Thank you

[Guest guest]

Ha ha ha, he he LOL!! This story is a keeper. I have to print this

one. Thanks for sharing it.

Petra

> LOL,,I should re-post the conversation I had with myself one night

> when I went over to mcDs intending to cheat and get chocolate chip

> cookies (homemade ones NOT those little hard things).

>

> It was so funny (in retrospect). It was SO one of those " devil on

> one shoulder, angel on the other " moments.

>

> Okay so here I am walking across the street to mcD's for cookies.

(I

> used to live about 30 steps from Mic's front door,,arrggghh,

luckily

> the only thing they have that I like are the shakes, ice cream and

> those cookies,,,mmmmmmmmmmmm warm and melty,,,ACK,,slaps

> face,,,anyway).

>

> Angel: Just WHAT do you think you're doing????!!!!!

>

> Devil: MIND your own business, I just cleaned house for 4

hours,,,I'm

> tired, cranky, cold and I WANT a REWARD!!!!

>

> Angel: mutter, mutter, mutter,,BAD,,BAD girl,,,,

>

> I reach the door,,,I go in,,I ask for 6 CC Cookies.

>

> Counter boy: I'm sorry ma'am we're out right now

>

> Angel: HAH!!! Serves you right,,,SEE? It's NOT meant to be.

>

> Devil: WE'LL see about that!!!!

>

> Me (to counter boy): How long before you have a batch ready??

>

> Counter boy: 8-12 minutes.

>

> Me: okay thank you.

>

> So, I walk out into the Chevron quik mart part of the store.

>

> To wait.

>

> (mwah haha).

>

> Angel: LOOK, this is a SIGN that you are not SUPPOSED to cheat.

>

> Devil: YOU just shut up before I knock your lily white pansy little

> winged a$$ on this floor, I am GETTING cookies, I DESERVE cookies!!!

>

> Angel: ALLRIGHT,,,THAT does it,,,,You get your FAT behind HOME and

go

> to bed,,,you need REST you moron, NOT cookies!!! NOW

MARCH!!!!!!!!!!

>

> LET'S go,,,,,you're gonna take a hot bath and go to bed,,,now quit

> your sniveling,,,get your fat rear end HOME!!!!

>

> Man!!! Those angels can be so MEAN!!!!!

>

> LOL,,,

> (by the way,,the angel DID win. I didn't get cookies).

>

> The moral of the story is that you don't want to have a devil and

> angel duking it out on your shoulders in public, it's

embarrassing.

> heehee,,,,but really,,,,sometimes you just GOTTA " yell " at yourself.

[Guest guest]

Giggling!!

OMG<,I have SOOOOOOOOOOOOOOO been THERE!!!

[Guest guest]

Thanks to everyone who replied,,,,what's REALLY hilarious was that it

happened just that way,,,,(okay, the angel and devil were invisible,,)

But I was LITERALLY arguing with myself on the inside that way......

I can laugh about it NOW,,,but at the time?

Good grief, one would think that 6 cc cookies were the Holy Grail or

something!!!

[Guest guest]

Hello Darlene,

I have seen some really precious messages come through our lists, but I think

this one takes the prize for touching my heart.

Your prayers mean more to me than anything I can think of.

Today was a little rough early on. Once again I could not get on line for quite

some time and when I finally did I kept getting bumped off. I had a lot of

things to take care of and this morning it felt like they were not going to

happen.

By this afternoon I felt a calm peace surround me and I felt like I was being

hugged somehow. When I read your messages offering prayers for me my heart felt

like it had been released from bondage into a place of freedom. I felt like my

heart was dancing.

Things came together and I was able to complete many of the things I had hoped

to accomplish.

Thank you so much for thinking of me today. Your prayers made a huge difference.

I am so grateful.

Thanks to for the special prayers too.

Love,

Rashelle

I don't think this note made it to the list earlier...

