New here

[Guest guest]

We began as just foster parents. We met Sam when some friends of

ours were his foster parents. After meeting him, learning of his

past and learning that because of his disabilities and age he would

probably not get adopted (he had been in the system for 7 years,

bouncing around from foster home to foster home), we decided we

could offer him a loving family that he could have forever. He was

the only one we ever thought we would adopt however after fostering

the other boys for so long, then their parents losing their rights

to them, We couldn't stand the thought of them being adopted by

someone else or being split up. The boys do have a biological

sister who had already been in another home, so we chose not to take

her as she would have lost the only " mother " she ever knew. They

see each other often.

We do get an " adoption subsidy " , and it helps but having a medical

card for them helps so much more as they are on so many medicines,

etc.

Pam

>

> Thanks for telling me about your family. You and your husband

sound like

> very loving people. What motivated you to take on such awesome

responsibilities?

> Do you get any kind of financial aid from the government? It is

great that

> you have the support of your family.

>

> How wonderful that your family likes camping. I can't think of

anything that

> would be better or more enjoyable for kids. When we had our four

children at

> home we use to go camping with several other families. It is a

special

> memory.

>

> LOL, Pat k

>

[Guest guest]

Pam, so you began as foster parents. Well, I guess you had no idea where that rode would lead you. I really admire you. What a world this would be if more people were like you and your husband. How did you get the medical card? LOL, Pat K

[Guest guest]

Thank you for posting. I am one of the great undiagnosed here and lupus has been one of the many possible diagnoses thrown my way. I looked up the website, missed the stories the first time, and then found a group of them. To make it easier to find yours, can you tell me the title or the name you are writing under? I am having trouble writing these last few days - I lot of gibberish comes out of my computer - and as they think I am throwing mini-strokes, I may have recently had one in the last few days. That was about the same time that my 5 year old daughter who had been acting bizarelly for the last 6 weeks and compleletly lost it - pushing and throwing me into the corner or my desk, leaving a 9 inch cut from shoulder down my back. The pediatrician is working to find someone to assess her but she is now on the drugs they give mainly to sychzophreniacs and some bipolar people in the high manic phase of their cycle. I'd like to read your

story. I've spent the last 3 years seeing 22 specialists for myself and have gotten very little farther ahead. I can't imagine using the same efforts and going thru the same efforts to find the right thing to do with my baby. I just cry a lot these days. lilyrosesharongailvina <GSparrow69@...> wrote: HiI am new here.Lupus has been a struggle.I think I am finally entering a good place with coming to terms with it all.I always thought if I ever got sick, not that I ever planned on it, but I just thought

or pictured I'd be strong and brave and all, but really I am sometimes ashamed to know I really did not deal or cope well at all, I guess I proved myself weak. Like you hear those stories on TV where people say and she never complained, or griped, and she came to live life to the fullest, and have a smile on always despite it all, yada yada....that wasn't me, I mean no one could say that and it be real...sometimes I wonder if when I hear others say it, is it real...I mean it's been tough...I am no hero...I have my full story I would love to share with people to get to know me more and what I am about at http://walk.lupusresearch.org/site/TR?px=1... & fr_id=1452It has been hard, sometimes I feel so lonely, and I feel like I lack support, and I really could use more help, emotionally, but also like actual help like with

household stuff and food and car rides, and every day stuff, I am always so tired and in pain and weak and dragging, nothing is simple...and people don't understand Lupus...It used to really bother me, but then I spoke with a therapist about it and she kind of alluded to the concept that some people just are not capable of getting it or dealing with you having it or being comfortable with it or knowing what to say or how to act, etc., and it is their problem and not so much me/not so much personal, and so I try not to put that much importance on it, try to move past it, and I have to a decent extent, but it is still hard, cause I feel like if they don't understand, they don't know "me," and it overwhelms me sometimes to think how few people know "me"....I have lost a lot of friends...I get stares sometimes when I park in handicap parking, like just today this woman looked like she was ready to have this big

altercation with me. I tried to be calm, and I even rolled down my window, cause I was like this is my chance to educate someone, but she didn't have the balls in the end I guess to confront me head on, but you could tell she was really fuming over me parking there cause she thought I had no right...I really try hard to be proactive and spread awareness and such...I wish Lupus wasn't overlooked so much and was more supported, cause that way patients wouldn't have to struggle so hard, and that way a cure might be found sooner...

