Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Welcome . You've found a great site with great people. I only manage to read the posts in spurts, so please excuse the delay in reading and responding to your message. My son, Kenny, was originally diagnosed with Pfapa and later tested for the genetic disorders (thanks to the info on the files here) and found positive for Traps. Kenny's fevers began on his 1st b-day, and he had about 14 episodes the next year or so, but they were not as predictable as with Pfapa fevers. They were 30 days apart...then 52 days apart...then 3 months apart. With Traps, episodes are triggered by physical or emotional stress. Any changes to routine -- all vacations, plane trips, start of preschool, etc., set off a fever. The knee pain was far more prevalent than the fevers. He often complained of pain in his knees, his feet, his hands, and his stomach. Later, he began experiencing pain in his eyes. It's very important to have the genetic testing, as the treatments for Pfapa and the genetic fever disorders are not the same, and there are potential side effects to some of the other disorders that should be closely monitored. Charyn, mom to Kenny 4, with Traps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Thanks so much for the warm welcome and words of encouragement. I am on day three and all is well. I know that I have a long road ahead; but as each day passes it gets a little easier. It feels great knowing that I am making a positive change in my life. The headaches have subsided thank heavens. I have been doing really well with water and lemon. I also went out and purchased Crystal light. I have to force myself to drink water. I have a 32 ounce bottle and I fill it twice a day that way I know I am getting at least the minimum amount. Plus I carry a bottle to the gym with me. The overall change hasn't been bad. I have a slight head cold but overall I feel great. Blessings to you. in Savannah > > > > Good Morning Ladies, > > > > My name is and I am new to the group. I just started the BFL program on yesterday. > > > > Surprisingly, I felt great all day. I did have a headache last night but I think that was from caffeine withdrawal. I am used to gulping Pepsi at an alarming rate. I am so proud of myself because I didn't have a craving all day. > > > > Any suggestions would be greatly appreciated. My goal is to lose 145 pounds over the next year, tone and gain muscle. > > > > Thanks and have a great day my sisters. > > > > Peace and Blessings, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 > > > > I have to force myself to drink water. I have a 32 ounce bottle and I fill it twice a day that way I know I am getting at least the > minimum amount. Plus I carry a bottle to the gym with me. > , I, too, am not a big water drinker. In fact for years lived on Diet Pepsi and Zima alone <G>. I have noticed that as time progressed and I forced myself to drink the water that I crave it more and more and it does get easier to drink. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Just a random heads up in response to part of your post -- Some (definately not all, nor even most) people don't have a great response to the artificial sweeteners in Crystal Light. Plenty of people can drink it with no problem, but for some it will increase sugar cravings. If you notice that you start craving lots of sweet stuff, I'd cut out the Crystal Light and see if anything changes. I hate to make things harder for you when you're just starting, but I thought I'd point this out in advance! > > > > > > Good Morning Ladies, > > > > > > My name is and I am new to the group. I just started the > BFL program on yesterday. > > > > > > Surprisingly, I felt great all day. I did have a headache last > night but I think that was from caffeine withdrawal. I am used to > gulping Pepsi at an alarming rate. I am so proud of myself because I > didn't have a craving all day. > > > > > > Any suggestions would be greatly appreciated. My goal is to lose > 145 pounds over the next year, tone and gain muscle. > > > > > > Thanks and have a great day my sisters. > > > > > > Peace and Blessings, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Colleen, You are so right. Although, it has only been four days I drink it now without thinking. Actually I have had only 3 glasses of Crystal light since Sunday. Every day it gets easier and easier. Re: New To The Group > > > > I have to force myself to drink water. I have a 32 ounce bottle and I fill it twice a day that way I know I am getting at least the > minimum amount. Plus I carry a bottle to the gym with me. > , I, too, am not a big water drinker. In fact for years lived on Diet Pepsi and Zima alone <G>. I have noticed that as time progressed and I forced myself to drink the water that I crave it more and more and it does get easier to drink. