national and international rare disorders/disease awareness day..

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today is national and international rare disorders/disease awareness day...

National Organization for Rare Disorders.. Help!

http://www.rarediseases.org/rare-disease-information/resources-tools

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Rare Disease Information

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Other Resources and Tools

Other Resources and Tools

NORD has compiled the following links and resources that

may be useful to individuals and families affected by rare diseases.

NORD does not endorse any of these programs and services.  Please check

your health care provider for information about additional resources. To

contact a member of NORD’s information services team, please call us at

203-744-0100 or contact us here.

The resources fall into the following categories and sub-headings.

Financial and Medication Assistance Resources

Medication Assistance ResourcesEducation Resources Free or Reduced Cost Medical

Care Cancer Financial SupportTravel Assistance and Recreation Resources

 

Health Insurance and Medicare/Medicaid Information

Health Insurance Information Medicare/Medicaid Information Social

Security Information

 

Information on Newborn Screening, Genetics, and Lab Testing

Genetics Information for Medical Professionals Genetics Information

for ConsumersGenetic Counseling ServicesNewborn ScreeningLaboratory Testing

 

Information on Clinical Trials and Research

Clinical Trials

 

Resources for People with Disabilities and Special Needs

Organizations for People with DisabilitiesResources and Services for

People with DisabilitiesResources for Children with Disabilities and Special

Needs

 

Government Resources

 

Other Sites of Interest

Health Privacy and DiscriminationLegal Resources Health Policy

ResourcesWomen's Health ResourcesEducational Resources