Guest guest Posted June 18, 2006 Report Share Posted June 18, 2006 Thanks for the welcome .. does have language but he doesn't use it to communicate with us. Most of the time he is talking about something he heard on T.V or something we read him. If you ask him what he wants or just a question in general he won't answer or he will say something off the wall like ... your eyes are blue or your shirt is red. pkuenstler@... wrote: Welcome Brad and Celia. I am Pat the grandmother of a 13 year old autistic boy. I diagnosed him and have worked with him since he was three. I have him all day every day and adore him. When he was your sons age he used pinching as a form of communication. If he wanted to stop me from doing something that he didn't like, he would pinch me. All of us who worked with him wore long sleeves until he learned "hands quiet" or to say, "I want to go play" which got him out of any situation that was causing him anxiety. He still will sometimes reach over and pinch me gently when I am doing something that he doesn't like, but after years of scarred arms; I pretty well know when he is getting upset and can avoid it. Are you doing ABA with your son? Does your son have language? This is a good group; I am sure you will get some good suggestions from others or empathy. LOL, Pat K Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 -------Original Message------- From: CRYSTAL Date: 06/17/06 10:37:46 HI I have a 13 yro son with high functioning autism, we live in MN. His behaviors are driving me crazy. He has been a good kid, with some bumps here and there. Now, I think puberty is hitting him like a freight train. A few days ago I watched him crane his neck to watch a skimpy clothed girl walk by! Has anyone else experinced this one yet? Puberty-its scary! Thanks, Crystal ********************** This is normal for most 13 yo boys But yes, with a son who is nearly 12, the idea of puberty is scary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Avery is 9 and will be 10 in December. I don't even want to think about puberty. I am already going through it with my 13 year old daughter who does not have a dx. That is hard enough. :-) Hope StudentPineville, Louisianamsyogi@... Re: new to the group -------Original Message-------From: CRYSTALDate: 06/17/06 10:37:46HII have a 13 yro son with high functioning autism, we live in MN. Hisbehaviors are driving me crazy. He has been a good kid, with somebumps here and there. Now, I think puberty is hitting him like afreight train. A few days ago I watched him crane his neck to watch askimpy clothed girl walk by! Has anyone else experinced this one yet?Puberty-its scary!Thanks,Crystal**********************This is normal for most 13 yo boys But yes, with a son who is nearly 12,the idea of puberty is scary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 > > > > -------Original Message------- > > From: CRYSTAL > Date: 06/17/06 10:37:46 > > > HI > I have a 13 yro son with high functioning autism, we live in MN. His > behaviors are driving me crazy. He has been a good kid, with some > bumps here and there. Now, I think puberty is hitting him like a > freight train. A few days ago I watched him crane his neck to watch a > skimpy clothed girl walk by! Has anyone else experinced this one yet? > Puberty-its scary! > Thanks, > Crystal > > ********************** > This is normal for most 13 yo boys But yes, with a son who is nearly 12, > the idea of puberty is scary. > > > Kathy/Indiana be thankful that ur son is even looking at girls....(no offense) my son is 15yo & just been diagnosed with aspergers he has NO INTEREST in girls what so ever atm & i hear comments all the time " arent u worried that dustin will be GAY? " geez come on ppl we all mature at different lvls butyea just try to remember what it was like when u were his age....everything will work out but i dont worry that dustin will/will not be gay cuz no matter what...ive lived through all this misdiagnosis of add/social anxiety to now learning he has aspergers--it doesnt matter what dustin " IS " or " ISN'T " hes my son no matter what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Crystal, My son is 11 and we have already heard comments such as "oh man she is hot." It is very surreal to hear that come out of his mouth. Very funny stuff....... But hey...... they are human too...... LOL in Lancaster, CaCRYSTAL <mvlcrystal@...> wrote: HII have a 13 yro son with high functioning autism, we live in MN. His behaviors are driving me crazy. He has been a good kid, with some bumps here and there. Now, I think puberty is hitting him like a freight train. A few days ago I watched him crane his neck to watch a skimpy clothed girl walk by! Has anyone else experinced this one yet?Puberty-its scary!Thanks,Crystal __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 My daughter has already had boyfriends and so forth... You can't beat the boys off with a stick, she is very "normal" in that respect. My worry is that she has a hard time getting to what the reality of a situation is. She wants very much to be loved and so on and feel attractive. She also knows I had her brother at 16 and her at 19, she doesn't sit and think through what HER reality would be with that situation, she says oh it would be fine - you had us young... it is difficult at best. M Strahlendorf <pgnsht@...