Re: Travel insurance?

November 21, 2001

We're so excited -- we've planned our first real trip ever with . She

was always in isolation and couldn't go anywhere, but now we're taking her to

San Diego. Seaworld, the San Diego Zoo, Legoland, the works.

My question is... how have you traveled with your kids? I've heard the words

" travel insurance " and wondered what it's about. It would be $100 for each of

the three of us to change our airline tickets, and what if she (odds are

supremely high!) gets sick right before we're supposed to go? Is there some

way to make sure we don't lose a ton of money on flights and hotel, etc.?

I surfed the net for a bit looking in vain, but thought I'd do better

consulting the " experts " here before wasting any more time.

Thanks -

(mom to , age 2-1/2, polysaccharide antibody def, IgA def)

November 21, 2001

Hi ,

On the few occasions that I have traveled with my son, I have asked the Ped

for medication just in case. He knows me well enough to know that I will

only use them if necessary. I didn't want to be far away from home, with a

doc who doesn't know about my son--or worse yet, thinks I am just being

hysterical. Just an idea for you.

Also, I have always visited the Peds office right before we leave, just in

case he spots something that could be a problem.

Sandi, Mom to , age 8 suspected IgA def., chronic sinusitis, ear

infections, severe allergies. 9 surgeries.

November 21, 2001

Our pediatrician won't let us travel anywhere with Kody if he isn't on an

antibiotic while we are gone. I also make an appointment wiht our doctor the

day before we are scheduled to leave, just so that he can see Kody one last

time before we go. Also, our ped. gave us a protocol to follow while gone. If

Kody gets sick, I call him first, then because by this time he knows that I

know it is a sinus infection, ear infection, etc, and he will call in either

a change of prescription for me, or direct me to a local emergency room,

where he will call to give Kody's history before we get there and then he can

be talking to the doctors in the ER to guide them in treating Kody. I am not

sure about the extra insurance. I never paid for it, figured my health

insurance is good away from home, but I think maybe flying if it guaranteed

your reimbursement or rescheduling of tickets in case of cancellation it may

be worth it.

Diane, Mom to Kody, IgG subclass def. 2 & 3, Di Syndrome (?), seizure

disorder, asthma, GERD, acute sinus disease. Osteomylitis 2/2000, 4 sets ear

tubes, port placement 1/2001, tonsils and adenoids 5/2001, IVIG since 6/2000.

November 24, 2001

Hi , My husbands family now lives in San Diego. We went last year and

stayed at the Pacific Palisades Resort for 2 nights and listened to a sales

pitch we got tickets into Legoland and some meal discounts and lodging for

the four of us. I believe it was. $139.00. It was a great deal you do have

to be strong not to purchase because it is very tempting. The resort is

directly across the street from legoland and we walked over. The tickets

alone into legoland are about $45 each so it was well worth the deal. Also

go early in the morning we went at about 11 and we did not have time to play

and build at the end . It is absolutely wonderful. The best we have ever

done. Let me know if you are interested. Great Pool also. BARBIE

November 24, 2001