Re: CFS, Life, The Universe and Anything, specially HHV-6 - new member

[Guest guest]

it seems that many people have become sick after a surgery

you may have become exposed to an infection during the surgery

i remember some doctors at harvard were doing an investigation of why

it was occuring some years back since it was happening to a lot of

people

it seems to be very common

if your surgery involved blood transfusions, you would likely have had

contaminated blood

maybe the transfer factor .. i think formula 560 could help

maybe get the hhv6 test at www.hhv6.com

there are no magic cures but one may improve by being persistent

Fluffy

> Hello to all of you,

>

> i am new to the list, so i will introduce myself:

> male, 46 years old, software-engineer, self-employed.

>

> WARNING:

> English is not my native language. HHV-6, my problem (or it seems

to

> be),

> is not or rarely known in Germany. childhood-disease, Roseola, and

> everybody will answer:yes; known neurological problems:NO

>

> MY STORY:

> my problems arised after an operation (furuncle, face) with full

> narcosis in late 1998.

> in july 1999 i have been in psychiatry, mainly because of:

> - capacity loss of short term memory

> - massive exchange of characters at the keyboard(example:

kbeybaord).

>

> i refused to accept a reason for my problems psychogenically.

> a spinal tap was made; the result shocked me (and my doctor).

> ---

> CNS-own synthesis, HSV-1, IgA, antibodyindex 2.2 (norm < 1.5), IgM=0

> CNS-own synthesis, HHV-6, IgG, antibodyindex 1.6 (norm < 1.5), IgM=0

> Disorder of blood-brain-barrier, Albuminquotient 8.9

> 1 Leuko

>

> MRI negative

> NSE, Parainfluenca 1,2,3, Entero, FSME, HIV I/II, Lyme, Toxoplasma

> gondi,

> EBV, Varicella, Influenca A/B all negative.

> ---

> i changed: from psychiatry to clinical treatment: acyclovir -10 days

> (based on my knowledge today, this was wrong!)

> at the 8-th day of treatment a new liquor-diagnostic at a different

> lab was made:

> ---

> CNS-own synthesis, HHV-6, IgG, antibodyindex 2.9 (Norm < 1.5), IgM=0

> Disorder of blood-brain-barrier, Albuminquotient 9.3

> 1 cell

> ---

> at the end of treatment i got my diagnosis:

> " clinical inapparent cerebral HHV-6 infection " (LOL, you too?)

>

> since this time my symptoms are exploding; it is the state now:

> - more capacity loss of short (and long) term memory

> - impaired vision (double, acuity)

> - wrong object recognition (a stub is going to be a cat, for

example)

> - difficult walking

> - tremor on arms and legs

> - dry mouth, thick tongue

> - tinnitus

> - muscle pain

> - I feel tired(there are good days and bad days)

> - light temperature(for 1-3 hours 37.5 typ. sublingual after load,

> stress)

>

> a new, private investigation in end of july 2000 showed the

following:

> Serum

> HHV-6 IgG 1:256 (norm 1:20)

> CMV IgG 1: 80 (norm 1:20) or HHV-5

>

> Rota, Adeno, Astro-virus negative

> Salmonellen, Shigellen, Yersinien, Campylobacter negative

>

> ---

>

> I DO NOT KNOW WHAT TO DO!

>

> is there Anyone here in the list, who can give me an advice? Please

> remember, that English

> is not my nature language.

>

> Thanks to you all, (I tried hard to read all the 20000 messages;

from

> HHv6a i did it)

> Harald

[Guest guest]

> it seems that many people have become sick after a surgery

>

> you may have become exposed to an infection during the surgery ..

Hello Fluffy,

thanks for your answer.

I know about hhv6.com, i have read Regush, The Virus Within.

All the tests are fine - I DO NOT find a doctor in Germany, who will

interpret these results. Testing is one thing, treatment another

thing.

For example: I could get treatment in Tomsk, Sibiria, Russia

with " Artificial Organs " . They promise to " boot " the immunsystem -

and it would be a " Immunmodulator " .

Thanks for YOUR response,

Harald

[Guest guest]

Harald, if you want to write me in German, French or Dutch (don't know what

your native language is...) write me offline, sounds like one heck of a case

you have. lots of people on the list can give you good advice. take care,

Judy

CFS, Life, The Universe and Anything, specially

HHV-6 - new member

> Hello to all of you,

>

> i am new to the list, so i will introduce myself:

> male, 46 years old, software-engineer, self-employed.

>

> WARNING:

> English is not my native language. HHV-6, my problem (or it seems to

> be),

> is not or rarely known in Germany. childhood-disease, Roseola, and

> everybody will answer:yes; known neurological problems:NO

>

> MY STORY:

> my problems arised after an operation (furuncle, face) with full

> narcosis in late 1998.

> in july 1999 i have been in psychiatry, mainly because of:

> - capacity loss of short term memory

> - massive exchange of characters at the keyboard(example: kbeybaord).

>

> i refused to accept a reason for my problems psychogenically.

> a spinal tap was made; the result shocked me (and my doctor).

> ---

> CNS-own synthesis, HSV-1, IgA, antibodyindex 2.2 (norm < 1.5), IgM=0

> CNS-own synthesis, HHV-6, IgG, antibodyindex 1.6 (norm < 1.5), IgM=0

> Disorder of blood-brain-barrier, Albuminquotient 8.9

> 1 Leuko

>

> MRI negative

> NSE, Parainfluenca 1,2,3, Entero, FSME, HIV I/II, Lyme, Toxoplasma

> gondi,

> EBV, Varicella, Influenca A/B all negative.

> ---

> i changed: from psychiatry to clinical treatment: acyclovir -10 days

> (based on my knowledge today, this was wrong!)

> at the 8-th day of treatment a new liquor-diagnostic at a different

> lab was made:

> ---

> CNS-own synthesis, HHV-6, IgG, antibodyindex 2.9 (Norm < 1.5), IgM=0

> Disorder of blood-brain-barrier, Albuminquotient 9.3

> 1 cell

> ---

> at the end of treatment i got my diagnosis:

> " clinical inapparent cerebral HHV-6 infection " (LOL, you too?)

>

> since this time my symptoms are exploding; it is the state now:

> - more capacity loss of short (and long) term memory

> - impaired vision (double, acuity)

> - wrong object recognition (a stub is going to be a cat, for example)

> - difficult walking

> - tremor on arms and legs

> - dry mouth, thick tongue

> - tinnitus

> - muscle pain

> - I feel tired(there are good days and bad days)

> - light temperature(for 1-3 hours 37.5 typ. sublingual after load,

> stress)

>

> a new, private investigation in end of july 2000 showed the following:

> Serum

> HHV-6 IgG 1:256 (norm 1:20)

> CMV IgG 1: 80 (norm 1:20) or HHV-5

>

> Rota, Adeno, Astro-virus negative

> Salmonellen, Shigellen, Yersinien, Campylobacter negative

>

> ---

>

> I DO NOT KNOW WHAT TO DO!

>

> is there Anyone here in the list, who can give me an advice? Please

> remember, that English

> is not my nature language.

>

> Thanks to you all, (I tried hard to read all the 20000 messages; from

> HHv6a i did it)

> Harald

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>