New here

[Guest guest]

In a message dated 4/25/2007 6:33:57 PM Eastern Daylight Time,

jennaog@... writes:

I have

decided against vaccines...

Jenna,

Horray!!! I'm so happy for you. Your family's support is awesome too.

Holly

************************************** See what's free at http://www.aol.com.

[Guest guest]

In a message dated 4/25/2007 9:27:57 PM Eastern Daylight Time,

kristi03@... writes:

she rarely gets sick... so

I'm still on the fence with it all.

I hope you can come on our side of the fence! I'm happy your daughter

rarely gets sick. I have come to the conclusion that " healthy " is a matter of

opinion. I'll give you my nephew as an example. When he was born he started

having seizures (from the umbilical cord wrapped around his neck, yeah right!

I tried to tell my brother in law it was from the Hep B shot). He was on

seizure meds for the first 5 months of his life. He was formula fed. Then

began the chronic ear infections. Antibiotic after antibiotic. Of course they

started not working, and it is just spinning out of control. I felt he got

more colds/flu than he should have. He wasn't always sick, but he was

frequently sick. He has begun getting alergies. He has speech delays (he is 2

1/2 and just last week started speech therapy). He is relatively violent (I

found out he will walk up to his mom, say " hit " , hit her and then leave. I

think there is some mimicking and parenting issues there, not saying that I'm

the perfect parent by any means). His father told me he was healthy. I

strongly disagree w/this statement. Just b/c a child isn't dying of cancer

doesn't

mean they are healthy. We cannot inject toxic poisons into the bodies of

ourselves, pets or children and think there will be no consequences. I'm

happy your daughter is healthy, and I hope this group can help keep her that

way.

Was/is your daughter breastfed? That makes a huge difference, in my

opinion. Welcome to the group. I'm so happy you are opening your mind to the

possibility vaccines are bad. You have taken the first step.

Holly

************************************** See what's free at http://www.aol.com.

[Guest guest]

Good for you, hopefully we can all give you some good advice. Beth

jenna721 <jennaog@...> wrote: Hello I'm new here and wanted

introduce myself. My name is Jenna, I'm

28, live in Orlando FL, I had my first child in Jan 07. I have

decided against vaccines...fully supported by my family. I am glad

there is such a great resource out there for people who don't want to

" poison " their children.

Jenna

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

THanks for the reply:)! I am pretty much on this side of the fence obviously

but I'm just trying to learn all I can from both sides to make the decision

if we have a 2nd child, I'm not 100% sure where I stand on it all. If my dd

came down with say polio or tetnus or something like that because I didn't

vaccinate I'd feel horrible, I'd feel just as bad if she got something from

a vaccine- probably moreso, which is why I stopped vaccinating, right now

I'm just trying to learn the history of it all to see where they went wrong.

I understand the public fear when those diseases years ago were killing

thousands of people and no one really understood them and then everyone

thought the vaccine stopped it and maybe it did in some ways, or the cycles

just went on and does with time.. I know nothing is 100% proven. I do see

the good that was originally intended but I don't understand how it went

back except they became commercialized in the sense that medical companies

got in on all the vaccines and started making LOTS of money off of them!

Another reason I stopped vaccinating, also our first ped. tried to scare us

into it, that's why I did the initial vaccines, but the more I learned

that's when I stopped (and was told to find a new ped which I did!!!) So I

do think I'm more on the side against vaccines, I just have a lot more to

learn! SO I'm hoping to get as much info as I can from this list!!!!

For the healthy part- yes we breastfeed, still are, she'll be 4 in June. She

got her first cold around 8 months and I think her first stomach virus

around 11 months, first ear infection at 17 months, she's only had 2 of

those, another at 22 months when I think she might have had a touch of the

flu, since then no ear infections just a cold or cough here or there- once

or twice a year. Usually she's only sick twice a year so far up until this

point, sometimes a 24 hr stomach bug (could be food poisoning) but it goes

away fast, knock on wood. So in that respect she's been very healthy, for

other issues she's always been super high need, but I attribute that more to

possibly my whole birth experience (I had HELLP Syndrome) and possibly just

to her personality. Other than the high need part she's fairly calm and all

that. She has had slight skin allergies from time to time but nothing major

and it goes away, nothing lately. She had some dental issues before but I

contribute that to genetics some on her dad's side- I've known kids with no

vaccines at all and also eat healthy like us with the same dental

issues...probably her ph was off but so far no more dental issues. I really

don't think I'll vaccinate a 2nd but it's a very tough decision because I

just need to learn more.

