Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 , Have you considered trying a safer route than Heparin as a test such as all the non-prescription anti-coagulants (Vit. E, Gingko, Bromelain, Wobenzyme, Aspirin) plus Piracetum. I wonder if this combination would be as effective as low-dose heparin? You wouldn't have to worry about HIT, it's potentially catastophic side affects, and may get an indication one way or another if it's worth taking the next step - Heparin. Steve B. Re: Heparin Trial Run > Tere can be serious side effects with heparin. HIT- stands for HEPARIN > INDUCED THROMBOSIS, in which heparin causes coagulation instead doing > what it is supposed to do. I've been told that it is rarely a problem > with low molecular weight heparins like lovenox, and that the low doses > used to treat our chronic hypercoagulation do not present a threat, but > not from any source that I would consider final. HIT can cause sttroke, > loss of limbs, death etc.. or it can be more mild it is not extremely > common, and there are drugs made just for treating it. > I am not on heparin, and my HEMEX came back normal. I took the test > in the first place because of the risk of HIT only to find out that berg > thinks up to 40% of us hav hypercoag. that cannot be picked up on his > tests. So now I'm faced with the decision to try it anyhow to see if it > helps. > E. > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 Tere can be serious side effects with heparin. HIT- stands for HEPARIN INDUCED THROMBOSIS, in which heparin causes coagulation instead doing what it is supposed to do. I've been told that it is rarely a problem with low molecular weight heparins like lovenox, and that the low doses used to treat our chronic hypercoagulation do not present a threat, but not from any source that I would consider final. HIT can cause sttroke, loss of limbs, death etc.. or it can be more mild it is not extremely common, and there are drugs made just for treating it. I am not on heparin, and my HEMEX came back normal. I took the test in the first place because of the risk of HIT only to find out that berg thinks up to 40% of us hav hypercoag. that cannot be picked up on his tests. So now I'm faced with the decision to try it anyhow to see if it helps. E. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 I have tried Wobenzyme and bromelain. They do make my hands and feet feel warmer but my understanding is this route can take forever and I don't want to wait that long. I have not read any posts about any of us suffering from HIT from trying heaprin. My doc indicated this is a very low dose of heparin and thus of minimal risk. My idea for this was from Berg's townhall meeting where he mentions patients like me with borderline results. See below: " This is a great question in that some patients are borderline on their testing. Does this prove anything??? I suggest that because the low dose heparin therapy is NOT dangerous, give it a try for 4 weeks. If the patient feels better, GREAT. If the patient gets worse, check the ISAC again to see if you have activated the coag system from a pathogen (herxheimer reaction). This is the case in over 90% of the patients. Patients DO NOT react to heparin (less than 1%). Heparin is in all of us and as we age, the loss of the ability to make heparin may be the biggest part of the aging process. Patients who have reactions are usually reactions from the pathogens ! " Even though I'm borderline my sed rate was a 2 or 3 and I have had numerous cavitations treated(about 15 sites) which fits with the hypercoag model. The bottom line is I feel awful and will almost try anything. Phil " R. Bullock " wrote: > , > > Have you considered trying a safer route than Heparin as a test such as all > the non-prescription anti-coagulants (Vit. E, Gingko, Bromelain, Wobenzyme, > Aspirin) plus Piracetum. I wonder if this combination would be as effective > as low-dose heparin? You wouldn't have to worry about HIT, it's potentially > catastophic side affects, and may get an indication one way or another if > it's worth taking the next step - Heparin. Steve B. > Re: Heparin Trial Run > > > Tere can be serious side effects with heparin. HIT- stands for HEPARIN > > INDUCED THROMBOSIS, in which heparin causes coagulation instead doing > > what it is supposed to do. I've been told that it is rarely a problem > > with low molecular weight heparins like lovenox, and that the low doses > > used to treat our chronic hypercoagulation do not present a threat, but > > not from any source that I would consider final. HIT can cause sttroke, > > loss of limbs, death etc.. or it can be more mild it is not extremely > > common, and there are drugs made just for treating it. > > I am not on heparin, and my HEMEX came back normal. I took the test > > in the first place because of the risk of HIT only to find out that berg > > thinks up to 40% of us hav hypercoag. that cannot be picked up on his > > tests. So now I'm faced with the decision to try it anyhow to see if it > > helps. > > E. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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