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 hi -- hi. my name is laurel. live in jacksonville, florida. was diagnosed in fall 1990 although i was ill many months before. used to work for a big ad agency in chicago. left because of my illness. member of cfids.org as well as make a small monthly donation. started the miami study with procrit last year but they ran out of something needed for one of the tests and then i've been traveling a lot since then. spend a fair amount of my time in northern california as my dad died last year and my mom broke her wrist this past summer. have a variety of other diagnoses, such as orthostatic intolerance, fms (likely triggered from a car accident). i basically almost flat-lined on my tilt table test. i'm one of the about 30% who has gotten better since being ill. however, the past two years i've become the most ill since i first got sick. although not as ill as then. and frankly, my attitude is not great. tired of feeling weird, alone, etc. " relapse " has caused major problems in my marriage which leads to other stressors, such as fear of future. have three dachshunds, two cats, two fish tanks, and a cockatiel. hmm -- what else would you like to know? oh, I married 9 years ago and my husband is " tired " of my being ill. and if he knew that I would be this sick, he wouldn't have married me. adding just a bit of stress to my life. thankfully my doctor believes in the illness although he's not into the more alternative topics, such as candidiasis. however, i have military coverage through my husband and my doctor has been very emotionally supportive. specifically over the past two years, i've developed new symptoms -- such as breathing, heart stuff -- and re-experienced memory problems and cognitive issues. BEYOND frustrating. when I first got ill, I tried pretty much everything that was known at the time such as gamma-globulin, etc. but I quickly became immune to most everything. I had a doctor who was european and was very plugged into the alternative options. and I was macrobiotic for the first year, hung my dry-cleaning outside for a few days, etc. however, as I started to get better (probably never better than 70%) I got lax in taking care of myself. probably wanting to lead a normal life. I'VE COMMITTED THIS YEAR, 2005, to doing what I can to take care of myself -- clean diet, various treatments. I'm glad this list is here as it's a great way to bring myself up-to-speed on the various treatments, options now available. let me know what else you'd like to know, if anything. thanks, laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi, , Welcome to . You may recognize some of the characters here from Down-syn, like me and Timbo and a few others. Regards, Bob, as in Bob and Lynn from Plainsboro, Charlie's parents <<Hi, I'm mom to Simone - 4 1/2 with DS, Adam - 3, and Merin - 4 months. We live in NJ and I facilitate a DS Family Support Group in the Edison/Woodbringe Area. Glad to have found this group! >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi, , Welcome to . You may recognize some of the characters here from Down-syn, like me and Timbo and a few others. Regards, Bob, as in Bob and Lynn from Plainsboro, Charlie's parents <<Hi, I'm mom to Simone - 4 1/2 with DS, Adam - 3, and Merin - 4 months. We live in NJ and I facilitate a DS Family Support Group in the Edison/Woodbringe Area. Glad to have found this group! >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 -Hi Jer: Welcome!! I'm new here also and find this group to be wonderful!! Faye -- In 100-plus , " soartosuccess2004 " <soartosuccess2004@y...> wrote: > > > Hello...I'm new here...signed up a few days ago after weighing on my > new scales and having to face the fact that I had added 30 pounds to > my already ample body in the last year and a half. I was at my all > time high of 270 pounds. What a reality check! It has been easy to > fool myself that I was not really all that big...after all, all of > my stretchy knit clothes still fit . Surely my jeans are just > shrinking!!! Anyway, now I am serious. I have got to lose weight so > I am making daily menus, counting calories, and so far doing pretty > well. I am down to 265.7 Yeah! At least the scale is moving > downward. I have not started an exercise plan yet...I hate to > exercise, but I know I have to if I want to do this right and get > healthy. > > A little about me: I'm 38, married, have two daughters, and am a > teacher. > > I have really enjoyed reading the daily posts...I think this will > help me stay motivated, to be in touch with so many others who also > have a lot to lose. Thanks for being here! > > Jer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Welcome Jer. isn't amazing how it creeps on? I need to ban all stretchy pants lol New to the group Hello...I'm new here...signed up a few days ago after weighing on my new scales and having to face the fact that I had added 30 pounds to my already ample body in the last year and a half. I was at my all time high of 270 pounds. What a reality check! It has been easy to fool myself that I was not really all that big...after all, all of my stretchy knit clothes still fit . Surely my jeans are just shrinking!!! Anyway, now I am serious. I have got to lose weight so I am making daily menus, counting calories, and so far doing pretty well. I am down to 265.7 Yeah! At least the scale is moving downward. I have not started an exercise plan yet...I hate to exercise, but I know I have to if I want to do this right and get healthy. A little about me: I'm 38, married, have two daughters, and am a teacher. I have really enjoyed reading the daily posts...I think this will help me stay motivated, to be in touch with so many others who also have a lot to lose. Thanks for being here!JerWhen I hide myself from the world, I am also hiding myself from me.