************

Kristi B. , LMT, BA, MBA

Healing Waters Therapy

(904) 886-0847

www.healingwaterstherapy.com

[Guest guest]

Hi Kristi. I'm also a Kristi and I also have a 4 yo dd along with a 6

yo ds and 8 yo dd. My 4 yo is a vax injured child with a type of polio

brought on by the vax. This is NOT speculation on our part. She has

been diagnosed by one of the country's foremost ped. neurologists.

Honestly, I do think the original reason for vaxing was a good one.

But what it has become is big business for pharm. co.'s that are a

multi-billion dollar business and they make their money, in part,

through strong lobbies and scare tactics. Can I say that you shouldn't

vax? No. Truly, that isn't my business. But you will find a lot of

info here on this loop. And then at least whatever you decide will be

because you have the info that your doctor would probably never give

you.

Kristi in IA

>

> Hi, I'm Kristi, mom to a 4 yr old child... Im new to learning about

> vaccine dangers, she had all her vaccines up until almost a year then

> I stopped them all from there... however I keep reading that

> vaccinated children aren't very healthy but she rarely gets sick...

so

> I'm still on the fence with it all. Weren't vaccines originally for a

> good cause-- to stop the mass deaths from certain diseases? Where did

> they go bad?

>

[Guest guest]

Hello Jenna. Welcome & wishing you the best in whatever you seek, Jenn L

Re: new here

Hi Jenna --

Welcome to the group. And congrats on deciding against vaccines.

I'm . I live in NY with a very supportive DH and two partially vaxed

kids. :-)

Health & blessings,

In Harmony with Nature & Good Health.

http://www.shaklee.net/ExcitingHealth

1-866-312-8064

On 4/25/07, jenna721 <jennaog@...> wrote:

>

> Hello I'm new here and wanted introduce myself. My name is Jenna, I'm

> 28, live in Orlando FL, I had my first child in Jan 07. I have

> decided against vaccines...fully supported by my family. I am glad

> there is such a great resource out there for people who don't want to

> " poison " their children.

>

> Jenna

>

[Guest guest]

Hi Jenna --

Welcome to the group. And congrats on deciding against vaccines.

I'm . I live in NY with a very supportive DH and two partially vaxed

kids. :-)

Health & blessings,

In Harmony with Nature & Good Health.

http://www.shaklee.net/ExcitingHealth

1-866-312-8064

On 4/25/07, jenna721 <jennaog@...> wrote:

>

> Hello I'm new here and wanted introduce myself. My name is Jenna, I'm

> 28, live in Orlando FL, I had my first child in Jan 07. I have

> decided against vaccines...fully supported by my family. I am glad

> there is such a great resource out there for people who don't want to

> " poison " their children.

>

> Jenna

>

[Guest guest]

, if you live in NY do you have children in school and if so what do

you do about them being vaccinated. I ask this because my daughter moved to

NYC in January and her daughter, eight is in the second grade, and will not

be due for any more for awhile. She was vaccinated and now my daughter

does not want to do anymore. Her son is just eight months and has no

vaccinations nor is he circumcised. She found a family practice that

supports her delayed vaccinating.or no. He only suggested a few and then

said " well you are the parent and we can only suggest.

I understand that NY is very tough on exceptions and she is not affiliated

with any church, but she can go on her beliefs.

Would they give her a hard time because she vaccinated her daughter and then

decided not to in the future.

Thanks

Bonnie

Re: new here

> Hi Jenna --

>

> Welcome to the group. And congrats on deciding against vaccines.

> I'm . I live in NY with a very supportive DH and two partially vaxed

> kids. :-)

>

> Health & blessings,

>

>

> In Harmony with Nature & Good Health.

> http://www.shaklee.net/ExcitingHealth

> 1-866-312-8064

>

>

> On 4/25/07, jenna721 <jennaog@...> wrote:

>>

>> Hello I'm new here and wanted introduce myself. My name is Jenna, I'm

>> 28, live in Orlando FL, I had my first child in Jan 07. I have

>> decided against vaccines...fully supported by my family. I am glad

>> there is such a great resource out there for people who don't want to

>> " poison " their children.

>>

>> Jenna

>>

>

>

>

[Guest guest]

Hi Kristi --

Welcome to the group. There is terrific info here. You might go through

the archives for info on how many vaxs are done today as opposed to when

you were a child - the number of vaxs today are staggering!

My kids are partially vaxed as well.

Health & blessings,

In Harmony with Nature & Good Health.

http://www.shaklee.net/ExcitingHealth

1-866-312-8064

On 4/25/07, kristi3003 <kristi03@...> wrote:

>

> Hi, I'm Kristi, mom to a 4 yr old child... Im new to learning about

> vaccine dangers, she had all her vaccines up until almost a year then

> I stopped them all from there... however I keep reading that

> vaccinated children aren't very healthy but she rarely gets sick... so

> I'm still on the fence with it all. Weren't vaccines originally for a

> good cause-- to stop the mass deaths from certain diseases? Where did

> they go bad?

