Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 All our hearts go out to you, of course you are welcome to join us. Here is a place you find hope, from hearing the stories of those who have been through what you (and I right now) are going through, and have come out the other side, successfully. There are friends to be made here , and support, and great advice. Please do tell us where you live, and what is being done to help your son. My daughter, , also 12, has been home as well since July, and it is very difficult both for her and for me. She is not suicidal, but raging out of control, and we are currently waiting for a psych hospital bed for her to become available. ERP (exposure and response therapy) rid of her compulsions, but not of her obsessions it seems and the pressure of just existing has proven too much for her. While the walls and doors of my house have suffered greatly, we don't have a door left on its frame in the house, and I've gotten hurt a few times from her rage, I am grateful that her rage is outward and not inward. There are archives that can be accessed through the OCDparenting main page on Egroups where you can search for terms such as ERP, and there is a wealth of information to be found there. Write soon, and tell us more. Ellen/NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Hi Jenni: Welcome to this list. I have a 13-year-old son, Steve, who also has OCD and major depressive disorder (MDD). Being on suicide watch is exhausting and my heart goes out to you and your family. Is your son getting any treatment? We found this invaluable in getting the MDD under control so he could get treatment for the OCD. Steve seems to have both OCD and MDD as primary diagnoses. In fact now his OCD has been treated, his relapses are from poop out on meds and his depression comes back but not so much the OCD. How are you sleeping? Sleep deprivation is the enemy of coping with NBDs in our kids. Sometimes our kids have thoughts which are part of violent obsessions. We also had Steve doing self-injurious behaviors as part of adjusting to lowering of meds. It can be a real challenge to figure out what is going on. Good luck, take care, aloha, Kathy (H) kathyh@... At 06:35 AM 12/04/2000 +0000, you wrote: >Hi! I hope you don't mind if I join you, but I've been looking for a >group like this for ages! I'm the Mom of a 12 year old boy suffering >from OCD and severe depression. In April of this year he attempted >suicide, then seemed to improve a lot over the summer, however we are >back on a suicide watch again, and his school won't allow him to go >until he can state he has no suicidal thoughts. You can imagine the >battles starting up round here! When my brain is working better in >the morning I will try and organize my thoughts and come back here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Welcome Terry. I'm glad you found the group. Lainie Terry Willoughby <tntw3@...> wrote: Hello everyone, my name is Terry I am 31 and have SMA T3. I walk with no aides, although I get " down to earth " a lot but I still get up on my own. I started having muscular trouble at 8 Yrs old but was properly diagnosed at 30 after several MIS diagnose before that. I have a lot of pain from a car wreck I had but other than that all is well. I wish I knew how long I will be able to walk and Ect. I hope to learn a lot from all of you. It is very comforting to see so many others with the same disease getting tougher to share experiences. I do work and hope to be able to for a while anyway. I am married to a VERY supportive and wonderful women and we have 4 children. I have 1 brother he is 6'9 and weighs 260 and is very healthy. I am 6' and weigh 142. so we look a lot alike. Any way I just wanted to say hello and say I look forward to getting to know all of you. The 1 question I would like to start with is, are there any meds of any kind that are helpful vitamin's or what ever. Thank you in advance. Terry " I'm not as good as I once was but I'm as good once as I ever was " A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Terry, Welcome. I live in New York, am 53 and have used a wheelchair since I'm 11. I don't really know what type I am. I'm a II or III. I did office work for over 20 years, but I no longer work. Unfortunately, I have never married or had kids. I have just written a book about my life, which will be published next year. Napolitano Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Welcome !! Get your mindset ready by re-reading the Body For Life book, especially focus on Cross the Abyss. And get movin! We're here for any questions u have! ~Nanci > > Hi Everyone, > I am new to the board but I have done BFL for a about 5 years on and > off. I maintained my weight for 3 years and then I have gotten real > lazy with the nurtrition side of it and have put on about 15 pounds > so that is what I am here for. Motivation to get my butt in gear > and eat right! I am looking forward to getting to know you all > better and to gleen from your expertise. Hope you all had a very > merry holiday season. I also am ready to come alive in 2005! Lets > get this party started! