Intro from Jean, from Christie

[Guest guest]

>

>

>Subject:

> Mito

> Date:

> Sun, 26 Nov 2000 19:02:51 -0800

> From:

> Shepherd <mitoscottie@...>

> To:

> CFSFMSExperimentalegroups

>

>

>

>Hi folks;

>

>Some time back I came on this list

>and told you about mito and

>answered

>some questions at Christie's

>request.

>

>Christie has indicated that there

>may be some people who have some

>more

>questions .... so I came out of " No

>Mail " hiding to see if I can help.

>

>I am NOT a doctor .... actually in

>my working days I was a teacher of

>the deaf .... so I tend to think in

>basic mito concepts. I AM a 57

>year

>old female Canadian patient and I

>have had mitochondrial

>encephalomyopathy for many years

>and been unable to work since 1985

>....

>a very long time!

>

>I had an idea and costarted a list

>for adult mitochondrial patients

>because there was a need for a list

>dealing with adult issues. It has

>become a very informative and

>supportive list .... and Christie

>and

>others have joined it. If you are

>interested in joining .... please

>email me privately at the above

>e-address.

>

>Now .... I will explain that right

>now we have a fair amount happening

>in our household with ill parents

>.... so, although I will try very

>hard

>to answer promptly, please

>understand if you have to wait.

>Also .....

>if your questions are really

>technical .... I can't promise to

>answer

>them, coz .... simply, I am a

>patient not an MD. My

>understanding of

>things American are basic and not

>necessarily accurate, but may

>contain

>a principle for which you can plug

>in your American ways of doing

>things.

>

>See .... I don't know much at

>all!!!! <SMILE> ..... but ask and

>I will

>try to answer your mito questions.

>

>Shepherd

>mitochondrial encephalomyopathy

>Western Canuck!

>

>

>

>

>