> wrote: Crystal, My son is 11 and we have already heard comments such as "oh man she is hot." It is very surreal to hear that come out of his mouth. Very funny stuff....... But hey...... they are human too...... LOL in Lancaster, CaCRYSTAL <mvlcrystal@...> wrote: HII have a 13 yro son with high functioning autism, we live in MN. His behaviors are driving me crazy. He has been a good kid, with some bumps here and there. Now, I think puberty is hitting him like a freight train. A few days ago I watched him crane his neck to watch a skimpy clothed girl walk by! Has anyone else experinced this one yet?Puberty-its scary!Thanks,Crystal __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 My 11 year old son (w/ asperger's) saw the commercial for the new Adam Sandler movie titled "Click It" and commented when he saw the very well endowed woman running in slow motion, "Man, now that's what I call sexy". I was tempted to ask him what he thought sexy meant but I decided I did not want to know. ~Jeanette Re: new to the group Crystal, My son is 11 and we have already heard comments such as "oh man she is hot." It is very surreal to hear that come out of his mouth. Very funny stuff....... But hey...... they are human too...... LOL in Lancaster, CaCRYSTAL <mvlcrystal@...> wrote: HII have a 13 yro son with high functioning autism, we live in MN. His behaviors are driving me crazy. He has been a good kid, with some bumps here and there. Now, I think puberty is hitting him like a freight train. A few days ago I watched him crane his neck to watch a skimpy clothed girl walk by! Has anyone else experinced this one yet?Puberty-its scary!Thanks,Crystal __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 M Strahlendorf wrote: > > > Crystal, My son is 11 and we have already heard comments such as " oh > man she is hot. " It is very surreal to hear that come out of his > mouth. Very funny stuff....... But hey...... they are human > too...... LOL > > in Lancaster, Ca > > CRYSTAL <mvlcrystal@...> wrote: > > HI I have a 13 yro son with high functioning autism, we live in MN. > His behaviors are driving me crazy. He has been a good kid, with some > bumps here and there. Now, I think puberty is hitting him like a > freight train. A few days ago I watched him crane his neck to watch a > skimpy clothed girl walk by! Has anyone else experinced this one > yet? When Louie was, oh, I guess about ten (give or take) he became a huge fan of Madonna. Why? His words: " She dances around in her underwear. " !! Autistic or not, guys are guys.... Annie, who loves ya annie@... -- " If you are distressed by anything external, the pain is not due to the thing itself but to your own estimate of it; and this you have the power to revoke at any moment. " -- Marcus Aurelius Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 At 02:49 PM 7/9/2006, you wrote: >I have not made a perfume yet but I am starting to collect ingredients and >I am looking for some classes in the So. Cal. area. Any ideas for classes? >I look forward to participating and listening as I get my feet planted in >the Natural Perfumery venue. >Peace, Hi Welcome to the group, I'm sure you'll love it here. You should check out the classes of our of our group members, JoAnne Bassett, in La Jolla. They're held on a regular basis. There's a link in the Calendar section of the www..com site, and there may be info on her site www.joannebassett.com As our Guild grows and moves forward, JoAnne is going to coordinate meetings, and I'll bet the first one is in Southern CA! > Anya http://artisannaturalperfumers.com The Artisan Natural Perfumers Guild http://.com The premier site on Natural Perfume / Biggest, most dynamic natural perfumery chat group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 > Hello my name is . > I am 20. > I am the child of Hippies. Hence I am one too. > I live in Long Beach, California. Hi , Welcome....I love southern Cal. I have a store, Le Bijou in La Jolla 2 blocks from the ocean. I eat lunch overlooking the water on most days....... I just had a Natural Perfume class on Saturday. The next one will be Aug 5. I do teach Meditation with essential oils and hydrosols. They are also great classes. People fly in for my classes and they certainly drive down from LA. I can drive to Long Beach in about 1 1/2 hours. I look forward to meeting you and sharing on the list. Happy blending...... JoAnne Le Bijou, a natural perfume boutique http://www.JoAnneBassett.com Bassett Aromatherapy products http://www.AromaWorld.