--------- from the old .com web site Daily MessageDon't forget to check our list's Files and Links pages for helpful weight loss information and loads of healthy recipes. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.300 / Virus Database: 265.6.9 - Release Date: 1/6/2005 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 265.6.11 - Release Date: 1/12/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 I have a DS in the navy, 20, I think undiagnosed ASD. Now that I see DS (4) and have read up on symptoms - and am much older & wiser ;-) He does pretty well with the structure, but has had problems with the authority stuff sometimes. He is not in combat, and is also not a high acheiver in the military, but he gets by. Has lots of problems managing money. Luckily they pay for his room/board/health care. D. Marie Ralstin- University of Oregon Graduate Teaching Fellow, Department of Sociology Native American Event Coordinator, Office of Admissions 717 PLC Hall Eugene, Oregon 97403 541-346-5071 dralstin@... d.ralstin@... http://gladstone.uoregon.edu/~dralstin/ Ending a sentence with a preposition is something up with which we should not put. - Winston Churchill When a well-packaged web of lies has been sold gradually to the masses over generations, the truth will seem utterly preposterous and its speaker a raving lunatic. - Dresden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Hi there, > > Hi, just found this group while looking for information about > Aspie's in the military. My son who is 19 and recently diagnosed > with AS wants to join the Marines. In order to do this he has to lie > about having the disorder, lie about having seen a psychiatrist and > lie during his 4 years in there and hope they don't find out else he > will be brought up on charges for making false statements. I must say that this does not sound sensible to me. Nobody is going to be able to hide that they have AS for 4 years. Why does he need to, or should he, lie about it? Autism is not a mental health issue, it is a social and communication difference which makes all sorts of situations a minefield. In this country, if someone were refused a job because of their disability, the employer would be prosecuted for discrimination. Surely you have similar laws in the US? in England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 I haven't heard of anyone who was formerly diagnosed that was in the military, but with the regimens, the schedules, and the intense focus on certain activities, for some Aspies, it is heaven on earth!!! I know that my son would thrive in the military, but like yours, he would have to lie his way through and I don't see him being able to do that… He is too black and white, right and wrong… Hey, doesn't that sound like what they are looking for in the military? I hope someday that they realize that they are culling some of the most efficient, most intelligent, and most focused individuals from their ranks… Perhaps then they will be more open!!! ~hugs~ Rabecca (who is proud of her family members who have served, and know more than a few of them have strong Aspie traits) > > Hi, just found this group while looking for information about > Aspie's in the military. My son who is 19 and recently diagnosed > with AS wants to join the Marines. In order to do this he has to lie > about having the disorder, lie about having seen a psychiatrist and > lie during his 4 years in there and hope they don't find out else he > will be brought up on charges for making false statements. He still > has trouble with consequences of actions. I know what he went > through in school with bullies and his frustration level caused him > to behave violently from time to time. He thinks the order and > structure of the military would be good for him and sees it as a > challenge. I'm freaking out. > > Has anyone else heard of an AS in the military and how they cope? