New here

November 4, 2006

Hi Eileen,

Thanks for your reply. Yes I'm from Ireland.

My son washes his hands all the time, its not constant, but whenever he

touches anything he has to wash his hands (he has a really sore hand from

all the washing.). He's worried about germs and he always thinks everything

is his fault, and now he has these voices.

We are waiting for an appointment for him, which I'm hoping will help. I

just don't know how to reassure him as I've never had any dealings with this

before.

Thanks again,

Val

Re: new here

> Welcome - this is a great place for help - I don't have any experience

> with voices and OCD - more of just a need to do the rituals and yes

> they are being " told " to do it - but my daughter never mentioned

> actual voices - hope some others will chime in soon - good luck - does

> he get stuck washing and doing other things??

> Eileen

>

> are you from Ireland?

>

> Quoting Val <magnumlady@...>:

>

> > Hello,

> >

> > I'm new here.

> > I think my son has ocd, he keeps telling me that he is hearing voice in

his

> > head. As he says its like having a good side and a bad side.

> > He is also very anxious, washes his hands all the time as well.

> > I'm just not sure what to say to him as regards the voices.

> >

> > Any advice would be great.

> > Val

> >

>

> Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

> Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D.,

( http://www.lighthouse-press.com ). Our list moderators are

Birkhan, Castle, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

>

November 4, 2006

Hi Patty,

Thanks for your reply.

My son is hearing the voices in his head. Its things like double check this

or if you don't you will die. Very distressing for him.

He also says the voice swears.

I'm waiting for him to see a clinical psychologist which I'm hoping will

help.

I hope you get help for your son.

Thanks again,

Val

Re: new here

> My son also says he hears voices in his head. As a matter of fact, the

> psychiatrist always asks if the voices are just in his head or whether

> he's hearing voices from outside such as from the tv, etc. He says

> they are just in his head. I think it's the ocd thoughts telling him he

> must do certain rituals or something bad will happen. We're still

> working on getting the right medicine so that he can be receptive to

> therapy. Just wanted to let you know other ocders say they hear

> voices. Good luck, Patty

>

> >

> > Hello,

> >

> > I'm new here.

> > I think my son has ocd, he keeps telling me that he is hearing voice

> in his

> > head. As he says its like having a good side and a bad side.

> > He is also very anxious, washes his hands all the time as well.

> > I'm just not sure what to say to him as regards the voices.

> >

> > Any advice would be great.

> > Val

> >

>

> Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

> Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D.,

( http://www.lighthouse-press.com ). Our list moderators are

Birkhan, Castle, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

>

November 4, 2006

this site is really great for such various info - I even asked dd

again re: voices - just an urge for her - well I shouldn't say just -

horrible of course - yes it sounds like OCD - we're all

learning/sharing here and no one knows better than the people that

live with it daily - feel free to send an email to just me if you

don't want to give personal info out but my mom was from tyrone dad is

from cork

on the OCD note - you want a therapist who does what's called CBT/ERP

- there are a few great books here not sure if everything that's here

is there - tamar Chansky and Aureen Wagner are part of this board and

have great books out

we're here if you need us

good luck

eileen

Quoting Val <magnumlady@...>:

> Hi Eileen,

>

> Thanks for your reply. Yes I'm from Ireland.

> My son washes his hands all the time, its not constant, but whenever he

> touches anything he has to wash his hands (he has a really sore hand from

> all the washing.). He's worried about germs and he always thinks everything

> is his fault, and now he has these voices.

> We are waiting for an appointment for him, which I'm hoping will help. I

> just don't know how to reassure him as I've never had any dealings with this

> before.

>

> Thanks again,

> Val

>

> Re: new here

>

>> Welcome - this is a great place for help - I don't have any experience

>> with voices and OCD - more of just a need to do the rituals and yes

>> they are being " told " to do it - but my daughter never mentioned

>> actual voices - hope some others will chime in soon - good luck - does

>> he get stuck washing and doing other things??

>> Eileen

>>

>> are you from Ireland?

>>

>> Quoting Val <magnumlady@...>:

>>

>> > Hello,

>> >

>> > I'm new here.

>> > I think my son has ocd, he keeps telling me that he is hearing voice in

> his

>> > head. As he says its like having a good side and a bad side.

>> > He is also very anxious, washes his hands all the time as well.

>> > I'm just not sure what to say to him as regards the voices.

>> >

>> > Any advice would be great.

>> > Val

>> >

>>

>> Our list archives, bookmarks, files, and chat feature may be accessed at:

> / .

>> Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

> http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D.,

> ( http://www.lighthouse-press.com ). Our list moderators are

> Birkhan, Castle, Kathy Hammes, Joye, Kathy Mac, Gail

> Pesses, and Kathy . Subscription issues or suggestions may be

> addressed to Louis Harkins, list owner, at louisharkins@... ,

> louisharkins@... , louisharkins@... .

>>

November 4, 2006

Hi Eileen,

Thanks so much once again. I hope your daughter is doing well.

I'm in Sligo.

My son was just seen by an occupational therapist (he has dyspraxia) and

also the educational psychologist who said he certainly has anxiety

problems.

I'm not too sure if much is know about OCD here, I must try and find out.

Take care,

Val

Re: new here

> >

> >> Welcome - this is a great place for help - I don't have any experience

> >> with voices and OCD - more of just a need to do the rituals and yes

> >> they are being " told " to do it - but my daughter never mentioned

> >> actual voices - hope some others will chime in soon - good luck - does

> >> he get stuck washing and doing other things??

> >> Eileen

> >>

> >> are you from Ireland?

> >>

> >> Quoting Val <magnumlady@...>:

> >>

> >> > Hello,

> >> >

> >> > I'm new here.

> >> > I think my son has ocd, he keeps telling me that he is hearing voice

in

> > his

> >> > head. As he says its like having a good side and a bad side.

> >> > He is also very anxious, washes his hands all the time as well.

> >> > I'm just not sure what to say to him as regards the voices.

> >> >

> >> > Any advice would be great.

> >> > Val

> >> >

> >>

> >> Our list archives, bookmarks, files, and chat feature may be accessed

at:

> > / .

> >> Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

> > http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner,

Ph.D.,

> > ( http://www.lighthouse-press.com ). Our list moderators are

> > Birkhan, Castle, Kathy Hammes, Joye, Kathy Mac, Gail

> > Pesses, and Kathy . Subscription issues or suggestions may be

> > addressed to Louis Harkins, list owner, at louisharkins@... ,

> > louisharkins@... , louisharkins@... .

> >>

November 4, 2006

Hi Val, welcome! I have a son, 17, whose OCD began around age 11.5.

I think it must be harder to figure out when a child

mentions " voices " . You try to decide is it " their voice, " a thought

perhaps, some other person's voice, are they hearing it or is it in

thir head.... Whew! Luckily my son has never mentioned this to me.

Interesting that your son said it's like a good/bad side. Since he

seems to be exhibiting other signs of OCD (the washing, the anxiety) I

would lean towards the voices/bad side being OCD. Sometimes with OCD,

it seems to urge you or give you thoughts to do things that you really

would never do, or just bad thought worries or other things.

Say...picking up a knife and hurting someone, cursing in church,

telling you you hate someone when you really don't, worrying you're

gay/homosexual.... OCD can take on many forms with thoughts.

My son began with rituals/compulsions. Those aren't much of a problem

now. Now the bad thoughts and scrupulosity/religious problems are

bothering him. He still does compulsions (a prayer following a bad

thought for example).

Have you read much yet on OCD? A therapist experienced in OCD and who

does Cognitive Behavioral Therapy and also Exposure & Response

Prevention (CBT and ERP) can help; and for medication if needed, a

psychiatrist.

Is it hard for your son to ignore these thoughts??

single mom, 3 sons

, 17, with OCD, dysgraphia and Aspergers/autism (mild)

>

> Hello,

>

> I'm new here.

> I think my son has ocd, he keeps telling me that he is hearing voice

in his

> head. As he says its like having a good side and a bad side.

> He is also very anxious, washes his hands all the time as well.

> I'm just not sure what to say to him as regards the voices.

>

> Any advice would be great.

> Val

>

November 4, 2006

Hi Val,

I just wanted to say , " Hi " , and welcome to this group! Everyone here is a

lifesaver!!!!!!

Do you have an appointment soon for your son? How old is he?

I may have missed your original post, seeing I've been having problems with

my e-mails bouncing.

Take care

hugs

Judy

November 5, 2006

Hi Val

My son also hears voices. Almost 2 years ago it started. After 5

psychiatrists, we have been told he has Tourettes and OCD for the voices. He

has obsessive thoughts where he says what he is thinking out loud and then

answers himself. There are no bad thoughts involved. He just walks around

having a conversation with himself. We had him checked for Schitzophrenia, but

there are no symptoms of psychosis, only voices. He was on Risperdal for the

TS, but the last Dr at CAMH suggested we take him off of this and try him on

Seroquel for the voices, as this is what we would like to treat first. He has

gone from 4 mg of Risperdal down to 2 mg and we hope to have him off of it in a

couple more weeks. At first he was on both Risperdal and Seroquel and it turned

him into a zombie. My son was 15 when this came on out of the blue and is now 17

with really no change at all. He also has milder OCD issues as well.