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 My 2 year old daughter started getting recurring fevers at about 9 months old and was diagnosed with a fever syndrome at 18 months after consistently fevering at 104-106 for 5 days every 5-6 weeks. We have been using prednisone with the fevers since then. In addition to the fevers, usually Ella gets a sore throat and a runny nose (which runs clear and like a faucet) about two - three days before her fever starts and then abruptly stops about 12-24 hours before the fever starts. The prednisone has been a wonder for us. It breaks the fever within 2 hours and then she acts like she was never sick. The first couple of times we used the prednisone she acted kind of tipsy, almost drunk, and slept poorly, but that resolved itself by about the third fever. The prednisone made her fevers a bit less predictable, but they never came closer than 4 weeks apart. We have not had to use anything in addition to the prednisone, although we've used Motrin in combination with the prednisone for her sore throat. Ella's symptoms have actually seemed to have improved over the last year. Currently she is in a stretch where she has gone just over 4 months without a fever (which seems like a miracle!), however, she still gets the gushing, runny nose every 5-6 weeks consistent with when she would be " scheduled " to get her fever, but she has not had the fever or sore throat. We have never given her prednisone to treat the runny nose. You will find that many people have tried prednisone with mixed results. For some, like us, prednisone has really improved our daughter's quality of life. For others, the side effects of the prednisone prompted them to discontinue using it. Best of luck to you. It can be hard to know what to do. > > My daughter who is 18 months old was just diagnosed with in > June. She started having fevers when she was 12 months and they would > occur every 3-4 weeks. Her cycle seems to be classic but luckily she > has not exhibited any other symptoms except a high fever. We began > using Prednisone in July and here fever dropped in 2 hours and did not > recur again till 11 days later (yesterday). I have heard that > Prednisone will increase the frequency of the fever. > > Are there other parents who have used Prednisone and have not needed > any other medications or treatments? We are hopeful that this is the > trick but are concerned that as she gets older her symptoms will > become worse. We are used ot the high temps (103-105) but are fearful > of other symptoms. > > Look forward to hearing from others. > > Alyce Benson > Chattanooga, TN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Alyce, My daughter had her first fever just before her second birthday and was diagnosed with about 4 months later. She began taking prednisone about 10 months ago and she has just turned 3. The only symptoms she had early on were the extremely high fever and vomiting (when her fever peaked - usually in the middle of the night). It was only after she was referred to the ID docs that they began to notice the lesions in the back of her throat. Now, over a year after the first episode, she also complains of headache, stomach ache and joint pain. We've also noticed the clear runny nose just before an episode. Now we are also seeing a slight rash which seems to appear one to two days after her fever. Before the prednisone, the fevers were like clockwork, but they became very unpredictable once we began giving it to her. But, she never had a fever more than once a month until the end of May (actually the one year anniversary of the initial fever!). Since then, she has had a fever approximately every 9 days. And, the last fever on July 15th came back two days later. After a second dose of prednisone the fever is gone but she now has the rash I mentioned earlier. I have an apt. at our local Children's Hospital on Friday and I'm anxious to discuss these issues. Anyway, that is my daughter's story. Everyone's story is a bit different but sometime it helps to compare notes. I hope you continue to have luck with the prednisone. Best regards, Mother to (5) and Audrey (3 ) --- alyce_benson <abenson@...> wrote: > My daughter who is 18 months old was just diagnosed > with in > June. She started having fevers when she was 12 > months and they would > occur every 3-4 weeks. Her cycle seems to be > classic but luckily she > has not exhibited any other symptoms except a high > fever. We began > using Prednisone in July and here fever dropped in 2 > hours and did not > recur again till 11 days later (yesterday). I have > heard that > Prednisone will increase the frequency of the fever. > > > Are there other parents who have used Prednisone and > have not needed > any other medications or treatments? We are hopeful > that this is the > trick but are concerned that as she gets older her > symptoms will > become worse. We are used ot the high temps > (103-105) but are fearful > of other symptoms. > > Look forward to hearing from others. > > Alyce Benson > Chattanooga, TN > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 > > My daughter who is 18 months old was just diagnosed with in > June. She started having fevers when she was 12 months and they would > occur every 3-4 weeks. Her cycle seems to be classic but luckily she > has not exhibited any other symptoms except a high fever. We began > using Prednisone in July and here fever dropped in 2 hours and did not > recur again till 11 days later (yesterday). I have heard that > Prednisone will increase the frequency of the fever. > > Are there other parents who have used Prednisone and have not needed > any other medications or treatments? We are hopeful that this is the > trick but are concerned that as she gets older her symptoms will > become worse. We are used ot the high temps (103-105) but are fearful > of other symptoms. > > Look forward to hearing from others. > > Alyce Benson > Chattanooga, TN > I have also wondered about prednisone at times, but I am having good luck with it. My son is 3 and gets fevers as high as 106.7. For his last two bouts with this fever thing, his doctor gave him a single does of prednisone. The first time, it was liquid form, but my son kept throwing it up because the taste was so bad. Now each time they give him a shot instead. Does your doctor have her on it all the time, or only with the symptoms? a Blodgett Clovis, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Hello Alyce.... our son is now almost 8 and started fevering when he was 2 1/2 years old. We started using prednisone after about a year and a final diagnosis of . The prednisone still does control his fevers. When he first started fevering, his were every 14 days, but now they are down to every 26-30 days. So for him, the prednisone has not made the fevers come closer together. We have been fortunate. Really the only other symptoms our son gets is the yucky throat and quite abit of the time, he experiences leg pain, (not joint pain, but leg pain) right before the episode. We have again gone through so many tests, since he has been fevering for 5 years now, but still, seems to be the diagnosis. His fevers still do go up to 105.0 if we don't use prednisone, but his too are gone within a few hours after the prednisone is administered. Good luck to you, very frustrating, but our pediatrician keeps reassuring us that time is on his side, and the research does show most kids outgrow true . We'll see I guess. Patti, mother of Brady 7 > > My daughter who is 18 months old was just diagnosed with in > June. She started having fevers when she was 12 months and they would > occur every 3-4 weeks. Her cycle seems to be classic but luckily she > has not exhibited any other symptoms except a high fever. We began > using Prednisone in July and here fever dropped in 2 hours and did not > recur again till 11 days later (yesterday). I have heard that > Prednisone will increase the frequency of the fever. > > Are there other parents who have used Prednisone and have not needed > any other medications or treatments? We are hopeful that this is the > trick but are concerned that as she gets older her symptoms will > become worse. We are used ot the high temps (103-105) but are fearful > of other symptoms. > > Look forward to hearing from others. > > Alyce Benson > Chattanooga, TN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi Alyce. Welcome to the group! Depending on how your daughters diagnosis came to be and the severity of the disease, will determine if new symptoms occur or other treatments are needed. So glad you found this site and are making connections-that is so helpful!! Best of luck...lots of prayers, Lori Todaro Mom to Nino,7 with PFS. --- alyce_benson <abenson@...> wrote: > My daughter who is 18 months old was just diagnosed > with in > June. She started having fevers when she was 12 > months and they would > occur every 3-4 weeks. Her cycle seems to be > classic but luckily she > has not exhibited any other symptoms except a high > fever. We began > using Prednisone in July and here fever dropped in 2 > hours and did not > recur again till 11 days later (yesterday). I have > heard that > Prednisone will increase the frequency of the fever. > > > Are there other parents who have used Prednisone and > have not needed > any other medications or treatments? We are hopeful > that this is the > trick but are concerned that as she gets older her > symptoms will > become worse. We are used ot the high temps > (103-105) but are fearful > of other symptoms. > > Look forward to hearing from others. > > Alyce Benson > Chattanooga, TN > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Wow! The answer to that question should be interesting. Whomever has the right place, tell us all. Maybe we can all move there. We go to middle school next year and I'm perfectly willing to relocate. All I can say is I know there are " pockets " of areas where school are doing a good job, San Diego has one, Vermont has many, New Jersey has some, lin, TN. Whoever answers, please send it to us all. Eleanor _____ From: [mailto: ] On Behalf Of OpenArms Campaign Sent: Friday, September 01, 2006 5:16 PM Subject: new to the group Hi. I am new to the list. I have five kids and my youngest Wyatt has Down syndrome. I have a few questions for the group. He is going to be three in October and is scheduled to start a preschool program here in Texas. I visited two different school programs here and was not impressed. Wyatt is hard of hearing also, uses hearing aids, and is non verbal and none of the teachers signed. He does have a " hearing " therapist and she said she can teach the teachers a few signs but I would like a more intense program. I also am all for inclusion and so my question is this-if you could go to any program anywhere