Re: Recently diagnosed and I have a few questions

[Guest guest]

Hi

I had a manometry test several years ago, I did not find it that bad. Only had

one time when I wanted to sneeze, just relax!

Feeling much better today after I found out how to manage it. No HM or

dilations. If you clean ot the e several times a day using a spit up glass,

using water, cold coke or hot coffee, believe this will help

for now and last thing before bed.Stand up when eating and walk, it will go

though!

Ray CA OC 81

>

> Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

>

> On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.

>

> Surgery is what they are recommended for me. I am a healthy forty-something

year old with a lot of life left to live. I'm almost willing to go anywhere for

the best surgeon but I would love to learn of a great one close by. Houston is

the closest, large city to me. Anyone know of a great surgeon in my area that

they'd recommend? Anyone know of surgeons to avoid in my area?

>

> Thanks to everyone for their time and assistance. It is much appreciated!

>

[Guest guest]

Hi,

I am in Pasadena, Tx. if you don't mind me asking, what is your location? And

who is your GI? I have had Achalasia since 1978, with my myotomy (surgery) in

1999.

Please feel free ask any questions, and if you want to call me send a email and

I will give you my phone number.

Best Regards,

Sharon Cline

> From: txboymomof1 <texasboymom@...>

> Subject: Recently diagnosed and I have a few questions

> achalasia

> Date: Sunday, June 24, 2012, 10:03 PM

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> Hi, I was recently diagnosed through a barium

> swallow test. Because I couldn't consume enough liquid

> to properly pass the barium I went to the ER several days

> later because the realization came that nothing was passing

> through to my stomach. What little opening I had, was now

> completely blocked. I was admitted for 3 days at which time

> they did an endoscopy and cleared over a liter of

> liquids/solids from my esophagus. It was obviously quite

> dialated. The muscle allowing food to pass to the stomach,

> spasms and completely refuses to allow food to pass. When

> it does open, it's still blocked 98-99%. Does anyone

> know if my esophagus will return to it's normal size?

> I'm on a liquid diet and have not had any trouble

> swallowing, nor have I thrown anything up since the

> procedure. I am also maintaining my weight, which I

> haven't done in several weeks.

>

>

>

> On Tuesday, I will be having a manometry. I am not looking

> forward to that! I'm new to the site but if there is an

> easy way to find other's accounts or experiences, please

> let me know.

>

>

>

> Surgery is what they are recommended for me. I am a healthy

> forty-something year old with a lot of life left to live.

> I'm almost willing to go anywhere for the best surgeon

> but I would love to learn of a great one close by. Houston

> is the closest, large city to me. Anyone know of a great

> surgeon in my area that they'd recommend? Anyone know

> of surgeons to avoid in my area?

>

>

>

> Thanks to everyone for their time and assistance. It is

> much appreciated!

>

>

>

>

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>

>

>

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[Guest guest]

Farzaneh Banki, MD from Memorial Hermann Southeast Esophageal Disease Center.

________________________________

From: txboymomof1 <texasboymom@...>

achalasia

Sent: Sunday, June 24, 2012 8:03 PM

Subject: Recently diagnosed and I have a few questions

 

Hi, I was recently diagnosed through a barium swallow test. Because I couldn't

consume enough liquid to properly pass the barium I went to the ER several days

later because the realization came that nothing was passing through to my

stomach. What little opening I had, was now completely blocked. I was admitted

for 3 days at which time they did an endoscopy and cleared over a liter of

liquids/solids from my esophagus. It was obviously quite dialated. The muscle

allowing food to pass to the stomach, spasms and completely refuses to allow

food to pass. When it does open, it's still blocked 98-99%. Does anyone know

if my esophagus will return to it's normal size? I'm on a liquid diet and have

not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.

Surgery is what they are recommended for me. I am a healthy forty-something

year old with a lot of life left to live. I'm almost willing to go anywhere for

the best surgeon but I would love to learn of a great one close by. Houston is

the closest, large city to me. Anyone know of a great surgeon in my area that

they'd recommend? Anyone know of surgeons to avoid in my area?

Thanks to everyone for their time and assistance. It is much appreciated!

[Guest guest]

Thanks! I will do some research on her.

>

> Farzaneh Banki, MD from Memorial Hermann Southeast Esophageal Disease Center.

