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Thanks Sharon;

I love it when people share their experiences, Just so you guys and gals know I finished my pshyc drugs of zoloft and clonopin i could not even get out of my house(from Panic) to get my meds from the pharmacy(which is 10 minutes away) anyway i had to force myself to go out and get it and my three fingers were in my pulse the whole time (from fear) and now within one year of getting my ICD although it was my three year goal to walk 3 miles and 5 year goal of walking 5 miles in one strech First time i walked 3 miles in God knows how many years (two days ago), it felt sooo good that i ended up walking 6 miles of course being on the beach helped. Don't give up people I would like to quote a lovely young lady whose name is Chambers Who also got her new heart (you go girl!....) just recently she said this when she was 18 and i think we can all learn from it. I think she said " You can't live life in fear thats not living, you still have to go on with your life and of course youre allowed to be scared, but don't let that hinder your life and your lifestyle, You have to live your life as if it's your last day everyday and enjoy it" or something like that i cant remember exactly what she said, it was in the zapper gallery but i didn't buy the disks yet. when i get it I'll tell you exactly what she said. Anyway people to all a Good Luck, Good Health and Good Heart. TURK

Re: Re: New to the group

Dear Chet, Welcome to the wonderful world of people with their very own battery chargers. This is a great bunch of people and they have all helped me a great deal. I found my way in here in 1999 after have had my third icd. I was literally on the edge no I think that maybe I was over the edge. I was scared and frightened and out of control. I had had my first icd about 9 years before and after a lot of problems it broke got another and it broke then got another and it malfunctioned ran away and hid without one only to end up dead but thanks to God brought back two weeks before my daughters wedding. I never wanted another icd but they told me it was my only hope I still refused to all the doctor and shrinks and family ganged up and I got one. Hated everyone including myself.Long story short is this is 2002 I just became a Grandma for t he first time and it is wonderful. I am so glad to be alive. I still have up and down times and good and bad times. I still have fear and anxiety but I have a new strength a lot of it is from the people here who carried me when I was terrified. You will go up and down and all over you will have some battles to face. I am not sure how strong you are I thought I was made of steel but I found out that a small worry can make into a bid nightmare and sometimes no matter what I do the nightmare are still there. But then there is tomorrow and I survive.WelcomeSharon , the blunt one wit the big mouthPlease visit the Zapper homepage athttp://www.ZapLife.org

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Hi Sharon,

I am glad you wrote this. You must have gone through a terrible time.

I'm a strong person, but I also have fears and anxiety. At one time I would

have admitted it, but not anymore.

One on the fears I had was falling asleep. I did not think I would wake up

again after all my heart problems. I got over that after being exhausted for

months.

For the last year I've had panic attacks at times and I have not idea why.

My doc put me on Paxil and had a tough time with that drug. He also gave me

Antivan and that seems to help quite well.

I'm glad you people share stories like this. Makes one feel not alone.

This group has helped me a great deal already and I've only been here a

short time.

Chet

Dear Chet, Welcome to the wonderful world of people with their very own

battery chargers. This is a great bunch of people and they have all

helped

me a great deal. I found my way in here in 1999 after have had my third

icd.

I was literally on the edge no I think that maybe I was over the edge. I

was scared and frightened and out of control. I had had my first icd

about 9

years before and after a lot of problems it broke got another and it broke

then got another and it malfunctioned ran away and hid without one only to

end up dead but thanks to God brought back two weeks before my daughters

wedding. I never wanted another icd but they told me it was my only hope

I

still refused to all the doctor and shrinks and family ganged up and I got

one. Hated everyone including myself.

Long story short is this is 2002 I just became a Grandma for t he first

time

and it is wonderful. I am so glad to be alive. I still have up and down

times and good and bad times. I still have fear and anxiety but I have a

new

strength a lot of it is from the people here who carried me when I was

terrified.

You will go up and down and all over you will have some battles to face.

I

am not sure how strong you are I thought I was made of steel but I found

out

that a small worry can make into a bid nightmare and sometimes no matter

what

I do the nightmare are still there. But then there is tomorrow and I

survive.

Welcome

Sharon , the blunt one wit the big mouth

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Sharon,

Congratulations on being a grandmother. So it was worth sticking around for.