[Guest guest]

I'm sorry to hear all of this. Where your daughter is concerned, have you looked into food as a possible culprit? sueSharon Greene <lilyrosesharon@...> wrote: Thank you for posting. I am one of the great undiagnosed here and lupus has been one of the many possible diagnoses thrown my way. I looked up the website, missed the stories the first time, and then found a group of them. To make it easier to find yours, can you tell me the title or the name you are writing under? I am having trouble writing these last few

days - I lot of gibberish comes out of my computer - and as they think I am throwing mini-strokes, I may have recently had one in the last few days. That was about the same time that my 5 year old daughter who had been acting bizarelly for the last 6 weeks and compleletly lost it - pushing and throwing me into the corner or my desk, leaving a 9 inch cut from shoulder down my back. The pediatrician is working to find someone to assess her but she is now on the drugs they give mainly to sychzophreniacs and some bipolar people in the high manic phase of their cycle. I'd like to read your story. I've spent the last 3 years seeing 22 specialists for myself and have gotten very little farther ahead. I can't imagine using the same efforts and going thru the same efforts to find the right thing to do with my baby. I just cry a lot these days. lilyrosesharongailvina <GSparrow69@...>

wrote: HiI am new here.Lupus has been a struggle.I think I am finally entering a good place with coming to terms with it all.I always thought if I ever got sick, not that I ever planned on it, but I just thought or pictured I'd be strong and brave and all, but really I am sometimes ashamed to know I really did not deal or cope well at all, I guess I proved myself weak. Like you hear those stories on TV where people say and she never complained, or griped, and she came to live life to the fullest, and have a smile on always despite it all, yada yada....that wasn't me, I mean no one could say that and it be real...sometimes I wonder if when I hear others say it, is it real...I mean it's been tough...I am no hero...I have my full story I would love to share with people to get to know me more and what I am about at http://walk.lupusresearch.org/site/TR?px=1... & fr_id=1452It has been hard, sometimes I feel so lonely, and I feel like I lack support, and I really could use more help, emotionally, but also like actual help like with household stuff and food and car rides, and every day stuff, I am always so tired and in pain and weak and dragging, nothing is simple...and people don't understand Lupus...It used to really bother me, but then I spoke with a therapist about it and she kind of alluded to the concept that some people just are not capable of getting it or dealing with you having it or being comfortable with it or knowing what to say or how to act, etc., and it is their problem and not so much me/not so much personal, and so I try not to put that much importance on it, try to move past it, and I have to a decent extent, but it is still

hard, cause I feel like if they don't understand, they don't know "me," and it overwhelms me sometimes to think how few people know "me"....I have lost a lot of friends...I get stares sometimes when I park in handicap parking, like just today this woman looked like she was ready to have this big altercation with me. I tried to be calm, and I even rolled down my window, cause I was like this is my chance to educate someone, but she didn't have the balls in the end I guess to confront me head on, but you could tell she was really fuming over me parking there cause she thought I had no right...I really try hard to be proactive and spread awareness and such...I wish Lupus wasn't overlooked so much and was more supported, cause that way patients wouldn't have to struggle so hard, and that way a cure might be found sooner... For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com

[Guest guest]

Hello Sharon. I have the no sleep problem at times with my son, Avery, 9, he was diagnosed at 3. He does not take clonidine. He is on adderall for his adhd. I think this is why he does not sleep it's a side effect. Is the clonidine supposed to make them sleep?

Hope StudentPineville, Louisianamsyogi@...

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi Sharon,

Welcome to our group. Yes, you will find lots of folks here who are dealing with the problems you are facing. That is a tough one, when the child will not sleep, I have been through that, and know many others have also. With me, I mostly waited each problem out, and it passed. Yes, I did try all sorts of things, but I am not really sure anything worked that we tried, anything specific that I can think of right now. Just hanging in there day to day with faith in God, that He is somehow in charge of it all, and He will help!

In my case He mostly changed me, gave me courage and strength to deal with it all, and He did take away my son's violent behavior at last, I think he had it about 8 years starting when he was about 14. Now they have some good meds that will help, but back then the choices were not as good, and with my son, some of them actually made him worse.

Now that he is older, is 41 now, he mostly sits in a chair all day. He has had seizures all his life and they have done a number on his brain cells, so now they have pinned the dx of Cerebral Palsy on him, was retarded, autistic, seizures. So that is tough he cannot get up on his own anymore, or swallow. He is on a food tube.

