Re: ACHALASIA: Chest pain and food getting stuck

[Guest guest]

Hi there

Sorry to hear your daughter is suffering again - it does sound like things are

getting worse again. She may need a couple of dilations to loosen the sphincter

out again.

Can I suggest she tries peppermint oil capsules for the spasms? It's a nice,

natural remedy which doesn't seem to cause any side effects, I take one whenever

I feel a spasm coming on.

Also, might be worth investigating magnesium for the same reason, the body

requires magnesium for proper muscle functioning and it may be that she's not

getting enough.

That's all I can offer in the way of advice, I hope she finds some easing of her

symptoms soon!

(Ireland)

>

> Hello folks, my 22 yrs old daughter had her HM surgery about a year ago and

was doing good except now she felt like the disease is coming back She is having

chest pains and every time she eats regardless of what she ate, she felt like

the the food is stuck on her throat. She runs to the bathroom and starts

coughing. Luckily, she have no bubble saliva like she used to have before HM.

She called the GI clinic @ Univ of Michigan Dr Scheimann and next appt is April

24th. Did anyone have same episodes and what do you think will be the next

procedure that will be suggested. She is taking a small dose of anti-depressant

to relax the esophgus (avoid spasm). They prescribed her NTG but she doesn't use

due to her graduating from college and wants to avoid severe headache as this is

one of the side effects.. I pray that the disease will not stop her from joining

the graduating class this coming April 29th. This is her big dream. Going up the

stage to get her diploma as a Recreational Therapy. I am a proud mom but a

nervous and so worried of what next will be..

> As a mother, I PRAY FOR A CURE FOR THIS DISEASE. I know there's hope. Thanks

>

[Guest guest]

bil45ohb wrote:

>

> ... Did anyone have same episodes and what do you think will be the

> next procedure that will be suggested. ...

>

Sometimes treatments begin to work less effectively. In the case of a

myotomy it could be that myotomy needs to be dilated or redone. It could

also be that there is some inflammation near the LES that has caused the

LES to be more of problem and cause the pain. The pain could also be

because of distention from the myotomy not working as well. As you can

see it can be hard to know. The first thing her doctor will probably

want to do is more tests.

There are a lot of discussion in the groups message base about

treatments failing and needing more treatments.

notan

[Guest guest]

thanks. I appreciate your input. I am very very worried and don't want anything

bad to happen to my only child. I will keep everyone in my prayers and hope for

a cure. Thanks again.

________________________________

From: notan ostrich <notan_ostrich@...>

achalasia

Sent: Tuesday, April 3, 2012 5:43 PM

Subject: Re: ACHALASIA: Chest pain and food getting stuck

 

bil45ohb wrote:

>

> ... Did anyone have same episodes and what do you think will be the

> next procedure that will be suggested. ...

>

Sometimes treatments begin to work less effectively. In the case of a

myotomy it could be that myotomy needs to be dilated or redone. It could

also be that there is some inflammation near the LES that has caused the

LES to be more of problem and cause the pain. The pain could also be

because of distention from the myotomy not working as well. As you can

see it can be hard to know. The first thing her doctor will probably

want to do is more tests.

There are a lot of discussion in the groups message base about

treatments failing and needing more treatments.

notan

[Guest guest]

Hi,

Yes, all of those symptoms sound familiar.

So many meds can be used to ostensibly relax LES pressure and NCCP, but many do

have side effects and few actually address the pain.

Gabapentin (Neurotin), Nifidepine are sometimes used with little effectiveness.

Chronic use of NSAIDs can be toxic and cause liver damage and esophageal

ulceration. Anti-depressants are notorious for their unpredictable side-effects

and rarely relieve pain.

Opioids, however, are safe with a proven track record efficacy and have no

maximal dose ceiling.

Unfortunately, there won't be a cure for achalasia. Managing the symptoms is

usually the best route to take.

Steve

>

> Hello folks, my 22 yrs old daughter had her HM surgery about a year ago and

was doing good except now she felt like the disease is coming back She is having

chest pains and every time she eats regardless of what she ate, she felt like

the the food is stuck on her throat. She runs to the bathroom and starts

coughing. Luckily, she have no bubble saliva like she used to have before HM.

She called the GI clinic @ Univ of Michigan Dr Scheimann and next appt is April

24th. Did anyone have same episodes and what do you think will be the next

procedure that will be suggested. She is taking a small dose of anti-depressant

to relax the esophgus (avoid spasm). They prescribed her NTG but she doesn't use

due to her graduating from college and wants to avoid severe headache as this is

one of the side effects.. I pray that the disease will not stop her from joining

the graduating class this coming April 29th. This is her big dream. Going up the

stage to get her diploma as a Recreational Therapy. I am a proud mom but a

nervous and so worried of what next will be..

> As a mother, I PRAY FOR A CURE FOR THIS DISEASE. I know there's hope. Thanks

>