I was in a hurry this morning and forgot my water to drink on the way to

work. It gave me some extra time to breathe, though, so I ended up getting

in 80 breaths. Of course, I thought about Liz and said a prayer for her and

little Noah. And I asked God to bless Rashelle a little extra today for

helping so many people. <smile>

Hugs,

Darlene

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

I felt like a little child when I read this. I want to keep it and hug it

to me close! This message meant so much to me, and I'm saving it to re-read

often. Sometimes I feel very helpless, when I should realize that I have

something more powerful than anything - prayer straight to God. I'm sure He

must have prompted me to pray for you today. Isn't He wonderful?!

Love,

Darlene

Re: Thank You

>

> Hello Darlene,

>

> I have seen some really precious messages come through our lists, but I

think this one takes the prize for touching my heart.

>

> Your prayers mean more to me than anything I can think of.

>

> Today was a little rough early on. Once again I could not get on line for

quite some time and when I finally did I kept getting bumped off. I had a

lot of things to take care of and this morning it felt like they were not

going to happen.

> By this afternoon I felt a calm peace surround me and I felt like I was

being hugged somehow. When I read your messages offering prayers for me my

heart felt like it had been released from bondage into a place of freedom. I

felt like my heart was dancing.

> Things came together and I was able to complete many of the things I had

hoped to accomplish.

>

> Thank you so much for thinking of me today. Your prayers made a huge

difference. I am so grateful.

>

> Thanks to for the special prayers too.

>

> Love,

>

> Rashelle

>

>

> I don't think this note made it to the list earlier...

>

> I was in a hurry this morning and forgot my water to drink on the way to

> work. It gave me some extra time to breathe, though, so I ended up

getting

> in 80 breaths. Of course, I thought about Liz and said a prayer for her

and

> little Noah. And I asked God to bless Rashelle a little extra today for

> helping so many people. <smile>

>

> Hugs,

> Darlene

>

[Guest guest]

Hello Darlene,

What a precious woman you are! You warmed my heart with this message. Thanks!

Love,

Rashelle

Subject: Re: Thank You

I felt like a little child when I read this. I want to keep it and hug it

to me close! This message meant so much to me, and I'm saving it to re-read

often. Sometimes I feel very helpless, when I should realize that I have

something more powerful than anything - prayer straight to God. I'm sure He

must have prompted me to pray for you today. Isn't He wonderful?!

Love,

Darlene

Re: Thank You

>

> Hello Darlene,

>

> I have seen some really precious messages come through our lists, but I

think this one takes the prize for touching my heart.

>

> Your prayers mean more to me than anything I can think of.

>

> Today was a little rough early on. Once again I could not get on line for

quite some time and when I finally did I kept getting bumped off. I had a

lot of things to take care of and this morning it felt like they were not

going to happen.

> By this afternoon I felt a calm peace surround me and I felt like I was

being hugged somehow. When I read your messages offering prayers for me my

heart felt like it had been released from bondage into a place of freedom. I

felt like my heart was dancing.

> Things came together and I was able to complete many of the things I had

hoped to accomplish.

>

> Thank you so much for thinking of me today. Your prayers made a huge

difference. I am so grateful.

>

> Thanks to for the special prayers too.

>

> Love,

>

> Rashelle

>

>

> I don't think this note made it to the list earlier...

>

> I was in a hurry this morning and forgot my water to drink on the way to

> work. It gave me some extra time to breathe, though, so I ended up

getting

> in 80 breaths. Of course, I thought about Liz and said a prayer for her

and

> little Noah. And I asked God to bless Rashelle a little extra today for

> helping so many people. <smile>

>

> Hugs,

> Darlene

>

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

In a message dated 11/9/02 7:57:54 AM Eastern Standard Time,

ShariBaker@... writes:

> Rae - You are an inspiration to me. Knowing you have

> been there and done all this just proves to me it can be

> done. Keep posting, keep sharing, and keep cheering the rest

> of us along. We need you.

>

Awww thank you Shari. I would be honored to cheer you on...giving support is

just as important as getting it. And you better believe that I need you all

too! I hope you all are having a great weekend!