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 This does not sound like a good situation, any way you look at it! Try to talk him out of it. Anne -- New to the group Hi, just found this group while looking for information about Aspie's in the military. My son who is 19 and recently diagnosed with AS wants to join the Marines. In order to do this he has to lie about having the disorder, lie about having seen a psychiatrist and lie during his 4 years in there and hope they don't find out else he will be brought up on charges for making false statements. He still has trouble with consequences of actions. I know what he went through in school with bullies and his frustration level caused him to behave violently from time to time. He thinks the order and structure of the military would be good for him and sees it as a challenge. I'm freaking out. Has anyone else heard of an AS in the military and how they cope? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 Bernstein wrote: > Dana, > > My 12 y/o aspie lies constantly.....when did you notice that trait? > > > Unfortunately my son is not a typical Aspie, because he lies > constantly to me. Louie (24, HFA/AS) tries lying sometimes too. But he's not really very good at it. And he's always really abashed when he's caught out. Annie, who loves ya annie@... -- Every person is responsible for all the good within the scope of his abilities, and for no more, and none can tell whose sphere is the largest. Gail Hamilton (1833-1896) - Humorist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 > > Bernstein wrote: >> Dana, >> >> My 12 y/o aspie lies constantly.....when did you notice that trait? >> >> >> Unfortunately my son is not a typical Aspie, because he lies >> constantly to me. > It is of course a myth that those with ASD cannot/do not tell lies (along with the myths that they don't have emotion or don't have a sense of humour). It may take them a while to cotton on to the fact that it is possible (and so it is in a strange kind of way something to 'celebrate' because it means they are developing), and their motivation for lying may be different (often because of their difficulties with working out/weighing up consequences). But they make exceptionally good liars because they do not have any of the non-verbal give-away signs we normally look for! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 > >> Dana, > >> > >> My 12 y/o aspie lies constantly.....when did you notice that trait? > >> > >> > >> Unfortunately my son is not a typical Aspie, because he lies > >> constantly to me. > > > > It is of course a myth that those with ASD cannot/do not tell lies (along > with the myths that they don't have emotion or don't have a sense of > humour). It may take them a while to cotton on to the fact that it is > possible (and so it is in a strange kind of way something to 'celebrate' > because it means they are developing), and their motivation for lying may be > different (often because of their difficulties with working out/weighing up > consequences). But they make exceptionally good liars because they do not > have any of the non-verbal give-away signs we normally look for! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 BINGO...I found one. http://www.autismtoday.com/lying.htm Thanks, Mandy > > >> Dana, > > >> > > >> My 12 y/o aspie lies constantly.....when did you notice that > trait? > > >> > > >> > > >> Unfortunately my son is not a typical Aspie, because he lies > > >> constantly to me. > > > > > > > It is of course a myth that those with ASD cannot/do not tell lies > (along > > with the myths that they don't have emotion or don't have a sense > of > > humour). It may take them a while to cotton on to the fact that it > is > > possible (and so it is in a strange kind of way something > to 'celebrate' > > because it means they are developing), and their motivation for > lying may be > > different (often because of their difficulties with working > out/weighing up > > consequences). But they make exceptionally good liars because they > do not > > have any of the non-verbal give-away signs we normally look for! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Mandy, I really liked how this article presented the topic! Tyler still doesn't lie outright, but he has just recently tried to start manipulating the facts... unsuccessfully, but perhaps it is a milestone! ~laughing~ Rabecca > > > >> Dana, > > > >> > > > >> My 12 y/o aspie lies constantly.....when did you notice that > > trait? > > > >> > > > >> > > > >> Unfortunately my son is not a typical Aspie, because he > lies > > > >> constantly to me. > > > > > > > > > > It is of course a myth that those with ASD cannot/do not tell > lies > > (along > > > with the myths that they don't have emotion or don't have a sense > > of > > > humour). It may take them a while to cotton on to the fact that > it > > is > > > possible (and so it is in a strange kind of way something > > to 'celebrate' > > > because it means they are developing), and their motivation for > > lying may be > > > different (often because of their difficulties with working > > out/weighing up > > > consequences). But they make exceptionally good liars because > they > > do not > > > have any of the non-verbal give-away signs we normally look for! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 sorry i am full of stuipd questions today what is aspergers rabecca_whalen <rabeccawhalen@...> wrote: Mandy,I really liked how this article presented the topic! Tyler still doesn't lie outright, but he has just recently tried to start manipulating the facts... unsuccessfully, but perhaps it is a milestone!~laughing~Rabecca> > > >> Dana,> > > >>> > > >> My 12 y/o aspie lies constantly.....when did you notice that > > trait?> > > >>> > > >>> > > >> Unfortunately my son is not a typical Aspie, because he > lies> > > >> constantly to me.> > > >> > > > > > It is of course a myth that those with ASD cannot/do not tell > lies > > (along > > > with the myths that they don't have emotion or don't have a sense > > of > > > humour). It may take them a while to cotton on to the fact that > it > > is > > > possible (and so it is in a strange kind of way something > > to 'celebrate' > > > because it means they are developing), and their motivation for > > lying may be > > > different (often because of their difficulties with working > > out/weighing up > > > consequences). But they make exceptionally good liars because > they > > do not > > > have any of the non-verbal give-away signs we normally look for!> > > > > > from isla+ paris 2 1/2may you have a wonderfull day and keep your head up high ALL-NEW Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 << Can anyone tell me about Autism Support Fund or Natural Support Waiver? Who do I contact? >> Thanks to Dees for the following information: _________________________________________ The Natural Supports Waiver program is a part of the MRWP waiver program and was developed just a few years ago as a more flexible Family support waiver. This is the info on both. See the paragraph on Natural Support Enhancement. The amount of this waiver is less but it is a way to start receiving some services and with it looking like there will be some waiver slots approved in the budget for next year this is the time to call the Regional Board or Columbus Community to get on the list! For those who want to call and get on the waiting list for waiver supports: Phone number for Metro Regional Board is (770)-414-3052 and Columbus Community is (770) 938-5310. Mental Retardation Medicaid Waiver Program (MRWP) The Division of Mental Health / Developmental Disabilities / Addictive Diseases Administers a waiver program called the Mental Retardation Medicaid Waiver Program (MRWP). The MRWP has a menu of different services within it. The average cost of the MRWP is $20,400 per person. Services Available Under the Mental Retardation Medicaid Waiver Residential Options Residential Training and Supervision - This service is provided in an agency operated site like a group home or personal care home. It is usually a 24 hour /7 day a week service. The training offered is tailored to the individual consumer. It can include training in self care (dressing, bathing, tooth brushing, hair care, etc), independent living skills (cooking, shopping, vacuuming, laundry, making the bed, etc), communication skills (answering the telephone, understanding multi-step instructions, answering questions, carrying on a conversation, etc), leisure skills (exercising, going to the park, playing sports, accessing community recreational facilities like movies, game rooms, etc), enhancing self direction (making choices, decreasing inappropriate behaviors, etc) Personal Support - This can be a similar service to Residential Training and Supervision, but it occurs in the family’s home or the individual’s own home. It can also be an a home provider’s home. Personal support can be from 1-24 hours a day depending upon what the individual needs. Personal support can provide the same training opportunities as Residential Training and Supervision. Day Services Options Day Habilitation – This is a service that is offered in a facility or in the community. It is non-work in nature. It can target training in the areas of communication skills, social skills, leisure skills, mobility skills, or self help skills. There is a daily rate or an hourly rate. Day Support Services – This service option has several variables. It can be 30 hours of community based day habilitation activities. It could offer 20 hours of facility based services and 20 hours of community based services. It could offer 60-120 hours of facility based services with 6-12 hours of that being community based services. Day Support Services can be a combination of day habilitation, prevocational, or supported employment. Supported Employment – This service offers individuals the opportunity to work a minimum of 80 hours a month in the community. It can provide job development, job coaching, and long-term follow-up to make sure the job is going well. Other Support Services Specialized Medical Supplies – This can provide a range of supplies such as disposable diapers, chux pads, latex gloves, wipes, disinfectant cleaners, etc. There is a yearly cap