That's good.

I hope they perfected the ICD so I don't end up with a bunch of broken ones.

I sure don't want any misfires when I get my first one. For $25,000 it

should be perfect without any flaws.

Chet

> Dear Chet, Welcome to the wonderful world of people with their very own

> battery chargers. This is a great bunch of people and they have all

helped

> me a great deal. I found my way in here in 1999 after have had my third

icd.

> I was literally on the edge no I think that maybe I was over the edge. I

> was scared and frightened and out of control. I had had my first icd

about 9

> years before and after a lot of problems it broke got another and it broke

> then got another and it malfunctioned ran away and hid without one only to

> end up dead but thanks to God brought back two weeks before my daughters

> wedding. I never wanted another icd but they told me it was my only hope

I

> still refused to all the doctor and shrinks and family ganged up and I got

> one. Hated everyone including myself.

>

> Long story short is this is 2002 I just became a Grandma for t he first

time

> and it is wonderful. I am so glad to be alive. I still have up and down

> times and good and bad times. I still have fear and anxiety but I have a

new

> strength a lot of it is from the people here who carried me when I was

> terrified.

>

> You will go up and down and all over you will have some battles to face.

I

> am not sure how strong you are I thought I was made of steel but I found

out

> that a small worry can make into a bid nightmare and sometimes no matter

what

> I do the nightmare are still there. But then there is tomorrow and I

survive.

>

> Welcome

> Sharon , the blunt one wit the big mouth

>

>

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Chet.....

> I hope they perfected the ICD so I don't end up with a bunch of broken

> ones.

> I sure don't want any misfires when I get my first one. For $25,000 it

>

> should be perfect without any flaws.

Oh, yer getting the Walmart ICD! Heh heh. Rich's cost $97,000.

AND..... he did get zapped 'inappropriately'

a couple of times.... a set screw to a lead wire was not tightened

correctly, and it was reading his natural

movements as an arrthymia. But no worries.... EP doc fixed that last

March, and he hasn't been zapped since.

Sue (of course, doc didn't like our jokes about suing her for not

doing it right the first time) ;)

--

" She was not quite what you would call refined.

She was not quite what you would call unrefined.

She was the kind of person that keeps a parrot. "

-- Mark Twain

Rich and Sue Owens

http://www.geocities.com/Yosemite/Meadows/7457/index3.html

http://www.nothnbut.net/~reo77/aurora.html

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Hi sharon;

Congrats on being a grandma I have three chilren and the way i feel about them i can only imagine how beautiful it is to be a grandma and grandpa. Turk

Re: Re: New to the group

Sharon,Congratulations on being a grandmother. So it was worth sticking around for.That's good.I hope they perfected the ICD so I don't end up with a bunch of broken ones.I sure don't want any misfires when I get my first one. For $25,000 itshould be perfect without any flaws.Chet> Dear Chet, Welcome to the wonderful world of people with their very own> battery chargers. This is a great bunch of people and they have allhelped> me a great deal. I found my way in here in 1999 after have had my thirdicd.> I was literally on the edge no I think that maybe I was over the edge. I> was scared and frightened and out of control. I had had my first icdabout 9> years before and after a lot of problems it broke got another and it broke> then got another and it malfunctioned ran away and hid without one only to> end up dead but thanks to God brought back two weeks before my daughters> wedding. I never wanted another icd but they told me it was my only hopeI> still refused to all the doctor and shrinks and family ganged up and I got> one. Hated everyone including myself.>> Long story short is this is 2002 I just became a Grandma for t he firsttime> and it is wonderful. I am so glad to be alive. I still have up and down> times and good and bad times. I still have fear and anxiety but I have anew> strength a lot of it is from the people here who carried me when I was> terrified.>> You will go up and down and all over you will have some battles to face.I> am not sure how strong you are I thought I was made of steel but I foundout> that a small worry can make into a bid nightmare and sometimes no matterwhat> I do the nightmare are still there. But then there is tomorrow and Isurvive.>> Welcome> Sharon , the blunt one wit the big mouth>>

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Dear Chet, All you need to know is that for today for this minute right now

you are ok. then simple take it form minute to minute till you canhandle

more and on the days you can't lean on thisd group because we come from

everywhere. All walks of life, all ages, al at different stages with our

icds. Remember! there is strength in large numbers. That is why insurance is

based on the Law of large numbers. Just food for thought.