But the good side is he does not jump up and destroy my house anymore either, or get so angry and attack me either. He used to do those things on a daily basis. And he is very alert and responsive, doesn't speak at all anymore, but can say a lot with his facial expressions and eyes, gives looks of love and support, and encouragement, and pain when he is in it. I don't like those ones because then I have to figure out what is wrong with him.

And it can be something really bad, like pneumonia, yet you do not know from anything except the pain on his face! I was just telling my mom on the phone, she is 88 and wants me to take her to the store today, that I could not possibly live if I did not have the Joy of the Lord, is why I go to church, to worship Jesus, and He gives it to me. No, I do not feel like it, I am tired, but I know my flesh will yield to the Spirit, and I will be fine.

Been fine for so long, it is a sure fire solution to these problems. Plus I take care of three grandchildren every day too. Sierra is 9, , 6, and Lucas is 2 next month. We have lots of fun.

Well I am almost late, but the church is close by, been going there for over 30 years, New Life Center, Assembly of God, talk to you sooooooon. Keep writing, it helps a lot to know you are not alone, and YOU ARE NOT!

Much love to you all today!

Carolyn in sunny, nice, low humidity Oregon, not all muggy like you poor folks down south, just teasing you, haha.

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi Hope, 's doctor put her on the clonidine to help her go to sleep, it is a blood pressure medication that slows down the heart rate and makes her sleepy, I hate giving it to her because she had some heart problems at birth but her doc assured me that she would have no long term problems taking this and so far she seems to do well with it. We tried benadryl when she was small and eventually it stopped working. We tried adderal and for some reason it made her very agitated. Our problem is that she is not always out of control so she doesnt need a daily medication we just need something temporary for when she does get out of control but her doctors say there isnt anything she can take on a temporary basis,Maybe someone in the group knows of something we can try.For now we just get through it somehow. SharonHope <msyogi@...> wrote: Hello Sharon. I have the no sleep problem at times with my son, Avery, 9, he was diagnosed at 3. He does not take clonidine. He is on adderall for his adhd. I think this is why he does not sleep it's a side effect. Is the clonidine supposed to make them sleep? Hope StudentPineville, Louisianamsyogi@... new here Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep

about two hours and then we are up all night. Music Unlimited - Access over 1 million songs. Try it free.

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

Hi Sharon--nice to have you here!

I have 3 children, my youngest Connor is autistic..he's almost 4, so we have a whole lot ahead of us. You mentioned Clonidine......does your daughter have any kind of nightmares, night tremors, tantrum-like behavior in the middle of the night? We have been using Clonidine for Connor since October 2005 I think....and overall, I'm just not impressed with it. It does put him to sleep, but doesn't make it last. And this last week, he has been waking up screaming and running and jumping..... He wants me up out of bed, but doesn't want me to hold him. It's horrible, and kept us out of church today. About 9:30, it was like a switched was turned.....and he became our Connor, who brings his cup nicely to me, wants me to open a box of blocks, smiles, eats breakfast.

Anyway, if you have any experiences, will you please share them? Thanks, and again... Welcome!

Trish in IL

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

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[Guest guest]

My 9yr old daughter is high functioning autistic & we

changed her meds for right before bed too. She was

having terrible insomnia & it's really helped. She

takes trileptal & celexa.

E.

Colorado

--- Jen <diegowench@...> wrote:

> That sounds familiar. My name is , I have

> four kids and am a military wife. My son is 17 -

> adhd/ld, Oldest daughter is 14 w/AS/Mood

> Disorder/PTSD, next daughter 9 who is the incredible

> non sleeping child, and the littles is HFA/adhd - I

> haven't had a full night's sleep in over 9 years!

> Hope my youngest who is autistic, I switched her med

> schedule around so that she gets all her meds right

> before bedtime, along with 25 mg of Benadryl. The

> 9yo simply doesn't sleep - even if she goes to bed

> at the right time, she is up and down until 2 or 3.

> That usually wakes up the 5 year old who completely

> melts down.

