Payne 5 Years old Achalasia, Mega- Esophagus, Tracheal Malaysia

[Guest guest]

Our daughter is 5 years old, diagnosed with Achalasia,

Mega-Esophagus,and Tracheal Malaysia.

She just underwent a heller miotomy in Reno, with a partial fundoplycation in

Oct 2011, and now has a trachesotomy and j/g

tube for nutrition. The surgery opened the esophagus now but she has acid

re-flux and the esophagus is a large pipe with no motility.

We are curious if anyone has seen this in anyone so young , and if anyone has

had/seen a child that has Achalasia that has improved given time - or is what

the doctors are saying that her esophagus will never function as normal and only

be a pipe for the rest of her life true?

Are there any natural supplements that can help to re-activate the motility in

her esophagus, and/or shrink the walls of the esophagus? (her esophagus is 4x

the normal size and the walls are an inch thick approximately according to the

doctors here)

We are thinking of taking her to Ohio to Cincinnati Children's Hospital, can

anyone suggest anywhere else or are we on the right track? We have looked into

colon interposition as a possible future solution, but we are still hopeful this

could reverse given time.

Need some guidance.

Thank you in advance,

and Payne