Sharon

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Dear Chet, Being a Grandmother is the very best that life has to offer or at

least it is for me. when that little girl cuddles in my arms my world is

perfect. She will be three months old tomorrow and I can remember what is

was like not to have her in our lives and in my heart. She is smiling and

laughing out loud now which of course just maks her that much more c uddley.

I have decided tht I will dance at her wedding and of course she it not

allowed to get married until she is at least 30.

Where in the heck do you live that your icd only cost 25,000. Was yours on

sale or did you get a rebate?

Grammie Sharon

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My daughter (25) insisted that I stick around to hold my first grandchild.

She is not married yet so I better hang in there awhile.

That price was just someone's guess, I believe. Someone else said $40,000,

so I don't know what the real cost will be.

By the way, I'm having it put in tomorrow. I hope to have some good news for

the group when I get back.

Chet

> Dear Chet, Being a Grandmother is the very best that life has to offer or

at

> least it is for me. when that little girl cuddles in my arms my world is

> perfect. She will be three months old tomorrow and I can remember what is

> was like not to have her in our lives and in my heart. She is smiling and

> laughing out loud now which of course just maks her that much more c

uddley.

> I have decided tht I will dance at her wedding and of course she it not

> allowed to get married until she is at least 30.

>

> Where in the heck do you live that your icd only cost 25,000. Was yours

on

> sale or did you get a rebate?

>

> Grammie Sharon

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I hung around for my g'son and trust me, it was well worth it... the

best thing that can happen to a person for sure :) ... and I hope it

wasn't some mix-up that put implantation off 'til 7th... but this

gives me a chance to wish you the best... let us know how it went

ASAP... and for the record... my first one, w/leads, was over $45K...

second, didn't need to pick up leads option, was only $35K and if I'd

taken leads it would have been an additional $3,500 as I recall being

told :)

JES in NJ...

God Bless America

The most precious things in life aren't things :)

> My daughter (25) insisted that I stick around to hold my first

grandchild.

> She is not married yet so I better hang in there awhile.

>

>

> That price was just someone's guess, I believe. Someone else said

$40,000,

> so I don't know what the real cost will be.

>

> By the way, I'm having it put in tomorrow. I hope to have some good

news for

> the group when I get back.

>

> Chet

>

>

>

> > Dear Chet, Being a Grandmother is the very best that life has to

offer or

> at

> > least it is for me. when that little girl cuddles in my arms my

world is

> > perfect. She will be three months old tomorrow and I can

remember what is

> > was like not to have her in our lives and in my heart. She is

smiling and

> > laughing out loud now which of course just maks her that much

more c

> uddley.

> > I have decided tht I will dance at her wedding and of course she

it not

> > allowed to get married until she is at least 30.

> >

> > Where in the heck do you live that your icd only cost 25,000.

Was yours

> on

> > sale or did you get a rebate?

> >

> > Grammie Sharon

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  • 2 months later...
Guest guest

It's a contest sponsored by EAS. That's the supplement company founded by Bill

, the author of Body for Life. We follow the type of training and

nutrition outlined in the book, but not everyone enters the official challenge.

Most people take before and after photos for themselves, whether they enter

officially or not. You used to have to hold up a newspaper to help prove the

start and end dates of your 12 week transformation. That's not part of the

official rules anymore but you see it on some of the older photos.

Check out the official website:

http://bodyforlife.com

Here's an overview of what's involved:

http://pages.ivillage.com/cl-shonda777/bflprinciples.html

Here's all the details about how and why this approach works:

http://www.hussman.org/fitness/

Hope that helps get you started. If you have more questions, just ask. :-)

New to the group

Hi , Thank you for the information. I will try my best to go out

tomorrow and buy the book. We have just moving and I am going out

tomorrow to find a house. :)

I can't believe it is possible to have a body like the ones I have

seen.

Am I getting this right....I need to work out first thing in the

morning?

Oh ... can you tell me ... why do a lot of people hold up newspaper?

Thanks,

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,

When you work out first thing in the morning, put rather simply, your body

burns tends to draw its energy from fat stores because glycogen is low in

your body as a result of not eating overnight.