>

>

" Insanity runs in my family. It practically gallops. "

Cary Grant

__________________________________________________

[Guest guest]

Our doctor gave us a 'chill pill' for when we have to go to

the dr or something. My one son doesn't *do* dr visits and

has a meltdown(he's 17) just about every time we have to go

to the dr or dentist. It is a melt in your mouth orange

flavored pill that he will take on the way to the drs. It is

5 mg called niravam. It relaxes him and sometimes he will

go to sleep in the car on the way. Just a thought.... Toni

> Hi Hope, 's doctor put her on the clonidine to help

> her go to sleep, it is a blood pressure medication that

> slows down the heart rate and makes her sleepy, I hate

> giving it to her because she had some heart problems at

> birth but her doc assured me that she would have no long

> term problems taking this and so far she seems to do well

> with it. We tried benadryl when she was small and

> eventually it stopped working. We tried adderal and for

> some reason it made her very agitated. Our problem is that

> she is not always out of control so she doesnt need a

> daily medication we just need something temporary for when

> she does get out of control but her doctors say there isnt

> anything she can take on a temporary basis,Maybe someone

> in the group knows of something we can try.For now we just

> get through it somehow. Sharon

>

> Hope <msyogi@...> wrote: Hello

> Sharon. I have the no sleep problem at times with my son,

> Avery, 9, he was diagnosed at 3. He does not take

> clonidine. He is on adderall for his adhd. I think this is

> why he does not sleep it's a side effect. Is the clonidine

> supposed to make them sleep?

> Hope

> Student

> Pineville, Louisiana

> msyogi@...

> new here

>

>

> Hello, My name is Sharon I am in South Carolina and I

> have two children a daughter, eleven and my son is eight.

> My daughter was diagnosed autistic when she was two. She

> is non verbal and living with her is like living with a

> two year old and needs a lot of supervision. I am really

> looking forward to communicating with parents who deal

> with some of the same issues that I deal with each day.

> Right now our biggest problem is that she doesnt want to

> sleep. She takes clonindine and will sleep about two hours

> and then we are up all night.

> ---------------------------------

> Music Unlimited - Access over 1 million songs.

> Try it free.

>

>

>

>

>

>

> ---------------------------------

> Sneak preview the all-new .com. It's not radically

> different. Just radically better.

I, not events, have the power to make me happy or unhappy

today. I can CHOOSE which it shall be. Groucho Marx

_________________________________________

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[Guest guest]

Trish, Connor is at the exact age for

night terrors which sounds like what is happening. This would likely take

place with or without the Clonidinen but some other options for bed time are

Tenex and Melatonin. My son used to take Tenex but he’s been taking

Melatonin for about 3 years now.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Trish Hammond

Sent: Sunday, July 02, 2006 6:01

PM

Autism and Aspergers Treatment

Subject: Re:

new here

Hi Sharon--nice to have you here!

I have 3 children, my youngest Connor is autistic..he's

almost 4, so we have a whole lot ahead of us. You mentioned

Clonidine......does your daughter have any kind of nightmares, night tremors, tantrum-like

behavior in the middle of the night? We have been using Clonidine for

Connor since October 2005 I think....and overall, I'm just not impressed with

it. It does put him to sleep, but doesn't make it last. And this

last week, he has been waking up screaming and running and jumping.....

He wants me up out of bed, but doesn't want me to hold him. It's

horrible, and kept us out of church today. About 9:30, it was like a

switched was turned.....and he became our Connor, who brings his cup nicely

to me, wants me to open a box of blocks, smiles, eats breakfast.

Anyway, if you have any experiences, will you please share

them? Thanks, and again... Welcome!

Trish in IL

new here

Hello, My

name is Sharon I am in South Carolina and I have two children

a daughter, eleven and my son is eight. My daughter was diagnosed

autistic when she was two. She is non verbal and living with her is like living

with a two year old and needs a lot of supervision. I am really looking

forward to communicating with parents who deal with some of the same issues

that I deal with each day. Right now our biggest problem is that she doesnt

want to sleep. She takes clonindine and will sleep about two hours and then we

are up all night.

Music Unlimited - Access over 1 million songs. Try

it free.

size=2 width="100%" align=center>

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Checked by AVG Free Edition.

Version: 7.1.394 / Virus Database: 268.9.8/380 - Release Date: 6/30/2006

[Guest guest]

Charlotte,

Thanks Connor never had night terrors before the clonidine.....but you could be right. However, last night I decided to not give him the clonidine and instead gave him melatonin. We had used melatonin in the past, but it hadn't been effective. Last night, It took him a little longer to get to sleep, but sleep he did! He slept about 7 hrs before waking, and then just quietly got up in bed with me...smiled...and wrapped my arms around him He went back to sleep as well.

