Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Hello Helen, you are very close to me. We live East of Sacramento. I hope your daughter is doing well. How do you cope with her so far away at school? Just Curious. Carolyn Holmes mom of Cameron myo'd and fundo'd in 05 ________________________________ From: Helene Stovall <stovall.h@...> " achalasia " <achalasia > Sent: Thursday, March 1, 2012 11:37 AM Subject: Re: Re: My son has achalasia  I had replied a few times. My daughter, Leigh, was diagnosed 7 years ago at 11. We could not do anymore dialations because narrowing was not the problem. Spasms were. Her heller was intact the fundoplication still in place. But the nerves up and down the esophagus were misfiring, sending her into spasms continuously. Doctors refused to do any more dialations because her esophagus had become fragile and the risk of a tear was great. We took her to university of south Florida, swallow center. All they could offer us was more of the same medications thar hadn't worked. We went to see dr rosemurgy at Tampa general who had developed a procedure to remove the esophagus, pulling her stomach up and turning it into a conduit. She was in the hospital 3 weeks, a difficult recovery. But now she is in college and feels hopeful for the future. She has some digestive issues, gluten intolerance, lactose intolerance. But she has gained weight and is not in constant pain anymore. I understand your fear and concern. I have lived with it for years. We are never quite sure if we have made the right decision, and our children's lives depend on our research and decisions. If you would like to talk with another achalasia mom with battle scars feel free to call. 5309410706. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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