of $1,659.84. Specialized Medical Equipment – This service can provide equipment that is not otherwise covered by Medicaid. It might include certain types of bath chairs, ceiling track lift systems, communication systems, customized molded chair seats, etc. There is a $13,474.76 lifetime cap. Personal Emergency Response Systems – The waiver will pay for installation and the monthly fee for a lifeline type emergency response system. Environmental Modifications – The waiver can pay for home modifications that are not permanent structures. It could pay for a ramp, widening of doorways, etc. There is a $10,400 lifetime cap. Vehicle Adaptation - This service can pay for vehicle adaptations such as wheelchair brackets, special seat belt harnesses, portable ramps. There is a cap of $3,120 which means it usually is not enough to pay for a wheelchair lift. Respite Care – The waiver will pay for up to 52 days a year of respite care. The Respite can be done in the person’s home or away from home. Respite can be done on a daily or hourly basis. Home Based Services - The regular state Medicaid plan covers some of these services, but if a person receiving the waiver needs more than is offered in the regular state Medicaid plan then they can receive them through the waiver. This could include up to 290 visits a year of any combination of skilled nursing, physical therapy, occupational therapy, speech therapy, or home health aide. Natural Support Enhancement – This is a new service under the waiver. It can pay for supports for the individual to become more linked into their community. For example, it could pay for a YMCA membership, an art class, swimming lessons, or karate classes. It could pay for a support person to go along to assist the individual so they could participate in the activity. If the person is a sports fan, it could pay for tickets so they could attend the sporting event. It can also pay for in-home supports so other people are more familiar with the care involved other than just family. It can pay for respite care without the 52 day limit. It is a flexible service that is targeted at getting people out into the community. Natural Support Therapies – If a person needs special therapies or behavioral or nutritional interventions, it can be paid for through Natural Support Therapies. For example, if you needed a speech therapist to teach the Sunday School teacher how to use the communication system, it could be funded through this service. If you needed a physical therapist to work with the YMCA swimming instructor to show them how to support a child with cerebral palsy in the swimming pool, it could be paid for through this service. If a person had challenging behaviors and you needed someone with expertise in behavior support plans, it could be arranged for and paid through Natural Support Therapies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 My son was diagnosed at 7 with ADHD and the more time that went by the more I kept telling people there was "more" going on with him. It was not until I quit my job to stay home with my second child 4 years ago that I sat down an started to find out what the "more" really was. He had really bad sensory issues as a young child and many social issues in pre-school as well as early elementary. Teacher comments were all mentioning empathy, friendship, rigidity issues and so on all through the years starting at 3 and 4. It was his first grade teacher that pushed for the ADHD diagnosis (because he was throwing himself on the floor and having a full blown tantrum when things did not go the way he wanted them to). I got that diagnosis through a full neuro-psych between 1st and 2nd grades. However the report noted all the red flags for AS just not mentioning AS by name. I pushed for a speech and language eval between 3rd and 4th because I still had concerns and had the same results, all the indicators of AS but not mentioned by name, just a "verbal note" written by me that said she asked that I have him evaluated for a PDD. With a new baby at home I went to the school for help, they brushed me off, told me that they did not see any other disorder other than ADHD in him and I thought at the time "they are the professionals". He was then diagnosed with an unrelated rare hormone disorder and I got side tracked with him medical issues. The medical issues showed me that I had to be the one who "knew what they were doing" and needless to say, with this new attitude towards research and advocating, my 11 year old son finally received his AS diagnosis 2 weeks ago tomorrow. NOW, for the first time ever, I "get" my son! It's a good feeling. Funny thing is that the school fully "agrees" with this as being a "very accurate" diagnosis for him, lol. BTW, Naomi, I am from MA living in So. NH for the past 6 years......where are you? -Charlotte New to the group Hello All,I'm new to the group and thought I'd introduce myself. My name is Naomi and I am the parent of 5 children, ages 18 