Re: Re: NCCP 's - Debbie's Article- Chest pains, heartburn, acid reflux, spasm pains, NCCPs...

[Guest guest]

Well some of us can but now all

From: achalasia [mailto:achalasia ] On Behalf

Of nailheader

Sent: Tuesday, April 17, 2012 8:51 PM

achalasia

Subject: Re: NCCP 's - Debbie's Article- Chest pains, heartburn,

acid reflux, spasm pains, NCCPs...

workgreat post on NCCP in achalasia.

just one caveat, however:

one can drive and work on opioid analgesics. in fact these meds, when

properly titrated to effect, improve life functions.

steve

[Guest guest]

Steve wrote:

>

> one can drive and work on opioid analgesics. in fact these meds, when

> properly titrated to effect, improve life functions.

>

Even if they had no effect on my driving I would not want to have to

defend myself in the state of AZ if police decided I had a problem being

on them while driving.

notan

[Guest guest]

I had my first bad stint of pain /spams last night at one week post op. manages

to finally settle it with short acting diltiazem and nitro spray but I wonder if

it is because I finished my Dilaudid prescription and am just on Tylenol and

ibuprofen?

Curious.

Jenn in canada

Sent from my iPhone

On Apr 18, 2012, at 8:25 AM, " bigbrillohead " <imahockeymom@...> wrote:

> There's a difference between using narcotics for chronic pain management and

occasional use for occasional flare-up pain. Likewise, there's a difference

between using narcotics for situations like osteoarthritis versus neuropathy. To

treat neuropathy with narcotics, you pretty much have to be high to take the

pain away -- the pain remains, but you're too high to care about it.

>

> If you're in the emergency room for an NCCP, they're not going to give you a

narcotic if you don't have someone to drive you home.

>

> Debbi in Michigan

>

>

> >

> > workgreat post on NCCP in achalasia.

> >

> > just one caveat, however:

> >

> > one can drive and work on opioid analgesics. in fact these meds, when

properly titrated to effect, improve life functions.

> >

> > steve

>

>

[Guest guest]

Debbi wrote:

>

> ... To treat neuropathy with narcotics, you pretty much have to be

> high to take the pain away -- the pain remains, but you're too high to

> care about it. ...

>

When I had my myotomy I was on a morphine pump but I had terrible

feelings in my hand from neuropathy. I had damaged a nerve in my

shoulder during the surgery by having my arm behind my head for too

long. The feeling in my hand was like the worst case of a hand waking up

from being " asleep " I ever had. It was much worse than the other pain

from the surgery. The morphine seemed to be doing nothing for it. It

slowly went away over three months. When I was injured last summer I was

extremely drugged with a number of drugs after the surgery but because

of the neuropathy in my feet I could not tolerate the feeling of even a

bed sheet touching my toes. The drugs did help with the other pain. I

would start begging for more long before they could give me more. Then

it would be much better again when I finally got some more but not the

neuropathy, except that it put space between my consciousness and the

neuropathic pain and I was sleepy enough I could sleep.

Not all achalasia NCCP are purely neuropathic though. Some are spasm

related and while the spasms may possibly be reduced by some other

medications the pain caused by the contractions may respond to

narcotics. Some NCCP are probably triggered by real events, such as

acid, that simulates sensory nerves but the signal from them is

distorted by neuropathy either as pain or in causing a spasm. A narcotic

may make the sensory nerves less sensitive so they don't trigger the

neuropathic response or stops them after they have started to signal.

If it were me I would want to try other options first. Some people don't

seem to find anything that works. I have to feel better about those that

are helped by narcotics than those that are helped by nothing. Just

wouldn't be my first choice. If narcotics for NCCP is the devil casting

out the devil then I am still for it.

The best thing about pain is the people who bring comfort. I count you

and your famous NCCP post in that context.

notan