in the US, what would you choose? We are leaving here for a three month long RV trip and at the end we hope to have an idea where we will live and much of that will be based on his schooling. Thanks, Spread love everywhere you go. Let no one ever come to you without leaving happier. Mother please check out my website: www.PaintingsBy.com __________________________________________________________ Get the new Windows Live Messenger! http://imagine- <http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source= wlmailtagline> msn.com/messenger/launch80/default.aspx?locale=en-us & source=wlmailtagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 We are in the Poway Unified School District, which is in the greater San Diego area. So far so good here, we have pretty much gotten everything we think needs. The preschool program was a special day class with " reverse mainstreaming " , so there were typical kids in her class as well (though not that many). PUSD also offers a DHH class, where everyone signs, or you could choose a typical program like HeadStart with supports (supposedly). We did the special day preschool and received all her services there, plus academics, and then we chose to put her in the same church preschool that her sister went to (in addition to SDC), and there we only focused on classroom routine and social goals. The preschool provided an aide for her, and she did beautifully. It would have been great to have both at the same time, but it worked well for her. Once we transitioned to elementary school, she has been fully included witn a 1:1 aide. She has had the same aide since kinder, and they are like an old married couple in some ways :-) We (supposedly) can keep them together as long as the aide doesn't leave and we don't request a change. We have been through 3 principals at our elementary in the past 4 years (long story) but all have been supportive of our plans for . We have friends who also have a 3rd grader with DS at another school in the district, and he has had similar success with full inclusion. The district also offers NSH (non-severely handicapped) which do focus on academics with better student:teacher ratios, CS (critical skills), DHH (deaf and hard of hearing), ED (emotionally disturbed) and several different types of ASD programs. Not all schools offer all of the special ed programs (all the schools have a Resource teacher and Resource support), so if you choose a different program, you might have to go to a neighboring school. However, we have a large district and there are many schools, for example, that have a NSH class, so you woudln't have to be bussed to far (and transportation is provided if you are not at your home school). Also in the San Diego area, I understand that the La Mesa school district is very good for kids with IEPs, but I don't have any first-hand experience. I also know that many of our surrounding districts are AWFUL, so like anywhere, get lots of info before you choose your residence. Negatives of this area are that it's getting very expensive to buy a house here, but the weather is great so you don't have to spend so much of clothing........ my kids don't own jackets anymore..... just the hand-me-downs we keep around for camping....... shorts, T-shirts, jeans and sweatshirts and you're set! Get a pair of sneakers for school and flip flops for the rest of the time..... we found it quite easy to become Southern Californians (though your blood gets thin and your relatives laugh at you when you visit and Christmas and complain about how cold it is, LOL) , mom to (10..... 5 days of middle school and she's got a boy offering to carry her saxophone to band... YIKES!), (8 DS, having her BEST transition to school yet, knock on wood), and Sammy (6, playing her first big soccer tournament this weekend.... I don't know how to be a soccer mom but I'm learning fast!) Eleanor Green wrote: > Wow! The answer to that question should be interesting. Whomever has the > right place, tell us all. Maybe we can all move there. We go to middle > school next year and I'm perfectly willing to relocate. > > All I can say is I know there are " pockets " of areas where school are > doing > a good job, San Diego has one, Vermont has many, New Jersey has some, > lin, TN. > > Whoever answers, please send it to us all. > > Eleanor > > _____ > > From: <mailto:%40> > [mailto: > <mailto:%40>] On Behalf > Of OpenArms Campaign > Sent: Friday, September 01, 2006 5:16 PM > <mailto:%40> > Subject: new to the group > > Hi. I am new to the list. I have five kids and my youngest Wyatt has Down > syndrome. I have a few questions for the group. He is going to be > three in > October and is scheduled to start a preschool program here in Texas. I > visited two different school programs here and was not impressed. > Wyatt is > hard of hearing also, uses hearing aids, and is non verbal and none of > the > teachers signed. He does have a " hearing " therapist and she said she can > teach the teachers a few signs but I would like a more intense program. I > also am all for inclusion and so my question is this-if you could go > to any > program anywhere in the US, what would you