down to 6 years of age. My three youngest have been dx'd with Asperger's. For the person that asked, what ages were your children diagnosed; My 1st was dx'd at age 8 (13 now), second son dx'd at age 6 (8 now) and a daughter was just dx'd at age 6. The 13 year old had difficulties from an early age. Orginal diagnosis was ADHD and I knew it was wrong.Through the years, and my education of Asperger's and how to negotiate all the systems, I have become a Parent Advocate. I keep as active as I can in the schools, PAC group and continue my education through various workshops offered in the area.That is my short story. I love my children and wouldn't trade them for anything in this world. I do find them challenging at times, but never boring. ;-)I'm looking forward to this group and your posts. Thanks for having me.NaomiMass area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 In a message dated 3/26/2005 9:39:45 A.M. Central Standard Time, islaparis@... writes: hi and welcome to the group my son paris who is2/9months is still waitg for diagoned Thanks for the welcome :-) Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Welcome to the group Geri! My oldest son who is 13 has AS and was diagnosed with it at age 11. Your description of him is pretty close to a description of my son. Except my son has no friends at school. But he does the hand flapping alot, and he can be pretty agumentive. He's all around though a good kid and doesn't get in trouble at school or anything. The problems are more at home. I am just concerned about his socializing skills. I am also fairly new to the group too, and really enjoy it here, these women are such a help to me, and an inspiration! Hope all goes well with your son and glad you have joined us. Geris5@... wrote: Hello all, my name is Geri and I have three wonderful kids still in the nest. My oldest still at home is my DS and he was diagnosed with Aspergers Syndrome. He is almost 11 and the older he gets the harder the social interaction with his piers becomes. His IQ seems to range from the 70's to the upper 90's. Depends on who is testing and how. He is a very sweet and delightful child. He is also very concrete in his thinking and words things in a very different way. He is our oldest child still at home. We have several grown children and are taking care of some of our grandkids as temporary foster children. My son seems to be maturing more with the other kids being here, but also seems to have reverted back to some arm flapping and pushing his palms together when he gets really happy. We had this behavior changed to a thumbs up or verbal "that's cool" for the last three years so his piers would feel more comfortable around him at school. He is mainstreamed at school with an IEP and a full time PARA. This was really hard for us to get and we had to go to due process to fight for it. That took almost 2 full years to win. He is doing better with 'normal' piers that with the severally mentally retarded children he was with in special education. He reads, writes, and spells at grade level. His math is a B, and all other grades are A's. He struggles some with some math, mainly the math questions. He doesn't understand the wording in the word problems, they don't make any sense to him. For the most part, he is a really sweet guy with a big heart, but lacks the understanding of what is and is not appropriate play with piers and smaller children. He can be very pushy, grabby (clothing) and bossy with other kids. Hope to get to know you all and learn from you. Thanks for reading this. Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 In a message dated 3/26/2005 4:50:53 P.M. Central Standard Time, shell.belle@... writes: Welcome to the group Geri! My oldest son who is 13 has AS and was diagnosed with it at age 11. Your description of him is pretty close to a description of my son. Except my son has no friends at school. But he does the hand flapping alot, and he can be pretty agumentive. He's all around though a good kid and doesn't get in trouble at school or anything. The problems are more at home. I am just concerned about his socializing skills. I am also fairly new to the group too, and really enjoy it here, these women are such a help to me, and an inspiration! Hope all goes well with your son and glad you have joined us. ************************************************************************** , Thanks for the warm welcome. My Logan is pretty argumentative to. His PARA says he argues with her constantly about everything. I have a better handle on him so he doesn't do that with me. He never did it with the PARA he had for the previous 3 years either. He would argue if there wasn't even a point to be made. Part of his disorder I guess. Does your son do the rocking to? Logan rocks and does it so stiffly. Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/ Quote Link to comment Share on other sites More sharing options...
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