>

[Guest guest]

I want to say hi to all the new members here because I haven't participated in a

while & may have missed some intro's. I have a 6 yr. old autistic dd who had an

allergic type reaction to one of the shots she was given during a round at the

peds. and was later diagnosed with autism. She's progressing well with minor

setbacks now & then from colds etc. Lots to lean from each other here. Jenn L

Re: New here

Hi Kristi --

Welcome to the group. There is terrific info here. You might go through

the archives for info on how many vaxs are done today as opposed to when

you were a child - the number of vaxs today are staggering!

My kids are partially vaxed as well.

Health & blessings,

In Harmony with Nature & Good Health.

http://www.shaklee.net/ExcitingHealth

1-866-312-8064

On 4/25/07, kristi3003 <kristi03@...> wrote:

>

> Hi, I'm Kristi, mom to a 4 yr old child... Im new to learning about

> vaccine dangers, she had all her vaccines up until almost a year then

> I stopped them all from there... however I keep reading that

> vaccinated children aren't very healthy but she rarely gets sick... so

> I'm still on the fence with it all. Weren't vaccines originally for a

> good cause-- to stop the mass deaths from certain diseases? Where did

> they go bad?

>

[Guest guest]

Hi Bonnie --

My DS had a severe allergic reaction to the DPT shot, so even the ped said

we won't be doing that again. After that it was easier to say " we won't be

doing that now " and the ped was OK with that. Both my kids actually had

chicken pox, and my DS had whooping cough 3 years ago (thankfully he has a

strong immune system and was able to practice and play lacrosse despite his

cough).

If you'd like feel free to contact me off line.

Health & blessings,

In Harmony with Nature & Good Health.

http://www.shaklee.net/ExcitingHealth

1-866-312-8064

On 4/28/07, Bonnie <jennelle8@...> wrote:

>

> , if you live in NY do you have children in school and if so what do

> you do about them being vaccinated. I ask this because my daughter moved

> to

> NYC in January and her daughter, eight is in the second grade, and will

> not

> be due for any more for awhile. She was vaccinated and now my daughter

> does not want to do anymore. Her son is just eight months and has no

> vaccinations nor is he circumcised. She found a family practice that

> supports her delayed vaccinating.or no. He only suggested a few and then

> said " well you are the parent and we can only suggest.

>

> I understand that NY is very tough on exceptions and she is not affiliated

> with any church, but she can go on her beliefs.

>

> Would they give her a hard time because she vaccinated her daughter and

> then

> decided not to in the future.

>

> Thanks

> Bonnie

> Re: new here

>

>

> > Hi Jenna --

> >

> > Welcome to the group. And congrats on deciding against vaccines.

> > I'm . I live in NY with a very supportive DH and two partially

> vaxed

> > kids. :-)

> >

> > Health & blessings,

> >

> >

> > In Harmony with Nature & Good Health.

> > http://www.shaklee.net/ExcitingHealth

> > 1-866-312-8064

> >

> >

> > On 4/25/07, jenna721 <jennaog@...> wrote:

> >>

> >> Hello I'm new here and wanted introduce myself. My name is Jenna, I'm

> >> 28, live in Orlando FL, I had my first child in Jan 07. I have

> >> decided against vaccines...fully supported by my family. I am glad

> >> there is such a great resource out there for people who don't want to

> >> " poison " their children.

> >>

> >> Jenna

[Guest guest]

Don,I've found the best way to give myself a sense of control is to prepare myself before seeing a doctor by writing down the questions I have and listing the problems I want to discuss. When I see a doctor there's usually a brief opening for general discussion of your concerns. Let the doctor know right away, if you have several things you want to discuss, that you'd like to take a few minutes to go over your list. As already mentioned, you also need to do enough homework so that you have some idea of what the standard of care is for any problem you're concerned about, treatment options, and some knowledge of risks and benefits (think Google). Jot down brief details about what you've learned so you don't feel lost when asking your questions. By being informed, you'll be in a better position to judge whether your doctor is expert enough to treat you, or whether you need to seek out a specialist (assuming

you have that option). A recent example - I had some skin lesions that didn't look very impressive to my internist, but he agreed when I said I thought I needed to see a dermatologist. They all turned out to be cancer, although easily treatable. One tactic I use when I want to try something is to say "I understand there's some research to support the use of X for treating Y. How about if I tried X empirically for Z months to see if it helps?" If your doctor disagrees, they should be able to satisfy you with a well-informed explanation. Having said all this, even a prepared and informed patient will have a hard time dealing with an authoritarian physician. If your doctor is not willing to consider you a partner in your treatment, you may want to find another. Original message: New here....... Posted by: "Don" dononmontgomery@...

