Feeling Helpless

[Guest guest]

I read everyone's posts daily and they make me feel better, thank you. Am I the

only one having trouble accepting that I will die from this disease? My E has

made the L or sharp corner where food can block and began deforming and I still

won't accept that I have a major problem. Once the deforming has happened why

can't they just take the bottom part off and hook up to stomach?? What are the

odds I can live another 20 years with this? After my last consult I have tried

most of the things suggested on here, like drinking Coke to clean it out. It

does seem to help me. I feel so confused about what I should be doing to ensure

I live longer. How long can a person live with a feeding tube? I am only 32

and nowhere near ready to move on...

[Guest guest]

Oh I am so sorry your struggling right now. Everyone manages the disease

differently. Have you gone to some good specialists? Dont give up...we have lots

of very seasoned knowledgable  people here.Maureen

From: amandatroff <amandatroff@...>

Subject: Feeling Helpless

achalasia

Date: Friday, May 25, 2012, 12:31 PM

 

I read everyone's posts daily and they make me feel better, thank you. Am

I the only one having trouble accepting that I will die from this disease? My E

has made the L or sharp corner where food can block and began deforming and I

still won't accept that I have a major problem. Once the deforming has happened

why can't they just take the bottom part off and hook up to stomach?? What are

the odds I can live another 20 years with this? After my last consult I have

tried most of the things suggested on here, like drinking Coke to clean it out.

It does seem to help me. I feel so confused about what I should be doing to

ensure I live longer. How long can a person live with a feeding tube? I am

only 32 and nowhere near ready to move on...