Re: I got the results!

[Guest guest]

I had surgery first but have had the dilutions since then and it helped

tremendously.

I remember how relieved I was to finally get a diagnosis! My doctor kept trying

to convince I was stressed out and/or crazy because he couldn't figure out what

was wrong with me.

I wish you luck.

Bea

Sent from my iPad

[Guest guest]

Thank you! My doctor wants me to do the dilutions instead of the surgery because

I am a kid, and he says there are not many doctors who have experience doing the

surgery on kids.

>

> I had surgery first but have had the dilutions since then and it helped

tremendously.

>

> I remember how relieved I was to finally get a diagnosis! My doctor kept

trying to convince I was stressed out and/or crazy because he couldn't figure

out what was wrong with me.

>

> I wish you luck.

>

> Bea

>

> Sent from my iPad

>

[Guest guest]

Isn't a relief to know, rather than hear doctors' BS?

A long time ago, my pediatrician wrote some crap about " stress " related to

achalasia in my records when I presented classic achalasia symptoms. As far as

I knew, my childhood was relatively care-free until achalasia presented itself.

I knew something was wrong, and my " gut " feelings were validated by all the

testing.

Steve

> >

> > I had surgery first but have had the dilutions since then and it helped

tremendously.

> >

> > I remember how relieved I was to finally get a diagnosis! My doctor kept

trying to convince I was stressed out and/or crazy because he couldn't figure

out what was wrong with me.

> >

> > I wish you luck.

> >

> > Bea

> >

> > Sent from my iPad

> >

>

[Guest guest]

Steve, I hear ya! I've been pretty pissed at the GIs, too. But on the whole, I

*didn't* spend years waiting for the right diagnosis -- rather, I spent years

trying to cope with it myself. So I kinda understand where they're coming from:

they've set themselves up at the know-alls. And it usually works for them: they

find and diagnose and fix, and patients are grateful, and they earn a very good

living. Then *we* come along, they can't figure out what's happening, and it

makes them feel *really* inadequate -- so they do what most human beings do:

they wing it (i.e., make stuff up that *might* be true, and let ourselves off

the hook for our ignorance).

>

> Isn't a relief to know, rather than hear doctors' BS?

>

> A long time ago, my pediatrician wrote some crap about " stress " related to

achalasia in my records when I presented classic achalasia symptoms. As far as

I knew, my childhood was relatively care-free until achalasia presented itself.

>

> I knew something was wrong, and my " gut " feelings were validated by all the

testing.

>

> Steve

[Guest guest]

Achalasia came on me rather suddenly...though when I think back I sometimes had

trouble swallowing things like doughnuts for years before.  I happened to be

working at the US Embassy in Montevideo at the time and our doctor was an

Anglo-Uruguayan.  All of a sudden I was wracked by horrible, painful spasms and

had to get up many times from the dinner table to clear my esophagus.  This

doctor's MO was to prescribe a drug and, if it didn't work, he eliminated the

disease he was treating as a diagnosis.  So, I got treated for ulcers, tested

for gall bladder, etc. etc.  Finally, he told me it was stress.  Well I've

been under a lot of stress at times but it never made me unable to swallow!

 When I told him I had lost 25 lbs. in three months, he said " well, you are

looking good. "  It got so bad, I told the doctor I thought I needed to be

medivac'd to the U.S.  He said " but we haven't been able to find anything wrong

with you. " I said " That's why I

want to go back to the U.S.! "  This doctor's attitude was that once they had

ruled out cancer (I had a barium swallow and endoscopy), it was all in my head.

Within three weeks of my arrival in the U.S. I was admitted for surgery for my

myotomy and fundoplication.  It turns out the very first barium swallow I had

in Uruguay showed that most of the barium was stuck in my esophagus.  Of

course, I had a manometry before the diagnosis was made.  The manometry was

very uncomfortable for me, but when the doctor told me I had achalasia, it was

one of the happiest moments I had for months.  It meant I was not crazy and

something could be done for me.