dontntx Date: Thu Apr 26, 2007 7:15 am ((PDT))I just joined this group and hope i can take a more assertive stand in my on going care. My diagnosis was Aug. 1990 and I have done very well so far physically. Mentally is an entirely different issue. I feel like I surrender total control when I walk into my doctor's office and I wonder if anyone else has experienced this? I am taking anti-depressive meds and see a therapist (doing all the right things).Any opinions about this?Peace,Don

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Don,I've found the best way to give myself a sense of control is to prepare myself before seeing a doctor by writing down the questions I have and listing the problems I want to discuss. When I see a doctor there's usually a brief opening for general discussion of your concerns. Let the doctor know right away, if you have several things you want to discuss, that you'd like to take a few minutes to go over your list. As already mentioned, you also need to do enough homework so that you have some idea of what the standard of care is for any problem you're concerned about, treatment options, and some knowledge of risks and benefits (think Google). Jot down brief details about what you've learned so you don't feel lost when asking your questions. By being informed, you'll be in a better position to judge whether your doctor is expert enough to treat you, or whether you need to seek out a specialist (assuming

you have that option). A recent example - I had some skin lesions that didn't look very impressive to my internist, but he agreed when I said I thought I needed to see a dermatologist. They all turned out to be cancer, although easily treatable. One tactic I use when I want to try something is to say "I understand there's some research to support the use of X for treating Y. How about if I tried X empirically for Z months to see if it helps?" If your doctor disagrees, they should be able to satisfy you with a well-informed explanation. Having said all this, even a prepared and informed patient will have a hard time dealing with an authoritarian physician. If your doctor is not willing to consider you a partner in your treatment, you may want to find another. Original message: New here....... Posted by: "Don" dononmontgomery@...

dontntx Date: Thu Apr 26, 2007 7:15 am ((PDT))I just joined this group and hope i can take a more assertive stand in my on going care. My diagnosis was Aug. 1990 and I have done very well so far physically. Mentally is an entirely different issue. I feel like I surrender total control when I walk into my doctor's office and I wonder if anyone else has experienced this? I am taking anti-depressive meds and see a therapist (doing all the right things).Any opinions about this?Peace,Don

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Yes, it sure does sound like ocd! The is an exact duplicate of my son - but you

know is very treatable! He needs to get into counseling as soon as possible.

Look on the ocd website (www.ocfoundation.org) and look for treatment providers

in your area who do both cbt and erp (cognitive behavioral therapy and exposure

response). You will find so much infomation and support here.

I would also recommend the book " How to free your child from obsessive

compulsive disorder " by Tamar Chansky. It can be ordered on Amazon and it is

excellent.

Welcome!

in TN

uberdawn <karen.schanck@...> wrote:

Our 7 year old son was just diagnosed w/OCD, primary obsessive type,

last week by a child psychologist. It was as if a switch was turned on

a couple of weeks ago and the mild " worries " and confessing (that in

hindsight I've seen since he was around 4y/0) just hit a crisis point.

I would pick him up from school and the whole ride home he would be

teary, visible distressed and repeat things like " I don't know whether

I stuck my tongue out or not " ; " I told God if it thundered tonight I

would know if I said something bad about you " ; " If I counted 30 stars I

would know I didn't call you a robber " ; " I wish you could be with me at

school to tell me if I said something bad " , " I don't know if I said

something about bad skin and freckles " etc., etc. Repeated needs for

reassurance. Says he feels like the penguin on " Happy Feet " and that he

was born wrong. He doesn't have the compulsions (counting,

washing,etc.) unless you count confessing frequently. Our son has been

very sad since this was triggered, which is heart-wrenching for my

husband and me. It was like watching our son drowning and not knowing

how to help. Does this sound like OCD to anyone? Does anyone else have

a similar experience?

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

My daughter is not diagnosed yet but it sounds just like her and I am almost

sure we are dealing with ocd. It is heart wrenching. I hpep you get the

help you need. It's some comfort to know there are others out there with

the same issue. Good luck. Ours has recently reached a crisis level also

and we are in the process of getting help. It can't come fast enough

though.

Shaw

game-enthusiast@...

visible distressed and repeat things like " I don't know whether

I stuck my tongue out or not " ;

[Guest guest]

Welcome to the group....!

Kerry

-- new here

Hi. I'm Amy, mom to 3 boys. Our youngest son is disabled and is 7. I'm just having kind of a tough time lately. Our son is doing well but I am just feeling so down lately. We are stuck with my hubby's current job because we have to keep my son's medicaid as secondary insurance...our primary insurance will not cover his medications or physical therapies. It just feels like this is how it's always going to be. My hubby keeps telling me I have to find something to be optimistic about but it seems impossible.Thanks for listening.Amy

[Guest guest]

Welcome to the group....!