Regarding people holding newspapers, they do this to date their picture, but

you don't have to do this for the BFL challenge. No digital photos are

allowed, so you need to use a 35mm camera to take pictures if you enter the

official challenge competition.

Also, I forgot to add... check out www.bodyforlife.com, which has all of the

information about the competition. EAS is the sponsoring company and sells

supplements. They are, of course, at www.eas.com.

Hope this helps get you started. I think reading the book is the first thing

you should do, as it will help you define your agenda and goals and perhaps

provide motivation.

New to the group

Hi , Thank you for the information. I will try my best to go out

tomorrow and buy the book. We have just moving and I am going out

tomorrow to find a house. :)

I can't believe it is possible to have a body like the ones I have

seen.

Am I getting this right....I need to work out first thing in the

morning?

Oh ... can you tell me ... why do a lot of people hold up newspaper?

Thanks,

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  • 4 weeks later...
Guest guest

In a message dated 6/15/02 6:34:11 PM Mountain Daylight Time,

cnair@... writes:

> I am open to any advise or help anyone can give me. I have a

> doctors appointment Monday with my primary doctor to discuss the CFS

> and see what, if anything, can be done to help me. I'm looking

> forward to talking with you all!!

Unless the primary is the same person who diagnosed you, I suggest you

proceed with caution. Is he/she the same one?

Also unless this primary has some experience in treating it he /she probaly

won't have a clue, and must be wiling to respect you, learn from you, and

cooperate with you.

I am wondering if your diagnosis was based on testing. If not that is

probably what is needed. There is no definitive test, but there are pieces of

info that can guide treatment.

There are really only a few docs, as far as I can see who have some

comprehensive view of the condition, Cheny most prominently, and I

suggest you start studying a bunch-as you can. And a caution; anyone who has

a real simple solution for this disorder: don't believe them!

Adrienne

Adrienne

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Forwarded to the group, sent to my inbox error.

The correct address for postings is Remotesupportmedics

new to the group

Hello all,

My name is and I am a licensed medic in Texas. I want to tell

everyone a little about myself and then hopefully find a direction that fits my

future.

I have four years in the field, two on a box and three in an ED. My

interest in finding a remote position is long standing, however since graduating

with a B.S. and applying to medical school, I now have only 15 mths. to find

contractual work before medical school starts. Theoretically, I can defer a

year, giving me almost two, to work up the funds I will need. After that, I

will have 2-3 mths. to contract out per year for the following three years.

I currently hold, ACLS, BTLS, PAM (hospital only), and CPR. Currently

expired certifications are WEMT, ATLS, PALS, and PPPC.

After interviews in the fall, I want to hit the road or the seas as the

case may be. I have enjoyed following the dialogue the last couple of weeks and

I now need your collective advice for the best route to take. I have solicited

a few companies I found online, but the more I look, the more it seems a little

insider knowledge is key.

HELP,

Remoterookie.

_____

Get your FREE download of MSN Explorer at http://explorer.msn.com

<http://g.msn.com/1HM505401/44> .

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Chrissy,

Welcome aboard. You will find many fellow travelers on this list. Some have

just started their journey and others have been at it for a while.

You come at a wonderful time, when we are beginning to understand the disease

and what it takes to get well.Please do not be disappointed if your local doctor

knows little about the disease.

There just hasn't been time for the research to trickle down to the mainstream.

My advice: DON't let him put you on an antidepressent.

Try to get a referral to a med giving psychiatrist who will give you something

to smooth out your sleep cycle.

Sub to CFS-L@.... It's a great chat plus med plus humor

group.

Feel free to BC me with questions. 1'm a 19 year survivor getting better every

day.

Beck

SWF,age60,1grandson.

ouijafreak wrote:

> Hi everyone, I just joined the group a few days ago and this group

> has been recommended to me by several people. My name is Chrissy, I

> am 29, married for 10 years to a wonderful understanding husband

> named Charlie. I was diagnosed with chronic fatigue syndrome &

> fibromyalgia about a year ago. I somewhat ignored it thinking there

> is something else wrong with me until I picked up a book on CFS and

> was amazed all that went with it. I have about every symptom, severe

> fatigue, swollen lymph nodes, a balance and thinking problem, severe

> nausea, severe dizzyness & lightheadedness, etc. The list goes on

> and on. I am open to any advise or help anyone can give me. I have a

> doctors appointment Monday with my primary doctor to discuss the CFS

> and see what, if anything, can be done to help me. I'm looking

> forward to talking with you all!!

