Re: CFSDoc website critiques

[Guest guest]

You say you are against ATTACKS

You say we must not ATTACK each other

Let me ask you

The sight made reference to somatization disorders

Do you think the people who have been categorized as having

somatization disorder have been ATTACKED ?

Does having the term " CFS " plastered all over concern you ?

Do you condone what that site did ?

He wanted critique so I gave him my critique

If his interest was improving the site, he would view it as a growing

experience and learn from his mistakes

Fluffy

> >

> > In a message dated 12/19/00 3:24:38 AM,

> > egroups writes:

> >

> > << If you think that politicians on this planet are

> > " ideological

> > thinkers " , you still haven't matured in your

> > understanding of

> > politics and political systems. You have a long way

> > to go. >>

> >

> > Fluffy,

> >

> > I've noticed that you've made these types of

> > statements to people a couple of

> > times (including to me). I don't think you should

> > assume that any of us

> > don't share your viewpoint that the government

> > sucks, that CFIDS activism is

> > hardly happening, that this is a horrible disease,

> > and that all of those are

> > giant understatements. However, I think it is

> > counterproductive to insult

> > people with CFIDS who have clearly put in a lot of

> > precious energy trying to

> > educate others, especially when they - like this

> > doctor - have generally only

> > committed a few sins of brain-fogged omission or

> > brain-fogged bad word

> > choice. I have found, now that I almost killed

> > myself doing a book about

> > CFIDS, that to be a CFIDS activist means to be

> > accused of never doing enough

> > (i.e. recent statements against Mark Iverson, who I

> > know nothing about

> > personally but who the CFIDS association mentioned

> > to me was " very sick "

> > right now), and that people often assume you are one

> > of the more healthy ones

> > (I, personally, am not - I essentially had to stop

> > everything else, including

> > most visits to the doctor which make me far too

> > sick, and lab tests, while

> > completing my book Stricken - and doing the book

> > made me even sicker). I

> > think it's important to recognize that this type of

> > infighting is what often

> > discourages already-battered CFIDS patients from

> > continuing the nearly

> > life-threatening struggle to be heard. We have to

> > fight for each other as

> > much as we can, but criticizing well-meaning

> > spokespeople who HAVE CFIDS and

> > who are clearly trying their best to include all

> > important information, seems

> > to defeat the purpose. Sorry to get political on

> > here again, but it seems to

> > me that none of us have the energy to both fight

> > against each other and mend

> > the wounds of the new fractures that such fighting

> > creates.

> >

> > Peggy

> >

> >

>

>

> __________________________________________________

>