Good luck to you and your son.

Rose

---------------------------------

Ask a question on any topic and get answers from real people. Go to

Answers.

November 5, 2006

Hi Ramona,

I have a 15 year old with similar issues. We were worried about the

weight gain issue too as she is very competitive in sports but we

are currently trying celexa with amazing results. The psychiatrist

told us that celexa seems to have fewer side effects and she

probably would have little or no weight gain( everyone is different

though). So far so good. My daughter even laughed the other night

and told me she should be a poster child for celexa, she feels that

great. School was torture for our daughter too, panic attacks

constantly and also extreme worries about contamination. She is

known for " not speaking " at school and actually got in trouble for

talking in class like week. She was upset about it first but laughed

about it later that day and said to me she just can't shut up or

stop cracking jokes. We have her in counselling but they have not

started the actual OCD therapy just yet. They want to make sure her

meds are working well first.

Have you tried different SSRIs? Some are worse than others for

weight gain. Paxil is a bad one for putting on the pounds. If you

search back through the messages you will find many discussions on

this subject. This site is a gold mine for information.

Take care, hope you find help soon.

Kim M

November 7, 2006

Hi

Thanks very much for your reply. Its all new to me.

I've read up quite a bit about OCD which is why I think that the voices may

be connected. It seems to happen when he is anxious about things. The

trouble is that he is anxious most of the time. He is very sensitve and gets

upset esily. Its just hard to know what will help him. He is due to see the

Occupational Therapist this week and she's going to try some relaxation with

him to see if this will help.

I really don't know if there is much help in our area for this, but

hopefully I will find out more after he see's the clinical psycologist.

Thanks again,

Val

Re: new here

> Hi Val, welcome! I have a son, 17, whose OCD began around age 11.5.

>

> I think it must be harder to figure out when a child

> mentions " voices " . You try to decide is it " their voice, " a thought

> perhaps, some other person's voice, are they hearing it or is it in

> thir head.... Whew! Luckily my son has never mentioned this to me.

>

> Interesting that your son said it's like a good/bad side. Since he

> seems to be exhibiting other signs of OCD (the washing, the anxiety) I

> would lean towards the voices/bad side being OCD. Sometimes with OCD,

> it seems to urge you or give you thoughts to do things that you really

> would never do, or just bad thought worries or other things.

> Say...picking up a knife and hurting someone, cursing in church,

> telling you you hate someone when you really don't, worrying you're

> gay/homosexual.... OCD can take on many forms with thoughts.

>

> My son began with rituals/compulsions. Those aren't much of a problem

> now. Now the bad thoughts and scrupulosity/religious problems are

> bothering him. He still does compulsions (a prayer following a bad

> thought for example).

>

> Have you read much yet on OCD? A therapist experienced in OCD and who

> does Cognitive Behavioral Therapy and also Exposure & Response

> Prevention (CBT and ERP) can help; and for medication if needed, a

> psychiatrist.

>

> Is it hard for your son to ignore these thoughts??

>

> single mom, 3 sons

> , 17, with OCD, dysgraphia and Aspergers/autism (mild)

>

> >

> > Hello,

> >

> > I'm new here.

> > I think my son has ocd, he keeps telling me that he is hearing voice

> in his

> > head. As he says its like having a good side and a bad side.

> > He is also very anxious, washes his hands all the time as well.

> > I'm just not sure what to say to him as regards the voices.

> >

> > Any advice would be great.

> > Val

> >

>

> Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

> Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D.,

( http://www.lighthouse-press.com ). Our list moderators are

Birkhan, Castle, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

>

November 7, 2006

Hi Judy,

Thanks very much for your reply.

is 13, he has already been seen by an occupational therapist, and

educational psycologist and a paediatric consultant. We are just waiting for

him to see the Clinical psychologist.

Take care,

Val

Re: new here

> Hi Val,

> I just wanted to say , " Hi " , and welcome to this group! Everyone here is

a lifesaver!!!!!!

> Do you have an appointment soon for your son? How old is he?

> I may have missed your original post, seeing I've been having problems

with my e-mails bouncing.

> Take care

> hugs

> Judy

>

November 7, 2006

Hi Rose,

Thanks so much for your reply, its good to hear of other people that are

going through the same thing.

The main thing is that its hard to know what to say to him when he is so

upset about these voices.

The occuaptional therapist seems to think its all due to anxiety, but I wish

I knew why he was so anxious.

Do you find the medication helps your son?

Thanks again.