> Chrissy

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Unless the primary is the same person who diagnosed you, I suggest you

proceed with caution. Is he/she the same one?

Also unless this primary has some experience in treating it he /she probaly

won't have a clue, and must be wiling to respect you, learn from you, and

cooperate with you.

I am wondering if your diagnosis was based on testing. If not that is

probably what is needed. There is no definitive test, but there are pieces of

info that can guide treatment.

There are really only a few docs, as far as I can see who have some

comprehensive view of the condition, Cheny most prominently, and I

suggest you start studying a bunch-as you can. And a caution; anyone who has

a real simple solution for this disorder: don't believe them!

Adrienne

Adrienne

No he is not. The doctor who diagnosed me has left. My diagnoses was not based

on testing, just symptoms. I went to a rheumatologist and she did tons of

bloodwork and confirmed it, but she never told me what bloodwork she did, and

she is to gone. But the doc who diagnosed me just went by my body pain and other

symptoms. I have started doing alot of research into CFS & FMS, and do realize

that not to many doctors have a clue how to treat CFS.

Chrissy

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Chrissy,

Welcome aboard. You will find many fellow travelers on this list. Some have

just started their journey and others have been at it for a while.

You come at a wonderful time, when we are beginning to understand the disease

and what it takes to get well.Please do not be disappointed if your local doctor

knows little about the disease.

There just hasn't been time for the research to trickle down to the mainstream.

My advice: DON't let him put you on an antidepressent.

Try to get a referral to a med giving psychiatrist who will give you something

to smooth out your sleep cycle.

Sub to CFS-L@.... It's a great chat plus med plus humor

group.

Feel free to BC me with questions. 1'm a 19 year survivor getting better every

day.

Beck

SWF,age60,1grandson.

I will refuse to be put on an antidepressant. And I want to be on less

mediaction as possible. I was on celexa before for my fibromyalgia and it made

me sick, it is an antidepressant, I went off of it and refuse to go back on any

antidepressants.

Thanks for the site, I'll check it out.

I am reading a book right now called Hope & Help for Chronic Fatigue Syndrome &

it is pretty good, I have bought several more and am just right now learning all

I can.

Chrissy

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  • 2 weeks later...
Guest guest

Hi ,

Gosh you've been through the mill a bit lately haven't you?

I was very touched by your story and you have my greatest respect. Choosing to

raise Jenna alone rather than struggle on with a man who obviously couldn't cope

with her condition was the right thing to do, but I'll bet it wasn't (and isn't)

easy.

My daughter, , is quite a bit older - 11 - but I still remember how scary

things were when she was first diagnosed.

Post whenever you want to share, or when you need support and just feel like a

" chat " . We've all been there and as someone else's post may help you, so your

posts will also help others.

Debbie

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  • 4 weeks later...
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ceubanks2000 wrote:

> Hi everyone,

>

> I've been reading the posts for about 5 weeks now, but haven't

> posted. What a great group. This is my second time around with

> BFL. After I did my first challenge I lost my job and of course

> gained all my weight plus more back.

>

> Oh, BTW, I am 34 and have 4 boys under the age of 12.

>

> I am also considered a " big boned girl " and yes I HATE it too. I am

> 5'11 " and started out at a whopping 205 and am now down to 194. I

> have never been this big in my life. It's like I just woke up one

> day and I weighed 205 lbs.

>

> I know that to stay motivated I need support and I think I have

> found that support in this group. Whenever I don't feel like

> working out I just read a few posts and somehow my motivation

> magically reappears.

>

> Thanks,

>

> Cheryl

Hiya Cheryl and welcome to the group :) Congrats on your successes with BFL

so far! It's such a wonderful program :)

Serenity

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  • 1 month later...