Rae

260/155.75/150

" The only place success comes before work is in the dictionary "

[Guest guest]

You're welcome!

You may already know this, but the only two videos that include the

full instructions on the LifeLift breath are the original and the

Oxygen Zoo for children. You might want to be sure and let one of

those two be what you send as presents so that your friends get all

the information.

I found a message that Rashelle posted about breaking a plateau that

you and others might find useful. I'll send in another note.

Smiles,

Delightful Darlene

> Hi Darlene!

> Thank you so much Darlene for the reply!

> I am so glad to be back! thank you for ading me to the honor list.

> Oh yes i am so enjoying LL. I look forward to it everyday, To

doing

> it and to the way i feel afterwards as well. and i feel different

> already. Do you or any of yo who are veterans have any suggestions

for

> me to enhance my practice and/or get the most out of it? It is a

> WONDERFUL breath. Am buying tpaes for friends as Christmas gifts.

I

> can't think of anything better for people i care about.

> looking forward to being on the honor list.

> have a lovely day

>

> peace

> k

[Guest guest]

Hello K,

You sure know how to put a smile on my face. I am so thrilled to hear that you

are enjoying your Life Lift program so much.

I enjoyed talking to you the other day. You are adorable and I loved being able

to meet you that way.

I have complete confidence in you. I know you will be able to achieve any goals

you set for yourself. The fact that you love Life Lift so much will make it all

so easy too.

You are brilliant! I can't imagine a better gift than the gift of better health

for a lifetime. Last year the orders for the children's video were staggering.

It made me feel great to see how many people had figured out the value of giving

families such a perfect gift. I had not expected to see so many people giving

Life Lift videos for Christmas. One woman ordered 10 of the Original. Your

friends and family will be very grateful to you.

I am still amazed at how quickly you received your videos. My daughter Amber

runs my shipping department and I always love hearing what an amazing job she is

doing taking care of all of you. She feels like I do. Your success is so

important to us. I am so happy today reading your great messages!

Tale good care,

Rashelle

Your success is important to us. We offer exceptional products to insure your

permanent success.

Be sure to check out all of the specials on my web sites.

Just click here http://www.lifelift.com

thank you

Hi Darlene!

Thank you so much Darlene for the reply!

I am so glad to be back! thank you for ading me to the honor list.

Oh yes i am so enjoying LL. I look forward to it everyday, To doing

it and to the way i feel afterwards as well. and i feel different

already. Do you or any of yo who are veterans have any suggestions for

me to enhance my practice and/or get the most out of it? It is a

WONDERFUL breath. Am buying tpaes for friends as Christmas gifts. I

can't think of anything better for people i care about.

looking forward to being on the honor list.

have a lovely day

peace

k

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

All I can say is thank you.

You all have no idea how much your comments ment to me.

I plan on sticking this through. You all actually made me cry.

I get no support at home at all. I really need this kick in the butt.

I will not quit. I promise you that. You will see me at the end of this

challenge and the beginning of the next. I am giving myself two challenges

to make myself over.

thank you , thank you, thank you!!!

I was so depressed. Now I am happy at the progress i've made.

thanx so much

kimberlylynne

[Guest guest]

Great Kim!!!! You go girl!!!!!!!!!!!!!!

You have inspired me too!

M

> All I can say is thank you.

> You all have no idea how much your comments ment to me.

> I plan on sticking this through. You all actually made me cry.

> I get no support at home at all. I really need this kick in the

butt.

> I will not quit. I promise you that. You will see me at the end

of this

> challenge and the beginning of the next. I am giving myself two

challenges

> to make myself over.

> thank you , thank you, thank you!!!

> I was so depressed. Now I am happy at the progress i've made.

