Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 good thing is to get a letter from the Doc that told your friend not to go back to work. Also what helps is records. Get as many together when your friend goes for her apt to talk to the worker. She has to go to her local SS office and ask for apps for all there programs. Then file then if she loses tell her to appeal right away don't let it go. Most of the time they don't give it to you but if you fight you will more then likely get it that's how it worked for my family. Hope this helps. M Disability Ok - calling anyone in America who has ever filed for disability. What did you have to do? What helped you? What hindered you? What would you advise this person to do? (please read below.) Thank you!!! *hugs* Be Safe. With love, Aisha ~~~~~~~~~~~~~~~~ Aisha, my Lupus has flared, and the Dr's will not let me return to work.I now have to file for disability. I was wondering if you have anyinformation that would help me file more quickly, and without makingmistakes. I realize that you are not in the states, and that the rulesmay be different, but I seem to remember someone on the list giving sometips. The Being Sick CommunitySharing our resources:-Add a website URL you think may help another, or even add a link to your own webpage. Chat:- Scheduled Daily Chats at # on IRC DALnet.http://www.elderwyn.com/members/chat.htmlEgroups JAVA based chatroom for your use anytime:-chat/ (Anyone on web-tv will not be able to access java and it is very slow compared to IRC.)Memorial Page:-http://www.elderwyn.com/members/inlovingmemory.htmlMembers Lounge:-Medical resources, counselling via email, information on the daily chat times, free psychic readings and the cartoon of the day. http://www.elderwyn.com/members Members Profiles, pictures, and birthdays:-Message Archives and Digest Attachment Pictures:-messages/Promoting This Community:- Would you like people to be able to join from your webpage?promote/Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit mygroupsTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 I am reading old e- mails and found this. My work place made me file for SSD when I went onto long term disabilty.I didn't know a thing about it so I made some mistakes. What is really important is that all your Dr's, general and specialty Dr's, all know that you are filing for disability.I didn't tell mine, so my documentation was limited. I also failed to go to the Dr enough and dealt with my problems myself. They need to document what you can and cannot do. Even if you are pretty limited they try to say that you can do a sedentary job which isn't at all fair. I was a nurse and made a good bit per hr and it insulted me to think they expected me to maybe take a minimum wage job. I found some disability information sites that are great and tell you exactly what they expect of you as far as being disabled. The less you can do the better. They don't want you to be able to lift over 10 lbs, to walk very far, to take care of yourself , to clean your house, shop, etc. They ask soo many questions. Save copies of everything you write out for them. The disability form is long and you can really get detailed about yourself and your limitations and you need to.I get copies of my medical tests and blood tests and keep them for myself. I even have some copies of my hospital record. SS doesn't always get complete information from the Dr's so... you need to have it yourself. If you are on medication that affects your abilities to concentrate and such I think that goes in your favor. I will be glad to send more information . I will look up those disability sites and send the " addresses " for them. Kdawna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 This was sent to me so I'm sending it on... Scroll down to the bottom though, even though this guy is from one particular state he has great information about any SS hearing, the appeals process, what qualifies you to be disabled as far as SS is concerned. You have to check out some or the pages and there is more places to go to with loads of information.............................I hope this helps someone. The site is WWW.SSDISABILITY.NET/INDEX.HTML Love Aisha. *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ: #55461955 MSN: Aisha <---- most reliable emergency contact.AIM: aishaelderwynIRC: DALnet # (angel`isha)email: aisha@... website: http://www.elderwyn.com/aishaBeing Sick: Mailing List: aishaelderwyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 Hi Aisha: Thanks for the info on Disability. It sure is helping. I am still gathering all the information that I can get, so if anyone else has any suggestions, please send them. It is good to be back on line with the group!!!! (Thanks Aisha for making that possible) :-) For Anne: Happy Birthday to you.... Happy Birthday to you.... Happy Birthday, Dear Anneeeeeeee.... Happy Birthday to you!!!!!!!! Big Huggs Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Go see cheney. He is damn expensive an hard to deal with, BUT, his tests and Drs writeups DO STAND UP for disability. > Disability > > > I also forgot to mention this...what kind of test do we send > in for CFS > disability? I mean, do we send in our HHV-6 test? They are > not going to > know what the heck this test even is. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 This is a disability update. http://www.cfsdoc.org/disabil.htm ---------------------------------------------------------------------------- ------------------------- get a good disability lawyer and do whatever he or she says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 Just a question for all. Are their any other parents out there that have successfully gotten their child on SSI? I was able to get Tom on it last year and it has seemed to open a lot of doors for us. In fact, I wonder if that is the main reason that we seem to have little difficulty getting the school to do what we think is best. There are a lot of pros and cons to getting a child on SSI. I just thought I would see if any one else out there has succeeded! Amy in Ohio _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 Amy, we were very successful getting our daughter on SSI. I sometimes worry myself wondering, " how long will this last before we have to change " . I hear that all too often. But for now, she is settled and we can funtion. But it is true, now that we are *ok* school doesn't see anything. So how do you prove to them that we still have issues. Last Monday was the first major attack that she has had in a long time. My daughter has gone to Florida for the summer with Grandma, and is attending a summer camp. Well that Monday (1st day of camp) she had a major headache (she is 7yrs old) and when she finally got home, she cried and cried that her head hurt, and then vomited. Well we all know why. But she is now OK and finished out this week at camp happy. Steffie (GA) Amy Gusbar wrote: > > Just a question for all. Are their any other parents out there that have > successfully gotten their child on SSI? I was able to get Tom on it last > year and it has seemed to open a lot of doors for us. In fact, I wonder if > that is the main reason that we seem to have little difficulty getting the > school to do what we think is best. There are a lot of pros and cons to > getting a child on SSI. I just thought I would see if any one else out there > has succeeded! > > Amy in Ohio > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 I sure would like to know how you folks got your kids on SSI. Jule in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 Jule, what do you mean how we got our children on SSI? steffie (ga) j.monnens@... wrote: > > I sure would like to know how you folks got your kids on SSI. > > Jule in Ohio > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2002 Report Share Posted April 16, 2002 make sure you get a lawyer who specializes in SSI. they usually do it on a pay if you win situation. i filed 3 times before i got a lawyer but i finally did get it. you also have to get your doctor to say that you are totally disabled. it took me almost a year total, but i finally get disability from the gov. good luck and hope you have patience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 , When you draw Social Security it is based on 40 quarters that you paid in. They take the highest of all the quarters you paid in (if you 120 quarters, they would base it on the highest 40). SSDI is their disability insurance program. I don't THINK they can deny you payments. After all It is an insurance program. They denied my several times, and it took me 9 mo. before they started my SSDI. Then they made it retroactive. You have to FIGHT for it, (Unless you are Mexican or Asian, then there is no problem). I had my first massive heart attack back in 1970, and then the Docs told my wife I may have another 5 years. Out of spite I out lived most of them. I now have a pacemaker and a defib. and am still going strong. Hank wrote: Hi all: I'm going to pick your brains. Here's my situation: I work for the local school district. I have been out on disability since mid December (3rd time in 3years). My employer doesn't pay into the State Disability Insurance Program (SDI) so I don't qualify for it. They have their own Income Protection Plan but it only lasts 100 days and that is now up. I am 42 and according to the statements I get from Social Security I don't have enough credits to claim SSDI it at this time. What about SSI? I do get child support and it's too much to get welfare but not enough to live on. I can't get unemployment insurance since I can't work. Help....has anyone been in this situation? What can I do? any ideas? Thanks, in CA ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 Hank, The problem is that I don't have enough quarters paid in at this time. I was off for many years with my kids when I was married. Have only worked about 3-4 years regularly. When I get my yearly statement from them they say I am not eligible because I don't have enough credits (quarters worked) at this time. in CA -- Re: Disability , When you draw Social Security it is based on 40 quarters