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 > > Hi Everyone, > My name is Grace and I'm new to this board. Not new to BFL as I've > started it a number of times and have NEVER finished it. I started > again and AGAIN I feel like I'm falling flat on my fat head! Welcome. Please try not to feel discouraged. Remember you are not alone. We have all been there one day or another, one time or another, one minute or another. One thing that helps me is the quote: strive for progress not perfection. I'm not perfect, as much as I'd like to be. When I screw up, I just get back on the wagon and keep on going. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Hi , Thanks for the words of encouragement. I'm printing this out so that I can see it everyday. I am the worst at beating myself up. Thanks for the links too, I'm going to go check them out now too. Grace >From: Skwigg <skwigg@...> >Reply- > >Subject: Re: New to the board >Date: Mon, 28 Feb 2005 09:39:00 -0600 > >We have a little saying around here that goes, " Cheat like hell but >never quit. " :-) No matter how crazy things get, never consider >yourself " off " the program. Never entertain the idea that you've >failed or blown it or that you have to start over. Starting over and >over and over again will JACK your mind up. It just confirms all those >nagging doubts that you can't do it, that you're not worth it, that it >will never work for you, etc. > >So, even if you cheat all over the place, keep going the best you can. >Pay attention to what you're telling yourself. Mentally, there's a >world of difference between saying " I can't. I've blown it. I quit. " >and saying " This has been a really rough week but I'm still going and >nothing will stop me. " See, at least with the second option you feel >good about yourself and you continue to see results, even though they >may be slower than if you were going about it all hardcore. > >Here are some other posts to check out if you haven't seen them already: > >I've Fallen and I Can't Get Up >http://www.skwigg.com/id63.html > >Cheaters Prosper >http://www.skwigg.com/id28.html > >This is Your Brain on Body for Life >http://www.skwigg.com/id60.html > > > > >On Mon, 28 Feb 2005 14:44:44 -0000, Grace <greilly28@...> wrote: > > > > > > Hi Everyone, > > My name is Grace and I'm new to this board. Not new to BFL as I've > > started it a number of times and have NEVER finished it. I started > > again and AGAIN I feel like I'm falling flat on my fat head! I have > > pretty close to 100 lbs to lose and I'm really discouraged. This is > > week 4 for me but you wouldn't know it as at the end of week 2 I > > weighed myself and had only lost a pound so I stopped because I was > > so down on myself. Well the truth is, I felt pretty good during > > those 2 weeks and now I'm having a heck of a time starting back up. > > I feel like such a failure. Although I must say, when I came back to > > this sight after seeing it a few years ago, the pictures have really > > helped me. Everyone looks great! I just need to stay focused and > > that's easier said than done for me. Any words of encouragement or > > tips would be greatly appreciated. > > Thanks, > > Grace > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Hi , Thanks for the words of encouragement. I'm printing this out so that I can see it everyday. I am the worst at beating myself up. Thanks for the links too, I'm going to go check them out now too. Grace >From: Skwigg <skwigg@...> >Reply- > >Subject: Re: New to the board >Date: Mon, 28 Feb 2005 09:39:00 -0600 > >We have a little saying around here that goes, " Cheat like hell but >never quit. " :-) No matter how crazy things get, never consider >yourself " off " the program. Never entertain the idea that you've >failed or blown it or that you have to start over. Starting over and >over and over again will JACK your mind up. It just confirms all those >nagging doubts that you can't do it, that you're not worth it, that it >will never work for you, etc. > >So, even if you cheat all over the place, keep going the best you can. >Pay attention to what you're telling yourself. Mentally, there's a >world of difference between saying " I can't. I've blown it. I quit. " >and saying " This has been a really rough week but I'm still going and >nothing will stop me. " See, at least with the second option you feel >good about yourself and you continue to see results, even though they >may be slower than if you were going about it all hardcore. > >Here are some other posts to check out if you haven't seen them already: > >I've Fallen and I Can't Get Up >http://www.skwigg.com/id63.html > >Cheaters Prosper >http://www.skwigg.com/id28.html > >This is Your Brain on Body for Life >http://www.skwigg.com/id60.html > > > > >On Mon, 28 Feb 2005 14:44:44 -0000, Grace <greilly28@...