>

>

>

> ________________________________

> From: txboymomof1 <texasboymom@...>

> achalasia

> Sent: Sunday, June 24, 2012 8:03 PM

> Subject: Recently diagnosed and I have a few questions

>

>

>

>  

>

> Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

>

> On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.

>

> Surgery is what they are recommended for me. I am a healthy forty-something

year old with a lot of life left to live. I'm almost willing to go anywhere for

the best surgeon but I would love to learn of a great one close by. Houston is

the closest, large city to me. Anyone know of a great surgeon in my area that

they'd recommend? Anyone know of surgeons to avoid in my area?

>

> Thanks to everyone for their time and assistance. It is much appreciated!

>

>

>

>

>

[Guest guest]

Thanks Ray. I'm trying to relax........ I appreciate the tips and words of

encouragement!

> >

> > Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

> >

> > On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.

> >

> > Surgery is what they are recommended for me. I am a healthy forty-something

year old with a lot of life left to live. I'm almost willing to go anywhere for

the best surgeon but I would love to learn of a great one close by. Houston is

the closest, large city to me. Anyone know of a great surgeon in my area that

they'd recommend? Anyone know of surgeons to avoid in my area?

> >

> > Thanks to everyone for their time and assistance. It is much appreciated!

> >

>

[Guest guest]

Dear healthy forty-something year old,

You will find out quickly as you read the posts here as well as from the

doctors etc. you encounter, Achalasia has so many variations as to how it

takes it's course and progresses. For some it just happens suddenly and

others it progresses slowly over time. Also, the symptoms can vary. My " A "

(as it's referred to here) progressed slowly over a 2.5 year period and

then suddenly, my LES (lower esophageal sphincter) totally gave out. From

what I've read here on this group, seems like many got the spasms but I

never did. I had my Heller Myotomy with Toupet Fundoplication this past

January and happy to say that I think I'm doing great. I can eat anything

provided that I do not take large bites, chew thoroughly and drink a little

when I swallow. Food still goes into my stomach a bit slower but it does.

Anyone with " A " even after surgery will never be 100% " normal " . Although,

some patients even after surgery, still have many issues but I don't know

why. Could be many reasons. Surgeon was inexperienced; or maybe the patient

just didn't heal properly after the surgery (developed scar tissue). Many

others in this group might be able to shed some more light on that. For

certain, you MUST follow the nutritional guidelines for post-surgery

because it is so important that you do not disrupt the healing process.

I could highly recommend my surgeon here in New York. He definitely helped

save my life. It is so difficult to attribute one specific factor to the

successful outcome of someones battle with Achalasia. Good surgeon, proper

healing, fate? Who knows? I consider myself to be extremely fortunate. My

surgeons name is Dr. Ashutosh Kaul. He is the Director of Minimally

Invasive Surgery at Westchester Medical Center and Professor at New York

Medical College. Best of Luck to you,

(from New York's Hudson Valley)

[Guest guest]

Welcome ...

>On Tuesday, I will be having a manometry. I am not looking forward to that! I'm

new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.<

The manometry can take a bit of time. I was bored out of my mind.

Bring a magazine with you ....

My attitude going into it was " they have this figured out and know

what they're doing " and that relaxed me and it was really no big deal.

Root canal is far, far worse. It's a little uncomfortable but no big

deal.

Best of luck,

Pat

[Guest guest]

I found it to be very stressful and painful. I got

through it and 3 or 4 previous ones. Bottom line

is if you one of those that find it painful, you

will get through it. And if you are one of the

lucky ones that have little problem, it should

go quick. Don't forget to breath. Look at it

as a right of passage, eh! Good Luck!

Sent from my iPod

On Jun 26, 2012, at 21:00, dcblogs administrator <dcblogs@...> wrote:

> Welcome ...

> >On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.<

>

> The manometry can take a bit of time. I was bored out of my mind.

> Bring a magazine with you ....

>

> My attitude going into it was " they have this figured out and know

> what they're doing " and that relaxed me and it was really no big deal.

> Root canal is far, far worse. It's a little uncomfortable but no big

> deal.

>

> Best of luck,

> Pat

>

[Guest guest]

Dr. Maish formerly with UCLA is up in the Fremont area. Excellent doctor!