that you paid in. They take the highest of all the quarters you paid in (if you 120 quarters, they would base it on the highest 40). SSDI is their disability insurance program. I don't THINK they can deny you payments. After all It is an insurance program. They denied my several times, and it took me 9 mo. before they started my SSDI. Then they made it retroactive. You have to FIGHT for it, (Unless you are Mexican or Asian, then there is no problem). I had my first massive heart attack back in 1970, and then the Docs told my wife I may have another 5 years. Out of spite I out lived most of them. I now have a pacemaker and a defib. and am still going strong. Hank wrote: Hi all: I'm going to pick your brains. Here's my situation: I work for the local school district. I have been out on disability since mid December (3rd time in 3years). My employer doesn't pay into the State Disability Insurance Program (SDI) so I don't qualify for it. They have their own Income Protection Plan but it only lasts 100 days and that is now up. I am 42 and according to the statements I get from Social Security I don't have enough credits to claim SSDI it at this time. What about SSI? I do get child support and it's too much to get welfare but not enough to live on. I can't get unemployment insurance since I can't work. Help....has anyone been in this situation? What can I do? any ideas? Thanks, in CA Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 hi lisa,,, i had the same problem....i worked many years as a police officer and we were privately pentioned and therefore did not have to pay the s.s. i wish we had..... i worked for five years at slave wages in florida after i retired...i had 20 quarters exactly when i got sick....luckily i had a disability plan at my employment and they fought for my s.s. and i got if soon after i came down with cancer....but i was only given 487 per month cause of the low wages i earned........ good luck,,,hope you manage to figure it out....someone needs to straighten this government of ours out.......it seems we take care of the whole world and stick it to our own people...... thats almost as bad a walmart.....take a peek in front of a walmart and see how many us flags are flying...... bob in pa --- [This E-mail scanned for viruses by IAS, an Archiventure Company] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 ...... >The problem is that I don't have enough quarters paid in at this time. I was off for many years with my kids when I was > married. That sucks, it really does. If you pay more than lip service to the govt.'s 'family values' crap..... stay at home, raise your children, give them a good education and morals..... you are screwed. But if you dump them at a sitter's and have a 'career'.... 'We'll take care of you!' Sorry for my language, but this subject REALLY pisses me off! I've worked off and one since I was 18 yrs. old (am now 48). Most of the time, tho, I stayed home with my 5 kids, and did home daycare for other people's kids. And what does SSA tell me I will be entitled to if I'm disabled? About $500/month. I had best learn to like living in a cardboard box, and dining on cat food, at that rate. , you need to call up one of those attys. who specializes in SSD claims. There might be some loophole you are not aware of. Good luck.... we are pulling for you. Sue > Hank, The problem is that I don't have enough quarters paid in at this time. I was off for many years with my kids when I was married. Have only worked about 3-4 years regularly. When I get my yearly statement from them they say I am not eligible because I don't have enough credits (quarters worked) at this time. in CA -- Re: Disability , When you draw Social Security it is based on 40 quarters that you paid in. They take the highest of all the quarters you paid in (if you 120 quarters, they would base it on the highest 40). SSDI is their disability insurance program. I don't THINK they can deny you payments. After all It is an insurance program. They denied my several times, and it took me 9 mo. before they started my SSDI. Then they made it retroactive. You have to FIGHT for it, (Unless you are Mexican or Asian, then there is no problem). I had my first massive heart attack back in 1970, and then the Docs told my wife I may have another 5 years. Out of spite I out lived most of them. I now have a pacemaker and a defib. and am still going strong. Hank wrote: > > > > > > -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html http://www.nothnbut.net/~reo77/aurora.