> thanx so much

> kimberlylynne

>

>

>

[Guest guest]

and Belinda,

Thank you!! Sometimes it is just nice to know that I am not the worst person in

the world when I lose it with a sick child. This morning I felt so

unbelievable guilty and horrible. I am getting choked up writing this. There

are so many other children who would love to be able to just get out of bed,

even if it was slow, so I feel like geez Sharon what a big ole cry baby you are

with your pathetic complaints. This is why I do not discuss with most

people, except this group, because others truly do not understand. My friends

and family are wonderful, but really have no idea , nor should they. Most days

I do o.k., but it has been really hitting me lately how permanent this really

is. Until you get your diagnosis , you kind of live in a different world of

dealing with the now, not thinking about ;this being permanent. I was thinking

last night (couldn't sleep , probably why I was so crabby this morning)... how

this IVIG treatment is going to be a part of our life now, and there really is

not much I can do to change it. I think once I see an improvement in it

will seem much better, but this week she seems worse,. Thank you all once

again for letting me ramble on . I don't know what I would do without your

support and encouragement.

Hugs and prayers

Sharon

s mom

And you do NOT sound like a know it all. You gave me some excellent

advise and I really appreciate it. Those kinds of helpful tips really make me

think and I am open to any and ALL suggestions . Thank you very much.

or medical advice stated here are the sole responsibility of the poster and

should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

In a message dated 2/14/2003 12:02:03 PM Central Standard Time,

SGrubb@... writes:

> This is why I do not discuss with most people, except this group,

> because others truly do not understand.

Sharon:

I know what you mean. When was first diagnosed, everybody wanted to

hear all the details. Well, it ended up with pretty much each family member

getting a different kind of confused. My MIL gets confused and turns things

around and puts her own words in my mouth, then aggravates me by spouting her

own mistaken take on things as something I supposedly told her. Argh. Other

family members will make blind assumptions about things or will get incorrect

info from MIL or others, and my SIL is actually one of those people who wants

to have the excitement and attention of illness in her life and negates some

of the stuff we go through out of apparent jealousy. Wild. So now we don't

tell anybody anything and then people get upset when we've been to the ER and

didn't tell anybody.

I have a new friend and I feel like she's going to give up on us because

's always sick and we can never do anything with them. And now Kate

catches everything of 's and we just seem to disappear from the planet

for weeks at a time.

At this point the only friends we have are those that can understand when

they don't hear from us for weeks or months and when it takes days to return

a phone call.

And you don't want to be griping about your sick child constantly, so pretty

much I also save that griping for you lucky people!

Speaking of griping- had diarrhea yesterday and looseness today but

seems otherwise fine, Kate was loose yesterday but watery and stinky today,

so I think we have a tiny gastro bug here. Hope that's it and it doesn't

escalate. STILL have not caught up on Kate's shots -- missed her three and

four month appts/shots and here she's due for the five month checkup in a

couple days. Will never catch up!

(mom to Kate, born 9/19/02; and , age 4 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

[Guest guest]

In a message dated 2/17/03 7:51:26 AM Pacific Standard Time,

SGrubb@... writes:

> I feel like the grinch right now, but my gut tells me NO.

Hi Sharon,

It's a difficult situation that you're in (or should I say we're in) but

you are doing the right thing is listening to your gut. We have talked in

the group frequently of the Moms feeling like the " germ police. " It's not

fun, but necessary for our children's health.

As far as trying to make your job easier, I would talk to the other

parents. I have done that in our neighborhood. cannot attend school

at this time, but all of the kids come over and play--pretty much on a daily

basis. I make sure that the parents understand why he cannot be around sick

kids, and they are all cool about it--they don't let their kids come over if

they are sick. Also, if someone does come to the door with the sniffles, I

am not shy about asking if they should come back another day. I am gentle

about it, so they don't think they have done something wrong.

It is hard on when a favorite friend is sick. Recently, one of his

best friends missed his birthday party. I keep special things around for

those days--projects that we do together. Maybe a science project (his

favorite) or baking. That way, it does help keep his mind off of what he

can't do.

