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In a message dated 12/18/2006 8:42:13 P.M. Pacific Standard Time, twinmom2791@... writes:

Is Miss feeling guilty about end-of-year habits? LOL Just kidding.

(( who me??)) looking around the internet LOL!! Not at all. It is Curves' program right now "Nothing to Lose" and the goal is/was go lose/gain nothing during the holidays - only maintain. So, I have been on "maintain mode" for the past several weeks. I just had the gal weigh me tonight and there it was in black and white, the same weight I had her clock me in at mid-Nov - I have 2 more weeks to maintain LOL!! Sure, sure, I could manage to lose 1-3 lbs in that amount of time - but, my heart is in "maintain mode" - so that's what I am gonna do and then I will kick it up a notch Jan 2 and lose more lbs :-)

(( That's my story and I am sticking to it! ))

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Is Miss feeling guilty about end-of-year habits? LOL Just

kidding.

>

> Hi -

>

> Me too - I started at 310 and have lost 31 lbs, so I am right

around where

> you are at now. Like I just said to Cheryl, I am sure you got

the " why wait "

> discussion.... There's another good 2 weeks in this year to start

making

> simple changes that will work through the holidays. Getting on

the road to a

> healthier you doesn't mean you have to totally go gestapo

deprivation for

> Christmas and New Year's. ;-)

>

>

>

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I'm gonna call you Emeril in January! ROFL

BAM!!!!

>

> that's what I am gonna do and then I will kick it up a notch Jan 2

and lose more lbs

> :-)

>

> (( That's my story and I am sticking to it! ))

>

>

>

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  • 4 weeks later...

Hi Tabitha- welcome. I am sure you got this already: tell us more about you, what plan are you following, etc?

I am , 39 single mom of 3 boys and have lost around 31 lbs - give or take a few. I am going to have them check tomorrow at Curves LOL since I have been "good" for 2 weeks now (mostly) :-)

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In a message dated 1/11/2007 10:19:43 A.M. Pacific Standard Time, motherof370582@... writes:

I am starting off just walking on my treadmill for 20 min. 5 days and drinking more water. For some reason I can't seem to drink it. But I am trying.

Hi Tabitha! Good for you. Have you tried adding flavor packets to the water (like that crystal lite stuff?) - seems to help me gag my water down at times. ( sorry for the visual ) - good job on the walking too! Are you doing anything different with your eating, or just starting with walking and water?

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  • 1 month later...

Welcome mom of 9. You must be a strong woman to raise 9. How old are the kids? Sorry so late in welcoming you. Dont forget water, portions, and exercise are key to any diet.

NH. Start Jan 07 246.6/242.6/239AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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  • 1 month later...
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In a message dated 4/5/2007 12:28:53 PM Eastern Daylight Time,

danacrumb@... writes:

our story is a long one, so hang on to your hats

Dana,

Thank you so much for sharing your personal story w/us. I'm so sorry you

are having to endure all of this w/your little boy. He sounds very sweet!

Welcome to the group. There is a lot to learn here.

Holly

************************************** See what's free at http://www.aol.com.

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thanks..i posted some pictures of him.......under silas......if you

want to have a peek...lol...

> Dana,

>

> Thank you so much for sharing your personal story w/us. I'm so

sorry you

> are having to endure all of this w/your little boy. He sounds very

sweet!

> Welcome to the group. There is a lot to learn here.

>

> Holly

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

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Guest guest

This sounds like a friend of mine whose daughter was also diagnosed with PDD -

she ended up being allergic to gluten and casein, and was put on a gluten and

casein-free diet. Now she's 98% better. The malabsorption and diet issues, the

extreme pickiness of eating and stomach upsets all sound just like her. There's

a doc in Pittsburgh who deals with this - my friend's daughter was found to have

enormous amounts of antibodies to gluten and now that she's not eating them

anymore, she's almost back to normal.

Good luck with your son! I know many ASD are related to gluten and casein

(milk) intolerances.

---------------------------------

Expecting? Get great news right away with email Auto-Check.

Try the Beta.

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At 02:23 PM 4/9/2007 -0700, you wrote:

>This sounds like a friend of mine whose daughter was also diagnosed with

PDD - she ended up being allergic to gluten and casein, and was put on a

gluten and casein-free diet. Now she's 98% better. The malabsorption and

diet issues, the extreme pickiness of eating and stomach upsets all sound

just like her. There's a doc in Pittsburgh who deals with this - my

friend's daughter was found to have enormous amounts of antibodies to

gluten and now that she's not eating them anymore, she's almost back to

normal.