Val

Re: new here

> Hi Val

> My son also hears voices. Almost 2 years ago it started. After 5

psychiatrists, we have been told he has Tourettes and OCD for the voices.

He has obsessive thoughts where he says what he is thinking out loud and

then answers himself. There are no bad thoughts involved. He just walks

around having a conversation with himself. We had him checked for

Schitzophrenia, but there are no symptoms of psychosis, only voices. He was

on Risperdal for the TS, but the last Dr at CAMH suggested we take him off

of this and try him on Seroquel for the voices, as this is what we would

like to treat first. He has gone from 4 mg of Risperdal down to 2 mg and we

hope to have him off of it in a couple more weeks. At first he was on both

Risperdal and Seroquel and it turned him into a zombie. My son was 15 when

this came on out of the blue and is now 17 with really no change at all. He

also has milder OCD issues as well.

> Good luck to you and your son.

> Rose

>

> ---------------------------------

> Ask a question on any topic and get answers from real people. Go to

Answers.

>

November 7, 2006

, that's really interesting about his imaginary friend! He

seemed to have found a good way for him to cope/handle things and

talk it over with " himself. " (ahem, I talk to myself, no imaginary

friend but I do sometimes have a sort of 2-way conversation).

Therapist seemed to understand well too (not all do, I'm sure). I'm

glad things are going better with the Zoloft!

>

> my son with OCD (AGE 10) developed an immaginary friend last year

when he was at the height of his sickness before starting meds. He

never had one at an age appropriat time and I was very concerned

about it. The friend was kind of like a therapist for him and he

would go out and walk around the yard talking to his " friend " . The

friend always gave him good advice and helped him calm down. It

looks weird (but what about having a kid with OCD doesn't ), but his

November 7, 2006

Hi Val

I am hoping the medication will help. I have also heard that Abilify

is a good drug as well. That is what we will talk to our Dr about at

Toronto Western when we go at the end of the month. They were thinking

of trying Seroquel first. He also has Tourettes so we are carefully

watching his tics so they don't increase as he comes off Risperdal.

My son was on Prozac for OCD but it did absolutely nothing,up to 60 mg

he went to. He was disappointed as he said it was like 4 months of his

life wasted, increasing and then coming off this med. At 17, I am

being very careful that all this will not depress him, his school work

has suffered, no friends anymore (cause he acts weird), his acne has

increased to where it is embarassing him. He doesn't need depression

to deal with as well.The hard part of trying different meds is if it

doesn't work, try something else, but it is time consuming. I hope it

doesn't interfere with his graduation next June as he so desperately

wants to graduate with his brothers (he is a triplet).

Trial and error time

Rose

November 14, 2006

Insist that her immune workup be done....it can be done when she is

not well....speaking from the point of a mom that was told the same

thing but had a kid that was never well. Go to primaryimmune.org

and see who they list as an immunologist closest to you. We too

were told that we just had a sickly child....that is why so many of

these kids are not diagnosed until damage has been done. It is

inexcusible.......no other childhood disease or disorder takes 7

years to get someones attention before they can be diagnosed.

Advocate for your child and, if need be, make a fool of yourself.

Terri

>

> Hi. My membership was just approved so I thought I would send an

intro out.

> We are the Carpenters from lower Michigan. I am Holly, dh is Jim,

Nate (10) and Jenavieve (4) are our children.

> Jenavieve has always been my sickly baby. She was born with ABO

blood incompatibility. Her first few weeks of life was filled with

blood draws and being a special blanket. It seemed no sooner did she

gets over the jaundice issue that she started developing ear

infections. She was exclusively breastfeed for her first year and

nothing I did made the infections go away.

> When she was 2, she was dx'ed with asthma and she started getting

sinus infections. Around that time, the ear infections went away.

> She has tried many different medications with no relief. She had

her tonsils and adenoids out last Christmas. That didn't help her

with the sinus infections. We did find out that her asthma was

acting up due to reflex. She was put on tummy medication and did

great until the last few weeks.

> She had allergy testing done and even had a catscan done on her

sinus cavity this past summer. Everything came out normal with no

allergies. Every doctor I have taken her to has more or less told me

she will just be a sickly kid and we can hope she outgrows it.

Nothing like feeling hopeless.

> Last week, I had to pick her up from school early due to her

having green stuff come out of her eyes and nose. I knew it was a

sinus infection as soon as I seen her. I took her to a new doctor

who suggested that as soon as she feeling better, she get tested an

immune deficiency. She was put on antibiotic and has to go back for

a checkup on Monday. The sinus infection seems to be gone but now

she has an ear infection. She had only been off the antibiotic for

12 hours. So she goes back next week for another check up with the

hope that testing can be done.