So, I'm not sure what to think! But I was thankful for the snuggles!

Hugs,

Trish

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

size=2 width="100%" align=center>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.8/380 - Release Date: 6/30/2006

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.8/380 - Release Date: 6/30/2006

[Guest guest]

what are the trileptal and the celxa used for? I havent heard of either one orf thosemelissa e <lissa252000@...> wrote: My 9yr old daughter is high functioning autistic & wechanged her meds for right before bed too. She washaving terrible insomnia & it's really helped. Shetakes trileptal & celexa. E.Colorado--- Jen <diegowench > wrote:> That sounds familiar. My name is , I have> four kids and am a military

wife. My son is 17 -> adhd/ld, Oldest daughter is 14 w/AS/Mood> Disorder/PTSD, next daughter 9 who is the incredible> non sleeping child, and the littles is HFA/adhd - I> haven't had a full night's sleep in over 9 years! > Hope my youngest who is autistic, I switched her med> schedule around so that she gets all her meds right> before bedtime, along with 25 mg of Benadryl. The> 9yo simply doesn't sleep - even if she goes to bed> at the right time, she is up and down until 2 or 3. > That usually wakes up the 5 year old who completely> melts down.> > "Insanity runs in my family. It practically gallops."Cary Grant__________________________________________________

[Guest guest]

This probably sound old fashioned, but milk tends to calm down a child, or even an adult. They used to give warm milk at bedtime, I think it is the calcium in it that has the calming affect, so why wouldn't a calcium drink work? They put calcium in juice nowadays, or get a powder and mix your own. Wouldn't hurt anyway. Just a thought.

Carolyn

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

I wish that Hope would drink milk! She stopped drinking milk at around 9-10 monthsCarolyn <charper777@...> wrote: This probably sound old fashioned, but milk tends to calm down a child, or even an adult. They used to give warm milk at bedtime, I think it is the calcium in it that has the calming affect, so why wouldn't a calcium drink work? They put calcium in juice nowadays, or get a powder and mix your own. Wouldn't hurt anyway. Just a thought. Carolyn new here Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal

and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night. Music Unlimited - Access over 1 million songs. Try it free. Sneak preview the all-new .com. It's not radically different. Just radically better. If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

Music Unlimited - Access over 1 million songs.

Try it free.

[Guest guest]

sharon boone wrote:

>

>

> Hello, My name is Sharon I am in South Carolina and I have two

> children a daughter, eleven and my son is eight. My daughter was

> diagnosed autistic when she was two. She is non verbal and living

> with her is like living with a two year old and needs a lot of

> supervision. I am really looking forward to communicating with

> parents who deal with some of the same issues that I deal with each

> day. Right now our biggest problem is that she doesnt want to sleep.

> She takes clonindine and will sleep about two hours and then we are

> up all night.

Hi, Sharon! I'm Annie in New Mexico. Although my guy is grown, I do

remember what it was like when he was little and non-verbal. We got him

into a developmental pre-school program, which also did a dev.

kindergarten and a dev. first grade. He went to all three, starting

when he was 2. He didn't speak till 6, and he still does a lot of

sticking to one subject (usually Pokemon or television as media). He's 26.

There are quite a few adult autistics online who are non-verbal in The

Real World , so not speaking is not the end of the world. There are

ways to communicate with her though. Some people use PECS, which wasn't

around when Louie was small; we used a picture board with photos of

family, pictures from magazines, and photos of the rooms in our

apartment. He really started to mature a little more quickly once he

could communicate with us; at school, he learned American Sign Language,

which helped too. So if you can get your daughter some help in

communicating her wants/needs, it will go a long way towards getting

peace in your home.

Also, our kids tend to do best when they have a good schedule, so that

they know what they're expected to do, in what order, and how long these

things will last. As an example, when Louie was in regular school (as

opposed to developmental programs), we made him a schedule for his

morning routine. It broke it down into steps: Wash your face, wash your

hands, brush your hair, brush your teeth, have a super day. It made

the " morning get ready for school battle " go away! And when he moved,

he took it with to his new place and hung it on the bathroom wall there.

Things like that ground our folks and give them a handle on what is,

to them, a very chaotic world.

About not sleeping. Some of our folks are sensitive to the phenols in

apples (and for some that extends to pears as well). And when they have

apples or products containing apples, it disturbs their sleep patterns.

It especially disturbs deep REM sleep too. It surely did for our son!