>

>Good luck with your son! I know many ASD are related to gluten and casein

(milk) intolerances.

Yes, we find gluten and milk intolerences in many with ASD but it isn't the

ultimate cause - its the result and what keeps the child ill in many cases.

Some actually recover with diet alone or go a long way with it.

That is wonderful for your friend and her daughter

Sheri

>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

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Hi!

Your son sounds just like our son. Conyers has been fevering for about a year

now. Our doctor diagnosed him last month with . His episodes come every 3

to 5 weeks with high fever, a nasty throat (that was always neg. for strep) and

fatigue . Our doctor started him on Tagament last month and we were very upset

when his next episode came 17 days later when they were usually 25-35 days

apart. He said he wanted to give it at least 6 to 8 weeks on the Tagement. So

now I feel like we are just a ticking time bomb and could fever at any point!

Our doctor said he want to use removing the tonsils as a last resort! So our

treatment consist of Tagement twice a day and steriods (for one day) and pray

that this does some good!

Mother of Conyers 2 years old, fevering since 05/06

Maddie 2 years old, no fevers :)

>

> From: " Mutlu Gunay " <mutluyildirimtr@...>

> Date: 2007/04/12 Thu AM 09:23:19 EDT

>

> Subject: new to the group

>

> Hi everybody,

> I am new to this group. My son is 34 months old. And he is

> diagnosed as . . The usual symptoms are high fever, swollen

> lymph nodes, white membranes on the tonsils, sometimes mouth sores,

> lack of appetite, fatigue. His throat culture tests have always been

> negative. We use calpol and ibuforen alternately in every 3 hours.

> Apart from this cycle his development is normal. His cycles are not

> that regular, some come in 20 days, some come in 35 days, some come

> in 15 days.. He had the first episode when he was 13 months old.

> After the 8 th episode our pediatrician came up with this new term,

> and sent us to an immunologist pediatrician. He made some tests

> and after another 3 episodes, he put him on a 3 month low dose

> antibiotic use. In the next step he gave steroid to my son, and said

> yes this is . After the steroid use, the next episode came

> earlier. Later for about 3 months he was OK, which made us think that

> he wouldn't have that it again. However the episodes came back with

> very mild symptoms again. Then, last week he had two episodes

> consecutively which were acute. The reason for this consecutive

> attacks may be the use of steroid since we gave steroid to him and 5

> days later the new attack occured. Our doctor says we should consider

> tonsilectomy, but we are not sure whether it will resolve it or not.

> I would appreciate your experiences after the tonsillectomy.

>

> Mutlu Gunay

>

>

>

>

>

>

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My son had from about age 2 (diagnosed at age 3) to 5.9 (he was

almost 6, when we had his T & A). We had tried the tagamet to no avail.

I'm thankful to be able to say, he has been fever free since the

surgery.

(He's had maybe a FEW - 1 or 2 - episodes over the years... (actually

within the last year now) but nothing like the regular intervals of

every 41 days for 5 days with a scorching high fever. Now they are like

highest fever is 101 and lasts about 3 days. He's 12 now. And is able

to participate in normal activities... such as football, baseball, and

no interruptions for school. We are SO glad to be done with his fevers

(for the most part - we are 'charting' again, but so far no patterns

again that I can tell). I am still VERY interested in this syndrome and

still stay in the group to stay informed of any new developments,

perhaps.

Best of luck to you and your child. Hope it works for you as it did for

us. ;)

Dana

mom to now age 12 (remission for 6 years now)

and 17

_____

From: [mailto: ] On Behalf Of

kpreveaux@...

Sent: Thursday, April 12, 2007 9:03 AM

Subject: Re: new to the group

Hi!

Your son sounds just like our son. Conyers has been fevering for about a

year now. Our doctor diagnosed him last month with . His episodes

come every 3 to 5 weeks with high fever, a nasty throat (that was always

neg. for strep) and fatigue . Our doctor started him on Tagament last

month and we were very upset when his next episode came 17 days later

when they were usually 25-35 days apart. He said he wanted to give it at

least 6 to 8 weeks on the Tagement. So now I feel like we are just a

ticking time bomb and could fever at any point! Our doctor said he want

to use removing the tonsils as a last resort! So our treatment consist

of Tagement twice a day and steriods (for one day) and pray that this

does some good!