Sandi--Mom to , age 10. Suspected IgA def., Tetrology of Fallot, chronic

sinusitis, chronic ear infections, asthma, severe allergies, GERD. Ten

surgeries, heart surgery pending.

[Guest guest]

In a message dated 2/17/2003 9:49:07 AM Central Standard Time,

SGrubb@... writes:

> Since this is a relatively new diagnosis for us, I am not as thorough as I

> should be when screening from contact with other sick children. I

> know the doctors have said to keep her away from sick children. Can

> anyone offer some advice as to how to do this. Do you talk to the other

> parents and ask if there children are ill????

> It is all new to me and I am not sure how to approach the other children.

> I found out that one of the girls at the sleep over was sick when she came.

> I am not sure if that is why became sick, but I would guess that is

> why????????

Sharon:

It's tough, keeping them well. Firstly, could not have become sick

only a few hours after her first contact with a sick guest. Unless she was

with that little girl a couple days ago. It's my understanding most illnesses

incubate in your body at least a day or two or up to seven (? not hard and

fast rules) before you show symptoms. Also, in many illnesses, you're most

contagious before you show symptoms. So it's hard to keep from catching

things if you're around a lot of other kids.

All kids are different but I call the 48-hour girl. She comes down with

everything exactly two days after being exposed to it. It's sort of funny how

predictable it is (well, not really funny, but interesting, I guess).

As far as avoiding sickies: It's easier for us because 's not in school

yet, and only has a couple playmates. The moms know 's situation and

know that they should not expose to anything, including a cold, since

it will inevitably lead to a secondary bacterial infection. For very special

occasions, we make allowances... we'll brave a cold now for the sake of

Christmas or a birthday. But not for a general playdate. What happens is the

morning of an event if the other kid has anything going on (runny nose, etc.)

the mom calls and gives me the report (!). It's up to me to say yes or no.

Works great for us, though we miss out on a lot of stuff. But remember that

is on no treatment whatsoever. I would think if 's on IVIG and if

she's been on it awhile and has settled in, that she'll be able to be like

most kids as far as exposure goes? You'd still have the IgA issue, since

that's not in IVIG, though.

Hope that helps! Thanks for thinking of the girls. They are both really fine,

it's just a teeny little touch of a thing. Not full blown rotavirus or

anything like that at all.

(mom to Kate, born 9/19/02; and , age 4 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

[Guest guest]

,

I hope Kate and are doing better. The flu is in full swing in our area.

had a sleepover for her birthday and became ill the night of . I had (5

) 11 year olds at my house and started to feel pretty lousy around 10:00

pm. I felt so sorry for her. Her one special day and the flu hit her. She

toughed it out till morning, but became progressively worse with vomiting, and

became very dehydrated. At 5;00 yesterday , I called her ped because she was

showing no signs of improvement and could not even walk. Could not tolerate any

fluids., He sent us to the ER for IV fluids which did the trick. After her

second bad of fluids she came around , began talking and even said she was

hungry!!!

I hope your little ones can ward this off. This is such a wicked winter for

all of our kids.

Since this is a relatively new diagnosis for us, I am not as thorough as I

should be when screening from contact with other sick children. I know

the doctors have said to keep her away from sick children. Can anyone offer

some advice as to how to do this. Do you talk to the other parents and ask if

there children are ill????

It is all new to me and I am not sure how to approach the other children. I

found out that one of the girls at the sleep over was sick when she came. I am

not sure if that is why became sick, but I would guess that is

why???????? Of course today is feeling so much better and would like to

play with this little girl who is lives down the street, but I said no, which

ended up in a begging , crying and pleading me to change my mind. I feel like

the grinch right now, but my gut tells me NO.

I guess these are all minor adjustments to make considering .......

, I could relate very much with your stories about mother and sister in

laws. I probably should call my MIL and mom and give them an update on ,

cuz they will have fits when they hear we were at the ER and I didn't call,

however I dread it. I will be told " Why did you let those girls spend the

night, for a sleepover, and I will hear how to keep a child from getting

dehydrated (in the old days they used to............) Sometimes it is just more

than I can listen to.