choose? We are leaving here > for > a three month long RV trip and at the end we hope to have an idea > where we > will live and much of that will be based on his schooling. Thanks, > > Spread love everywhere you go. Let no one ever come to you > without leaving happier. > Mother > > please check out my website: www.PaintingsBy.com > > __________________________________________________________ > Get the new Windows Live Messenger! > http://imagine- > <http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source= > <http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source=> > wlmailtagline> > msn.com/messenger/launch80/default.aspx?locale=en-us & source=wlmailtagline > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 In a message dated 9/1/2006 5:02:57 PM Central Standard Time, eig@... writes: lin, TN. Whoever answers, please send it to us all. Eleanor Hi Heehee Im a new lin resident I'm really happy here with the education. Sara has a new teacher this year, she's been in Special Education for 28 years, some were as a Sped administrator ............ I really like that part, I hate dealing with teachers who are clueless to IDEA and the regs. This teacher has embraced Sara, her IEP and the whole mainstreaming that is going on here. I also want to BRAG on the kids here, even the Middle school boys .............. they are so sweet and friendly to Sara, we see them in all parts of our community so its not just on school grounds. Im really excited the girls don't look like Britney Spears want- a- b's like at Sara's old school, these girls seem to act their age and dress their age too. Now if I could just get used to the roads ...... curvy, hilly and NO shoulders. Im waiting for a deer to jump out at me. Kathy mom to Sara 14 ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ As for me and my house, we will serve the Lord. Josh. 24:15 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Hi Sue. Welcome to the group. Based on my daughter's experience, I would inform the school, if you think things could be bad enough to impact school. We chose not to tell my daughter's school when she was diagnosed in 8th grade. This year ended up being so much harder because we were playing catch up with everyone once things got really bad. Nothing was put in place ahead of time and things did not go smoothly. When my daughter started at her high school she was doing well, but we informed them ahead of time and she has a plan. Things really fell apart last year, and everything went so much smoother because everyone knew ahead of time and accommodations were already in place. It was so helpful. This year, my daughter is doing the best she has done in a long time, but her plan is still effective in case things turn around again. OCD can turn so quickly. My daughter also has recurrent depression so that doesn't help any. I would not take her out of her Honors classes. My daughter has maintained honors and AP classes, even when she was doing poorly and barely attending school. Her teachers have been understanding and work with her. When she is doing well, she needs these classes and your daughter probably does too. Good luck, Kim In a message dated 9/10/2006 9:32:33 AM Central Standard Time, smacheska@... writes: I feel now that I am just waiting every day for things to blow up - I question every day whether to tell the school or not - or wait to see how she does. She is in honors classes that I wanted to take her out of but she said no way - she worked hard to be in them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Hi Sue, My name is Kim and my daughter(15) was just diagnosed this summer as well but looking back we now know this has been going on for quite a long time. My husband also has the attitude " everything will be okay, she'll grow out of it " . I am struggling with telling the school as well because a lot of her ocd revolves around marks at school, she is also in an honours program. The thing is for us is that we live in a small town and people gossip. I worry if it leaks out that she will be teased at school and things would just be worse. We also have a younger child too that has been greatly affected by all that has gone on in the last couple of years. Our daughter has seen a counsellor once a week for the past summer and the referral to a psychiatrist has been made, just waiting to hear for an appt date. We have not started any meds yet, have to have psychiatrist assess first. I understand where you are coming from with all this new information and yes I agree we are so lucky to have found this site. Best wishes to you, your daughter and your family. Kim M > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 I think if she is doing well, why bother telling anyone. However, I did tell my son's teacher this year (he is in 6th grade) that he has anxiety and would just like a " heads up " if she sees the anxiety worsen at school. The reason I did this is because last year before his onset, his teacher at conferences told me that he seemed very anxious and I did not really see it at home and when I asked him, he said that he did not feel that anxious, but she saw it as something that was accelerating and was concerned. They see them under all of the pressure and often just knowing can help alot. Good Luck! smacheska <smacheska@...