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 I was approved for disability in 1994. I was fortunate in my case I did the phone application and 2 months later I was approved and I got back pay dating back to the day they said I became disabled which was April 7th 1993. Now get this, this is how screwed up the system is. I got stills in 1989 and the first two years were bad. They didnt award my disability based on stills instead they based it on my hip replacement surgery which was done April 7th 93. If you have a prosthesis of any type you are automatically eligible for SS. ( this was the case back them, it may have changed now) So once they say I had a prosthesis, that was all they needed. Okay, but in reality I was unable to do most anything before the surgery, I couldnt work, was in constant horrible pain, but the surgery fixed all that and I was able to work!!! Now how backwards is that!!!! They based my disability on something that actually made me no longer disabled!!!!! there is a disability page on the website and somewhere on there I have what the requirements are etc... I will see if I can find it. I have continued to work part time off and on, right now I can make around $800 per month and still recieve my soc security. 2 years ago I was able to work full time, in fact I could now but I dont, anyway I worked for an assisted living facility and my boss paid me monthly salary of $700 and I worked as many hours as I wanted too, which worked out to much less than min wage, but he gave me paid days off, free food, etc to make up for it and that way I could still earn my soc sec. I would love to work full time and get paid for it, but Im afraid to lose the soc security because of the medicare and because I know at some point im going to have more surgeries and I will need it. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 , Thanks for sharing your story. I know the lawyer that spoke on SS at the conference I went to said the system was designed to prevent fraud not help sick people. We all need to bombard our legislature with letters!!! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: disability I was approved for disability in 1994. I was fortunate in my case I did the phone application and 2 months later I was approved and I got back pay dating back to the day they said I became disabled which was April 7th 1993. Now get this, this is how screwed up the system is. I got stills in 1989 and the first two years were bad. They didnt award my disability based on stills instead they based it on my hip replacement surgery which was done April 7th 93. If you have a prosthesis of any type you are automatically eligible for SS. ( this was the case back them, it may have changed now) So once they say I had a prosthesis, that was all they needed. Okay, but in reality I was unable to do most anything before the surgery, I couldnt work, was in constant horrible pain, but the surgery fixed all that and I was able to work!!! Now how backwards is that!!!! They based my disability on something that actually made me no longer disabled!!!!! there is a disability page on the website and somewhere on there I have what the requirements are etc... I will see if I can find it. I have continued to work part time off and on, right now I can make around $800 per month and still recieve my soc security. 2 years ago I was able to work full time, in fact I could now but I dont, anyway I worked for an assisted living facility and my boss paid me monthly salary of $700 and I worked as many hours as I wanted too, which worked out to much less than min wage, but he gave me paid days off, free food, etc to make up for it and that way I could still earn my soc sec. I would love to work full time and get paid for it, but Im afraid to lose the soc security because of the medicare and because I know at some point im going to have more surgeries and I will need it. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 I just have to agree with you so about being scared to loose medical coverage, even half would just put me under. I tried in the early 90's to work enough to have coverage and it just made me sicker. I too, so want to work even part time but cannot afford even a small percent of what a deductible would be. I really wish there were some way of earning an income without loosing that precious medical. Hope your having a good day, till soon, Melt ----- Original Message ----- From: " Jay " <gobulldawgs@...> > I would love to work full time and get paid for it, but Im afraid to lose > the soc security because of the medicare and because I know at some point im > going to have more surgeries and I will need it. > > > GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 That's great news! Congrats! Tracey In a message dated 4/26/2005 6:39:41 P.M. Eastern Standard Time, suzieandsandy@... writes: I was passed for disability!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 This is great Allan.. I am passing it along to others thank you..Suzie your Mum doesn't what to admit your ill..You are after all her child!! Kathy Boo -- Re: Disability Hi Suzie, Maybe this letter will help. I didn't write it but it captures what I think we all feel. A Letter To People Without Hepatitis! Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually misinformed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time; in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That’s all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!”. I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on . it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!” if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the exercise and diet that I am supposed to do. Another statement that hurts is, "You just need to push yourself more, exercise harder". Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there were something that cured, or even helped, all people with hepatitis then we'd know about it. This is not a drug-company conspiracy; there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need your help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outside world... if you don't come to visit me at home and/or whenever I'm hospitalized, then I might not get to see you...and as much as it's possible, I need you to understand me... By Bek Oberin Disability Good Afternoon All, Today is the big day. I've got an appointment with disability at 3:30 & I'll find out all of the rules & regulations then ( & hopefully get my BACK PAY) Couldn't sleep last night, just like a little kid on Xmas Eve waiting for Santa. Had to take a sleeping pill & of course today I'm groggy but it was that or go in with no sleep what so ever. Wish me luck guys. My Mum called last night to wish me luck & then got on my back about the condition of my yard. She said "all you have to do is get your butt off the couch & outside. The weather's been good & you haven't done a thing" I told her that she didn't understand & she went - riiiight, your disease, you look fine to us, fat but fine. If you'd get out there & get some work done, you'd get the exercise you need doing it, maybe lose some of the weight you're carrying around. No matter how you try to educate them, they only hear what they want to hear. I mean she's glad I got on disability but she expects me to act like I'm healthy - go figure.It hurts when she acts like I'm just lazy. Suzie Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Suzie, that's enough to get a load off your mind even if it won't pay off everything, huh? I bet you feel SO much better today! I'm happy for ya, girl! De Faith is the ability to not panic. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Wednesday, May 25, 2005 5:50 PMHepatitis CSupportGroupForDummies Subject: RE: disability Gail honey, I'm a smoker who is at least 100 pounds overweight. I'm Diabetic & now I have high cholesterol which is only treatable by diet cause the drugs they give are hard on the liver (which makes the cholesterol. I'm allergic to cats but I live with one - go figure. Went to disability this aft & got $5900 back pay. Not enough to pay all my bills but enough to pay off my parents for the mortgage they didn't make me pay for the last ten months. If it's taxable , I'll deal with that when the time comes. Thanks for all your help everyone. Suzie & Spyke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 We're still here for ya, Suzie Q. We still have to get you a freakin' biopsy! De Faith is the ability to not panic. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Wednesday, May 25, 2005 9:24 PMHepatitis CSupportGroupForDummies Subject: RE: disability You don't know how right you are. It won't pay all my bills but it will pay back my parents for carrying me & my mortgage for the last 10 months & pay a bit on my credit cards. I feel like I can fly there's been such a large weight on my back for all these months. It's not just the back pay either, it's the knowledge that I know I have that money coming in every month. Now I can plan ahead. In celebration I called & got my favourite Chinese food & am going to pig out all night. Who knows, I may be ordering pizza or KFC later. Chocolate Ice cream here I come. Now thats celebrating Suzie style!!!!! Thanks guys for all your support during this lunacy, without you I probably would have done something really stupid (I'm thinking bombs here) love ya, Suzie & Spyke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 I'm sorry. How can I make it up to you? De Faith is the ability to not panic. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Thursday, May 26, 2005 2:44 PMHepatitis CSupportGroupForDummies Subject: RE: disability Don't you worry De, I plan on being here for a loooooooooooong time - the longevity test said I'll live to be 80 & I plan to still be bitching here till then. I don't want to even think about that #^ & %#$!@* biopsy. Here I was feeling all happy that some of my debts are paid & you had to say @^$ & *^()_ biopsyEgad girl let me go a few days not thinking about that, k? Suzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 This is a sad reflection on the system. Unfortunately it seems to be true that they erect hurdles for a disabled CFS patient to jump. Initially it is a custom for them to lose the file, paperwork, reports etc. or alternatively claim they did not receive the case report. I instuct patients to send all documents registered mail, return receipt. Next is the interview with an " independent " evaluator. This is usually a doctor in retirement or without a practice. Ask his experience with treating your condition and how many patients he has under treatment. Have a witness accompany you who can take notes on the examination. Sometimes I get a report