Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Hello everyone. On this day I would like to thank the group for all of the support given to me and my son. My son name is Sullivan and he is 16, he was diagnosed at the age of 10. He has had one Heller and 19 dilations. This summer he will have another Heller to make it through his senior year. I usually read the post from my email daily but I do not respond I like to know whats going on and keep up with the new information. Take care, Monicqua- Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Hello Monicqua, Hope your son is doing well, I don't know if you ever looked at, or visited with the doc's we sent you last year.... I remember this one.. Hope you are doing well. Carolyn mom to Cameron Re: Esophageal Disease Center in Houston - Texas Open House  http://www.memorialhermann.org/locations/southeast/edc/achalasia.aspx Media Contact: Lynne Sullivant 713.242.4782 office 832.465.2234 cell FOR IMMEDIATE RELEASE MEDIA ADVISORY/PHOTO OPPORTUNITY Memorial Hermann Southeast Hospital Invites You to Attend Our Mix & Mingle Event WHAT: The Memorial Hermann Southeast Hospital Esophageal Disease Center, the most comprehensive diagnostic and treatment technology center for reflux and other esophageal diseases in Houston is hosting a Mix & Mingle. Our affiliated physicians and former patients will discuss treatment options for reflux and other esophageal diseases. WHEN: Thursday, August 18 6 p.m.- 7:30 p.m. WHO: All are welcome to join Dr. Farzaneh Banki, director, Esophageal Disease Center and Assistant Professor of Cardiothoracic and Vascular Surgery at The University of Texas Medical School Houston, and Dr. Michel Kafrouni, co-director, Esophageal Disease Center; along with affiliated physicians and former patients. WHERE: Memorial Hermann Southeast Hospital 11800 Astoria Blvd. Main Hospital Building, 1st Floor CES Houston, TX 77089 DETAILS: The state-of-the-art Esophageal Disease Center at Memorial Hermann Southeast Hospital provides diagnoses and treatments that are uniquely tailored to each patient. Patients with conditions that affect the upper GI tract, such as gastroesophageal reflux disease (GERD), often face a long and difficult road before receiving a diagnosis. Often, they must undergo tests at different facilities, wait a long time to find out the results, wait for a diagnosis and then begin treatment. Not anymore. The new Esophageal Disease Center, housed within the Endoscopy Center at Memorial Hermann Southeast Hospital, streamlines this process, offering endoscopic and surgical treatment options for diseases including Esophageal motility disorders, Gastroesophageal disease, Esophageal perforation, Tracheoesophegal fistula, Esophageal stricture, and Esophageal cancer. At the event, light refreshments will be served. RSVP to 713.222.CARE (2273) or email SEMarketing@... ### About Memorial Hermann Healthcare System An integrated health system, Memorial Hermann is known for world-class clinical expertise, patient-centered care, leading edge technology, and innovation. The system, with its exceptional medical staff and 19,000 employees, serves southeast Texas and the greater Houston community. Memorial Hermann's 11 hospitals include three hospitals in the Texas Medical Center, including a level 1 trauma center, a hospital for children and a rehabilitation hospital, as well as three heart & vascular institute locations and eight suburban hospitals. The system also operates an air ambulance, cancer, imaging and surgery centers, sports medicine and rehabilitation centers, outpatient laboratories, a wellness center, a chemical dependency treatment center, a home health agency, a retirement community and a nursing home. To learn more, visit www.memorialhermann.org, or call 713.222.CARE. From: Monicqua <monicqua2002@...> Subject: My son has achalasia achalasia Date: Wednesday, February 29, 2012, 6:21 PM  Hello everyone. On this day I would like to thank the group for all of the support given to me and my son. My son name is Sullivan and he is 16, he was diagnosed at the age of 10. He has had one Heller and 19 dilations. This summer he will have another Heller to make it through his senior year. I usually read the post from my email daily but I do not respond I like to know whats going on and keep up with the new information. Take care, Monicqua- Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 OMG....19 dilations! I didn't know they could do that many. Anyone know what the record number is? > > Hello everyone. > > On this day I would like to thank the group for all of the support given to me and my son. My son name is Sullivan and he is 16, he was diagnosed at the age of 10. He has had one Heller and 19 dilations. This summer he will have another Heller to make it through his senior year. I usually read the post from my email daily but I do not respond I like to know whats going on and keep up with the new information. > Take care, > > Monicqua- Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Monicqua wrote: > > ... My son name is Sullivan and he is 16, he was diagnosed at the age > of 10. He has had one Heller and 19 dilations. ... > That would be a dilatation every four months. If the time before each dilatation was a time of bad symptoms those must have been some tough years. How is his esophagus holding up? notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Mike, I also live near Phila, I was very disappointed when Dr. R moved to Tampa, I also wanted to make an appointment with him. Were you successful in finding a good GI Specialist in this area? Thanks. BC > > > > > > I just posted last week about my 15 y/o is dd having another > > > dilatation coming up. My fear is the weakness and possible tear of the > > > esophagus . No one has really answered me but kids with A are unusual. > > > I think I will go forward with the dilatation as she needs to eat and > > > see if we should get the HM repaired. So the amount your son has had > > > is interesting. Glad to hear he is doing great! > > > > > > > I would be interested in what Dr.Patti had to say when you talk to him. > > Did he think dilatations every three months was good? Did he think > > surgery would help and reduce the number of dilatation. Is all this time > > when needing dilatation taking a toll on the esophagus? As you said > > children can be different. > > > > notan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Oh my gosh - 19 dilations?? I can't even fathom that. I do hope this next Heller works for him!  God Bles  Kim A Wisconsin ________________________________ From: Monicqua <monicqua2002@...> achalasia Sent: Wednesday, February 29, 2012 8:21 PM Subject: My son has achalasia  Hello everyone. On this day I would like to thank the group for all of the support given to me and my son. My son name is Sullivan and he is 16, he was diagnosed at the age of 10. He has had one Heller and 19 dilations. This summer he will have another Heller to make it through his senior year. I usually read the post from my email daily but I do not respond I like to know whats going on and keep up with the new information. Take care, Monicqua- Texas Quote Link to comment Share on other sites More sharing options...
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