> wrote: Hi - My daughter was diagnosed with OCD this summer. She is 12 years old and is in 7th grade. We had some issues with her when she was in 3rd and 4th but never connected or was told that it may have been OCD back then. We went into therapy and she seemed to be fine after about 3 months. But now, 4 years later, we were hit with full on OCD with many of the typical obsessions. Things got so bad in such a short amount of time we were shocked (so was she). I think becuase it hit her so fast, it made it so much worse - within the first three weeks she was having severe panic attacks, couldn't get dressed, eat etc without having to count constantly. If she couldn't get to the right number, she would just cry, scream and end up breathing so hard and fast that we thought she would pass out. (since then we have learned that deep " yoga " type breathing really helps - now we just start and end each day with the breathing). We started therapy , however we did not see results right away and things were so bad that we were recommended to see a Psychiatrist. I really agonized over the medication, but we started (Zoloft). Right about the time we started the meds things were a little more in control. She started school and seems to do well with distractions (friends, the structure of school, craft projects etc). We are continuing the therapy (CBT with ERP) once a week for now. I am so gratefel to have found this group - I have spent a lot of time reading about the people like myself that feel alone, not knowing who to tell who to talk to and how to put the pieces of their life together in amongst the chaos. We have another child (5 yrs old) who has witnessed much more than he should have to - it is difficult to explain to him. My husband thinks everything will " be okay " . I feel now that I am just waiting every day for things to blow up - I question every day whether to tell the school or not - or wait to see how she does. She is in honors classes that I wanted to take her out of but she said no way - she worked hard to be in them. I feel like our life that was once so simple is now so complicated. Thank you to whoever started this group - any input on how schools react when they are told or who you told (nurse vs. guidance vs. principal etc) would be helpful. Sorry this was so long (belive me I could write much more) but this was therapeutic in itself. Sincerely, Sue --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Hi Sue, welcome! I have a son age 17 with OCD; his began back in 6th grade. I'm glad things have improved and she's in weekly therapy! We couldn't find a therapist in our small area but managed to get through it - more slowly I'm sure! - with the support of this great group and all the reading/research about OCD, etc. So far as telling the school...well, my thoughts are that she is managing now, correct? I think I would leave it up to her. Sit and chat about it, have her answer the " what if things suddenly get worse, remember how suddenly it came on...? " question; give your thoughts on why the school might be better told ahead of time, etc. I say leave it up to her as these are the " teen " years and self- esteem, what others think about you, etc., are just at that *important* time in teen lives. Now with my son, when OCD began in 6th grade it REALLY affected school, his ability to do his work, even write. So we immediately sought help at school and set up a 504 Plan for him (similar to an IEP, has accommodations/modifications for schoolwork). We used that Plan all through middle school. Then set up one for high school in 9th grade too. He's in 12th grade now and hasn't used any of the Plan these past years, but we've kept it in place since OCD does/can increase. His OCD began acting up again this year actually but he has managed it OK this time and hasn't used the Plan any. Has pretty much made all straight A's through high school, even with the honors classes. (I think all A's, but I might have forgotten a B here/there). If you do tell the school, we had to go through the guidance office, in middle school and high school. Gotta go! single mom, 3 sons , 17, with OCD, dysgraphia and Aspergers(autism-mild) > > Hi - My daughter was diagnosed with OCD this summer. She is 12 years > old and is in 7th grade. We had some issues with her when she was in > 3rd and 4th but never connected or was told that it may have been OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Sue, my daughter had a similar problem with her OCD affecting her writing. She would have to rewrite and rewrite a sentence and wouldn't be able to move on. We did have to get an accommodation for this at her high school. This is why I suggest telling the school because when these things affect school it is much easier to get an accommodation if they already know about it. We had to have a note from my daughter's doctor to get a plan, but the particular accommodations change throughout the year depending on what is going on with her. Good luck. Kim, (a different one than you had responded to) In a message dated 9/10/2006 9:42:31 PM Central Standard Time, smacheska@... writes: After talking to my daughter tonight it seems we may have to talk to the school - she has problems writing sentences without crossing things out and rewriting everything until it is perfect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 welcome Sue I would give the school a heads up -my dd is 7 and I called the principal who then had the teacher get in touch with me -she's accomodating and communicating -so far so good -I was told though if she needs a 504 etc to contact the school psychologist -here's hoping she won't need it eileen Quoting smacheska <smacheska@...