> The doctors can not find a reason for why she is always so sick

and why she always gets sinus infections (she has had atleast 7 this

year). I just want answers and I will scream if one more doctor

tells me that my child is just a sickly child. She was breastfeed

for a few years. No one smokes, we have no indoor pets, we eat as

much organic food as possible, I prepare most food homemade, we do

chiropractic adjustments weekly, she gets vitamin and this is her

first year in preschool. I just want answers.

> *************************

> Holly, mama to:

> iel (10) & Jenavieve (4)

> http://www.myspace.com/maymom96

>

November 14, 2006

Welcome to the list. Your daughter's first years very much mimick my own

daughter and probably 70% of the members here. I'm sorry to hear that her

reflux is acting up. What has she recently been on and have they mentioned

rotating her to something new?

There are actually several labs that your family/pediatrician doctor can do

before deciding on a referral. He can run IgG, IgA and IgM levels and can test

levels to her vaccinations. If these labs come out showing that she has

insufficient levels then you would want to see a pediatric

immunologist/infectious disease doctor. Depending on local resources would tell

you what type of doctor is available to use.

If she does have a type of PID then most courses of antibiotics run 21 days. So

rebounding after a quick regular course wouldn't be surprising. PID's can

either be inherited or acquired. Meaning kids are born with it (like my

daughter) or the PID manifests itself later in life (like my husband). Both my

family members have PID but different types. It's nothing we did or didn't do.

Nothing they were exposed to and nothing could have prevented it. We manage it

on a daily basis and 8 years into diagnosis I think we've won the majority of

the battles.

Macey does weekly antibody replacement therapy and takes a daily maintenance

antibiotic. She is rarely sick because of how well she is medically managed.

In the beginning it took some surgical management too but with proper care she

goes to school and plays sports.

if your child has a PID and isn't managed yet then being in school is exposing

her quite a bit. I would light a fire under someone to at least start the lab

work. Doctors disagree about whether it's ok to do a workup when a patient is

sick. We've done levels when we're well or sick. It never seemed to matter

with us.

Ursula - mom to (14) and Macey (11, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://members.cox.net/maceyh

November 14, 2006

Janna - welcome. What type of CF testing has she had so far? Which types were

positive?

Ursula - mom to (13) and Macey (11, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://members.cox.net/maceyh

November 14, 2006

Janna - welcome. What type of CF testing has she had so far? Which types were

positive?

Ursula - mom to (13) and Macey (11, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://members.cox.net/maceyh

November 14, 2006

Welcome, new parents!

Janna,

I hear what you are saying loud and clear. Many of us have walked in your

shoes. I will try to respond to some of your questions.

" i am not exactly sure the number but i do know from our doctor it was half of

what it was supposed to be... "

As much as a pain in the butt as it is, we have to stay on top of our kids

records. I would suggest getting all of the labs and keeping them organized in

a file or Excel spreadsheet. Even the best docs are swamped and have little

time to compare results, look at trends, etc. In the '80s, the space shuttle

crashed because the data was not laid out for the scientists! So, that is my

first suggestion is to keep a log and keep all of the records at your finger

tips. If you see that things are off, and Jordan is suffering, then you need to

get answers. If your doc is not helping then, unfortunately, you have to try to

find someone that will.

" i just want some answers to do we need to see a specialist, who do we see, i

have been recommended to find a new doctor by more than one person and i cant

find one that i am happy with we have been with 3 doctors since she was born...

we are in south alabama "

Many of our parents have been through more than 3+ docs before finding answers

or a doc they could entrust their child to. I find that the best recomendations

come from parents with PIDers who are well managed like Macey. Don't hesitate

to post a note asking for recommendations, as your subject line. You can also

contact the Immune Deficiency Foundation or go to the Jeffery Modell

Foundation's website for " JMF " approved facilities. This will help you to get a

concensus on who might be able to help. Some parents travel far distances to

get their children proper care. We did. Also, I think that St. Jude Children's

Research Hospital is near you. I believe this is free and they may actually do

a complete work-up. However, I can't recommend a specific immuno there --

perhaps others will chime in.

" tested for cf, 4 or 5 times and 3 postive and 2 negative... what do we do next "

I believe there is a hospital in MN that knows how to handle cf testing/results.

You may want to call University of Minnesota Children's Hospital's stellar cf

unit -- and see if they are the ones that were written up as the best in the

nation. I believe there is a nurse-researcher that will take calls from

nonpatients.

Take care,

mom to Dani (5) CVID on IgG therapy/schooling at home and doing well.

November 14, 2006