Hope everyone has a healthy week. You are ALL in my daily prayers.

God Bless

Sharon

Mom to 11 Igg def 20 health

Re: thank you

In a message dated 2/14/2003 12:02:03 PM Central Standard Time,

SGrubb@... writes:

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

Sharon,

Did get a flu shot? I get one for (and myself) every year,

they seem to make a huge difference for us. Once in a while, he gets a bug

anyway, but nothing as severe as the flu.

Every parent is different in what we let our kids do. loves

shopping, too, so I let him do it. But I do pick hours when I think the

least amount of people will be there. I also make him wash his hands the

minute we get back into the house. But that's just me--we all go about this

differently. Each of our kids have their own weaknesses, too, and need to be

protected differently. For me, it's protecting from most

coughs--because of his heart condition they are very dangerous to him.

You will find the right balance. It seems a bit awkward at first, but

you'll get the hang of it quickly. Just keep listening to your gut--and do

what feels right for you and . She's a lucky girl to have such a

devoted Mom.

Sandi--Mom to , age 10. Suspected IgA def., Tetrology of Fallot, chronic

sinusitis, chronic ear infections, asthma, severe allergies, GERD. Ten

surgeries, heart surgery pending.

[Guest guest]

Re: thank

, I would talk to the other

parents. I have done that in our neighborhood. cannot attend school

at this time, but all of the kids come over and play--pretty much on a daily

basis. I make sure that the parents understand why he cannot be around sick

kids, and they are all cool about it--they don't let their kids come over if

they are sick

>>>>>>

O.K., I guess I am going to have to contact her friends parents and explain the

situation. I am sure they will understand.

I pray that I explain it properly. There is a fine line of explaining it as to

not alarm anyone, and yet you don't want to minimize the risk either. I need

to find that balance somewhere. Once again many thanks for your feedback. It

is so helpful.

Hugs

Sharon

11 igg def

[Guest guest]

Re: thank you

In a message dated 2/17/2003 9:49:07 AM Central Standard Time,

It's tough, keeping them well. Firstly, could not have become sick

only a few hours after her first contact with a sick guest. Unless she was

with that little girl a couple days ago. It's my understanding most illnesses

incubate in your body at least a day or two or up to seven (? not hard and

fast rules) before you show symptoms.

>>>>

Thanks, that makes total sense. She will be getting her 3rd IVIG infusion this

week. It cannot be soon enough after this past infection. I think I will take

the suggestions given to me and contact her closest friends parents, (the

children that she spends the most time with) , and explain the situation.

Hopefully they will understand. There is so much flu in our area right now, I

am not sure that anywhere is safe. She loves to go to the grocery store with

me, however I am going to have to stop that until this flu season is over.

Thanks again!!!!!

Hugs

Sharon

s mom 11 igg def

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

Re: thank you

Sharon,

Did get a flu shot? I get one for (and myself) every year,

they seem to make a huge difference for us.

Sandi,

No we did not get a flu shot. Several people have suggested that this would

make a huge difference. I think I will pursue this next season. Thank you

soooo much for the kind words. I am so very thankful to have this group. Your

support means more than you will ever know.

Love and prayers

Sharon

s mom Igg def

: This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

Sharon - I'm not sure what 's complete function is immune wise but if the

symptoms didn't come on full tilt until

the next morning then it could be possible that the exposure the night before

(presuming it started as early as 6 or so)

could contribute. Have you spoken to the other child's parents to see if that

child became progressively worse? Our

take on exposure has always been that as the conversation between parents turned

to play dates I just told them that

Macey was immune suppressed and that any illness would be hard on her. With so

many children and adults these days on

steroids for various conditions and more families unfortunately having to deal

with chemo and family members with

cancer, immune suppression is a term they're familiar with. Some parents

question further, at which point I tell them

that she doesn't have the ability to respond to the normal childhood vaccines

and bacteria's. That usually handles it.