Kerry

-- new here

Hi. I'm Amy, mom to 3 boys. Our youngest son is disabled and is 7. I'm just having kind of a tough time lately. Our son is doing well but I am just feeling so down lately. We are stuck with my hubby's current job because we have to keep my son's medicaid as secondary insurance...our primary insurance will not cover his medications or physical therapies. It just feels like this is how it's always going to be. My hubby keeps telling me I have to find something to be optimistic about but it seems impossible.Thanks for listening.Amy

[Guest guest]

Welcome.

You may put your kefir grains " to bed " for a week or so in the refrigerator.

You need to understand that they survive but not thrive in such a cold

environment. That means there will be a recovery period of two or three

batches when you start making kefir at room temperature again.

Marilyn

On 6/7/07, steven <stevenfineberg@...> wrote:

>

> Hello:

> I am new here. I have yet to make kefir. I ferment other foods on a

> pretty regular basis, such as I ferment pickles, sauerkraut, I make

> whey just to name a few. I am getting ready to order my kefir grains

> and have a question. I travel for work. What is the best way to

> store the kefir grains while I am away for say a week?

>

>

[Guest guest]

Dear Fay, My son was 8yrs old before we got our diagnoses. He did not talk until he was 3 1/2. We placed in in a Special Ed. preschool class which was funded by the county school. Luke to had prombloms with the social setting. The class that luke was in could not have no more than 8 children in the class. He attended Monday - Friday. He could not go to any assemblies with the whole school. This was like over load!! I made sure and still do, that I get to attend all field trips. This was so that I could deal with his melts down.Carl & Fay Wood <omnibus@...> wrote: Hi, My name is Fay and my almost 3 year old son has been diagnosed with asperger's. I am confused and perplexed. Hoping to find some other mom's on this group that have preschool kids with the same diagnosis. will start special ed preschool in the fall. We have an IEP meeting soon when we meet with the teacher. I don't even know what to expect. My biggest problem with is in social situations. He does fine with a large group of adults but he has horrible, inconsolabel meltdowns around kids his own age like at church and daycare. I don't know what to do and am hoping someone can give me some advice. He needs to be around his peers but he seems to hate it. Thanks for reading my post.

Get the toolbar and be alerted to new email wherever you're surfing.

[Guest guest]

Dear Fay,

Welcome to the list -- and the world of autism. I have no pat answers for you, only a comment about the thought that he needs to be with his peers. This is a relatively modern concept. Early schools in this country had children of all different ages. Many children spent time working on family farms. Children who are homeschooled are often very interesting people.

If he hates it and does like being with adults, at least he isn't isolating himself completely. He will, after all, grow up to be an adult, so it is far from wasted time. Maybe he feels safer with adults. See how you feel about it all without the peer concept in mind.

I would guess we all felt overwhelmed at first -- and often still do!

You'll get a lot of love and support in this group, and it's good to have you here.

Love,

Francine

In a message dated 6/10/2007 12:04:09 A.M. Eastern Daylight Time, omnibus@... writes:

Hi,

My name is Fay and my almost 3 year old son has been diagnosed with asperger's. I am confused and perplexed. Hoping to find some other mom's on this group that have preschool kids with the same diagnosis. will start special ed preschool in the fall. We have an IEP meeting soon when we meet with the teacher. I don't even know what to expect. My biggest problem with is in social situations. He does fine with a large group of adults but he has horrible, inconsolabel meltdowns around kids his own age like at church and daycare. I don't know what to do and am hoping someone can give me some advice. He needs to be around his peers but he seems to hate it.

Thanks for reading my post.

See what's free at AOL.com.

[Guest guest]

Hi ,

At what age did your son actually started having a normal conversation? My son has been verbal since he was 3. But, even now at almost 6, he hasn't improved much. He has several small sentences and his language is improving very very very slowly.

I wonder if any of you have kids who improved substantially after like 6 or 7?

Re: New Here

Dear Fay, My son was 8yrs old before we got our diagnoses. He did not talk until he was 3 1/2. We placed in in a Special Ed. preschool class which was funded by the county school. Luke to had prombloms with the social setting. The class that luke was in could not have no more than 8 children in the class. He attended Monday - Friday. He could not go to any assemblies with the whole school. This was like over load!! I made sure and still do, that I get to attend all field trips. This was so that I could deal with his melts down.Carl & Fay Wood <omnibusfbcom (DOT) net> wrote:

Hi,

My name is Fay and my almost 3 year old son has been diagnosed with asperger's. I am confused and perplexed. Hoping to find some other mom's on this group that have preschool kids with the same diagnosis. will start special ed preschool in the fall. We have an IEP meeting soon when we meet with the teacher. I don't even know what to expect. My biggest problem with is in social situations. He does fine with a large group of adults but he has horrible, inconsolabel meltdowns around kids his own age like at church and daycare. I don't know what to do and am hoping someone can give me some advice. He needs to be around his peers but he seems to hate it.

