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Just to let you know, in medical terms..

The medical field and insurance company has a coding system.  Each disease or

disorder or etc has a code and there is also a dictionary description and

recommended course of treatment of each disease.

Many and I really mean most had a description that state ... " balloon dilation

is the recommend course of action for treatment "

They were so out of date... from the early 1980's that it is scary.  Most often

if your insurance company says it will NOT cover surgery... myotomy and

fundoplication, it means they are not current to today's standards of usual and

customary.

Additionally, Achalasia only very recent, became prominent enough to make the

National Organization of Rare Disorders Database. http://www.rarediseases.org/

At this site you can see the various diseases that occur more often than

achalasia... It is still rare enough that there is not current funding or

studies for it...

Carolyn

 

________________________________

________________________________

From: Faith Weiss <weissf@...>

" achalasia " <achalasia >

Sent: Sunday, June 3, 2012 7:53 PM

Subject: Re: Re: vs facebook... hmmm..

 

I do not know the number, but a surgeon at

Mayo told me they see quite few each month

Coming from all over. One GI doc there told

me he sees about 3 per month. Either way, there

Are a bunch of us.

How many on this list serve? From what states...

countries......territories??????

Sent from my iPod

On Jun 3, 2012, at 20:58, dcblogs administrator <dcblogs@...> wrote:

> I think this group is great and is in the category of lifesaver as far as

> I'm concerned. But in trying to calculate the potential number of Facebook

> friends ... have a related/unrelated question that's been on my mind.

>

> How many people in the population actually have achalasia? How is that

> calculated?

>

> As I understand it the incidence is one per 100,000. But what does that

> mean?

>

> Does it mean that in any give year, one out of a 100,000 people will be

> diagnosed with achalasia (or can be expected to have an undiagnosed case)?

> Using a U.S. population of 300 million (rounding) that means there are

> 3,000 new cases year.

>

> If that's how it works, then there could be as many as 200,000 people

> (based on average life expectancy that excludes very young children)? Does

> that seem reasonable?

>

> Pat

>

>

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