Guest guest Posted June 3, 2012 Report Share Posted June 3, 2012 I find the FB page great for getting the word out... but alas, like some of the others... I don't really care ( please don't take this personally ) about what you are going to wear tomorrow, or what your dog is doing now. it is too open, with not moderation and boundaries. But there are people who are in great need of help!! .. Moderated, Seasoned, Tested, Valuable. If you do not use your email to respond to achalasia posts and instead post from the groups page.. you can see and experience a multitude of invaluable information. You can keyword any experience or name and they will all come up... for the last 13 years and thousands upon thousands of posts.. The database, files, photo's and links do not go away, they are there for you to use!! 13 years of worldwide input... Facebook could never compare. I am convinced the key.. albeit small, is contained in the experience of the membership.. it just needs to be unlocked. Facebook should be a segway for the multitudes who are seeking advice, support and information to this group. I have used this database so much in the last 8 years it is incredible... If you were to search my name you would see.. It has also given me the opportunity to share my own experiences which could never have been accomplished on FB with the same depth. FB is good ..... is invaluable.. Carolyn Holmes mom to Cameron myo'd and fundo'd in May 05 Quote Link to comment Share on other sites More sharing options...
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