> wrote: > > > > > > Hi Everyone, > > My name is Grace and I'm new to this board. Not new to BFL as I've > > started it a number of times and have NEVER finished it. I started > > again and AGAIN I feel like I'm falling flat on my fat head! I have > > pretty close to 100 lbs to lose and I'm really discouraged. This is > > week 4 for me but you wouldn't know it as at the end of week 2 I > > weighed myself and had only lost a pound so I stopped because I was > > so down on myself. Well the truth is, I felt pretty good during > > those 2 weeks and now I'm having a heck of a time starting back up. > > I feel like such a failure. Although I must say, when I came back to > > this sight after seeing it a few years ago, the pictures have really > > helped me. Everyone looks great! I just need to stay focused and > > that's easier said than done for me. Any words of encouragement or > > tips would be greatly appreciated. > > Thanks, > > Grace > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Thanks for the welcome Colleen! > > > > Hi Everyone, > > My name is Grace and I'm new to this board. Not new to BFL as > I've > > started it a number of times and have NEVER finished it. I > started > > again and AGAIN I feel like I'm falling flat on my fat head! > > Welcome. Please try not to feel discouraged. Remember you are not > alone. We have all been there one day or another, one time or > another, one minute or another. One thing that helps me is the > quote: strive for progress not perfection. I'm not perfect, as much > as I'd like to be. When I screw up, I just get back on the wagon and > keep on going. > > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Thanks for the welcome Colleen! > > > > Hi Everyone, > > My name is Grace and I'm new to this board. Not new to BFL as > I've > > started it a number of times and have NEVER finished it. I > started > > again and AGAIN I feel like I'm falling flat on my fat head! > > Welcome. Please try not to feel discouraged. Remember you are not > alone. We have all been there one day or another, one time or > another, one minute or another. One thing that helps me is the > quote: strive for progress not perfection. I'm not perfect, as much > as I'd like to be. When I screw up, I just get back on the wagon and > keep on going. > > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 You're off to a GREAT start. Keep at it! > > I started Body for Life on April 17 and have been going along nicely. > I weighed 216 lbs. when I first started and I now weigh 210.5. I'm > pretty pleased with that - I am not deceiving myself that this could > just be water I'm losing now. I enjoy doing the cardio and upper body > work. The lower body exercises is pretty rough on me as my weight is > such a problem. > > I had a Wheat Thin attack last night but I'm back on track again. At > my office, the sweets are kept very close to my desk and I was > watching one person go through the Little Debbie cakes and the more I > watched them the more hungrier I got. I felt like I was suddenly > starving. Well, I didn't cave in and was sure glad to get home and > work out to get my mind off the sweets. > > My weakness is Pringles and Pop. I've not had any since I started > this challenge. I drink flavored water to take the place of pop and > fruit to take the place of Pringles. It seems to be working. > > I look forward to learning and sharing with all of you. > > Cecilia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Welcome - to the board and a great way of eating n At 09:32 AM 4/27/2006, you wrote: >I started Body for Life on April 17 and have been going along nicely. >I weighed 216 lbs. when I first started and I now weigh 210.5. I'm >pretty pleased with that - I am not deceiving myself that this could >just be water I'm losing now. I enjoy doing the cardio and upper body >work. The lower body exercises is pretty rough on me as my weight is >such a problem. > >I had a Wheat Thin attack last night but I'm back on track again. At >my office, the sweets are kept very close to my desk and I was >watching one person go through the Little Debbie cakes and the more I >watched them the more hungrier I got. I felt like I was suddenly >starving. Well, I didn't cave in and was sure glad to get home and >work out to get my mind off the sweets. > >My weakness is Pringles and Pop. I've not had any since I started >this challenge. I drink flavored water to take the place of pop and >fruit to take the place of Pringles. It seems to be working. > >I look forward to learning and sharing with all of you. > >Cecilia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Welcome to the group and to BFL. You are doing a great job! Treats in the office are killer. It's hard because they are right there, they don't cost anything (except a broken self-promise) and the guys eating them (at least in our office) are young and in shape (looks like it anyway, not that I was looking..). Flavored water and fruit- YUMMY. Good choices! Chocolate & sugar.. bad. EXCEPT ON FREE DAY. Gotta love my free days. Keep up the GREAT work, Cecelia! > > I started Body for Life on April 17 and have been going along nicely. > I weighed 216 lbs. when I first started and I now weigh 210.5. I'm > pretty pleased with that - I am not deceiving myself that this could > just be water I'm losing now. I enjoy doing the cardio and upper body > work. The lower body exercises is pretty rough on me as my weight is > such a problem. > > I had a Wheat Thin attack last night but I'm back on track again. At > my office, the sweets are kept very close to my desk and I was > watching one person go through the Little Debbie cakes and the more I > watched them the more hungrier I got. I felt like I was suddenly > starving. Well, I didn't cave in and was sure glad to get home and > work out to get my mind off the sweets. > > My weakness is Pringles and Pop. I've not had any since I started > this challenge. I drink flavored water to take the place of pop and > fruit to take the place of Pringles. It seems to be working. > > I look forward to learning and sharing with all of you. > > Cecilia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Very good progress Cecilia! Rest assured that by doing the program you¹re losing more than water, your losing fat and gaining muscle and before you know it you¹ll be able to do more of the lower body stuff! Laurie > I started Body for Life on April 17 and have been going along nicely. > I weighed 216 lbs. when I first started and I now weigh 210.5. I'm > pretty pleased with that - I am not deceiving myself that this could > just be water I'm losing now. I enjoy doing the cardio and upper body > work. The lower body exercises is pretty rough on me as my weight is > such a problem. > > I had a Wheat Thin attack last night but I'm back on track again. At > my office, the sweets are kept very close to my desk and I was > watching one person go through the Little Debbie cakes and the more I > watched them the more hungrier I got. I felt like I was suddenly > starving. Well, I didn't cave in and was sure glad to get home and > work out to get my mind off the sweets. > > My weakness is Pringles and Pop. I've not had any since I started > this challenge. I drink flavored water to take the place of pop and > fruit to take the place of Pringles. It seems to be working. > > I look forward to learning and sharing with all of you. > > Cecilia > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Hi, Kristy lyme disease goes away but the damage it causes is with you forever. And yes a muscle rub works for me. Be very careful because it is easier to get again and the side effects get worse. Welcome to the group you will find a lot of good people here I have. LMay From: mecode4u <mecode4u@...>Subject: New to the board Date: Thursday, September 25, 2008, 10:06 AM Hello,My name is Kristy. I found out that I have Lymes about 4 years ago. It was found too late, but they still gave me the anti-biotics, which I threw up-BUT I still have every once in a while pain in my elbow. That is what brought me the Dr. in the first place. I felt like I had a severe disease cause it was hard to use my arm. They at first said "it must be your fibromyalgia" . I responded with,"No, I know what that pain feels like". How long does this linger? Am I to suffer forever and what can I do for the pain without asking for drugs? Does an analgesic help?HELPKristy, CMA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Hi, Kristy lyme disease goes away but the damage it causes is with you forever. And yes a muscle rub works for me. Be very careful because it is easier to get again and the side effects get worse. Welcome to the group you will find a lot of good people here I have. LMay From: mecode4u <mecode4u@...>Subject: New to the board Date: Thursday, September 25, 2008, 10:06 AM Hello,My name is Kristy. I found out that I have Lymes about 4 years ago. It was found too late, but they still gave me the anti-biotics, which I threw up-BUT I still have every once in a while pain in my elbow. That is what brought me the Dr. in the first place. I felt like I had a severe disease cause it was hard to use my arm. They at first said "it must be your fibromyalgia" . I responded with,"No, I know what that pain feels like". How long does this linger? Am I to suffer forever and what can I do for the pain without asking for drugs? Does an analgesic help?HELPKristy, CMA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Hi, Kristy lyme disease goes away but the damage it causes is with you forever. And yes a muscle rub works for me. Be very careful because it is easier to get again and the side effects get worse. Welcome to the group you will find a lot of good people here I have. LMay From: mecode4u <mecode4u@...