Mother of Conyers 2 years old, fevering since 05/06

Maddie 2 years old, no fevers :)

>

> From: " Mutlu Gunay " <mutluyildirimtr@...

<mailto:mutluyildirimtr@...> >

> Date: 2007/04/12 Thu AM 09:23:19 EDT

> <mailto: >

> Subject: new to the group

>

> Hi everybody,

> I am new to this group. My son is 34 months old. And he is

> diagnosed as . . The usual symptoms are high fever, swollen

> lymph nodes, white membranes on the tonsils, sometimes mouth sores,

> lack of appetite, fatigue. His throat culture tests have always been

> negative. We use calpol and ibuforen alternately in every 3 hours.

> Apart from this cycle his development is normal. His cycles are not

> that regular, some come in 20 days, some come in 35 days, some come

> in 15 days.. He had the first episode when he was 13 months old.

> After the 8 th episode our pediatrician came up with this new term,

> and sent us to an immunologist pediatrician. He made some tests

> and after another 3 episodes, he put him on a 3 month low dose

> antibiotic use. In the next step he gave steroid to my son, and said

> yes this is . After the steroid use, the next episode came

> earlier. Later for about 3 months he was OK, which made us think that

> he wouldn't have that it again. However the episodes came back with

> very mild symptoms again. Then, last week he had two episodes

> consecutively which were acute. The reason for this consecutive

> attacks may be the use of steroid since we gave steroid to him and 5

> days later the new attack occured. Our doctor says we should consider

> tonsilectomy, but we are not sure whether it will resolve it or not.

> I would appreciate your experiences after the tonsillectomy.

>

> Mutlu Gunay

>

>

>

>

>

>

______________________________________________________________________

This e-mail has been scanned by Verizon/MessageLabs Managed Email

Service.

-->

______________________________________________________________________

This e-mail has been scanned by Verizon/MessageLabs Managed Email Service.

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Guest guest

Hi Mutlu,

We are trying to find out which PFS our son Tyler (16 months) has.

The Rheumatologist we were referred to is testing for cyclic

neutropenia through blood tests, and using DNA testing for some of

the other syndromes. Even though his development is great, she

doesn't want to just leave it at because symptoms in young

children usually begin milder and get worse as they get older if it

is one of the other syndromes.

We were just recently prescribed Naproxen liquid for Tyler. He takes

125mg twice a day (12 hours apart). His last two episodes have been

much milder on it. Normally he ran 104-105 fevers, had vomitting,

wouldn't eat solid food, etc. Now his high is 102.4 temp, no

vomitting, solid food the whole time. Naproxen is the ingredient in

the over the counter Aleve, another anti-inflammatory. I supplement

with tylenol in between the Naproxen during his episodes. The MD

said that in some cases this medicine has stopped episodes in

starting if taken daily as a preventative. It didn't stop Tyler's,

but it is a huge improvement.

Best Wishes

Pruden

mother to Tyler (16 months) undetermined PFS

Lake County, California (Northern) USA

>

> Hi everybody,

> I am new to this group. My son is 34 months old. And he is

> diagnosed as . . The usual symptoms are high fever, swollen

> lymph nodes, white membranes on the tonsils, sometimes mouth sores,

> lack of appetite, fatigue. His throat culture tests have always

been

> negative. We use calpol and ibuforen alternately in every 3 hours.

> Apart from this cycle his development is normal. His cycles are not

> that regular, some come in 20 days, some come in 35 days, some come

> in 15 days.. He had the first episode when he was 13 months old.

> After the 8 th episode our pediatrician came up with this new term,

> and sent us to an immunologist pediatrician. He made some

tests

> and after another 3 episodes, he put him on a 3 month low dose

> antibiotic use. In the next step he gave steroid to my son, and

said

> yes this is . After the steroid use, the next episode came

> earlier. Later for about 3 months he was OK, which made us think

that

> he wouldn't have that it again. However the episodes came back with

> very mild symptoms again. Then, last week he had two episodes

> consecutively which were acute. The reason for this consecutive

> attacks may be the use of steroid since we gave steroid to him and

5

> days later the new attack occured. Our doctor says we should

consider

> tonsilectomy, but we are not sure whether it will resolve it or

not.