We found out about this when he was about 17, and tried taking apples

and apple-based things out of his diet. You'd be amazed at where you

can find apple juice and apple sauce as ingredients! You learn to read

a lot of boxes and bottles! Anyway, within about a week (give or take)

he began sleeping through the night for a full 8 hours every night! For

the first time in his life! Which meant, of course, that we got some

rest at night for the first time in years too (Louie was a nighttime

traveler). So you might want to try that. It could work for you too.

Hope some of this helps you! And welcome!

Annie, who loves ya annie@...

Mom to Kris, 37 and adult dx bipolar, working in Seattle, and Louie, 26

and high functioning autistic/Aspergers Syndrome autistic, working two

jobs and living in assisted living (this weekend he and his roomies are

in the condo in Taos)

--

“I don't like spinach, and I'm glad I don't, because if I liked it I'd

eat it, and I just hate it.” -- Clarence Darrow

[Guest guest]

Well, Actually it is the amino acid tryptophan (the same kind as in turkey) that seems to have a slightly . For many typical kids this is a viable suggestion, BUT many on the spectrum are on a GFCF (gluten-free casein-free) diet. Casien is found in dairy products...not conducive for this particular remedy. Good Luck... keep up the suggestion sharing JCarolyn <charper777@...> wrote: This probably sound old fashioned, but milk tends to calm down a child, or even an adult. They used to give warm milk at bedtime, I think it is the calcium in it that has the calming affect, so why wouldn't a calcium drink work? They put calcium in juice nowadays, or get a powder and mix your own. Wouldn't hurt anyway. Just a thought. Carolyn new here Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night. Music Unlimited - Access over 1 million songs. Try it free. Sneak preview the all-new .com. It's not radically different. Just radically better.

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[Guest guest]

just my 2 cents worth=i think its cuz the milk is WARM that helps them calm down for bed cuz for me coffee......doesnt wake me up it makes me sleepy-same with hot cocoa & i believe its due to it being warm......kathyCarolyn <charper777@...> wrote: This probably sound old fashioned, but milk tends to calm down a child, or even an adult. They used to give warm milk at bedtime, I think it is the calcium in it that has the calming affect, so why wouldn't a calcium drink work? They put calcium in

juice nowadays, or get a powder and mix your own. Wouldn't hurt anyway. Just a thought. Carolyn new here Hello, My name is Sharon I am in South Carolina and I have two children a

daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night. Music Unlimited - Access over 1 million songs. Try it free. Sneak preview the all-new .com. It's not radically different. Just radically

better. __________________________________________________

[Guest guest]

Trish, since this is the age that night

terrors typically start he likely wouldn’t have had them before the

Clonidine being almost a year since he started it.   Then again, once someone

is on a certain drug for a prolonged amount of time they can start reacting to

it differently.  At one point my son was on Prozac and at about 10 months into

taking it he started getting weepy all the time so I took him off.

I’m glad to hear the melatonin

worked, it has been a blessing in our house!  My son is almost 13 and 140lbs

and only has to take ½ mg before bed now.   The Tenex is similar to clonidine

but a little weaker if you need another pharmaceutical alternative.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Trish Hammond

Sent: Monday, July 03, 2006 9:11

AM

Autism and Aspergers Treatment

Subject: Re:

new here

Charlotte,

Thanks Connor never had night terrors before the

clonidine.....but you could be right. However, last night I decided to

not give him the clonidine and instead gave him melatonin. We had

used melatonin in the past, but it hadn't been effective. Last night, It

took him a little longer to get to sleep, but sleep he did! He slept

about 7 hrs before waking, and then just quietly got up in bed with

me...smiled...and wrapped my arms around him He went back to sleep as

well.

So, I'm not sure what to think! But I was thankful for

the snuggles!

Hugs,

Trish

new here

Hello, My

name is Sharon I am in South Carolina and

I have two children a daughter, eleven and my son is eight.

My daughter was diagnosed autistic when she was two. She is non verbal and

living with her is like living with a two year old and needs a lot of

supervision. I am really looking forward to communicating with parents who

deal with some of the same issues that I deal with each day. Right now our

biggest problem is that she doesnt want to sleep. She takes clonindine and will

sleep about two hours and then we are up all night.

Music

Unlimited - Access over 1 million songs. Try

it free.

