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13 Sep 2000 Jan van Roijen <access@...> asked more about

STRATTON PROTOCOL after nmcfadden@...> wrote:

" combination of treatments for chlamydia and mycoplasma

and undenatured whey has given me back life. "

==========

Dear , Will you please be so kind to give some more explanation?

What exactly contains Stratton's big protocol and what your

" more mild version " ? Greetings from Amsterdam, Jan

========

stratton actually recommends taking a few strong antibiotics together

and when i tried that i lived in the bathroom. instead, i decided

that since both myco and chlam were intracellulars, and since i had

tested positive for mycoplasma at the onset of my cfids, more than

once, that i would follow the MYCOPLASMA ROUTINE similar to what

nicolson and leslee of mycoregistry recommend.... that protocol

for me is easier to take and has worked for me just fine.....

the protocol of stratton with several antibiotics at once was so

hard for me to function, that i could not do fairly by my family,

so i had to come up with something that worked better for me.

AND stratton, even with this strong protocol, was not getting most

folks off the antibiotics permanently, so that is what tilted

me towards a less stringent practice...

the latest protocol i have is from may 98, so he may have evolved

a new one, and if you need to find a newer one, the national

cfids foundation may have it, i surely don't, since by 98, i had

found a protocol that at least controlled the myco and chlam,

even if it did not vanquish them....

you can reach national cfids foundation by contacting:

Jill McLaughlin at amclaughlin1@...

or their website http://www.ncf-net.org or:

Jill McLaughlin, Executive Director

National CFIDS Foundation, Inc.

103 Aletha Rd

Needham, MA 02492

phone: 781-449-3535

in the protocol i have in my possession, PROBABLY NOT THE LATEST,

stratton mentions secondary porphyria as part of chronic chlamydia.

so he says to do 1) high carbohydrate diet, 2) high oral fluid

intake, 3) avoid red meats, 4) avoid milk products, 5) get most of

your sugar from glucose not fructose or sucrose, 6) avoid alcohol.

I TOTALLY IGNORE 1,3, 4 AND 5. I follow 2 and 6. since whey

protein has made such a big difference, i am glad i did. all these

rules were for the porphyria, which i must be through the worst

of, so that is why i can ignore them.

then he mentions taking b complex vitamins, antioxidants,

and espec. b12 (i take these, but i am not perfectly adherent)

benzodiazapine drugs (antiporphyrinic ) and hydroxychoroquinine

(antiporphyrinic) - i do not do this

oral charcoal (soaks up the porphyrins) i don't need this.

stratton runs a bunch of blood tests, for things tied to

porphyria, and for b12, liver function, and homocysteine

among others. and of course, he tests for the chlamydia

with PCR, culture, and igm and igg.

stratton thinks it is important to get the porphyrins under

control before starting the antimicrobials....

he started with amoxicillin and probenecid

or penicillamine and probenecid

later adding either bactrim and isoniazid

or levofloxacin

then he tests for the presence of chlamydia while

you are on the therapy, hopefully you will test negative

in pcr and igg and igm, and then can go off....

this was the same protocol for both the MS folks they see

and for the cfids folks they advice out of compassionate care.

i think that given the immune system differences, in my view

the MS folks, who are often tilted more towards TH1, probably

responded better to this protocol than the cfids folks

who are often more th2 biased immunologically.

there is absolutely no medical advice here from me, just

some ramblings on a protocol two years old. if you want

a later protocol, you should email or write the national

cfids foundation (i am not a member) and they will tell

what you need to do to get it from them.

still, i am SO GRATEFUL to stratton for figuring out

that the chlamydia pneumoniae was part of the cfids

problem universe, because treating it and the myco

has made the biggest difference in my life.

nancy mcfadden

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