Thanks for reading my post.

Get the toolbar and be alerted to new email wherever you're surfing.

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Neither of my boys talked at the age they were supposed to .my son derek did not really talk til about 6 and then it was very hard to understand well he is now 13 he has improved over the last 7 yrs but you can tell he is not talking the way he should he sounds more like a child of 5 maybe.. he talks and talks to some people and has not said a word to others ( he saw one dr for a yr and a half and never once uttered a word to him).but in all honesty he is very hard to understand on some of his words and sentences he still gets speech.i hope he improves a lot more.he does a lot of talking to himself or mimicing what he hears around him .but with as far as he has come he still has a long way to go and it took him this long to get where he is .his convoes are not really a normal convo he tells me things that happens in school or in a movie but it isnt like a give and take convo he may ask me something and i tell him the answer but it

is always about what ever he is thinking,talking ,watching that day .

Re: New Here

Dear Fay, My son was 8yrs old before we got our diagnoses. He did not talk until he was 3 1/2. We placed in in a Special Ed. preschool class which was funded by the county school. Luke to had prombloms with the social setting. The class that luke was in could not have no more than 8 children in the class. He attended Monday - Friday. He could not go to any assemblies with the whole school. This was like over load!! I made sure and still do, that I get to attend all field trips. This was so that I could deal with his melts down.Carl & Fay Wood <omnibusfbcom (DOT) net> wrote:

Hi,

My name is Fay and my almost 3 year old son has been diagnosed with asperger's. I am confused and perplexed. Hoping to find some other mom's on this group that have preschool kids with the same diagnosis. will start special ed preschool in the fall. We have an IEP meeting soon when we meet with the teacher. I don't even know what to expect. My biggest problem with is in social situations. He does fine with a large group of adults but he has horrible, inconsolabel meltdowns around kids his own age like at church and daycare. I don't know what to do and am hoping someone can give me some advice. He needs to be around his peers but he seems to hate it.

Thanks for reading my post.

Get the toolbar and be alerted to new email wherever you're surfing.

oneSearch: Finally, mobile search that gives answers, not web links.

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[Guest guest]

Nice to meet you, sorry it had to be here. There are great people here to talk to, and always someone around , be it day or nite... *hugs*

Kerry

-- New Here

I've been lurking for a bit, but I have not said anything.

I was a caregiver for my invalid mother for twenty years.

When you accept that responsibility, you don't know how

long your job will last. I took very good care of her, and I

am sure if she had been in a nursing home, she would have

died much sooner. It was, in fact, the abuse she suffered in

an assisted living facility that caused me to give up

my job as a librarian and care for her myself.

For many years, I did it alone, with absolutely no help.

She and I were the last people left alive in the

family, and we lived on her small pension.....no money for

sitters to replace me. All my "friends" abandoned me.

A number promised to help, to sit with her for a while so

I could get out, but not one of them ever showed up to

lend a hand. It was hurtful. During the last few years, I never

left the house. In the last year, I was up a dozen times every

night with her. She was 102 when she died, and I was

exhausted. At that point, I began to get sick myself, but

I began going to church and made a couple of friends there.

They were the only ones I had where I now live.

The three of us planned to buy a nice home together so we

could help each other stay out of nursing homes. We

went house hunting every Sunday after church. We found

one, but before we could buy it, both of them died unexpectedly

within two weeks of each other. When they

did, my support system ended. I was devastated by their loss because

I had also been getting sicker. I wasn't lucky enough to die, though.

Since then, I have been housebound because of medical problems.

I have Lyme Disease, Multiple Chemical Sensitivities, CFS, and

Cushing's Disease, which causes high cortisol, high blood pressure

and diabetes, along with anxiety and depression.

Because of the Multiple Chemical Sensitivities, there

are no meds left I can take so my blood pressure is uncontrolled.

I am very dizzy all the time. so much so that I have trouble

getting around my house. I had a small stroke last week

Of course, I was alone when it happened. Being a vegetable

is the one thing I do not want and fear greatly. Dying would

be welcome, though. .

I go for days without seeing anybody. In fact, the only regular

visitor I have is a minister from the church I attended

before I got sick. She comes one hour a week. I live in a bad

neighborhood, and there are lots of gangs and crime and pit bull

fights. By some, I am considered prey. However, I am grateful

that I have a roof over my head. I own my home, and I paid it

off fifteen years early. Because the neighborhood is bad, the

taxes are low, and I can afford to live here.