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[Guest guest]

Charlotte, It makes me completely hyperactive. I can't take it at all - I literally can't drive if I have taken it. Guess that makes me NT? LOL - But I take pain medication on a daily basis due to the Fibromyalgia and the CFS and I can't take it at night because I get wired for sound lol. JenCharlotte <scottdesigns@...> wrote: It’s funny how that works. It knocks my aspie out cold but makes my NT daughter CRAZY HYPER!! Charlotte From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of JenSent: Sunday, July 02, 2006 10:52 PMAutism and Aspergers Treatment Subject: RE: new here My kids drink gatorade and water constantly. Benadryl is the ONLY thing short of something to knock them out haha that has worked. Since especially Sara already has allergies, this is not bad at all for her.

BTW I have tried all of the homeopathic options, and unfortunately, generally they interact with the meds and cause extreme agitation. So, I try to stick with the tried and true.Gretchen Archinal <garchinal@...> wrote: We use Sleep Well Healthy Drops. It contains melatonin, valerian root and inositol. The combination works very well with my three kids – one on Ritalin and the other on Concerta. It costs about $15 a bottle and lasts my three about a month. They take it about ½ before bed time. It’s made a HUGH difference at my house. They don’t wake

up with any side effects either. I’ve tried just melatonin and just valerian and they don’t seem to work as well by themselves. Hope this helps. Gretchen Archinal From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of CarolynSent: Sunday, July 02, 2006 6:14 PMAutism and Aspergers Treatment Subject: Re: new here Hello , Yes, they say Benadryl is good for sleep. I take two at night sometimes, and don't have any trouble sleeping when I do. I take a Claritin every morning, but sometimes my allergies get so bad I have to

have the Benadryl at night. But they will dry out a person's membranes inside their nose and sinuses, so I don't know if they would be good for kids to take too often, and they will need a lot of water the next day. They need lots of water no matter what, and especially when on medication, or when it is hot weather. But be careful, too much water is bad, we gave my son a real serious problem with too much water, it washed away too many electrolytes. Give the kids Gatorade, or something with them added. Always something to worry about huh! Carolyn Re: new here That sounds familiar. My name is , I have four kids and am a military wife. My son is 17 - adhd/ld, Oldest daughter is 14 w/AS/Mood Disorder/PTSD, next daughter 9 who is the incredible non sleeping child, and the littles is HFA/adhd

- I haven't had a full night's sleep in over 9 years! Hope my youngest who is autistic, I switched her med schedule around so that she gets all her meds right before bedtime, along with 25 mg of Benadryl. The 9yo simply doesn't sleep - even if she goes to bed at the right time, she is up and down until 2 or 3. That usually wakes up the 5 year old who completely melts down. sharon boone <boonesnuthouse@...> wrote: Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night. Music Unlimited - Access over 1 million songs. Try it free. If there are no dogs in Heaven,

then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings Do you

?Next-gen email? Have it all with the all-new Beta. If there are no dogs in Heaven, then when I die I want to go where they

wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings How low will we go? Check out Messenger’s low PC-to-Phone call rates. If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

Trileptal is a mood stabilizer & Celexa is an

antidepressant.

E.

Colorado

--- sharon boone <boonesnuthouse@...> wrote:

> what are the trileptal and the celxa used for? I

> havent heard of either one orf those

>

> melissa e <lissa252000@...> wrote: My

> 9yr old daughter is high functioning autistic & we

> changed her meds for right before bed too. She was

> having terrible insomnia & it's really helped. She

> takes trileptal & celexa.

> E.

> Colorado

>

> --- Jen <diegowench@...> wrote:

>

> > That sounds familiar. My name is , I have

> > four kids and am a military wife. My son is 17 -

> > adhd/ld, Oldest daughter is 14 w/AS/Mood

> > Disorder/PTSD, next daughter 9 who is the

> incredible

> > non sleeping child, and the littles is HFA/adhd -

> I

> > haven't had a full night's sleep in over 9 years!

> > Hope my youngest who is autistic, I switched her

> med

> > schedule around so that she gets all her meds

> right

> > before bedtime, along with 25 mg of Benadryl. The

> > 9yo simply doesn't sleep - even if she goes to bed

> > at the right time, she is up and down until 2 or

> 3.

> > That usually wakes up the 5 year old who

> completely

> > melts down.

