Re: Manometry was negative for A - now what?

July 10, 2012

Hi Zoloft,

It sounds like a good news/bad news situation. The good news is that you don't

have achalasia! That's something to feel relieved about. The bad news is that

you are in the frustrating situation of not knowing exactly what's causing your

dysphagia. My guess (and it's only a guess) is that it's connected to your

thyroid cancer. If that's the case, then treating your thyroid cancer should

address the symptoms. It's probably something you need to ask your oncologist

and/or GI specialists about.

Hope you get it figured out soon,

>

> I had the manometry y'day and today I was told everything looked normal with

my LES.

>

> For 3 months, my disphagia symptoms got progressively worse to the point that

I couldn't even drink liquids.

> But the day before the test and during the test, I could feel that as soon as

I drank some liquid, I had a burp and I could see that it was going down.

> I was kind of hoping that they would figure out what was wrong with me, but it

was not to be.

>

> What do you suggest I do now? They tell you not to eat or drink anything for

12 hrs before the test, so I can't really prove that solid foods take a while to

go down. What am I supposed to do?

>

July 10, 2012

I would find a swallowing disorders clinic near you and have an evaluation done

there. Just because you have don't have achalasia doesn't mean you don't have

dysphagia of some sort. You might need a barium swallow done to diagnose the

problem. This allows the doctors to see how how liquids pass down the esophagus

into the stomach.

Also not all manometry tests are done equally well. My first test showed no

muscle movement at all in my esophagus. The one done at the university 6 months

after my surgery took three times as long to do and involved swallowing a

semisolid flavored gel (a predefined amount from a syringe) rather than just

sipping water from a glass. Part of the test was also done while half reclining

rather than just sitting straight up. That one showed very different results.

Good luck.

>

> I had the manometry y'day and today I was told everything looked normal with

my LES.

>

> For 3 months, my disphagia symptoms got progressively worse to the point that

I couldn't even drink liquids.

> But the day before the test and during the test, I could feel that as soon as

I drank some liquid, I had a burp and I could see that it was going down.

> I was kind of hoping that they would figure out what was wrong with me, but it

was not to be.

>

> What do you suggest I do now? They tell you not to eat or drink anything for

12 hrs before the test, so I can't really prove that solid foods take a while to

go down. What am I supposed to do?

>

July 11, 2012

You may have a different form of Achalasia called Diffuse Esophageal Spasms.

This is a form of Achalasia that progresses over time to fullblown Achalasia.

Google it for more info.

from the UK

________________________________

From: Zoloft Sucks <zoloft_sucks@...>

" achalasia " <achalasia >

Sent: Wednesday, July 11, 2012 3:36 AM

Subject: Manometry was negative for A - now what?

Â

I had the manometry y'day and today I was told everything looked normal with my

LES.

For 3 months, my disphagia symptoms got progressively worse to the point that I

couldn't even drink liquids.

But the day before the test and during the test, I could feel that as soon as I

drank some liquid, I had a burp and I could see that it was going down.

I was kind of hoping that they would figure out what was wrong with me, but it

was not to be.

What do you suggest I do now? They tell you not to eat or drink anything for 12

hrs before the test, so I can't really prove that solid foods take a while to go

down. What am I supposed to do?

July 11, 2012

Thanks for the response. I'll look it up.