I am rarely well enough to drive my car, but on the days when I can,

I have two stores I go to, both within five minutes of my house.

That is the limit of my world.

I think it is the love of friends or family that enables people who

are ill to keep wanting to live. Without that, it is hard to keep on.

I always say I am dying of a dozen diseases and loneliness.

Josie

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[Guest guest]

Hi Josie-

I also have CFS and am the caregiver for my mom who had dementia and

alzheimers and now has cancer.

I dont know why this stuff hapens to people. I dont know how it

happens to some and not to others. I feel fortunate that my CFS is

under control enough that once this period is over, that I have

options to look at.

I am not of any Western religion, if I were Id definately be

questioning the kindness of God right now........ for a lot of other

people, not me.

I at least have a boyfrined who cares- granted, out of state because

I had to move here. But his friendship and always having my back

emotionally has been priceless. And a few old OLD friends who are

willing to witness this time. So I cant be too angry with my lot in

life. Although I am depressed and saddened a lot. I feel defeated

more oftenthan I like to admit.

I dont know who will care for me when I am older either. I have no

kids. The nieces and nephews arent close. Im not sure I can make

enough money between now and then for any real long term care. So

more reason to live in the moment I guess.

I dont know what the longterm outcome will be for me having made

this decision to be the caregiver here. But like you, there wasnt

really an option. Its the kind thing to do and its the loving thing

to do and its just freaking the RIGHT thing to do as a person. Im

not a martyr. But who the hell lets their family die sufferring and

alone? Apparently, from the numbers, a lot of people do. I dont

want to be one of them, ever.

And you werent one of them either.

Im sorry for your situation right now. Especially losing your two

friends.

It sounds like you had delayed onset of CFS and CS. I did too. It

took years before I was totally incapacitated, and when it finally

wiped me out, I thought I was just dying early at 40. Its so

dibilitating that I didnt even care that much, I just figured my

time had ended here. And couldnt figure out why i didnt just die.

It's an amazingly horrible illness. I was lucky to have great drs

in Chgo. who were willing to work with me.

And lucky to recover enough to be doing this now. Although I cant

say how this last leg of my moms journey will affect things. I

never know how anything will. Every day I go through a checklist of

symptoms automatically, so I can pace myself accordingly. ANd when

the relapses come, I am completely wiped out again in bed. they are

farther and fewer between, but the same intensity as they always

heva been.

Can you get back to church at all? is there some way to find any

type of visiting support system for you? Did you get the Lyme dealt

with??? have you looked int any of the supliments out there to help

with blood pressure and/or changed your diet? i know how

overwhelmingly difficult all of that can be......... and i know how

the fatigue can make you simply not care any more.

Tilia

> -- New Here

>

> I've been lurking for a bit, but I have not said anything.

> I was a caregiver for my invalid mother for twenty years.

> When you accept that responsibility, you don't know how

> long your job will last. I took very good care of her, and I

> am sure if she had been in a nursing home, she would have

> died much sooner. It was, in fact, the abuse she suffered in

> an assisted living facility that caused me to give up

> my job as a librarian and care for her myself.

>

> For many years, I did it alone, with absolutely no help.

> She and I were the last people left alive in the

> family, and we lived on her small pension.....no money for

> sitters to replace me. All my " friends " abandoned me.

> A number promised to help, to sit with her for a while so

> I could get out, but not one of them ever showed up to

> lend a hand. It was hurtful. During the last few years, I never

> left the house. In the last year, I was up a dozen times every

> night with her. She was 102 when she died, and I was

> exhausted. At that point, I began to get sick myself, but

> I began going to church and made a couple of friends there.

> They were the only ones I had where I now live.

> The three of us planned to buy a nice home together so we

> could help each other stay out of nursing homes. We

> went house hunting every Sunday after church. We found

> one, but before we could buy it, both of them died unexpectedly

> within two weeks of each other. When they

> did, my support system ended. I was devastated by their loss

because

> I had also been getting sicker. I wasn't lucky enough to die,

though.

>

> Since then, I have been housebound because of medical problems.

> I have Lyme Disease, Multiple Chemical Sensitivities, CFS, and

> Cushing's Disease, which causes high cortisol, high blood pressure

> and diabetes, along with anxiety and depression.

>

> Because of the Multiple Chemical Sensitivities, there

> are no meds left I can take so my blood pressure is uncontrolled.

> I am very dizzy all the time. so much so that I have trouble

> getting around my house. I had a small stroke last week

> Of course, I was alone when it happened. Being a vegetable

> is the one thing I do not want and fear greatly. Dying would

> be welcome, though. .