> >

> >

>

> " Insanity runs in my family. It practically

> gallops. "

> Cary Grant

>

> __________________________________________________

>

[Guest guest]

Trileptal is a mood stabilizer and celexa is an antidepressantsharon boone <boonesnuthouse@...> wrote: what are the trileptal and the celxa used for? I havent heard of either one orf thosemelissa e <lissa252000@...> wrote: My 9yr old daughter is high functioning autistic & wechanged her meds for right before bed too. She washaving terrible insomnia & it's really helped.

Shetakes trileptal & celexa. E.Colorado--- Jen <diegowench > wrote:> That sounds familiar. My name is , I have> four kids and am a military wife. My son is 17 -> adhd/ld, Oldest daughter is 14 w/AS/Mood> Disorder/PTSD, next daughter 9 who is the incredible> non sleeping child, and the littles is HFA/adhd - I> haven't had a full night's sleep in over 9 years! > Hope my youngest who is autistic, I switched her med> schedule around so that she gets all her meds right> before bedtime, along with 25 mg of Benadryl. The> 9yo simply doesn't sleep - even if she goes to bed> at the right time, she is up and down until 2 or 3. > That usually wakes up the 5 year old who completely> melts down.> > "Insanity runs in my family. It practically gallops."Cary

Grant__________________________________________________

[Guest guest]

Trileptal is actually an anti-seizure

medication for children with epilepsy, they have recently discovered that it

has mood stabilization benefits for some children. http://www.trileptal.com/index.jsp

My nephew was on it for his epilepsy but

his sister was recently put on it for her bi-polar.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of melissa e

Sent: Tuesday, July 04, 2006 12:58

PM

Autism and Aspergers Treatment

Subject: Re:

new here

Trileptal is a mood stabilizer & Celexa is an

antidepressant.

E.

Colorado

--- sharon

boone <boonesnuthouse >

wrote:

> what are the trileptal and the celxa used for? I

> havent heard of either one orf those

>

> melissa e <lissa252000 >

wrote: My

> 9yr old daughter is high functioning autistic & we

> changed her meds for right before bed too. She was

> having terrible insomnia & it's really helped. She

> takes trileptal & celexa.

> E.

> Colorado

>

> --- Jen <diegowench >

wrote:

>

> > That sounds familiar. My name is , I have

> > four kids and am a military wife. My son is 17 -

> > adhd/ld, Oldest daughter is 14 w/AS/Mood

> > Disorder/PTSD, next daughter 9 who is the

> incredible

> > non sleeping child, and the littles is HFA/adhd -

> I

> > haven't had a full night's sleep in over 9 years!

> > Hope my youngest who is autistic, I switched her

> med

> > schedule around so that she gets all her meds

> right

> > before bedtime, along with 25 mg of Benadryl. The

> > 9yo simply doesn't sleep - even if she goes to bed

> > at the right time, she is up and down until 2 or

> 3.

> > That usually wakes up the 5 year old who

> completely

> > melts down.

> >

> >

>

> " Insanity runs in my family. It practically

> gallops. "

> Cary Grant

>

> __________________________________________________

>

[Guest guest]

Hmm, well I notice orange juice has calcium added to it too now, and there are foods high in it, can't think of them right now, oh yes cheese, all kinds of cheese, ice cream, but then you got sugar, could try low sugar kinds, yogurt, what else, leafy green vegetables I think, and even a potato has some.

Carolyn

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

Sneak preview the all-new .com. It's not radically different. Just radically better.

If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Warm milk is good, it no doubt is very soothing, as is warm coco. Babies love warm milk, and go right to sleep. And too I think it is the calcium that has a calming affect on the brain, from what I understand. Oh coffee makes you sleepy huh, let me see, isn't this what they put in Ritalin, a stimulant that makes the child settle down? Not sure if it is caffeine. None of my kids ever were on Ritalin.

But I do remember different drugs my son, the autistic one, has had that were supposed to calm him down. Once in the hospital they gave him something and he was climbing the walls after that, it was terrible!

Carolyn

new here

Hello, My name is Sharon I am in South Carolina and I have two children a daughter, eleven and my son is eight. My daughter was diagnosed autistic when she was two. She is non verbal and living with her is like living with a two year old and needs a lot of supervision. I am really looking forward to communicating with parents who deal with some of the same issues that I deal with each day. Right now our biggest problem is that she doesnt want to sleep. She takes clonindine and will sleep about two hours and then we are up all night.

Music Unlimited - Access over 1 million songs. Try it free.

Sneak preview the all-new .com. It's not radically different. Just radically better.

__________________________________________________