Rare Disease Day, February 29th

February 28, 2012

Tomorrow is Rare Disease Day, February 29th.

It would nice to get updates on the stories of people who have had

treatments, or not, and how it is working out for them. If you gave your

story last year consider updating it this year. People often ask how

things go long-term, or why are there so many failure stories on the

site. This is one way for people who don't have problems to chime in and

tell us how good you are doing and for some of those old timers to let

us know how the years have treated them.

Here are links to some of last year's updates.

Julee So Calif.

Ann from the UK

Donna

in NC

Mike in Cincinnati

Me

Isabella

from LA

notan

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