________________________________

From: puddleriver13 <puddleriver13@...>

achalasia

Sent: Saturday, April 28, 2012 7:46 AM

Subject: Re: I got the results!

 

Steve, I hear ya! I've been pretty pissed at the GIs, too. But on the whole, I

*didn't* spend years waiting for the right diagnosis -- rather, I spent years

trying to cope with it myself. So I kinda understand where they're coming from:

they've set themselves up at the know-alls. And it usually works for them: they

find and diagnose and fix, and patients are grateful, and they earn a very good

living. Then *we* come along, they can't figure out what's happening, and it

makes them feel *really* inadequate -- so they do what most human beings do:

they wing it (i.e., make stuff up that *might* be true, and let ourselves off

the hook for our ignorance).

>

> Isn't a relief to know, rather than hear doctors' BS?

>

> A long time ago, my pediatrician wrote some crap about " stress " related to

achalasia in my records when I presented classic achalasia symptoms. As far as

I knew, my childhood was relatively care-free until achalasia presented itself.

>

> I knew something was wrong, and my " gut " feelings were validated by all the

testing.

>

> Steve

[Guest guest]

Good luck

 

Suzanne

From: Beatrice Soila <bandreino@...>

Subject: Re: Re: I got the results!

" achalasia " <achalasia >

Date: Saturday, April 28, 2012, 11:24 AM

 

Achalasia came on me rather suddenly...though when I think back I sometimes had

trouble swallowing things like doughnuts for years before.  I happened to be

working at the US Embassy in Montevideo at the time and our doctor was an

Anglo-Uruguayan.  All of a sudden I was wracked by horrible, painful spasms and

had to get up many times from the dinner table to clear my esophagus.  This

doctor's MO was to prescribe a drug and, if it didn't work, he eliminated the

disease he was treating as a diagnosis.  So, I got treated for ulcers, tested

for gall bladder, etc. etc.  Finally, he told me it was stress.  Well I've

been under a lot of stress at times but it never made me unable to swallow!

 When I told him I had lost 25 lbs. in three months, he said " well, you are

looking good. "  It got so bad, I told the doctor I thought I needed to be

medivac'd to the U.S.  He said " but we haven't been able to find anything wrong

with you. " I said " That's why I

want to go back to the U.S.! "  This doctor's attitude was that once they had

ruled out cancer (I had a barium swallow and endoscopy), it was all in my head.

Within three weeks of my arrival in the U.S. I was admitted for surgery for my

myotomy and fundoplication.  It turns out the very first barium swallow I had

in Uruguay showed that most of the barium was stuck in my esophagus.  Of

course, I had a manometry before the diagnosis was made.  The manometry was

very uncomfortable for me, but when the doctor told me I had achalasia, it was

one of the happiest moments I had for months.  It meant I was not crazy and

something could be done for me.

________________________________

From: puddleriver13 <puddleriver13@...>

achalasia

Sent: Saturday, April 28, 2012 7:46 AM

Subject: Re: I got the results!

 

Steve, I hear ya! I've been pretty pissed at the GIs, too. But on the whole, I

*didn't* spend years waiting for the right diagnosis -- rather, I spent years

trying to cope with it myself. So I kinda understand where they're coming from:

they've set themselves up at the know-alls. And it usually works for them: they

find and diagnose and fix, and patients are grateful, and they earn a very good

living. Then *we* come along, they can't figure out what's happening, and it

makes them feel *really* inadequate -- so they do what most human beings do:

they wing it (i.e., make stuff up that *might* be true, and let ourselves off

the hook for our ignorance).

>

> Isn't a relief to know, rather than hear doctors' BS?

>

> A long time ago, my pediatrician wrote some crap about " stress " related to

achalasia in my records when I presented classic achalasia symptoms. As far as I

knew, my childhood was relatively care-free until achalasia presented itself.

>

> I knew something was wrong, and my " gut " feelings were validated by all the

testing.

>

> Steve