> I would appreciate your experiences after the tonsillectomy.

>

> Mutlu Gunay

>

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  • 2 weeks later...
Guest guest

> Hello everyone. My name is Cindi and i will be 23 on may 7th.

Welcome! My son was 23 last November.

> after a bout with anorexia at the age of 17 i got myself down to 160lbs.

of course i started eating again and was able to keep the weight off for a

couple of years that way but this last year i've started putting it back on.

i'm back up to 200lbs and for my height, a healthy weight would be 135lbs.

I would *strongly* suggest you talk with your doctor and probably a

nutritionist/dietician before going on a weight loss plan. I'm sure they'll

want to closely monitor you to prevent a recurrence of your anorexic

behaviors.

> I've decided that I need to go about loosing this weight the healthy way

this time, as I am not filled with as much hatred towards myself as i used

to be.

You may be interested in the book Overcoming Overeating, and their mailing

list here on groups, OOSupport. The official web site is

http://www.overcomingovereating.com and the authors have a load of info on

the site as well as all the editions of their newsletters.

Sue in NJ

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Guest guest

Cindi~

Welcome to the group. I hope you like it here. It's a great group!

warmly,

Kim

On 4/23/07, Cindi Lebeda <alittleunwell84@...> wrote:

>

> Hello everyone. My name is Cindi and i will be 23 on may 7th. At my

> highest i weighed 232lbs and i'm only 5'2. after a bout with anorexia at

> the age of 17 i got myself down to 160lbs. of course i started eating again

> and was able to keep the weight off for a couple of years that way but this

> last year i've started putting it back on. i'm back up to 200lbs and for my

> height, a healthy weight would be 135lbs. I've been overweight my entire

> life, and both of my parents were overweight as well.

>

> I've decided that I need to go about loosing this weight the healthy way

> this time, as I am not filled with as much hatred towards myself as i used

> to be. i've decided to work out at least 3-4 times a week for at least

> 30mins and go on a 1500 calorie a day diet. It's not going to be

> easy....duh...but i am determined to be healthy and happy.

>

> I am looking forward to the discussions of this group and getting to know

> you all. if you ever want to chat my id is: alittleunwell84. feel

> free to IM me anytime.

>

> Thanx for listening to my story! :o)

>

> -;- Cindi -;-

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Thank you very much for your welcome...and concern. I will deffinately be checking out that site. :o) -;- Cindi -;-Sue in NJ <sparticles@...> wrote: > Hello everyone. My name is Cindi and i will be 23 on may 7th.Welcome! My son was 23 last November.> after a bout with anorexia at the age of 17 i got myself down to 160lbs.of course i started eating again and was able to keep the weight off for acouple of years that way but this last year

i've started putting it back on.i'm back up to 200lbs and for my height, a healthy weight would be 135lbs.I would *strongly* suggest you talk with your doctor and probably anutritionist/dietician before going on a weight loss plan. I'm sure they'llwant to closely monitor you to prevent a recurrence of your anorexicbehaviors.> I've decided that I need to go about loosing this weight the healthy waythis time, as I am not filled with as much hatred towards myself as i usedto be.You may be interested in the book Overcoming Overeating, and their mailinglist here on groups, OOSupport. The official web site ishttp://www.overcomingovereating.com and the authors have a load of info onthe site as well as all the editions of their newsletters.Sue in NJ

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

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Guest guest

hi there. chicks here. welcome I'm new too, couple days. your child sounds

just like fonz my son. he is 13 . and he to sense birth. did they say

anything about fmf. that is what they are calling what fonz has the

specialist that is. but his dr. still calls it . the stomach pain gives

it away.

he had a lot of ear infections too. but at the emergency room the dr.

said that with little ones, that comes with sore throat. well good luck on

your road of extreme love of your child.

**************************************

See what's free at http://www.aol.com.

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Sorry it has taken so long to figure out what is wrong with your

Cole. My son and many of the little ones have the exact same

symptoms. The sore throat, stomach pain, leg (ankle, knee, shin)

pain, headache, swollen lymph nodes, etc. My son started at 8

months old. We started tracking at 2 when we caught on to the

cycles. I got lucky by accidentaly finding some info about periodic

fevers on the internet. My doctor was familiar with it too when we

moved and got a new pediatrician.