>Subject: New to the board Date: Thursday, September 25, 2008, 10:06 AM Hello,My name is Kristy. I found out that I have Lymes about 4 years ago. It was found too late, but they still gave me the anti-biotics, which I threw up-BUT I still have every once in a while pain in my elbow. That is what brought me the Dr. in the first place. I felt like I had a severe disease cause it was hard to use my arm. They at first said "it must be your fibromyalgia" . I responded with,"No, I know what that pain feels like". How long does this linger? Am I to suffer forever and what can I do for the pain without asking for drugs? Does an analgesic help?HELPKristy, CMA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Hi Sharon! Welcome! If it were me, I wouldn't get any of them....here's why: " Merck warns in its Manual that patients with, or from families with, B and/or T cell immunodeficiencies should not receive live-virus vaccines due to the risk of severe or fatal infection. Elsewhere, it lists features of B and T cell immunodeficiencies as food allergies, inhalant allergies, eczema, dermatitis, neurological deterioration and heart disease. To translate, people with these conditions can die if they receive live-virus vaccines. Their immune systems are simply not competent enough to guarantee a healthy reaction to the viral assault from modified live-virus vaccines " . http://www.dogsadversereactions.com/scienceVaccineDamage.html My guess is that your doctor's office must purchase by box or case and they aren't willing to do that though. http://vaers.hhs.gov/pdf/PackageInserts.pdf Dawn http://vaccinesexposed.blogspot.com > > Hi All~ > I am new to the board and I wanted to introduce myself. I am the > mother to 15 month old twins, B/G. We are live in land close to > Baltimore. The reason I joined the board is b/c I am in search of > trying to split up my twins MMR shot. My son has some health issues > (egg allergy and prone to seizures) and my gut is telling me not to > give him the 3 in 1 shot. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Hi, Sharon. Welcome! You are very smart not to get the MMR all at once. If you really feel you want to give them separately, it will be worth your while to pay for the entire box (or three). Much cheaper than therapy for autistic children. But even then you are not home free with side effects. I urge you to research more about vaccines before continuing on with any vaccines. They are not guaranteed to work, let alone for any length of time and all vaccines carry the risk of death. It is a game of Russian Roulette each and every time. Anyway, definitely avoid the 3 in 1. Winnie New to the Board Vaccinations > Hi All~ > I am new to the board and I wanted to introduce myself. I am > the > mother to 15 month old twins, B/G. We are live in land > close to > Baltimore. The reason I joined the board is b/c I am in search > of > trying to split up my twins MMR shot. My son has some health > issues > (egg allergy and prone to seizures) and my gut is telling me not > to > give him the 3 in 1 shot. Currently I am doing a alternative > vaccination schedule. I have made many calls to see about > splitting > the shot and either people think I am crazy or I have to order > 10 of > each shot. Do you have any suggestions on how I can get my > twins > single shots? I looked to see if there was a group in the area > that > might buy them and split them but no luck so far. Any info is > apprecitated! > TIA > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Welcome aboard! I would suggest doing an advanced search using measles as the subject and Nakken as the author. Just recently the list owner gave us tons of information about the measles, and come to think of it rubella as well. I would recommend searching this information out, and seeing if your gut is maybe telling you not to do any vaccines... The decision to vaccinate is a personal one, but should only be done once all the information has been presented. Good luck, if you can't find the info in the archives let me know and I can email it to you offlist. Marci > > > > Hi All~ > > I am new to the board and I wanted to introduce myself. I am the > > mother to 15 month old twins, B/G. We are live in land close > to > > Baltimore. The reason I joined the board is b/c I am in search of > > trying to split up my twins MMR shot. My son has some health > issues > > (egg allergy and prone to seizures) and my gut is telling me not to > > give him the 3 in 1 shot. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 don't vaccinate, saves a lot of hassle my last 2 are unvaccinated, now 14 and 12--the 12 year old just went to new school and did cross country run and she beat her year and the year above, then they said she had the best time in the whole school. all vaccines are ineffective and dangerous, I took apart measles one here http://www.whale.to/vaccines/measles.html john New to the Board Hi All~ I am new to the board and I wanted to introduce myself. I am the mother to 15 month old twins, B/G. We are live in land close to Baltimore. The reason I joined the board is b/c I am in search of trying to split up my twins MMR shot. My son has some health issues (egg allergy and prone to seizures) and my gut is telling me not to give him the 3 in 1 shot. Currently I am doing a alternative vaccination schedule. I have made many calls to see about splitting the shot and either people think I am crazy or I have to order 10 of each shot. Do you have any suggestions on how I can get my twins single shots? I looked to see if there was a group in the area that might buy them and split them but no luck so far. Any info is apprecitated! TIA Sharon ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.7.4/1695 - Release Date: 9/27/2008 1:11 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 > > Hi All~ > I am new to the board and I wanted to introduce myself. I am the > mother to 15 month old twins, B/G. We are live in land close to > Baltimore. The reason I joined the board is b/c I am in search of > trying to split up my twins MMR shot. My son has some health issues > (egg allergy and prone to seizures) and my gut is telling me not to > give him the 3 in 1 shot. Currently I am doing a alternative > vaccination schedule. I have made many calls to see about splitting > the shot and either people think I am crazy or I have to order 10 of > each shot. Do you have any suggestions on how I can get my twins > single shots? I looked to see if there was a group in the area that > might buy them and split them but no luck so far. Any info is > apprecitated! > TIA > Sharon > Hi Sharon, Welcome to the group! Please take your time in making this decision. Don't let anyone pressure you into vaccinating if something is telling you not to. Trust your instincts! At the very least, you can delay for as long as necessary while you research about it. And as for your doctor's office, if they are not willing to accomodate your wishes, you should really find a new office. Your doctor should be willing to do whatever you ask as the parent. Good luck in your research! You may want to do a search on this board for MMR and reactions for more info. --, Mom to two totally unvaxxed, very healthy kids! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2012 Report Share Posted June 5, 2012 Hi all, My name is Abigail and I am a 26 year old who was diagnosed with Achalasia last year in April. My symptoms started in Nov - Dec 2010 when noticed occasional difficulty swallowing. I tried chewing more, but it did not seem to help. Then, I started getting frequent heartburn. I went to see a GI who said these symptoms could be a number of things and recommended a endoscopy. The endoscopy was normal and he stretched the LES slightly which he told me shold help with the difficulty swallowing; it did not. He then recommended that I have a esophogeal manometry (the worst test EVER!), which showed that the peristalsis was gone, all the muscles were moving at the same time. It also showed that my LES was very constricted. At this point my GI knew I had Achalasia but wanted to do a barium swallow to confirm. He also ordered a blood test for Chagas disease since I have been to central america 5 times in the past 7 years. The barium swallow showed a delayed release of the solution and confirmed the diagnosis. Throughout the months of all of the doctor appointments and tests and things, I developed a scary new symptom. I would wake up in the middle of the night coughing up stomach fluid and/or food that had not emptied into my stomach. This sounds gross, but sometimes the food would come up through my nose. I had to buy a special pillow and sleep upright. My eating also got worse and I could only take a couple of bites of each meal. I would be on my second bite, and my fiance would be finishing his meal. Drinking liquids was just as bad. My weight dropped dramatically. I weighed all of my options for treatment and decided to go with the HM with Dor fundoplication (in Aug). It was done with the Da Vinci robot, which is a very advanced surgical machine that helps the surgeons to make very precise incisions and gives them more control. I ended up having to stay in the hospital for 3 nights rather than the standard 1 due to post operative swelling.Has anyone else had the HM with DF? If so, how long ago and how are you faring? Since the surgery I am back up to my normal weight, I can sleep laying down, I rarely have heartburn, and eating is much better. However, some foods are more difficult to eat than others. I also occasionally get the spasms and they usually (and very inconveniently) happen in the middle of the night. I was taking amitriptyline for this but it did not help too much. What do you guys do when you have these spasms? Anyway, I am glad I found a board for Achalasia sufferers. I look forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
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