Word of mouth around school has handled the situation a good bit.

Talk about being the Grinch: is at the point where she needs to take

alittle control of her disease. Macey this

weekend was expected to tell the triage nurse and the on call doc at least a few

of her symptoms. Then I filled in the

gaps. should understand what she was exposed to, what it resulted (or

possibly resulted) in and what precautions

are temporarily necessary to keep well. Macey knows she gets infusion so she

can stay in school. She gets shots of

Rocephin to keep well for vacation trips coming up (because typically if the

Rocephin isn't done early then it has meant

3 or so weeks of IV antibiotics with a line which meant no basketball, no

contact play and me hovering).

Ursula Holleman

mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease,

GERD, Diabetes Insipidus, colonic

inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation's 2003 National Conference

http://www.execinc.com/idf/

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

Re: thank you

Sharon - I'm not sure what 's complete function is immune wise but if the

symptoms didn't come on Talk about being the Grinch: is at the point

where she needs to take alittle control of her disease. Macey this

weekend was expected to tell the triage nurse and the on call doc at least a few

of her symptoms. Then I filled in the

gaps. should understand what she was exposed to, what it resulted (or

possibly resulted) in and what precautions

are temporarily necessary to keep well. Macey knows she gets infusion so she

can stay in school. She gets shots of

Rocephin to keep well for vacation trips coming up (because typically if the

Rocephin isn't done early then it has meant

3 or so weeks of IV antibiotics with a line which meant no basketball, no

contact play and me hovering).

Ursula,

You know you are right. does need to come to terms and start taking some

control of her illness. I never thought of it in those terms. She gets so

angry when I try and talk to her about it. She probably would benefit from

some sort of counseling. I don't think she has full acceptance yet. She is

still so sick from this influenza. I spoke to the other little girl who was

sick at laurens sleepover and she is really ill also. gets her 3rd

infusion Friday. My emotions are all over the place right now because she has

had such bad reactions from her infusioins. She gets really sick following .

What is strange is the first 24 hrs are not bad, but the second day is when it

knocks her down. Maybe this time will be different.

Thanks to everyone for the input on WBC counts, and all who replied. I have

taken note of all of it.

God Bless, and health to everyone

Sharon

s mon IGG def

Ursula Holleman

mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease,

GERD, Diabetes Insipidus, colonic

inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation's 2003 National Conference

http://www.execinc.com/idf/

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

Can I ask something? Maybe I missed something. I think your new Kathy, and

don't have the scoop of why you said that.

Thank You

Thanks to all that remembered our son on what would of been his 10th

birthday.  Your e-mails and thoughtfullness helps me conquer another year

without him.

Thanks again.....

Kathy (Mom to Angel )

and Brett, is & Zach

[Guest guest]

IOh Kathy,

I'm so sorry. I didn't know.

Gail :-)

n a message dated 4/22/03 10:34:15 PM Eastern Daylight Time,

KSheri0422@... writes:

<< Thanks to all that remembered our son on what would of been his

10th

birthday. Your e-mails and thoughtfullness helps me conquer another year

without him.

Thanks again.....

Kathy (Mom to Angel )

and Brett, is & Zach

>>

[Guest guest]

Hi Kathy,

Glad to know you have Angels among you to support you during these

moments. I too, was not aware. Sending lots of hugs your way.

shall never be forgotten.

I was sent an email on FAMILY. Times like these are a wake up call,

epecially for me. My boss yesterday had mentioned something to me

and I had to defend myself as I had to remind him when I was hired

that my family comes first in my book.

There is more to this but a short phrase I'll include.

FAMILY

Are you aware that if we died tomorrow, the company that we are

working for could easily replace us in a matter of days. But the

family we left behind will feel the loss for the rest of their

lives. And to think of it, we pour ourselves more into work than our

own family, an unwise investment indeed, don't you think? So what is

behind the story?

Many hugs!

Irma,14,DS/ASD