Fran (our wonderful modorator for this site) says to get genetic

testing done just to make sure it's and not a genetic periodic

disorder. There is lots of info on this in the files. We just

started with blood work for inflammatory markers during and not

during fevers. It's never as bad as the worries before the blood

tests.

My advice...keep a journal of dates and symptoms and read, read,

read on this site. And then give your baby lots of cuddles and love!

As for growinf out of it...it seems like breaks are always a

blessing and often short lived, but I think most of us are wondering

the same thing...does it end like the docs say?

Pam, Mother of (4, periodic fevers)

lin, Tennessee

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  • 3 weeks later...
Guest guest

. If you don't mind me asking,,,,,,,how did you know your son was dyslexic? When did you first "wonder"......... Thanks, Robin Lucas <lucas3mom@...> wrote: Hi everyone, I am new to this group. I joined because I suspected that my 19 year old niece has Aspergers syndrome. I have a dyslexic son and actually discovered Aspergers on my dyslexic group and thought I

would check it out. My neice seems to have a lot of the symptoms of Aspergers. Talked at normal age, graduated high school. Very smart. But has such a hard time socially. Prefers to play with younger kids. Prefers most of the time to play with one kid. They usually play a game or they help her make jewelery. She makes jewelery all the time, sells it (actually very good at it) and is taking an on-line jewelry class right now. She has struggled to have friends. My brother and sister-in-law adopted her as a baby. So I thought I would join so we could learn more about this syndrome. I thought maybe it would help explain wht she does some of the things she does, and maybe help them realize that it is not something that they did or did not do. Thanks for any encouragement!! Lucas Psalm 4:11 "But let all those that put there trust in thee rejoice: let them ever shout for joy, because thou defendest them: let them also that love thy name be JOYFUL in thee." Got a little couch potato? Check out fun summer activities for kids.

Get the free toolbar and rest assured with the added security of spyware protection.

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  • 4 weeks later...
Guest guest

Hi Athena and welcome to the group and write to chat about anything anytime I would be glad for another penpal and you are having quite the time of it right now and most of your life and im sorry to hear that what sounds great is your attitude and you are reaching out and can meet a lot of new friends here! Hang in there and hope to hear more from you

Colleen Im 37 Have lupus, sjogrens sydrome and fibro and a secondary eye disease...............************************************** See what's free at http://www.aol.com.

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Thanks for the support. And I have to insert a little correction...

it's AthenE not AthenA. Anyway, you sound like I do. lol I have spina

bifida, asthma, lupus as well, ebsteen barr, and the lupus has

recently caused many kidney problems (not helped by the spina bifida).

It will be nice to talk with some people during the day...I get

really bored. sigh.

>

> Hi Athena and welcome to the group and write to chat about anything

anytime I

> would be glad for another penpal and you are having quite the time

of it

> right now and most of your life and im sorry to hear that what

sounds great is

> your attitude and you are reaching out and can meet a lot of new

friends here!

> Hang in there and hope to hear more from you

> Colleen Im 37 Have lupus, sjogrens sydrome and fibro and a

secondary eye

> disease...............

>

>

> **************************************

> See what's free at

> http://www.aol.com.

>

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I thought I responded to this but its in new mail so maybe I didn't. anyway, I'm new too and also looking for friends. I'm almost housebound, and so tired of being lonely.

If you want to chat on AIM - or if you play Pogo and want to friend me - my handle on both is juxtaposed4vr. You'll have to give me your handle here on PM if you want to chat on AIM.

I hope you find friends, and that you feel better soon.

amy

In a message dated 6/11/2007 2:33:58 P.M. Central Daylight Time, avanpool@... writes:

I thought I would introduce myself. My name is Athene, 23, and I was born with Spina Bifida. Although I have had many surguries in my short life, I have not had any problems in the last 10 years until recently. Last month I went to the doctor because of unbarable pain in my back and leg...turns out I shouldn't have been so lax with my yearly check-ups with my neurosurgeon.I have 4 blown discs, a bone spur off of a vertabra, no less than 8 crushed nerves, more hypoplastic nerves than originally thought, and a lypoma that has tethered to my spinal cord. WOO HOO!!!Just looking for some people to chat with during the day, seeing as how I am on bed rest until surgery. sigh.

See what's free at AOL.com.

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