>

> I go for days without seeing anybody. In fact, the only regular

> visitor I have is a minister from the church I attended

> before I got sick. She comes one hour a week. I live in a bad

> neighborhood, and there are lots of gangs and crime and pit bull

> fights. By some, I am considered prey. However, I am grateful

> that I have a roof over my head. I own my home, and I paid it

> off fifteen years early. Because the neighborhood is bad, the

> taxes are low, and I can afford to live here.

>

> I am rarely well enough to drive my car, but on the days when I

can,

> I have two stores I go to, both within five minutes of my house.

> That is the limit of my world.

>

> I think it is the love of friends or family that enables people who

> are ill to keep wanting to live. Without that, it is hard to keep

on.

> I always say I am dying of a dozen diseases and loneliness.

> Josie

>

>

> Looking for a deal? Find great prices on flights and hotels with

> FareChase.

>

[Guest guest]

ah, Josie, you are another of the wonderful givers, who make life very good for another, and then.....

I am so sorry that your world suffered so much while you helped, and wow for twenty years! Communities really need to have respite available for caregivers!! whether or not you can afford it -- after all you save the community a lot of money by keeping your loved one at home!

Ah how sad that the dream of a house with your friends didn't come to fruition. How much nicer it would be to have company -- and to split the chores three ways, plus have help the days you are down.

I also was diagnosed with MCS (along with MS) but am lucky enough to be doing some better nowadays. I do recall those of the most awful days though! and it is one of the lonely diseases, as so many deny its existence. But you also have the high blood pressure. and then a stroke? Does your state help with assistive devices like walkers or wheelchairs?

I am so glad that you have a s minister, and that she is coming weekly! and that your housing is paid for, if not optimal. I don't suppose you could get a housemate? One of my friends did that. But it's so hard, when you don't really know who people are, until after you have lived with them! Sometimes I think that Assistive Living, though sounding tough to accept in so many ways, at least would have other folks around.

I do hope that somehow, somewhere, you will find a 'liveable' life. and maybe even some good times along the way!

I did find that for me, I am as comfortable being alone as with being with others -- so long as I have radio or TV on in the background to keep me company -- and so long as I have 300 or 400 watts of light shining whereever I am!!

my shrink used to say that sometimes the best we can do is just muddle along, and it is good to choose to feel good about that.

sending hope, as best I can, Jean

(btw I like your 'name'!! )

New Here

I've been lurking for a bit, but I have not said anything.

I was a caregiver for my invalid mother for twenty years.

When you accept that responsibility, you don't know how

long your job will last. I took very good care of her, and I

am sure if she had been in a nursing home, she would have

died much sooner. It was, in fact, the abuse she suffered in

an assisted living facility that caused me to give up

my job as a librarian and care for her myself.

For many years, I did it alone, with absolutely no help.

She and I were the last people left alive in the

family, and we lived on her small pension.....no money for

sitters to replace me. All my "friends" abandoned me.

A number promised to help, to sit with her for a while so

I could get out, but not one of them ever showed up to

lend a hand. It was hurtful. During the last few years, I never

left the house. In the last year, I was up a dozen times every

night with her. She was 102 when she died, and I was

exhausted. At that point, I began to get sick myself, but

I began going to church and made a couple of friends there.

They were the only ones I had where I now live.

The three of us planned to buy a nice home together so we

could help each other stay out of nursing homes. We

went house hunting every Sunday after church. We found

one, but before we could buy it, both of them died unexpectedly

within two weeks of each other. When they

did, my support system ended. I was devastated by their loss because

I had also been getting sicker. I wasn't lucky enough to die, though.

Since then, I have been housebound because of medical problems.

I have Lyme Disease, Multiple Chemical Sensitivities, CFS, and

Cushing's Disease, which causes high cortisol, high blood pressure

and diabetes, along with anxiety and depression.

Because of the Multiple Chemical Sensitivities, there

are no meds left I can take so my blood pressure is uncontrolled.

I am very dizzy all the time. so much so that I have trouble

getting around my house. I had a small stroke last week

Of course, I was alone when it happened. Being a vegetable

is the one thing I do not want and fear greatly. Dying would

be welcome, though. .

I go for days without seeing anybody. In fact, the only regular

visitor I have is a minister from the church I attended

before I got sick. She comes one hour a week. I live in a bad

neighborhood, and there are lots of gangs and crime and pit bull

fights. By some, I am considered prey. However, I am grateful

that I have a roof over my head. I own my home, and I paid it

off fifteen years early. Because the neighborhood is bad, the

taxes are low, and I can afford to live here.

I am rarely well enough to drive my car, but on the days when I can,

I have two stores I go to, both within five minutes of my house.

That is the limit of my world.

I think it is the love of friends or family that enables people who

are ill to keep wanting to live. Without that, it is hard to keep on.

I always say I am dying of a dozen diseases and loneliness.

Josie

Looking for a deal? Find great prices on flights and hotels with FareChase.