have worked with him for 10 years. This is a great group; you will > find that they are very helpful. Wow, you have your hands full with 9 > children. LOL, Pat K > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Pat, Let me tell you about my boys... Our youngest birthson is Kelby. He is 19 and is graduating Sunday. was adopted about 5 years ago. He is almost 19 and graduates from High School Sunday as well. He has Fetal Alchohol Syndrome, ADHD, MR, CAPD, and Sensory Integration Dysfunction. He is a sweetheart and his smile melts the hearts of anyone who sees him. Randall is 11, almost 12. He is the oldest of 4 brothers we adopted. They were all adopted about 3 years ago. He remembers a lot about his birth family and has come a long way. He is finally starting to accept the changes in his life and trying to only remember the good things in his past. He has ADHD and is Bi-Polar. We have had many challenges with him and still some issues but he is adapting very well. Deonta is almost 10. He is a happy normal 10 year old with lots of energy. DJ is 6 years old. He has been diagnosed with ADHD and we also believe he may have Asperger's. He also has sensory issues. Damarion is almost 5. We have had him since birth except for the 3 times he was returned to his birth parents for 5 weeks each time. He was only 2 when we adopted him. He has Autism, SID, OCD, Athsma, and MR. He may also have CAPD. The summer months are usually filled with sports, but we decided to take a break from sports this year. DJ refused to play T-ball last year because " everyone was watching him " . We have some major difficulties with Damarion in the community. He just can't handle crowds very well. As a family, we love to camp. All the boys like to fish as well so this year we have plans to camp and fish more than we got to last year. In fact, the boys got me a huge cabin tent for Mother's Day. I get the hint! Damarion gets therapies at school during school months, but in the summer he has OT once a week about 30 minutes from where we live and ST in the same town through Easter Seals. We did have plans to go to Indiana Beach this year for vacation, but we may have to cancell due to financial difficulties. The boys think it would be okay if we " do more camping " . We often go to the lake just outside of town. Very seldom do we get to go out as a family unless it is camping, to the zoo, or to the parks. DJ and Damarion don't do well in stores, resturants, etc. We have to " prepare " them for every outing, even walks can be challenging. Damarion thinks he has to push a stroller everywhere he goes and if he sees a sign, any sign, he has to stop, touch it, chant " 1-2-3 shake " then shake the sign pole. A half hour walk can take an hour or longer. I can go on forever but should stop now before I wear out my welcome. LOL! Oh, Yes...2 of my grandsons live just 4 blocks from me and I see them every day. My 2 year old grandson lives in Okinawa as my son is in the Air Force. I have only seen him twice and miss him so much. It will be another year before I see him again. I am so glad there are digital cameras as I receive pictures of him almost weekly. I think grandchildren are the most precious gifts. My husband and our families are our support. My older son (28) and my daughter (24) are great at helping when we need a break. My daughter lives just 4 blocks so she is around often. She adores her new little brothers and is great with them. Pam > > " Only 6 kids " . I guess it is all in your perspective; that still sounds like > a monumental task to me. You must be very special people. I know you will > have a lot to share. What are you doing with all the kids this summer? Do you > have help? Do your grandchildren live near you? My 17 year old > granddaughter moved in with us in April. She will be a senior this coming school year. > Between her and her autistic brother I sometimes feel overwhelmed; I can't > imagine having four more besides. You are an inspiration. Tell me how you manage. > LOL, Pat K > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Thanks for telling me about your family. You and your husband sound like very loving people. What motivated you to take on such awesome responsibilities? Do you get any kind of financial aid from the government? It is great that you have the support of your family. How wonderful that your family likes camping. I can't think of anything that would be better or more enjoyable for kids. When we had our four children at home we use to go camping with several other families. It is a special memory. LOL, Pat k Quote Link to comment Share on other sites More sharing options...
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