510.248.1400

> >

> > Farzaneh Banki, MD from Memorial Hermann Southeast Esophageal Disease

Center.

> >

> >

> >

> > ________________________________

> > From: txboymomof1 <texasboymom@>

> > achalasia

> > Sent: Sunday, June 24, 2012 8:03 PM

> > Subject: Recently diagnosed and I have a few questions

> >

> >

> >

> >  

> >

> > Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

> >

> > On Tuesday, I will be having a manometry. I am not looking forward to that!

I'm new to the site but if there is an easy way to find other's accounts or

experiences, please let me know.

> >

> > Surgery is what they are recommended for me. I am a healthy forty-something

year old with a lot of life left to live. I'm almost willing to go anywhere for

the best surgeon but I would love to learn of a great one close by. Houston is

the closest, large city to me. Anyone know of a great surgeon in my area that

they'd recommend? Anyone know of surgeons to avoid in my area?

> >

> > Thanks to everyone for their time and assistance. It is much appreciated!

> >

> >

> >

> >

> >

[Guest guest]

Oops....I intended to send this info to the SF gu.y with swallowing problems!

Best of luck to you

> > >

> > > Farzaneh Banki, MD from Memorial Hermann Southeast Esophageal Disease

Center.

> > >

> > >

> > >

> > > ________________________________

> > > From: txboymomof1 <texasboymom@>

> > > achalasia

> > > Sent: Sunday, June 24, 2012 8:03 PM

> > > Subject: Recently diagnosed and I have a few questions

> > >

> > >

> > >

> > >  

> > >

> > > Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

> > >

> > > On Tuesday, I will be having a manometry. I am not looking forward to

that! I'm new to the site but if there is an easy way to find other's accounts

or experiences, please let me know.

> > >

> > > Surgery is what they are recommended for me. I am a healthy

forty-something year old with a lot of life left to live. I'm almost willing to

go anywhere for the best surgeon but I would love to learn of a great one close

by. Houston is the closest, large city to me. Anyone know of a great surgeon

in my area that they'd recommend? Anyone know of surgeons to avoid in my area?

> > >

> > > Thanks to everyone for their time and assistance. It is much appreciated!

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thank you. I'm going to give her office a call tomorrow.

________________________________

From: ek.lynn <sanjoora@...>

achalasia

Sent: Thursday, July 5, 2012 6:27 AM

Subject: Re: Recently diagnosed and I have a few questions

 

Oops....I intended to send this info to the SF gu.y with swallowing problems!

Best of luck to you

> > >

> > > Farzaneh Banki, MD from Memorial Hermann Southeast Esophageal Disease

Center.

> > >

> > >

> > >

> > > ________________________________

> > > From: txboymomof1 <texasboymom@>

> > > achalasia

> > > Sent: Sunday, June 24, 2012 8:03 PM

> > > Subject: Recently diagnosed and I have a few questions

> > >

> > >

> > >

> > >  

> > >

> > > Hi, I was recently diagnosed through a barium swallow test. Because I

couldn't consume enough liquid to properly pass the barium I went to the ER

several days later because the realization came that nothing was passing through

to my stomach. What little opening I had, was now completely blocked. I was

admitted for 3 days at which time they did an endoscopy and cleared over a liter

of liquids/solids from my esophagus. It was obviously quite dialated. The

muscle allowing food to pass to the stomach, spasms and completely refuses to

allow food to pass. When it does open, it's still blocked 98-99%. Does anyone

know if my esophagus will return to it's normal size? I'm on a liquid diet and

have not had any trouble swallowing, nor have I thrown anything up since the

procedure. I am also maintaining my weight, which I haven't done in several

weeks.

> > >

> > > On Tuesday, I will be having a manometry. I am not looking forward to

that! I'm new to the site but if there is an easy way to find other's accounts

or experiences, please let me know.

> > >

> > > Surgery is what they are recommended for me. I am a healthy

forty-something year old with a lot of life left to live. I'm almost willing to

go anywhere for the best surgeon but I would love to learn of a great one close

by. Houston is the closest, large city to me. Anyone know of a great surgeon

in my area that they'd recommend? Anyone know of surgeons to avoid in my area?

> > >

> > > Thanks to everyone for their time and assistance. It is much appreciated!

> > >

> > >

> > >

> > >

> > >