In a message dated 9/8/2002 5:04:24 PM Eastern Daylight Time,

polkadot@... writes:

> In reading all your emails, I want to cry because for the first time in my

> sickly life (had my exposure in 1999), I am reading exactly the type of

> exhaustion that I also feel. You are all so right...trying to explain to

> someone the level of total depletion and how the life has been sucked right

> out of me is very difficult for a healthy person to understand.

Welcome to the group! I think it really is impossible for someone to

understand unless they have been there; it's good your partner can

understand. My husband was great in the beginning, but I think it's beginning

to wear on him; I can tell he's beginning to resent my illness and, by

extension, me.

It's also great you found a doctor who knows something about your disease(s);

mine doesn't have a clue ... so we keep treating the symptoms, it's all we

can do at this point.

Once again, welcome aboard!

Shelle

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  • 2 months later...

Welcome, Rhonda.

>I am so glad to find a group of people that need to lose 100+ lbs.

We *do* have some problems that those who need to lose only 5 or 20 pounds

have. Heck, most of us can lose or gain that much in a week!

> I am ready to do what ever it takes to lose this weight.

Start with looking over this list's web site. Check out the links, the

recipes, the archives.

Increase your daily water. Ideally, we should all be drinking 1/2 ounce of

water per pound of current body weight, so someone like me, at 260, *should*

be drinking 130 ounces of plain old water a day. Not counting any coffee,

soup, diet sodas or crystal light-type drinks. In fact, if you drink things

with cafeine you're supposed to drink an equal amount of water to counteract

the effects of the caffeine on your kidneys.

Keep a food journal. Write down everything you put in your mouth - all the

water, all the bites of a kid's leftovers that are too little to put away

but too much to throw out, every piece or gum or bite of a bagel, every part

of your meals and snacks. Many of us take little mini-meals all day long and

don't even realize it until we see it in black and white.

Move. If you don't exercise at all right now, start. Pick something you

would enjoy and will be able to do. Some people walk, some do aerobics, some

sit in a chair and do exercises to the stereo. Do what you can. Make small

changes in your routine - park the car a little further away from the door,

walk down flights of stairs instead of waiting for the elevator, walk all

around the store (but don't buy junk) even if you're only going in for one

item.

If you're already exercising, bump up your routine a notch. Work longer,

harder, or a different type of exercise altogether. Mix it up - do toning

and aerobics on alternate days. If you already tone using weights, use a

heavier weight (if tolerated).

Make a meal plan. Some plan 2 weeks in advance, others plan just the one

day. Whichever is most convenient for you. Make sure you plan not just your

3 main meals but some healthy snacks, too. If you traditionally eat in front

of the tv, don't feel because you're " on a diet " you can no longer do it.

This is your life and your food plan should be what you plan on doing for

the rest of your life. If you like to snack, do it!

You know your routine. If you're super busy running around to 2 jobs, going

to school, and raising kids at the same time, don't believe you're going to

make a full dinner every night. Learn to love your crockpot and other

time-savers. Chop up your veggies over the weekend. Make double meals and

freeze half for another day. Make up a big batch of soup or stew and plan on

having it more than once during the week.

Now go shopping and buy what you need for that food plan. By doing this you

have no excuse to say " Oops, I ran out of chicken, let's go to the golden

arches for dinner instead. " Since you already planned meals according to

your schedule, you'll never be able to use the no-time-to-cook excuse,

either.

Don't weight yourself! In the beginning, you might actually *gain* a little

weight, between the increase in water and increase in exercise building up

muscle mass. Take a set of measurements, instead. Lock them up where nobody

will see them, then forget about it for a month. Then take another set and

see the difference. Before that you might even notice your clothes fitting

differently and not even want to measure. That's fine, too.

Just don't get hung up on numbers. This, *I* feel, is the main reason a lot

of people just drop their weight loss plans. They don't se that scale

dropping fast enough to satisfy the, they get frustrated and discouraged,

and return to their former eating habits.

And check in here frequently. We're a friendly bunch, feeling glad for you

when you have accomplishments to report, commiserating with you when you

don't.

>I wanted. I want 2 lbs a week LOL

Don't we all!

> But I now see that exercise it very important.

A lot of us have learned that we can starve ourselves on under 1000 calories

a day and still gain. Exercise *is* the key.

I just wish it wouldn't make me so darn tired! :)

Sue in NJ

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