Kids and stretches

[Guest guest]

Hey moms,

Cameron has only had one stretch done. His Myo was done in O5... 7 years ago. 

He may be looking to have another.

Sometimes the fundo is too tight from the beginning. Sometimes a fundo has to be

" undone " .  It is important to ask these questions... of your surgeons!!!

Stretching is a very very intricate procedure. Cameron can wolf pizza, and bread

sticks, and many other " boy " food.  Although as a young man he no longer eats

like there is no tomorrow.  He still has an affinity for high carb foods.

Who did your kid's surgery's

Carolyn

mom of Cameron  myo'd and fundo'd in 05

 

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> Hi all-

>

> It's been a while since I've posted on here! Last time I think I mentioned my

sons appointment with his gi doc in October. His surgical scheduler called me in

December to let me know that she was working on setting a date for Devyn's upper

GI/ dilation ( we are up to dilation number 7 in 2 years) and I never heard

back! So I stalked her and she finally called me back. He is scheduled to go in

On the 17th. His surgeon will also be there to take a look and see if anything

needs to be revised ( he had a heller myotomy as well).

> I an curious if anyone knows if 7 dilations in 2 years seems excessive? I've

read plenty of your posts talking about the esophagus getting stretched too far

from too many dilations. I want him to have as much of a normal life as possible

for as long as he can! I don't want to do too much da

mage at such a young age, but I also don't want to see him panicking and rushing

for water every time he eats and the food gets stuck! Any advice/opinions are

welcome!

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> Thanks,

>

>

> Sent from my iPhone

Hi , I haven't been on here, in quite some time. How old is your son?

My

son had a Heller myotomy when he was 6yrs old. He is 17 now. And he has only

Had one dilation a few yrs after his operation.....what do they say the reason

is for

doing so many dilations?....My son says food always gets stuck, every time he

eats.

That's all he has ever known He drinks a ton of liquid every time he

eats.....soda

Pop seems to help food go down better, he says....His G I doc said it will

always be

hard for him to swallow. The heller myotomy and dilations don't really do any-

thing for the muscles and nerves that push the food down. They just help to open

up the sphincter muscle......Does your son take any medications? Mine doesn't

but

the doc wants to put him on a previcid type med. (Son doesn't want to) Doc says

that Achalasia patients could get Cancer of the lining of the

esophagus....Doc seems to think the NCCP 's that my son Has been getting for

years is acid reflux....was wondering what others out there thought.??? My son

describes the pains as sharp, stabbing pains......Doc wants to scope him and do

a

biopsy of the lining of they E.S.......My heart goes out to you,. As moms

it's so hard to watch our kids go thru this rare condition. My son doesn't eat

much

at school and it's got to be so hard for him to see other boys wulfing down

their

food ......he's very active in sports and I worry about his weight, especially

football!

If it was me, and the doc wanted to do so many dilations on my son, I think I

would want to get a second opinion....wish you well,

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