>: > Hi - My daughter was diagnosed with OCD this summer. She is 12 years > old and is in 7th grade. We had some issues with her when she was in > 3rd and 4th but never connected or was told that it may have been OCD > back then. We went into therapy and she seemed to be fine after > about 3 months. But now, 4 years later, we were hit with full on OCD > with many of the typical obsessions. Things got so bad in such a > short amount of time we were shocked (so was she). I think becuase > it hit her so fast, it made it so much worse - within the first three > weeks she was having severe panic attacks, couldn't get dressed, eat > etc without having to count constantly. If she couldn't get to the > right number, she would just cry, scream and end up breathing so hard > and fast that we thought she would pass out. (since then we have > learned that deep " yoga " type breathing really helps - now we just > start and end each day with the breathing). We started therapy , > however we did not see results right away and things were so bad that > we were recommended to see a Psychiatrist. I really agonized over > the medication, but we started (Zoloft). Right about the time we > started the meds things were a little more in control. She started > school and seems to do well with distractions (friends, the structure > of school, craft projects etc). We are continuing the therapy (CBT > with ERP) once a week for now. I am so gratefel to have found this > group - I have spent a lot of time reading about the people like > myself that feel alone, not knowing who to tell who to talk to and > how to put the pieces of their life together in amongst the chaos. > We have another child (5 yrs old) who has witnessed much more than he > should have to - it is difficult to explain to him. My husband > thinks everything will " be okay " . I feel now that I am just waiting > every day for things to blow up - I question every day whether to > tell the school or not - or wait to see how she does. She is in > honors classes that I wanted to take her out of but she said no way - > she worked hard to be in them. I feel like our life that was once so > simple is now so complicated. Thank you to whoever started this > group - any input on how schools react when they are told or who you > told (nurse vs. guidance vs. principal etc) would be helpful. Sorry > this was so long (belive me I could write much more) but this was > therapeutic in itself. Sincerely, Sue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Kim, thank you for your email. I will keep you informed as to our progress. My concerns are similar - that people will label her or word will get out and she will be teased or people just won't understand. It's hard enough for us to understand everything that has happened and the strange behaviors that OCD causes - so I can understand how people might think it is weird. It is just their lack of knowledge on the subject. After talking to my daughter tonight it seems we may have to talk to the school - she has problems writing sentences without crossing things out and rewriting everything until it is perfect. Just scared that most teachers and school staff don;t know much about OCD. Let you know what happens and thanks fo sharing. Good luck with your daughter. Sue Kim <missmeowza@...> wrote: Hi Sue, My name is Kim and my daughter(15) was just diagnosed this summer as well but looking back we now know this has been going on for quite a long time. My husband also has the attitude " everything will be okay, she'll grow out of it " . I am struggling with telling the school as well because a lot of her ocd revolves around marks at school, she is also in an honours program. The thing is for us is that we live in a small town and people gossip. I worry if it leaks out that she will be teased at school and things would just be worse. We also have a younger child too that has been greatly affected by all that has gone on in the last couple of years. Our daughter has seen a counsellor once a week for the past summer and the referral to a psychiatrist has been made, just waiting to hear for an appt date. We have not started any meds yet, have to have psychiatrist assess first. I understand where you are coming from with all this new information and yes I agree we are so lucky to have found this site. Best wishes to you, your daughter and your family. Kim M > --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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