four or five pages long relating to an examination that did not take place or at best was cursory. I make it a point of writing a report for the disability judge, this seems to balance the independent doctor who is really an employee of the SSI or insurance company Enlander MD In a message dated 12/28/2005 3:17:48 PM Eastern Standard Time, rudedog89@... writes: My experience with SS Disability was that I was turned down twice before I succeeded with an attorney. I had heard from others that this was so commonplace as to be considered part of the system ( I think it is the government's way of weeding out people who aren't disabled). Attorney's are allowed 25% of your " retro pay " ...that is back pay allowed from the date that you say you were first disabled, which is different from the date that you file for the disability. My attorney told me that what helped my case the most was the letters that I got from a couple of my doctors. I only had one doctor at the time that really championed my case, so don't be surprised if your doctors are reluctant to get involved. My internest stated " But...you would make more money if you just worked " . How's is that for showing a total lack of understanding???? I would also suggest that you be very careful what you say and write on the forms. Many/ if not all telephone conversations are taped. Always make copies of the forms you fill out and keep them in a safe place. I found the questions on the forms to be somewhat redundant with the same thing being asked over and over in different ways...? I am wondering if that is to trip someone up? I know I sound very paranoid but after all we are dealing with the government in this....Most of all - get over any guilt you may feel for having to ask for disability payments. You worked and now you can't. You paid into the system and now you can't. I hope some of this letter will be helpful to you or anyone else applying for benefits. This is just my take on it all! Best Regards, Teena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 I would also take a tape recorder AND all of the drugs (pharmaceuticals) and supplements in a duffle bag PLUS a printed list of its inventory to provide to the " independent " evaluator for inclusion in the case file. mjh In a message dated 12/28/2005 5:53:56 PM Eastern Standard Time, DEnlander@... writes: This is a sad reflection on the system. Unfortunately it seems to be true that they erect hurdles for a disabled CFS patient to jump. Initially it is a custom for them to lose the file, paperwork, reports etc. or alternatively claim they did not receive the case report. I instuct patients to send all documents registered mail, return receipt. Next is the interview with an " independent " evaluator. This is usually a doctor in retirement or without a practice. Ask his experience with treating your condition and how many patients he has under treatment. Have a witness accompany you who can take notes on the examination. Sometimes I get a report four or five pages long relating to an examination that did not take place or at best was cursory. I make it a point of writing a report for the disability judge, this seems to balance the independent doctor who is really an employee of the SSI or insurance company Enlander MD In a message dated 12/28/2005 3:17:48 PM Eastern Standard Time, rudedog89@... writes: My experience with SS Disability was that I was turned down twice before I succeeded with an attorney. I had heard from others that this was so commonplace as to be considered part of the system ( I think it is the government's way of weeding out people who aren't disabled). Attorney's are allowed 25% of your " retro pay " ...that is back pay allowed from the date that you say you were first disabled, which is different from the date that you file for the disability. My attorney told me that what helped my case the most was the letters that I got from a couple of my doctors. I only had one doctor at the time that really championed my case, so don't be surprised if your doctors are reluctant to get involved. My internest stated " But...you would make more money if you just worked " . How's is that for showing a total lack of understanding???? I would also suggest that you be very careful what you say and write on the forms. Many/ if not all telephone conversations are taped. Always make copies of the forms you fill out and keep them in a safe place. I found the questions on the forms to be somewhat redundant with the same thing being asked over and over in different ways...? I am wondering if that is to trip someone up? I know I sound very paranoid but after all we are dealing with the government in this....Most of all - get over any guilt you may feel for having to ask for disability payments. You worked and now you can't. You paid into the system and now you can't. I hope some of this letter will be helpful to you or anyone else applying for benefits. This is just my take on it all! Best Regards, Teena mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
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